Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 Dear Terry, I am very far behind on reading the posts. I just got to yours this minute. It's been a very bad week for me and today is my 1st day up and around. Yesterday,the pain had me bedridden for 7 hrs before I could get up to take something for it. So, please excuse me for not responding and thanking you sooner. I want to thank you so much for your kind email. From what I gather noone has my particular combination of illnesses. But, although someone responded as to having taken a heart drug for the SOD, I don't believe anyone has taken procardia. Actually, I stopped taking it, also. I probably didn't give it a long enough chance, but after 4 or 5 days I don't think it did much, and I'd rather not be on a calcium channel blocker unless it had helped or unless necessary. Plus, I found I experienced a few side effects that contributed to my decision to stop. I have an appointment with the doctor on Monday, so I'll see what he says. He's a rare gem and I trust him. Again, thank you for your response. I hope you are doing as well as can be expected. Take care, Jill Re: bio and question Dear Jill, I haven't followed this thread closely, but I wanted to ask if anybody had gotten back to you about having experienced anything similar to what you had, or provided any answers to your question. I've not had SOD, nor the CF gene, nor have I tried the medication you mentioned, obviously, since you said that it was for SOD. I was just curious if you'd gotten good response. Granted, all this combined makes your request for more info or reply from others with similar experience probably very limited... but I'm sure you probably knew that already. That's probably a pretty small pool of folks to draw from! Anyway... I hadn't seen much about this and I wanted to check. If there is anything that I can do to help or anybody that I can refer you to, etc., I hope you will feel free to ask Jill! Take care and good luck, Terry in KC PANCREATITIS Association, Intl. Online e-mail group To reply to this message hit " reply " or send an e-mail to: Pancreatitis@... To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe@... Quote Link to comment Share on other sites More sharing options...
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