Lack of Information about PSC

[Guest guest]

I'm sorry that your son was diagnosed with PSC, I know it is a hard diagnosis to digest! I will tell you, though, that you have come to the right place. The people on this site are informative, helpful and have hearts twice the size of their livers. I'm glad you found this us.

As for your questions, some people do find some help with milk thistle, and I'm sure you'll get more responses on this. As far as diet is concerned there is nothing that will reverse the damage, or slow the progression, but a low fat diet will certainly reduce his discomfort! Most of us notice that a meal high in fat will cause right upper quadrant pain, and that includes the back, and up between the shoulder blades. Often, it will also make itching (associated with liver disease) worse. I highly recommend keeping him on a low fat diet.

Also, there is a site loaded with literature on PSC. You will find it at: http://www.psc-literature.org/. You will find answers and support beyond belief at this site, so feel free to ask any question!

Take care!

(MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs

[Guest guest]

I'm sorry that your son was diagnosed with PSC, I know it is a hard diagnosis to digest! I will tell you, though, that you have come to the right place. The people on this site are informative, helpful and have hearts twice the size of their livers. I'm glad you found this us.

As for your questions, some people do find some help with milk thistle, and I'm sure you'll get more responses on this. As far as diet is concerned there is nothing that will reverse the damage, or slow the progression, but a low fat diet will certainly reduce his discomfort! Most of us notice that a meal high in fat will cause right upper quadrant pain, and that includes the back, and up between the shoulder blades. Often, it will also make itching (associated with liver disease) worse. I highly recommend keeping him on a low fat diet.

Also, there is a site loaded with literature on PSC. You will find it at: http://www.psc-literature.org/. You will find answers and support beyond belief at this site, so feel free to ask any question!

Take care!

(MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs

[Guest guest]

I'm sorry that your son was diagnosed with PSC, I know it is a hard diagnosis to digest! I will tell you, though, that you have come to the right place. The people on this site are informative, helpful and have hearts twice the size of their livers. I'm glad you found this us.

As for your questions, some people do find some help with milk thistle, and I'm sure you'll get more responses on this. As far as diet is concerned there is nothing that will reverse the damage, or slow the progression, but a low fat diet will certainly reduce his discomfort! Most of us notice that a meal high in fat will cause right upper quadrant pain, and that includes the back, and up between the shoulder blades. Often, it will also make itching (associated with liver disease) worse. I highly recommend keeping him on a low fat diet.

Also, there is a site loaded with literature on PSC. You will find it at: http://www.psc-literature.org/. You will find answers and support beyond belief at this site, so feel free to ask any question!

Take care!

(MO)PSC & UC '84, chronic pancreatitis '97, listed for tx 06/05for details see www.caringbridge.org/visit/melaniejs

[Guest guest]

Hi all, my six year old son was diagnosed with PSC two weeks ago after

a liver biopsy. Back in June he got tummy pains and showed a little

bit of bloating, after weeks of waiting we finally got to see a gastro

specialist in August who believed he had Ulcerative Colitis, but waited

till he did colonoscopy. Hes on Pentasa, but his blooded work still

showed elevated liver function, so the doctor went on to scheduling a

liver biospy. The doctor said the biopsy showed there was some scarring

on the liver that is similar to those with PSC. Hes on the drug

Actigall now, but basically the doctor said the next step is just

follow- up appointments and to do nothing. My mom wants to be more pro-

active and give my son an herb called milk-thistle which some studies

have shown to help the liver. The doctor also said there really isnt

any diet either that can help the liver either. Is there anything I can

do to be more proactive in my sons health regaurding the PSC?