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Has anyone else had a problem with doctors doing a full MRI? Does a syrinx

cause back pain? Is back pain a usual symptom with Chiari, or should we be

looking for something else.

>

> Thank you for your help.

> , 's (15) mom

My daughter is going to have MR on her back tomorrow. My daughters doctor

said that back pain is a usual symptom whith chiari. So the doctor want to

se how the back looks before surgery.

And MR on my back shows that my back is very old, much older than I am

(LOL). degenerative change.

Kikki, na´s (13year) mom

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Has anyone else had a problem with doctors doing a full MRI? Does a syrinx

cause back pain? Is back pain a usual symptom with Chiari, or should we be

looking for something else.

>

> Thank you for your help.

> , 's (15) mom

My daughter is going to have MR on her back tomorrow. My daughters doctor

said that back pain is a usual symptom whith chiari. So the doctor want to

se how the back looks before surgery.

And MR on my back shows that my back is very old, much older than I am

(LOL). degenerative change.

Kikki, na´s (13year) mom

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Hi! This is Jim's girl friend. He has had some back pain after his fusion.

As he had a syrnix before his surgery, but with the way his neck was shaped they

thought it would go away. He was in the hospital ER this weekend, and they did

a full MRI and the syrnix is still there and as big as it was before the surgery

2/13/02. They think this is the cause of his back pain and his nausia. So from

his docs point of view, the syrnix could be causeing the back pain.

Hope this helps.

kikki wrote: Has anyone else had a problem with doctors

doing a full MRI? Does a syrinx

cause back pain? Is back pain a usual symptom with Chiari, or should we be

looking for something else.

>

> Thank you for your help.

> , 's (15) mom

My daughter is going to have MR on her back tomorrow. My daughters doctor

said that back pain is a usual symptom whith chiari. So the doctor want to

se how the back looks before surgery.

And MR on my back shows that my back is very old, much older than I am

(LOL). degenerative change.

Kikki, na´s (13year) mom

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Guest guest

Hi! This is Jim's girl friend. He has had some back pain after his fusion.

As he had a syrnix before his surgery, but with the way his neck was shaped they

thought it would go away. He was in the hospital ER this weekend, and they did

a full MRI and the syrnix is still there and as big as it was before the surgery

2/13/02. They think this is the cause of his back pain and his nausia. So from

his docs point of view, the syrnix could be causeing the back pain.

Hope this helps.

kikki wrote: Has anyone else had a problem with doctors

doing a full MRI? Does a syrinx

cause back pain? Is back pain a usual symptom with Chiari, or should we be

looking for something else.

>

> Thank you for your help.

> , 's (15) mom

My daughter is going to have MR on her back tomorrow. My daughters doctor

said that back pain is a usual symptom whith chiari. So the doctor want to

se how the back looks before surgery.

And MR on my back shows that my back is very old, much older than I am

(LOL). degenerative change.

Kikki, na´s (13year) mom

Help section: http://www.yahoogroups.com/help/

NOTE: NCC refers to posts with No Chiari Content

To Unsubscribe Yourself:

chiari-unsubscribe

WACMA Home: Http://www.wacma.com

WACMA Online Group: http://groups.yahoo.com/group/chiari/

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  • 11 months later...

She has low back pain over the s/l SLI.

I can't document this and was wondering if anyone has ever heard of it before.

I think he's referrring to the erector spinae muscles because she has pain,

numbness, and tingling in the cervical area all the way down to the low back.

Chief complaint is persistent low back pain, left leg pain with numbness and

tingling, numbness and tingling of upper extremity, neck pain, and headaches.

Impression is Failed back syndrome and Cervical radiculitis

Thanks alot,

Jody

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  • 3 years later...

Hi Debbie;

I'm so sorry to hear about your back pain. One possibility to

explore with your doctors, might be a condition

called " Sacroiliitis " :

http://www.mayoclinic.com/health/sacroiliitis/DS00726

" Sacroiliitis is an inflammation of one or both of the sacroiliac

joints, which connect your lower spine and pelvis.

The sacroiliac joints, also called SI joints, have a limited range

of motion compared with other major joints in your body, such as

your knee or elbow. With sacroiliitis, even the slightest movements

of your spine can be extremely uncomfortable or even painful.

Sacroiliitis is difficult for doctors to diagnose, and it may be

mistaken for other causes of low back pain, including sciatica,

herniated disks and strained muscles. Sacroiliitis is often

associated with a group of diseases called spondyloarthropathies,

which cause inflammatory arthritis of the spine. "

As noted in this article, above, " sacriliitis " can come from a group

of diseases called spondyloarthropathies. One of these

is " Ankylosing Spondylitis " which commonly affects the sacroiliac

joints:

http://www.medicinenet.com/ankylosing_spondylitis/article.htm

The spondyloarthropathies are, unfortunately, often associated with

inflammatory bowel diseases. Early recognition and appropriate

treatment can help prevent it from becoming debilitating. But I

understand it can be pretty difficult to diagnose in the early

stages!

I would recommend at least raising this possibility with your

doctors to see if these back pains could be early signs of

spondylitis?

I wish you all the best in getting to the root cause of your back

pain, and getting an effective treatment.

Best regards,

Dave

(father of (21); PSC 07/03; UC 08/03)

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Hi Debbien

I have had horrible back and muscle spasms for years also. The past couple years

I've started to get spasms down my legs etc.

What's really bad is when you're woken up by them, in tears and don't know

what's causing them. I think my crohns and the psc are to blame.

Amy - Reno, NV

Dx- crohns and psc

Sent via BlackBerry from Cingular Wireless

back pain

Help, please! Has anyone experienced what I've been going through?

For the past several years, I occasionally have lower (sacral area,

lower right buttocks & down my leg) pain so overwhelming I can't sit

or stand or walk or do anything but writhe about in pain. I haven't

been able to identify what triggers it. I started massage therapy

about a month ago in hopes of preventing it, but it came back stronger

than ever this past Friday night/all day Saturday. It fades after

mega-doses of pain killers & muscle relaxers, but nothing seems to

actually relieve or stop the recurrence of the episodes.

Once during an attack like this, my blood chemistry was all out of

whack, including a crit of 19, but my current family practice doctor

doesn't believe there's a correlation and won't check my blood

(although I am scheduled for xray tomorrow -Tuesday). My hep won't

address pain, he just sends me back to the family practice doc for

drugs. I have no jaundice and no fever - in fact the highest my temp

has reached in the past year is 97.2. My itching had been pretty bad

the preceding week, but has now subsided.

I'm only at stage 2 (biopsy was 2 months ago), but I've had the

disease for at least 7 years. When these back aches hit, I feel so

incredibly hopeless. Is this normal? Or totally unrelated? Any

ideas, friends?

Debbie in Seattle

UC 1972, J-Pouch 1991, chronic pouchitis, PSC formally diagnosed 2005,

stage 2

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