Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 You are not alone. It's a tough disease to have. In my opinion and I'm sure most people here, this disease cant be treated by your family doctor. This board does have a list of recomended doctors. Proper treatment will help all aspects of your life. There are many caring people here and it's a great place to come for support. Will keep you in my prayers, Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 You are not alone. It's a tough disease to have. In my opinion and I'm sure most people here, this disease cant be treated by your family doctor. This board does have a list of recomended doctors. Proper treatment will help all aspects of your life. There are many caring people here and it's a great place to come for support. Will keep you in my prayers, Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I'm sorry to hear of your frustrations concerning your DR's. I think I speak for lots of people when I tell you some dr.s just don't have our best interests at heart. My suggestion to you is to find yourself a different primary. I say this with firsthand experience. Alot of dr's just want to give you a pill and make you go away. If your dr. doesn't want to work " with " you they are'nt working for you.. I used to have a dr. that made me feel like I was bothering him with my problems. He seem to find a way to minimize my pain and problems. There are alot of good dr's out there. I know it's a challenge but it's worth the effort. Good Luck to you Ronda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I'm sorry to hear of your frustrations concerning your DR's. I think I speak for lots of people when I tell you some dr.s just don't have our best interests at heart. My suggestion to you is to find yourself a different primary. I say this with firsthand experience. Alot of dr's just want to give you a pill and make you go away. If your dr. doesn't want to work " with " you they are'nt working for you.. I used to have a dr. that made me feel like I was bothering him with my problems. He seem to find a way to minimize my pain and problems. There are alot of good dr's out there. I know it's a challenge but it's worth the effort. Good Luck to you Ronda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 I'm sorry to hear of your frustrations concerning your DR's. I think I speak for lots of people when I tell you some dr.s just don't have our best interests at heart. My suggestion to you is to find yourself a different primary. I say this with firsthand experience. Alot of dr's just want to give you a pill and make you go away. If your dr. doesn't want to work " with " you they are'nt working for you.. I used to have a dr. that made me feel like I was bothering him with my problems. He seem to find a way to minimize my pain and problems. There are alot of good dr's out there. I know it's a challenge but it's worth the effort. Good Luck to you Ronda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Dear Frustrated and Sad, You could try to find a different primary physician that you would feel comfortable working with over a long period of time, but most importantly, is to get a referral immediately to an experienced Gastroenterologist. They specialize in pancreatic diseases and are infinitely more knowledgeable than a GP. They know what tests to do, what procedures are necessary, and generally, since they work daily with patients with pancreatitis (acute, chronic and cancer), are much more sympathetic and intune with your specific problems and needs. I have had acute pancreatitis and now have chronic pancreatitis, and I presently do not even have a GP that I see on a regular basis...my Gastro Dr. handles my treatment. It is a frustrating and sad, and often misunderstood disease..... that needs to be treated by a professional. It doesn't " go away " . There are many more options available to you, that will help you handle the pain and the dietary restrictions that are so very important. You need to be proactive about it, after all, it's your body! I think it's criminal for a doctor to hand out prevacid and a quilt trip thinking that is adequate care! There are also many people on this board who are here to listen to your frustrations, sadness and questions, and help you find anwers. Please don't hesitate to ask. We all care, because we, or our partners, or children, or parents, have experienced pancreatitis disease and it's many, many related medical problems. You are not alone. Good luck and God Bless, Heidi in SC > i have had my second major attack of pancreatitis within 2 years. the > first time I had it, my PCP(primaryMD)thought he could treat himself, I think I am beginning to enter the chronic stage, can't > seem to find a decent quality of life with this disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 > I'm sorry to hear of your frustrations concerning your DR's. > I think I speak for lots of people when I tell you some dr.s > just don't have our best interests at heart. My suggestion to > you is to find yourself a different primary. I say this with > firsthand experience. Alot of dr's just want to give you a > pill and make you go away. If your dr. doesn't want to work > " with " you they are'nt working for you.. I used to have a dr. > that made me feel like I was bothering him with my problems. He > seem to find a way to minimize my pain and problems. There are > alot of good dr's out there. I know it's a challenge but it's > worth the effort. Good Luck to you > Ronda thanks for your ongoing support Rhonda, My name is and I am actively pursuing appropriate treatment for this disease, the unfortunate thing is not having timely Gi appointments... the most frustrating of all is not having insurance approval to go to see another Gi for proactive treatment of this ugly disease. I have had the pleasure of speaking with Heidi in the chat room the other day and did not feel so alone any more... maybe this is not in my head after all....!! I am dropping the pounds on a w eekly basis... low fat diet does not enable one to put on suitable weight to fend off any other dissease that comes down the pike... the last time I saw the Gi that did the ERCP, he said " still don't know what caused these episodes, just eat balanced diet and hope you donnn't have another attack " " not an answer I wanted to hear. one month later, ate dinner out with friends landed in the ER.. was told that A & L were normal, given pain meds and send home... GI was called... didn't come in to ER or call me... called his office and made appt... was given one for 10 weeks later... and her I sit,, in pain, can't eat.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 > I'm sorry to hear of your frustrations concerning your DR's. > I think I speak for lots of people when I tell you some dr.s > just don't have our best interests at heart. My suggestion to > you is to find yourself a different primary. I say this with > firsthand experience. Alot of dr's just want to give you a > pill and make you go away. If your dr. doesn't want to work > " with " you they are'nt working for you.. I used to have a dr. > that made me feel like I was bothering him with my problems. He > seem to find a way to minimize my pain and problems. There are > alot of good dr's out there. I know it's a challenge but it's > worth the effort. Good Luck to you > Ronda thanks for your ongoing support Rhonda, My name is and I am actively pursuing appropriate treatment for this disease, the unfortunate thing is not having timely Gi appointments... the most frustrating of all is not having insurance approval to go to see another Gi for proactive treatment of this ugly disease. I have had the pleasure of speaking with Heidi in the chat room the other day and did not feel so alone any more... maybe this is not in my head after all....!! I am dropping the pounds on a w eekly basis... low fat diet does not enable one to put on suitable weight to fend off any other dissease that comes down the pike... the last time I saw the Gi that did the ERCP, he said " still don't know what caused these episodes, just eat balanced diet and hope you donnn't have another attack " " not an answer I wanted to hear. one month later, ate dinner out with friends landed in the ER.. was told that A & L were normal, given pain meds and send home... GI was called... didn't come in to ER or call me... called his office and made appt... was given one for 10 weeks later... and her I sit,, in pain, can't eat.. Quote Link to comment Share on other sites More sharing options...
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