Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi , Thanx for that - and sorry to be a bit late in replying - has been ill, (flu/resp distress etc) and we've been battling down here, but I will save this and ask the hospital whether we can get it here in NZ for use at home. Unfortunately, the dreaded status DID come calling with this illness, battling along with increased diaz at home at the moment, but we don't want to leave him on big amounts for much longer, in case he forms an addiction to the higher levels - so, it looks like this may have (unfortunately....) been a timely discussion Will let you know what they have to say, ----- Original Message ----- > Hi , > > Just wanted to let you know that we tracked down paraldehyde in the US as > EVERYTHING we were giving Jake when he went into status was not working and > he was having up to 3 hour seizures and I needed to find some way to help > him. The neuros we spoke to told us that in their training days they never > saw a case of status that Paraldehyde did not stop. So the hunt began. I > found a compounding pharmacy that would make it for us (after I found the > supplier) and we have given it to Jake probably 3 or 4 times this year and > YES it does stop status! It is still used in Europe in hospitals and my > understanding is that it was taken off the market in the US because it did > not have a drug company behind it !!!!! It can be difficult to use and > should not be kept in plastic but we do use a plastic syringe to draw up the > medicine and then we inject it rectally immediately. The plastic syringe > always stays in tact afterwards??? > > Anyway, I just wanted to let you know that we have used it with success many > times as you mentioned that it helps you to know such things should you need > to use this in an emergency with . > > Hope all is well. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 > save this and ask the hospital whether we can get it here in NZ for use at > home. Hi , If you can't get paraldehyde in NZ maybe ask about heminuren (you may have to find the correct spelling, i'm not sure if this is right) I think that its the same kind of thing as paraldehyde. Best of Luck, Hope is getting better. Jeni Down Under Quote Link to comment Share on other sites More sharing options...
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