Ronna's update (everything mentioned)

September 30, 2003

Hi,

I haven't been on the board in a few months, but I wanted to share my

updates with you. A brief recap - I had 3 early m/c's before I was

diagnosed with BU in June. I was told to TTC. But something was

nagging me, and I had a hard time believing the BU dx, so I met with

the radiologist to review the MRI. It turned out I am SU, not BU. The

next week I found out I was pg. Like , I had thoughts of

terminating, but decided to try to go forward. Unfortunately I had

some bleeding in August when I was 7 weeks pg, and no heartbeat was

seen at 8 weeks. It all ended with a D/C in September. It's been a

rough summer.

But I have something to look forward to (finally!). I met with a new

doctor yesterday (but in the same group as the RE that misdiagnosed

my SU) and am scheduled for the septum resection in December. He

recommended waiting 3 months after the D/C so my uterus can get back

it's regular shape. We talked all about the procedure and I feel

pretty comfortable with him. I don't have many choices of REs here in

Vermont, so I am glad that I liked him. He said he pioneered the use

of hysteroscopes at University of Connecticut Med Center years ago,

and has done many septum resections in his career.

He does a hysteroscope without a lap, unless he can't see well

enough, then he will go ahead and do the lap. No lap means shorter

recovery time, which would be nice. He will do a pre-op ultrasound to

get more familiar with my uterine structure before surgery. He uses

scissors for the resection, no balloon afterwards. 30 days of

estrogen, then some progesterone to start AF. I can ttc in March

(that seems so far away!). He said he normally does not do any

followup, but I am insisting on an HSG or something to make sure that

darn septum is gone, and he said ok to that.

I had pretty much lost faith in my previous RE after she accepted the

incorrect radiology report and told me without question I was BU. She

also is on the younger side, so I was not confident in her experience

level. So I am feeling much better. Now I just have to wait for AF to

appear so I can schedule a surgery date in December that is between

CD 1-14, which is what my new RE would prefer. The possible dates are

12/10 or 12/24. It's been 3 weeks since the D/C, so I am hoping AF

will show up soon.

Thanks again for everyone's help, I don't know what I would have done

without this board!

Ronna

SU, 4 mc

September 30, 2003

Ronna,

First of all, I'm so terribly sorry for your losses!

Congratulations on a correct dx. I know the feeling, I was told I

was BU, and the RE I was referred to accepted that based on an

Ultrasound and HSG, no lap or MRI to confirm.

The Peri she referred me to did a pelvic exam and said he

could " feel " that I was either BU/SU or " arcuate " but that it wasn't

severe and I " wouldn't be crazy " to just go home and TTC. ( I had a

history of early mc, lost two at between 7 and 8 weeks). Well, as

you said you felt wrong with your DX, I KNEW this guy was nuts. I

found a new RE. WEll, almost a year later, here I am with a lap/hyst

under my belt to confirm that it WAS SU. I also had endometriosis,

and my RE said if it had been left, a couple of years from now it

could have done serious damage to my ovaries. There are many stories

like yours and mine on here.

I know it sounds far away, just take it one day at a time knowing

that your patience and determination now will pay off later. The way

I see it, every test I have now before I get pg, one less thing to

worry about being " wrong with me " when I do get pg...

Thanks for sharing your story with us!

Angie

SU resected 3/03

CD 3 - starting 3rd clomid cycle, second on 100 mg

FINALLY green light TTC!

> Hi,

> I haven't been on the board in a few months, but I wanted to share

my

> updates with you. A brief recap - I had 3 early m/c's before I was

> diagnosed with BU in June. I was told to TTC. But something was

> nagging me, and I had a hard time believing the BU dx, so I met

with

> the radiologist to review the MRI. It turned out I am SU, not BU.

The

> next week I found out I was pg. Like , I had thoughts of

> terminating, but decided to try to go forward. Unfortunately I had

> some bleeding in August when I was 7 weeks pg, and no heartbeat

was

> seen at 8 weeks. It all ended with a D/C in September. It's been a

> rough summer.

>

> But I have something to look forward to (finally!). I met with a

new

> doctor yesterday (but in the same group as the RE that

misdiagnosed

> my SU) and am scheduled for the septum resection in December. He

> recommended waiting 3 months after the D/C so my uterus can get

back

> it's regular shape. We talked all about the procedure and I feel

> pretty comfortable with him. I don't have many choices of REs here

in

> Vermont, so I am glad that I liked him. He said he pioneered the

use

> of hysteroscopes at University of Connecticut Med Center years

ago,

> and has done many septum resections in his career.

>

> He does a hysteroscope without a lap, unless he can't see well

> enough, then he will go ahead and do the lap. No lap means shorter

> recovery time, which would be nice. He will do a pre-op ultrasound

to

> get more familiar with my uterine structure before surgery. He

uses

> scissors for the resection, no balloon afterwards. 30 days of

> estrogen, then some progesterone to start AF. I can ttc in March

> (that seems so far away!). He said he normally does not do any

> followup, but I am insisting on an HSG or something to make sure

that

> darn septum is gone, and he said ok to that.

>

> I had pretty much lost faith in my previous RE after she accepted

the

> incorrect radiology report and told me without question I was BU.

She

> also is on the younger side, so I was not confident in her

experience

> level. So I am feeling much better. Now I just have to wait for AF

to

> appear so I can schedule a surgery date in December that is

between

> CD 1-14, which is what my new RE would prefer. The possible dates

are

> 12/10 or 12/24. It's been 3 weeks since the D/C, so I am hoping AF

> will show up soon.

>

> Thanks again for everyone's help, I don't know what I would have

done

> without this board!

>

> Ronna

> SU, 4 mc

September 30, 2003