Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Lori, how big a difference did it make when you went from 1.4 to 3.3? Was it an immediate change in seizure control? I'm just wondering because when we've tried to wean Jake, seizures start to increase as well. I've only made it to 2.7. We just went from 3.0 to 2.9 a month ago, I'm getting ready to go to 2.8.....slow and steady is the key. How long were you at 1.4 before the problems kicked in? And did you see a steady increase in seizures as you lowered...or was it when she reached her breaking point at that exact ratio so to speak? It's a tough position to be in...Jake's 6+ years now, and I'm so tired of the diet (for him and for me) but as long as there are no viable alternatives, what is the choice? Barb Swoyer, Jake's mom Protein slant > Listmates: > > As some of you will remember, Ainsley has been on the KGD for 7 years now. 2 > years ago we had finally weaned down on the diet to a ratio of 1.4:1 -- with > a heavy slant to protein. Still, she was getting plenty of those yummy carbs. > Well, apparently her brain couldn't handle the glucose from the carbs > because she started having horrible seizures and psychotic behaviour when the bottom > fell out. So, back up on the diet to a 3.3:1. She is currently on a 2.95:1 > ratio. And as we continue to slowly drop ratio it will definitely be slanted > to protein as I am very leary of Ainsley's ability to handle too many carbs. > > In addition, her neuro wanted a heavier slant to protein because of her BUN > lab results. > > The downside to the protein slant is that protein is acidic in nature and > that isn't helping her osteoprosis any. I really would have preferred to have > been able to use some alkaline veggie/fruits instead > > I agree that just the mere fact of being in ketosis affects growth. Ainsley > is in the -5% and has been the entire diet. > > Ainsley will remain on the diet until . . . who really knows? Right now we > are going to try to make it through puberty, with the best seizure control > possible for her. And that control appears to be best acheived by the ketogenic > diet. We will see how effective it is when she actually starts having her > period. She's a late bloomer at almost 15 years old > > Lori > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
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