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Comments below starting with ========Jackie

(Sorry! After I was all done, I realized I used this last time, but no time to

change all of them!)

In frequent-dose-chelation , Joni wrote:

Hi again Jackie... it's again the time of the day when the burning is

really intense. It feels right now like someone was barbequeing

inside of me.

=========This really sounds awful, Joni, I wish I knew exactly what to do for

you! You'll just have to keep thinking and trying to figure out what is causing

it. Do you exercise? That can mobilize mercury and make you feel worse

afterwards. Otherwise, I would keep thinking about foods and supplements as a

possible source of the problem. And I would definitely pursue amalgam removal,

so you can start/try chelation.-------------Jackie

Only a shower gives a short relief. :/ And strong

painkillers too but I'd rather not take them.

===============At least a shower gives you some relief. I know, I try not to

take stuff like painkillers, but sometimes you have to do what you have to

do.-------Jackie

Some comments of mine

are below:

>

> >

> ========Chlorella and MSM are single-thiol sulfury things that

are not true chelators, and usually just stir up more mercury, often

causing more problems and symptoms, which we refer to here as

redistribution. Since you reacted like that, I would suggest you

stay away from sulfury supplements and foods. And if your doctor

recommended these to you, then I would be wary of what else he/she

recommends, so check here or do some research yourself before trying

something again.----Jackie

Joni: I see. Here is a dumb question: which foods and supplement are

sulfury, can you give some examples? I will try to find some info

about on the net.

==============Do you have Andy's book, Amalgam Illness? Since you're a member

of this group, I was assuming you do. If you do, read pages 195-196, where he

talks about sulfur foods and supplements, and page 199, where he talks about

single and double thiols (double thiols are true chelators like DMSA, DMPS, and

ALA; single thiols are sulfury foods and supplements wich weakly grab onto

mercury and then probably drop it again, causing more redistribution and

possibly more damage, and hence symptoms.)

Some sulfur food examples: eggs, dairy products, things containing whey,

cruciferous vegetables like broccoli, cauliflower, etc, turnips, asparagus,

onions, garlic, and coffee. There are more.

Some sulfury supplements: cysteine, glutathione, MSM, DMSO, chlorella, dairy

source acidophilus, extracts of the above vegetables, and possibly herbal

extracts might have single thiols in them.

If you haven't yet, I suggest you click on Visit Your Group on the side of

these messages, and do some reading in the Links and Files sections. Lots of

good info there. Here is one of the links to the ANDY INDEX, where you can read

about lots of topics, including sulfur foods and supplements. And also get the

book, if you don't have it. It can be overwhelming, but we can point you to

certain pages on certain topics.----------Jackie

http://home.earthlink.net/~moriam/ANDY_INDEX.html

>>

> =======The protocol here is not to use ALA (or any chelator) when

you still have amalgams in your mouth. It is a true chelator that

crosses the blood brain barrier, and if you have a high body burden

of mercury (very likely with amalgams still in), then you might be

putting more mercury in your brain by using it now. It may have made

you feel a little better because it is a great antioxidant, but it is

safest to wait to use it at least 3 months after your amalgams have

been removed. Using it improperly can cause more redistribution.-----

------Jackie

Joni: Ok. Will stop taking ALA.

>> =========Which antibiotic? I seemed to have had a delayed

reaction to taking two courses of Levaquin this fall. I took all my

doses, I didn't have any immediate reactions to it, but after I

finished the second course, I started feeling worse, worse than since

before amalgam removal, like a whole bunch of mercury had been

stirred up, causing lots of redistribution and symptoms. It

definitely caused yeast/candida too, but these symptoms really felt

like mercury. So I have had a huge setback from this, and the only

thing that seems to be helping is rounds of chelation. So it's

interesting to me that you reacted also. Check the archives, because

this was discussed earlier this fall.------------Jackie

Joni: Oh boy you too!!! I wonder how many of us " floxies " there

really are. They are awful poisons. I took Floxin which belongs to

the same group as Levaquin. Have you read the sites about them on the

net?

=============No I haven't. We only discussed it here. Someone else who

doesn't post very often, said he had reacted badly also. You could search for

past posts by " ARCTIC CAT " and quinolones. If you have some links for me to

look at, that would be great.-------------------Jackie

>>

> =============It doesn't sound crazy to me, because something or

some kind of reaction happened to me also after having that type of

antibiotic.--------Jackie

Joni: Exactly what kind of reaction did you have, what symptoms?

===========I didn't notice anything right away or even while I was taking

them. I had IV antibiotics and then 10 days of Levaquin after my appendix

ruptured in August. I can't say that I noticed anything then, but I was pretty

wiped out by the whole experience, and I'm sure my body needed the antibiotics

to fight the infection. Then I was given another 6 days of Levaquin in early

October after having an upper GI, where they biopsied a cyst in my abdomen next

to my stomach. This was just pecautionary, since they punctured the cyst, and

where concerned about infection, especially because of my recent appendix

infection. Anyway, I also took those doses just fine, no immediate reaction to

them either. What I did notice right away was an increase in yeast, intestinal

and vaginal infection, which didn't surprise me. The first round caused some

yeast, not too bad, but the second dose really set that off big time. And I

felt worse from taking too much/many antifungals, and had to be careful not to

try to go too fast. But sometime after that second dose of Levaquin, I started

feeling worse mentally and emotionally, much worse actually, and it really felt

like a big stir-up of mercury symptoms. I actually felt worse in October after

that procedure and dose of Levaquin, than I had felt in September, right after

my appendix ordeal. So something in October made me much worse, and I have

suspected the Levaquin, but I don't know for sure. It sure seems like something

stirred up the mercury, because I have been feeling quite bad when not on a

round, more noticeable than before all this happened, and the only thing that

seems to help is being on a round. And my first couple rounds of chelation

after this happened weren't as smooth as before either, I had somewhat of a

headache the first day or two, which usually doesn't happen to me, and that has

gone away again now. I have slowly started to feel a little more mentally and

emotionally stable, which I account to rounds of chelation. Anyway, sorry to

ramble on about this, but I have basically felt pretty crappy all fall, after

those 2 rounds of Levaquin.---------Jackie

>>

> =========I don't think you can apply Andy's counting rules to

their tests, but realize that alot of mercury toxic people have LOW

hair mercury because they are poor excretors of it. That's where the

counting rules for the essential elements comes in for determining

probable mercury poisoning. My hair mercury was very low, but I met

two of the counting rules, meaning deranged mineral transport caused

by mercury poisoning. Post your results when you get them, because

and Dean are pretty good at reading them.-------------Jackie

>

Joni: Okay I will do that!!

>

>

>

>

> ===========Good. Your symptoms and reactions to things certainly

sound like they could be mercury. Have you found a mercury free

dentist yet?--------Jackie

Joni: Yep, I believe there is one in my town here.

=============Check him out, see if you can talk to anybody who has been to

him. Check to see if he is a member of the IAOMT (it's the association of

mercury free dentists, their version of ADA), go to this website and click on

look for a dentist: www.iaomt.org You can also call DAMS (Dental Amalgam

Mercury Syndrome) and request an info packet and list of dentists in your area.

1- They're ok for dental info, but we don't follow their chelation

advice.--------Jackie

Thanks again!

=============You're welcome again! Gotta run and get in the shower. Lucky me

is due for a dental cleaning.----------Jackie

Joni

>

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In frequent-dose-chelation , Joni wrote:

Oh one more thing: I forgot to mention that I am also taking

Glutathione complex which has glutathione, glutamine, glycine,

metionine an cysteine. Maybe I should stop taking that also? My doc

gave me that because according to the liver test I have no glutathione

at all in my liver.

--------------Yes, some of these are sulfury, and this might be your problem,

especially the glutathione and cysteine for sure. And taking oral glutathione

is a waste of money, it is not absorbed through the gut. Glutamine, glycine,

and NAC are the precursors to glutathione, and those are the things you can take

to raise glutathione, if you're not sensitive to them, especially NAC

(N-Acetyl-Cysteine). And according to Andy, all chronically ill people are low

in glutathione, so this is not surprising. He says your body is just using it

up fast, not that you're not producing it. So don't freak out about this. I'm

low too. But I would definitely try dropping this supplement, and see if it

helps. It certainly sounds like you could be sulfur sensitive, and excluding or

limiting these things might help alot. Good luck!--------Jackie

Joni

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In frequent-dose-chelation , Joni wrote:

Oh one more thing: I forgot to mention that I am also taking

Glutathione complex which has glutathione, glutamine, glycine,

metionine an cysteine. Maybe I should stop taking that also? My doc

gave me that because according to the liver test I have no glutathione

at all in my liver.

--------------Yes, some of these are sulfury, and this might be your problem,

especially the glutathione and cysteine for sure. And taking oral glutathione

is a waste of money, it is not absorbed through the gut. Glutamine, glycine,

and NAC are the precursors to glutathione, and those are the things you can take

to raise glutathione, if you're not sensitive to them, especially NAC

(N-Acetyl-Cysteine). And according to Andy, all chronically ill people are low

in glutathione, so this is not surprising. He says your body is just using it

up fast, not that you're not producing it. So don't freak out about this. I'm

low too. But I would definitely try dropping this supplement, and see if it

helps. It certainly sounds like you could be sulfur sensitive, and excluding or

limiting these things might help alot. Good luck!--------Jackie

Joni

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Share on other sites

Hi Jackie and thanks for your comments. My comments start with a *

>

> =========This really sounds awful, Joni, I wish I knew exactly

what to do for you! You'll just have to keep thinking and trying to

figure out what is causing it. Do you exercise? That can mobilize

mercury and make you feel worse afterwards. Otherwise, I would keep

thinking about foods and supplements as a possible source of the

problem. And I would definitely pursue amalgam removal, so you can

start/try chelation.-------------Jackie

>

>

*Yes it is puzzling isnt it. My doctor knows a lot of things but

even she can't understand this. She suspects the heavy metals though.

Nope, I don't exercise much, the burning can start even if I'm just

laying on the bed or haven't done anything. I'm trying to avoid those

sulfury things now and see what that does.

>

>

>

>

>

> ==============Do you have Andy's book, Amalgam Illness? Since

you're a member of this group, I was assuming you do. If you do,

read pages 195-196, where he talks about sulfur foods and

supplements, and page 199, where he talks about single and double

thiols (double thiols are true chelators like DMSA, DMPS, and ALA;

single thiols are sulfury foods and supplements wich weakly grab onto

mercury and then probably drop it again, causing more redistribution

and possibly more damage, and hence symptoms.)

>

> Some sulfur food examples: eggs, dairy products, things

containing whey, cruciferous vegetables like broccoli, cauliflower,

etc, turnips, asparagus, onions, garlic, and coffee. There are more.

>

> Some sulfury supplements: cysteine, glutathione, MSM, DMSO,

chlorella, dairy source acidophilus, extracts of the above

vegetables, and possibly herbal extracts might have single thiols in

them.

>

> If you haven't yet, I suggest you click on Visit Your Group on

the side of these messages, and do some reading in the Links and

Files sections. Lots of good info there. Here is one of the links

to the ANDY INDEX, where you can read about lots of topics, including

sulfur foods and supplements. And also get the book, if you don't

have it. It can be overwhelming, but we can point you to certain

pages on certain topics.----------Jackie

>

> http://home.earthlink.net/~moriam/ANDY_INDEX.html

*Nope, I don't have the book yet. I will take a look at those links.

>

>

>

>

>

>>

>

>

> =============No I haven't. We only discussed it here. Someone

else who doesn't post very often, said he had reacted badly also.

You could search for past posts by " ARCTIC CAT " and quinolones. If

you have some links for me to look at, that would be great.-----------

--------Jackie

*Yep, I know Arctic Cat's story. She was badly poisoned by those

antibiotics but she recovered completely with ozone therapy. Here is

her story: http://blog.myspace.com/index.cfm?

fuseaction=blog.view & friendID=82765122 & blogID=136878243 & MyToken=66fd2f

32-3c5f-4a4e-858e-106843248740

And here is a fluoroquinolone yahoo group:

http://health.groups.yahoo.com/group/quinolones/

Another one with " survivor stories " :

http://health.groups.yahoo.com/group/Quinolone_Survivors/

And then some informative sites about those drugs: (beware, these can

be quite upsetting): www.fluoroquinolones.org, www.fqresearch.org

>

> ===========I didn't notice anything right away or even while I

was taking them. I had IV antibiotics and then 10 days of Levaquin

after my appendix ruptured in August. I can't say that I noticed

anything then, but I was pretty wiped out by the whole experience,

and I'm sure my body needed the antibiotics to fight the infection.

Then I was given another 6 days of Levaquin in early October after

having an upper GI, where they biopsied a cyst in my abdomen next to

my stomach. This was just pecautionary, since they punctured the

cyst, and where concerned about infection, especially because of my

recent appendix infection. Anyway, I also took those doses just

fine, no immediate reaction to them either. What I did notice right

away was an increase in yeast, intestinal and vaginal infection,

which didn't surprise me. The first round caused some yeast, not too

bad, but the second dose really set that off big time. And I felt

worse from taking too much/many antifungals, and had to be careful

not to try to go too fast. But sometime after that second dose of

Levaquin, I started feeling worse mentally and emotionally, much

worse actually, and it really felt like a big stir-up of mercury

symptoms. I actually felt worse in October after that procedure and

dose of Levaquin, than I had felt in September, right after my

appendix ordeal. So something in October made me much worse, and I

have suspected the Levaquin, but I don't know for sure. It sure

seems like something stirred up the mercury, because I have been

feeling quite bad when not on a round, more noticeable than before

all this happened, and the only thing that seems to help is being on

a round. And my first couple rounds of chelation after this happened

weren't as smooth as before either, I had somewhat of a headache the

first day or two, which usually doesn't happen to me, and that has

gone away again now. I have slowly started to feel a little more

mentally and emotionally stable, which I account to rounds of

chelation. Anyway, sorry to ramble on about this, but I have

basically felt pretty crappy all fall, after those 2 rounds of

Levaquin.---------Jackie

*Well, that sounds unpleasantly familiar. I bet the fqs have

something to do with you getting worse. They have done exactly that

to sooooo many people. When I took the first pill, I felt like my

whole brain was full of some poison. It was horrible.

>

>

>

>

> Joni: Yep, I believe there is one in my town here.

>

> =============Check him out, see if you can talk to anybody who

has been to him. Check to see if he is a member of the IAOMT (it's

the association of mercury free dentists, their version of ADA), go

to this website and click on look for a dentist:

www.iaomt.org You can also call DAMS (Dental Amalgam Mercury

Syndrome) and request an info packet and list of dentists in your

area. 1- They're ok for dental info, but we don't

follow their chelation advice.--------Jackie

>

>

*Well, actually I happen to live in Finland Europe so maybe that

phone number doesn't work here. :) But this dentist is specialized in

this stuff so he should be quite good. Anyway, it will take some

weeks before I go to him because I want to see my test results first.

Joni

>

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Share on other sites

Hi Jackie and thanks for your comments. My comments start with a *

>

> =========This really sounds awful, Joni, I wish I knew exactly

what to do for you! You'll just have to keep thinking and trying to

figure out what is causing it. Do you exercise? That can mobilize

mercury and make you feel worse afterwards. Otherwise, I would keep

thinking about foods and supplements as a possible source of the

problem. And I would definitely pursue amalgam removal, so you can

start/try chelation.-------------Jackie

>

>

*Yes it is puzzling isnt it. My doctor knows a lot of things but

even she can't understand this. She suspects the heavy metals though.

Nope, I don't exercise much, the burning can start even if I'm just

laying on the bed or haven't done anything. I'm trying to avoid those

sulfury things now and see what that does.

>

>

>

>

>

> ==============Do you have Andy's book, Amalgam Illness? Since

you're a member of this group, I was assuming you do. If you do,

read pages 195-196, where he talks about sulfur foods and

supplements, and page 199, where he talks about single and double

thiols (double thiols are true chelators like DMSA, DMPS, and ALA;

single thiols are sulfury foods and supplements wich weakly grab onto

mercury and then probably drop it again, causing more redistribution

and possibly more damage, and hence symptoms.)

>

> Some sulfur food examples: eggs, dairy products, things

containing whey, cruciferous vegetables like broccoli, cauliflower,

etc, turnips, asparagus, onions, garlic, and coffee. There are more.

>

> Some sulfury supplements: cysteine, glutathione, MSM, DMSO,

chlorella, dairy source acidophilus, extracts of the above

vegetables, and possibly herbal extracts might have single thiols in

them.

>

> If you haven't yet, I suggest you click on Visit Your Group on

the side of these messages, and do some reading in the Links and

Files sections. Lots of good info there. Here is one of the links

to the ANDY INDEX, where you can read about lots of topics, including

sulfur foods and supplements. And also get the book, if you don't

have it. It can be overwhelming, but we can point you to certain

pages on certain topics.----------Jackie

>

> http://home.earthlink.net/~moriam/ANDY_INDEX.html

*Nope, I don't have the book yet. I will take a look at those links.

>

>

>

>

>

>>

>

>

> =============No I haven't. We only discussed it here. Someone

else who doesn't post very often, said he had reacted badly also.

You could search for past posts by " ARCTIC CAT " and quinolones. If

you have some links for me to look at, that would be great.-----------

--------Jackie

*Yep, I know Arctic Cat's story. She was badly poisoned by those

antibiotics but she recovered completely with ozone therapy. Here is

her story: http://blog.myspace.com/index.cfm?

fuseaction=blog.view & friendID=82765122 & blogID=136878243 & MyToken=66fd2f

32-3c5f-4a4e-858e-106843248740

And here is a fluoroquinolone yahoo group:

http://health.groups.yahoo.com/group/quinolones/

Another one with " survivor stories " :

http://health.groups.yahoo.com/group/Quinolone_Survivors/

And then some informative sites about those drugs: (beware, these can

be quite upsetting): www.fluoroquinolones.org, www.fqresearch.org

>

> ===========I didn't notice anything right away or even while I

was taking them. I had IV antibiotics and then 10 days of Levaquin

after my appendix ruptured in August. I can't say that I noticed

anything then, but I was pretty wiped out by the whole experience,

and I'm sure my body needed the antibiotics to fight the infection.

Then I was given another 6 days of Levaquin in early October after

having an upper GI, where they biopsied a cyst in my abdomen next to

my stomach. This was just pecautionary, since they punctured the

cyst, and where concerned about infection, especially because of my

recent appendix infection. Anyway, I also took those doses just

fine, no immediate reaction to them either. What I did notice right

away was an increase in yeast, intestinal and vaginal infection,

which didn't surprise me. The first round caused some yeast, not too

bad, but the second dose really set that off big time. And I felt

worse from taking too much/many antifungals, and had to be careful

not to try to go too fast. But sometime after that second dose of

Levaquin, I started feeling worse mentally and emotionally, much

worse actually, and it really felt like a big stir-up of mercury

symptoms. I actually felt worse in October after that procedure and

dose of Levaquin, than I had felt in September, right after my

appendix ordeal. So something in October made me much worse, and I

have suspected the Levaquin, but I don't know for sure. It sure

seems like something stirred up the mercury, because I have been

feeling quite bad when not on a round, more noticeable than before

all this happened, and the only thing that seems to help is being on

a round. And my first couple rounds of chelation after this happened

weren't as smooth as before either, I had somewhat of a headache the

first day or two, which usually doesn't happen to me, and that has

gone away again now. I have slowly started to feel a little more

mentally and emotionally stable, which I account to rounds of

chelation. Anyway, sorry to ramble on about this, but I have

basically felt pretty crappy all fall, after those 2 rounds of

Levaquin.---------Jackie

*Well, that sounds unpleasantly familiar. I bet the fqs have

something to do with you getting worse. They have done exactly that

to sooooo many people. When I took the first pill, I felt like my

whole brain was full of some poison. It was horrible.

>

>

>

>

> Joni: Yep, I believe there is one in my town here.

>

> =============Check him out, see if you can talk to anybody who

has been to him. Check to see if he is a member of the IAOMT (it's

the association of mercury free dentists, their version of ADA), go

to this website and click on look for a dentist:

www.iaomt.org You can also call DAMS (Dental Amalgam Mercury

Syndrome) and request an info packet and list of dentists in your

area. 1- They're ok for dental info, but we don't

follow their chelation advice.--------Jackie

>

>

*Well, actually I happen to live in Finland Europe so maybe that

phone number doesn't work here. :) But this dentist is specialized in

this stuff so he should be quite good. Anyway, it will take some

weeks before I go to him because I want to see my test results first.

Joni

>

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Share on other sites

Okay I will drop it and see what that does.

Btw, I had so called detoxigenomic test done and that showed that my

GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

result says it detoxifies heavy metals (Hg, Pb, Cd) and

that " decreased glutathione conjugation capacity may increase toxic

burden and increase oxidative stress resulting in a greater risk for

various cancers and fatigue syndromes, especially if exposed to toxic

compounds. " :o

> --------------Yes, some of these are sulfury, and this might be

your problem, especially the glutathione and cysteine for sure. And

taking oral glutathione is a waste of money, it is not absorbed

through the gut. Glutamine, glycine, and NAC are the precursors to

glutathione, and those are the things you can take to raise

glutathione, if you're not sensitive to them, especially NAC (N-

Acetyl-Cysteine). And according to Andy, all chronically ill people

are low in glutathione, so this is not surprising. He says your body

is just using it up fast, not that you're not producing it. So don't

freak out about this. I'm low too. But I would definitely try

dropping this supplement, and see if it helps. It certainly sounds

like you could be sulfur sensitive, and excluding or limiting these

things might help alot. Good luck!--------Jackie

>

>

>

>

>

> Joni

>

>

>

>

>

>

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Share on other sites

Okay I will drop it and see what that does.

Btw, I had so called detoxigenomic test done and that showed that my

GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

result says it detoxifies heavy metals (Hg, Pb, Cd) and

that " decreased glutathione conjugation capacity may increase toxic

burden and increase oxidative stress resulting in a greater risk for

various cancers and fatigue syndromes, especially if exposed to toxic

compounds. " :o

> --------------Yes, some of these are sulfury, and this might be

your problem, especially the glutathione and cysteine for sure. And

taking oral glutathione is a waste of money, it is not absorbed

through the gut. Glutamine, glycine, and NAC are the precursors to

glutathione, and those are the things you can take to raise

glutathione, if you're not sensitive to them, especially NAC (N-

Acetyl-Cysteine). And according to Andy, all chronically ill people

are low in glutathione, so this is not surprising. He says your body

is just using it up fast, not that you're not producing it. So don't

freak out about this. I'm low too. But I would definitely try

dropping this supplement, and see if it helps. It certainly sounds

like you could be sulfur sensitive, and excluding or limiting these

things might help alot. Good luck!--------Jackie

>

>

>

>

>

> Joni

>

>

>

>

>

>

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Share on other sites

I just called my doc and she said that I definitely NEED to take

glutathione as a supplement because I don't have the glutathione-gene

at all... oh well, dont' know what to do now... :/

>

> Okay I will drop it and see what that does.

>

> Btw, I had so called detoxigenomic test done and that showed that

my

> GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

> result says it detoxifies heavy metals (Hg, Pb, Cd) and

> that " decreased glutathione conjugation capacity may increase toxic

> burden and increase oxidative stress resulting in a greater risk

for

> various cancers and fatigue syndromes, especially if exposed to

toxic

> compounds. " :o

>

>

>

>

> > --------------Yes, some of these are sulfury, and this might be

> your problem, especially the glutathione and cysteine for sure.

And

> taking oral glutathione is a waste of money, it is not absorbed

> through the gut. Glutamine, glycine, and NAC are the precursors to

> glutathione, and those are the things you can take to raise

> glutathione, if you're not sensitive to them, especially NAC (N-

> Acetyl-Cysteine). And according to Andy, all chronically ill

people

> are low in glutathione, so this is not surprising. He says your

body

> is just using it up fast, not that you're not producing it. So

don't

> freak out about this. I'm low too. But I would definitely try

> dropping this supplement, and see if it helps. It certainly sounds

> like you could be sulfur sensitive, and excluding or limiting these

> things might help alot. Good luck!--------Jackie

> >

> >

> >

> >

> >

> > Joni

> >

> >

> >

> >

> >

> >

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Share on other sites

I just called my doc and she said that I definitely NEED to take

glutathione as a supplement because I don't have the glutathione-gene

at all... oh well, dont' know what to do now... :/

>

> Okay I will drop it and see what that does.

>

> Btw, I had so called detoxigenomic test done and that showed that

my

> GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

> result says it detoxifies heavy metals (Hg, Pb, Cd) and

> that " decreased glutathione conjugation capacity may increase toxic

> burden and increase oxidative stress resulting in a greater risk

for

> various cancers and fatigue syndromes, especially if exposed to

toxic

> compounds. " :o

>

>

>

>

> > --------------Yes, some of these are sulfury, and this might be

> your problem, especially the glutathione and cysteine for sure.

And

> taking oral glutathione is a waste of money, it is not absorbed

> through the gut. Glutamine, glycine, and NAC are the precursors to

> glutathione, and those are the things you can take to raise

> glutathione, if you're not sensitive to them, especially NAC (N-

> Acetyl-Cysteine). And according to Andy, all chronically ill

people

> are low in glutathione, so this is not surprising. He says your

body

> is just using it up fast, not that you're not producing it. So

don't

> freak out about this. I'm low too. But I would definitely try

> dropping this supplement, and see if it helps. It certainly sounds

> like you could be sulfur sensitive, and excluding or limiting these

> things might help alot. Good luck!--------Jackie

> >

> >

> >

> >

> >

> > Joni

> >

> >

> >

> >

> >

> >

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I just called my doc and she said that I definitely NEED to take

glutathione as a supplement because I don't have the glutathione-gene

at all... oh well, dont' know what to do now... :/

>

> Okay I will drop it and see what that does.

>

> Btw, I had so called detoxigenomic test done and that showed that

my

> GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

> result says it detoxifies heavy metals (Hg, Pb, Cd) and

> that " decreased glutathione conjugation capacity may increase toxic

> burden and increase oxidative stress resulting in a greater risk

for

> various cancers and fatigue syndromes, especially if exposed to

toxic

> compounds. " :o

>

>

>

>

> > --------------Yes, some of these are sulfury, and this might be

> your problem, especially the glutathione and cysteine for sure.

And

> taking oral glutathione is a waste of money, it is not absorbed

> through the gut. Glutamine, glycine, and NAC are the precursors to

> glutathione, and those are the things you can take to raise

> glutathione, if you're not sensitive to them, especially NAC (N-

> Acetyl-Cysteine). And according to Andy, all chronically ill

people

> are low in glutathione, so this is not surprising. He says your

body

> is just using it up fast, not that you're not producing it. So

don't

> freak out about this. I'm low too. But I would definitely try

> dropping this supplement, and see if it helps. It certainly sounds

> like you could be sulfur sensitive, and excluding or limiting these

> things might help alot. Good luck!--------Jackie

> >

> >

> >

> >

> >

> > Joni

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

> >

> > Okay I will drop it and see what that does.

> >

> > Btw, I had so called detoxigenomic test done and that showed that

> my

> > GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

> > result says it detoxifies heavy metals (Hg, Pb, Cd) and

> > that " decreased glutathione conjugation capacity may increase toxic

> > burden and increase oxidative stress resulting in a greater risk

> for

> > various cancers and fatigue syndromes, especially if exposed to

> toxic

> > compounds. " :o

> >

> >

> >

> >

> > > --------------Yes, some of these are sulfury, and this might be

> > your problem, especially the glutathione and cysteine for sure.

> And

> > taking oral glutathione is a waste of money, it is not absorbed

> > through the gut. Glutamine, glycine, and NAC are the precursors to

> > glutathione, and those are the things you can take to raise

> > glutathione, if you're not sensitive to them, especially NAC (N-

> > Acetyl-Cysteine). And according to Andy, all chronically ill

> people

> > are low in glutathione, so this is not surprising. He says your

> body

> > is just using it up fast, not that you're not producing it. So

> don't

> > freak out about this. I'm low too. But I would definitely try

> > dropping this supplement, and see if it helps. It certainly sounds

> > like you could be sulfur sensitive, and excluding or limiting these

> > things might help alot. Good luck!--------Jackie

> > >

> > >

> > >

> > >

> > >

> > > Joni

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> >

> > Okay I will drop it and see what that does.

> >

> > Btw, I had so called detoxigenomic test done and that showed that

> my

> > GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

> > result says it detoxifies heavy metals (Hg, Pb, Cd) and

> > that " decreased glutathione conjugation capacity may increase toxic

> > burden and increase oxidative stress resulting in a greater risk

> for

> > various cancers and fatigue syndromes, especially if exposed to

> toxic

> > compounds. " :o

> >

> >

> >

> >

> > > --------------Yes, some of these are sulfury, and this might be

> > your problem, especially the glutathione and cysteine for sure.

> And

> > taking oral glutathione is a waste of money, it is not absorbed

> > through the gut. Glutamine, glycine, and NAC are the precursors to

> > glutathione, and those are the things you can take to raise

> > glutathione, if you're not sensitive to them, especially NAC (N-

> > Acetyl-Cysteine). And according to Andy, all chronically ill

> people

> > are low in glutathione, so this is not surprising. He says your

> body

> > is just using it up fast, not that you're not producing it. So

> don't

> > freak out about this. I'm low too. But I would definitely try

> > dropping this supplement, and see if it helps. It certainly sounds

> > like you could be sulfur sensitive, and excluding or limiting these

> > things might help alot. Good luck!--------Jackie

> > >

> > >

> > >

> > >

> > >

> > > Joni

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> >

> > Okay I will drop it and see what that does.

> >

> > Btw, I had so called detoxigenomic test done and that showed that

> my

> > GSTM1-gene (glutathione-S-transferase)is totally ABSENT. The test

> > result says it detoxifies heavy metals (Hg, Pb, Cd) and

> > that " decreased glutathione conjugation capacity may increase toxic

> > burden and increase oxidative stress resulting in a greater risk

> for

> > various cancers and fatigue syndromes, especially if exposed to

> toxic

> > compounds. " :o

> >

> >

> >

> >

> > > --------------Yes, some of these are sulfury, and this might be

> > your problem, especially the glutathione and cysteine for sure.

> And

> > taking oral glutathione is a waste of money, it is not absorbed

> > through the gut. Glutamine, glycine, and NAC are the precursors to

> > glutathione, and those are the things you can take to raise

> > glutathione, if you're not sensitive to them, especially NAC (N-

> > Acetyl-Cysteine). And according to Andy, all chronically ill

> people

> > are low in glutathione, so this is not surprising. He says your

> body

> > is just using it up fast, not that you're not producing it. So

> don't

> > freak out about this. I'm low too. But I would definitely try

> > dropping this supplement, and see if it helps. It certainly sounds

> > like you could be sulfur sensitive, and excluding or limiting these

> > things might help alot. Good luck!--------Jackie

> > >

> > >

> > >

> > >

> > >

> > > Joni

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Hi Joni,

I'm agreeing with what others are saying.

You might find some relief if you stop all of the sulfury things that

your ND has you on (NAC, MSM, ALA, glutathione) and try a low sulfur

food diet.

In particular, taking high in frequent doses of ALA (100-200 mg is

high) is dangerous for a mercury poisoned person because it can drive

mercury and other metals INTO the brain and sensitive tissues.

Chelators should never be used with amalgams still in. The way to

resolve the problem is to have all amalgams removed with proper

protocols and then use small doses of ALA (starting 3 months after

amalgam removal) to chelate properly using Andy Cutler's protocol.

Supplementation with vitamin C, vitamin E and flax oil may help the

burning skin.

When you get your hair test you will find it very informative to post

the results in this group. I can tell already that your ND won't know

how to interpret it.

> >

> > Hi

> >

> > I just joined here. My doc suspects that I have a heavy metal

> problem

> > and a hair test was taken but it will take some weeks to get the

> > results.

> >

> > But here's a question: I've been having this horrible burning

> skin

> > sensation for many weeks now. It feels like the skin is sunburn

> or like

> > I had some acid under the skin stinging. It's pretty much all

> over the

> > body but mostly in arms, elbows, wrists, knees, thighs and

> calves.

> > Sometimes in the face too. It comes and goes. But usually it's

> worse if

> > I eat something with sugar in it. It usually disappears after the

> > shower but comes back maybe an hour later.

> >

> > Any idea/experiences what could this be? A mercury problem? (I

> have 5

> > amalgams in my mouth) Or some other heavy metal maybe? I'm

> getting

> > pretty desperate with this.

> >

> > Thanks!!

> >

> > Joni

> >

> >

> >

> >

> >

> >

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Hi Joni,

I'm agreeing with what others are saying.

You might find some relief if you stop all of the sulfury things that

your ND has you on (NAC, MSM, ALA, glutathione) and try a low sulfur

food diet.

In particular, taking high in frequent doses of ALA (100-200 mg is

high) is dangerous for a mercury poisoned person because it can drive

mercury and other metals INTO the brain and sensitive tissues.

Chelators should never be used with amalgams still in. The way to

resolve the problem is to have all amalgams removed with proper

protocols and then use small doses of ALA (starting 3 months after

amalgam removal) to chelate properly using Andy Cutler's protocol.

Supplementation with vitamin C, vitamin E and flax oil may help the

burning skin.

When you get your hair test you will find it very informative to post

the results in this group. I can tell already that your ND won't know

how to interpret it.

> >

> > Hi

> >

> > I just joined here. My doc suspects that I have a heavy metal

> problem

> > and a hair test was taken but it will take some weeks to get the

> > results.

> >

> > But here's a question: I've been having this horrible burning

> skin

> > sensation for many weeks now. It feels like the skin is sunburn

> or like

> > I had some acid under the skin stinging. It's pretty much all

> over the

> > body but mostly in arms, elbows, wrists, knees, thighs and

> calves.

> > Sometimes in the face too. It comes and goes. But usually it's

> worse if

> > I eat something with sugar in it. It usually disappears after the

> > shower but comes back maybe an hour later.

> >

> > Any idea/experiences what could this be? A mercury problem? (I

> have 5

> > amalgams in my mouth) Or some other heavy metal maybe? I'm

> getting

> > pretty desperate with this.

> >

> > Thanks!!

> >

> > Joni

> >

> >

> >

> >

> >

> >

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Share on other sites

Hi Joni,

I'm agreeing with what others are saying.

You might find some relief if you stop all of the sulfury things that

your ND has you on (NAC, MSM, ALA, glutathione) and try a low sulfur

food diet.

In particular, taking high in frequent doses of ALA (100-200 mg is

high) is dangerous for a mercury poisoned person because it can drive

mercury and other metals INTO the brain and sensitive tissues.

Chelators should never be used with amalgams still in. The way to

resolve the problem is to have all amalgams removed with proper

protocols and then use small doses of ALA (starting 3 months after

amalgam removal) to chelate properly using Andy Cutler's protocol.

Supplementation with vitamin C, vitamin E and flax oil may help the

burning skin.

When you get your hair test you will find it very informative to post

the results in this group. I can tell already that your ND won't know

how to interpret it.

> >

> > Hi

> >

> > I just joined here. My doc suspects that I have a heavy metal

> problem

> > and a hair test was taken but it will take some weeks to get the

> > results.

> >

> > But here's a question: I've been having this horrible burning

> skin

> > sensation for many weeks now. It feels like the skin is sunburn

> or like

> > I had some acid under the skin stinging. It's pretty much all

> over the

> > body but mostly in arms, elbows, wrists, knees, thighs and

> calves.

> > Sometimes in the face too. It comes and goes. But usually it's

> worse if

> > I eat something with sugar in it. It usually disappears after the

> > shower but comes back maybe an hour later.

> >

> > Any idea/experiences what could this be? A mercury problem? (I

> have 5

> > amalgams in my mouth) Or some other heavy metal maybe? I'm

> getting

> > pretty desperate with this.

> >

> > Thanks!!

> >

> > Joni

> >

> >

> >

> >

> >

> >

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Share on other sites

Thanks

I'm quite confused though. My doc said that I have to take oral

glutathione for the rest of my life because according to the Great

Smokies Detoxigenomic test my glutathione-gene is absent... Do you or

anybody else know if this absence means that my liver isn't producing

glutathione at all?!? This is so complicated. I don't have the book

yet.

Thanks for all the advice

Joni

> > >

> > > Hi

> > >

> > > I just joined here. My doc suspects that I have a heavy metal

> > problem

> > > and a hair test was taken but it will take some weeks to get

the

> > > results.

> > >

> > > But here's a question: I've been having this horrible burning

> > skin

> > > sensation for many weeks now. It feels like the skin is

sunburn

> > or like

> > > I had some acid under the skin stinging. It's pretty much all

> > over the

> > > body but mostly in arms, elbows, wrists, knees, thighs and

> > calves.

> > > Sometimes in the face too. It comes and goes. But usually

it's

> > worse if

> > > I eat something with sugar in it. It usually disappears after

the

> > > shower but comes back maybe an hour later.

> > >

> > > Any idea/experiences what could this be? A mercury problem?

(I

> > have 5

> > > amalgams in my mouth) Or some other heavy metal maybe? I'm

> > getting

> > > pretty desperate with this.

> > >

> > > Thanks!!

> > >

> > > Joni

> > >

> > >

> > >

> > >

> > >

> > >

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Share on other sites

Thanks

I'm quite confused though. My doc said that I have to take oral

glutathione for the rest of my life because according to the Great

Smokies Detoxigenomic test my glutathione-gene is absent... Do you or

anybody else know if this absence means that my liver isn't producing

glutathione at all?!? This is so complicated. I don't have the book

yet.

Thanks for all the advice

Joni

> > >

> > > Hi

> > >

> > > I just joined here. My doc suspects that I have a heavy metal

> > problem

> > > and a hair test was taken but it will take some weeks to get

the

> > > results.

> > >

> > > But here's a question: I've been having this horrible burning

> > skin

> > > sensation for many weeks now. It feels like the skin is

sunburn

> > or like

> > > I had some acid under the skin stinging. It's pretty much all

> > over the

> > > body but mostly in arms, elbows, wrists, knees, thighs and

> > calves.

> > > Sometimes in the face too. It comes and goes. But usually

it's

> > worse if

> > > I eat something with sugar in it. It usually disappears after

the

> > > shower but comes back maybe an hour later.

> > >

> > > Any idea/experiences what could this be? A mercury problem?

(I

> > have 5

> > > amalgams in my mouth) Or some other heavy metal maybe? I'm

> > getting

> > > pretty desperate with this.

> > >

> > > Thanks!!

> > >

> > > Joni

> > >

> > >

> > >

> > >

> > >

> > >

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Share on other sites

Thanks

I'm quite confused though. My doc said that I have to take oral

glutathione for the rest of my life because according to the Great

Smokies Detoxigenomic test my glutathione-gene is absent... Do you or

anybody else know if this absence means that my liver isn't producing

glutathione at all?!? This is so complicated. I don't have the book

yet.

Thanks for all the advice

Joni

> > >

> > > Hi

> > >

> > > I just joined here. My doc suspects that I have a heavy metal

> > problem

> > > and a hair test was taken but it will take some weeks to get

the

> > > results.

> > >

> > > But here's a question: I've been having this horrible burning

> > skin

> > > sensation for many weeks now. It feels like the skin is

sunburn

> > or like

> > > I had some acid under the skin stinging. It's pretty much all

> > over the

> > > body but mostly in arms, elbows, wrists, knees, thighs and

> > calves.

> > > Sometimes in the face too. It comes and goes. But usually

it's

> > worse if

> > > I eat something with sugar in it. It usually disappears after

the

> > > shower but comes back maybe an hour later.

> > >

> > > Any idea/experiences what could this be? A mercury problem?

(I

> > have 5

> > > amalgams in my mouth) Or some other heavy metal maybe? I'm

> > getting

> > > pretty desperate with this.

> > >

> > > Thanks!!

> > >

> > > Joni

> > >

> > >

> > >

> > >

> > >

> > >

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Share on other sites

  • 2 weeks later...

Hello, I'm very new to the site, and this is my first post! I get

this burning feeling as well. I have always wondered what caused

it...you described it perfectly...it's like a bad sunburn...clothing

brushing against it is painful, but there is never any redness or

rash or discoloration. I have recently confirmed that I have a

candida issue and I definitely have a heavey metal issue.

I have had 10 of my 11 amalgams removed and will have the last

removed next week, and am on day 5 of an anti-candida diet, so will

see if that helps at all.

>

> >

> > Hi

> >

> > I just joined here. My doc suspects that I have a heavy metal

> problem

> > and a hair test was taken but it will take some weeks to get the

> > results.

> >

> > But here's a question: I've been having this horrible burning

skin

> > sensation for many weeks now. It feels like the skin is sunburn

or

> like

> > I had some acid under the skin stinging. It's pretty much all

over

> the

> > body but mostly in arms, elbows, wrists, knees, thighs and

calves.

> > Sometimes in the face too. It comes and goes. But usually it's

> worse if

> > I eat something with sugar in it. It usually disappears after

the

> > shower but comes back maybe an hour later.

> >

> > Any idea/experiences what could this be? A mercury problem? (I

> have 5

> > amalgams in my mouth) Or some other heavy metal maybe? I'm

getting

> > pretty desperate with this.

> >

> > Thanks!!

> >

> > Joni

> >

>

Link to comment
Share on other sites

Hello, I'm very new to the site, and this is my first post! I get

this burning feeling as well. I have always wondered what caused

it...you described it perfectly...it's like a bad sunburn...clothing

brushing against it is painful, but there is never any redness or

rash or discoloration. I have recently confirmed that I have a

candida issue and I definitely have a heavey metal issue.

I have had 10 of my 11 amalgams removed and will have the last

removed next week, and am on day 5 of an anti-candida diet, so will

see if that helps at all.

>

> >

> > Hi

> >

> > I just joined here. My doc suspects that I have a heavy metal

> problem

> > and a hair test was taken but it will take some weeks to get the

> > results.

> >

> > But here's a question: I've been having this horrible burning

skin

> > sensation for many weeks now. It feels like the skin is sunburn

or

> like

> > I had some acid under the skin stinging. It's pretty much all

over

> the

> > body but mostly in arms, elbows, wrists, knees, thighs and

calves.

> > Sometimes in the face too. It comes and goes. But usually it's

> worse if

> > I eat something with sugar in it. It usually disappears after

the

> > shower but comes back maybe an hour later.

> >

> > Any idea/experiences what could this be? A mercury problem? (I

> have 5

> > amalgams in my mouth) Or some other heavy metal maybe? I'm

getting

> > pretty desperate with this.

> >

> > Thanks!!

> >

> > Joni

> >

>

Link to comment
Share on other sites

Hello, I'm very new to the site, and this is my first post! I get

this burning feeling as well. I have always wondered what caused

it...you described it perfectly...it's like a bad sunburn...clothing

brushing against it is painful, but there is never any redness or

rash or discoloration. I have recently confirmed that I have a

candida issue and I definitely have a heavey metal issue.

I have had 10 of my 11 amalgams removed and will have the last

removed next week, and am on day 5 of an anti-candida diet, so will

see if that helps at all.

>

> >

> > Hi

> >

> > I just joined here. My doc suspects that I have a heavy metal

> problem

> > and a hair test was taken but it will take some weeks to get the

> > results.

> >

> > But here's a question: I've been having this horrible burning

skin

> > sensation for many weeks now. It feels like the skin is sunburn

or

> like

> > I had some acid under the skin stinging. It's pretty much all

over

> the

> > body but mostly in arms, elbows, wrists, knees, thighs and

calves.

> > Sometimes in the face too. It comes and goes. But usually it's

> worse if

> > I eat something with sugar in it. It usually disappears after

the

> > shower but comes back maybe an hour later.

> >

> > Any idea/experiences what could this be? A mercury problem? (I

> have 5

> > amalgams in my mouth) Or some other heavy metal maybe? I'm

getting

> > pretty desperate with this.

> >

> > Thanks!!

> >

> > Joni

> >

>

Link to comment
Share on other sites

Hi there. Nice to know that I'm not alone with this crazy symptom.

Well not nice but.. you know what I mean. It's possible that candida

(also) might have something to do with this symptom. I've read

somewhere that somebody got rid of this symptom by doing a series of

colonics.

How long have you had the symptom?

Joni

> > >

> > > Hi

> > >

> > > I just joined here. My doc suspects that I have a heavy metal

> > problem

> > > and a hair test was taken but it will take some weeks to get

the

> > > results.

> > >

> > > But here's a question: I've been having this horrible burning

> skin

> > > sensation for many weeks now. It feels like the skin is sunburn

> or

> > like

> > > I had some acid under the skin stinging. It's pretty much all

> over

> > the

> > > body but mostly in arms, elbows, wrists, knees, thighs and

> calves.

> > > Sometimes in the face too. It comes and goes. But usually it's

> > worse if

> > > I eat something with sugar in it. It usually disappears after

> the

> > > shower but comes back maybe an hour later.

> > >

> > > Any idea/experiences what could this be? A mercury problem? (I

> > have 5

> > > amalgams in my mouth) Or some other heavy metal maybe? I'm

> getting

> > > pretty desperate with this.

> > >

> > > Thanks!!

> > >

> > > Joni

> > >

> >

>

Link to comment
Share on other sites

Hi there. Nice to know that I'm not alone with this crazy symptom.

Well not nice but.. you know what I mean. It's possible that candida

(also) might have something to do with this symptom. I've read

somewhere that somebody got rid of this symptom by doing a series of

colonics.

How long have you had the symptom?

Joni

> > >

> > > Hi

> > >

> > > I just joined here. My doc suspects that I have a heavy metal

> > problem

> > > and a hair test was taken but it will take some weeks to get

the

> > > results.

> > >

> > > But here's a question: I've been having this horrible burning

> skin

> > > sensation for many weeks now. It feels like the skin is sunburn

> or

> > like

> > > I had some acid under the skin stinging. It's pretty much all

> over

> > the

> > > body but mostly in arms, elbows, wrists, knees, thighs and

> calves.

> > > Sometimes in the face too. It comes and goes. But usually it's

> > worse if

> > > I eat something with sugar in it. It usually disappears after

> the

> > > shower but comes back maybe an hour later.

> > >

> > > Any idea/experiences what could this be? A mercury problem? (I

> > have 5

> > > amalgams in my mouth) Or some other heavy metal maybe? I'm

> getting

> > > pretty desperate with this.

> > >

> > > Thanks!!

> > >

> > > Joni

> > >

> >

>

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Share on other sites

Ha, yes, I know what you mean! :) I was also thinking the candida

might contribute. I've had this burning skin for years now, it comes

and goes and seems to be mostly on my arms and back or front

midsection. I've ocassionally had it on my legs, but fortunately not

often there. It's possible I've had both mercury and candida issues

for years. My antibiotic usage is mind-boggling. I'll check into

colonics. Thank you.

Donna

>

> Hi there. Nice to know that I'm not alone with this crazy symptom.

> Well not nice but.. you know what I mean. It's possible that candida

> (also) might have something to do with this symptom. I've read

> somewhere that somebody got rid of this symptom by doing a series of

> colonics.

>

> How long have you had the symptom?

>

> Joni

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