Re: Our second opinion. Your opinion wanted!

[Guest guest]

What results did they get from the ABR and the Middle Ear Muscle reflexes?

That would help alot to have those tests done. Especially since this is

obviously a confusing case.

Elaine

http://auditoryneuropathy.tripod.com/

Jake 8yrs Auditory Neuropathy/ADHD/ODD---- Clarion S-Series CI 2/99

Josh 9yrs Hearing/ADHD/ODD/AG

[Guest guest]

What results did they get from the ABR and the Middle Ear Muscle reflexes?

That would help alot to have those tests done. Especially since this is

obviously a confusing case.

Elaine

http://auditoryneuropathy.tripod.com/

Jake 8yrs Auditory Neuropathy/ADHD/ODD---- Clarion S-Series CI 2/99

Josh 9yrs Hearing/ADHD/ODD/AG

[Guest guest]

What results did they get from the ABR and the Middle Ear Muscle reflexes?

That would help alot to have those tests done. Especially since this is

obviously a confusing case.

Elaine

http://auditoryneuropathy.tripod.com/

Jake 8yrs Auditory Neuropathy/ADHD/ODD---- Clarion S-Series CI 2/99

Josh 9yrs Hearing/ADHD/ODD/AG

[Guest guest]

Don't wait. Go to another ENT. Call a local school for the deaf or early

intervention and get another recommendation for another ENT and/or

evaluation.

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Don't wait. Go to another ENT. Call a local school for the deaf or early

intervention and get another recommendation for another ENT and/or

evaluation.

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Don't wait. Go to another ENT. Call a local school for the deaf or early

intervention and get another recommendation for another ENT and/or

evaluation.

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

,

I would definitely get a second opinion. Even if you have to wait another

month for an appointment with a different doctor I would get a second

opinion. Two things make me nervous about your situation. The first being

that the doctor and audie don't agree. Someone's right and someone's wrong.

The other thing is that you say that your son's hearing loss is from an

antibiotic. My daughter's hearing loss is also from an ototoxic antibiotic,

and an ENT surgeon once told me that the hearing loss in both ears from that

kind of damage is usually close to the same amount of loss in both ears, if

not identical. Good luck!

Anne from MI -

Mom to 5 (N24C - 3G 6-24-02)

5 & Austin 8

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

[Guest guest]

,

I would definitely get a second opinion. Even if you have to wait another

month for an appointment with a different doctor I would get a second

opinion. Two things make me nervous about your situation. The first being

that the doctor and audie don't agree. Someone's right and someone's wrong.

The other thing is that you say that your son's hearing loss is from an

antibiotic. My daughter's hearing loss is also from an ototoxic antibiotic,

and an ENT surgeon once told me that the hearing loss in both ears from that

kind of damage is usually close to the same amount of loss in both ears, if

not identical. Good luck!

Anne from MI -

Mom to 5 (N24C - 3G 6-24-02)

5 & Austin 8

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

[Guest guest]

,

I would definitely get a second opinion. Even if you have to wait another

month for an appointment with a different doctor I would get a second

opinion. Two things make me nervous about your situation. The first being

that the doctor and audie don't agree. Someone's right and someone's wrong.

The other thing is that you say that your son's hearing loss is from an

antibiotic. My daughter's hearing loss is also from an ototoxic antibiotic,

and an ENT surgeon once told me that the hearing loss in both ears from that

kind of damage is usually close to the same amount of loss in both ears, if

not identical. Good luck!

Anne from MI -

Mom to 5 (N24C - 3G 6-24-02)

5 & Austin 8

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

[Guest guest]

I agree. Ototoxic drugs attack the cilia in both ears, high frequency

first. The audiograms look almost identical.

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

[Guest guest]

I agree. Ototoxic drugs attack the cilia in both ears, high frequency

first. The audiograms look almost identical.

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

[Guest guest]

I agree. Ototoxic drugs attack the cilia in both ears, high frequency

first. The audiograms look almost identical.

Our second opinion. Your opinion wanted!

I'm a new member to this list, and posted an introduction about a week ago

(18month old son Sam, adopted from Cambodia, treated with streptomycin,

diagnosed with moderate hearing loss).

Yesterday, we went to see a pediatric ENT (top guy in his field, professor

at Case Western Reserve University). Sam's middle ear looked fine to him

(the first audiologist we saw was concerned because of his " shallow

tympanogram " ). The doctor then had the audiologist on his staff repeat the

hearing test.

When she did the tympanogram in the left ear, Sam had a flat line. She

repeated it 4 times. Flate every time. His right ear tested fine. The

doctor then said he didn't trust that test because when he did the puff of

air in the ear, the eardrum looked fine. He said that's a " low tech

tympanogram " and he trusts that more.

In the sound booth, Sam never looked left, though he appeared pretty aware

of everything coming from the right speaker.

Then the audiologist repeated the OAE test. Again, his left tested poorly

(she repeated the test twice in that ear). The right tested in the normal

range, and Sam was visibly upset about the test being done on the right

side; he showed no reaction on the left.

After the test, the audiologist and ENT conferred and then came back in the

room. The audiologist seemed upset. The doctor explained that they

disagreed in their assessment. He believes Sammy's hearing is normal; that

the tests are a little fuzzy, and that he wants to repeat them in three

months when Sam has a better understanding of the English language, and

starts catching up with some of his developmental delays.

The audiologist believes that the left ear may have profound loss, but the

right ear is working normally. She said at this point, we shouldn't worry

because if a child hears normally out of one ear, their speech and language

will develop normally since the brain knows to process everything through

the one good ear.

Despite their reassurances, I am worried. To me, a lay person, it is

quite obvious that Sam is not hearing from the left side. I don't

understand how Sam's understanding of english or developmental delays could

have any effect on the OAE test. I am also worried because in the first

audiologist's assesment (2 weeks ago), she believed he had a mild loss in

his right ear. Are we losing precious time by waiting another 3 months to

retest?

Any opinions on this experience?

Thank you!

Mom to Gabe & Sam

[Guest guest]

--On Thursday, October 10, 2002, 10:35 AM -0400 DGIORDANO@... wrote:

> agree. Ototoxic drugs attack the cilia in both ears, high frequency

> first. The audiograms look almost identical.

This ENT does not believe that any loss would be due to the streptomycin

because neither hearing test has shown identical loss in both ears. The

first audiologist thought they were close enough that it could be caused by

the drugs.

Interestingly, this ENT said that the ototoxic drugs only cause problems

with the balance portion of the ear. This doesn't sound right to me at all!

Despite the reputation this man has aas " tops " in his field, I'm beginning

to wonder. He actually threw up his hands (literally) in the middle of

Sam's exam, and said " I don't know what to make of this " and then later

joked that he and the audiologist had $50 riding on whomever was right

about Sam's case. I wasn't really amused.

[Guest guest]

--On Thursday, October 10, 2002, 10:35 AM -0400 DGIORDANO@... wrote:

> agree. Ototoxic drugs attack the cilia in both ears, high frequency

> first. The audiograms look almost identical.

This ENT does not believe that any loss would be due to the streptomycin

because neither hearing test has shown identical loss in both ears. The

first audiologist thought they were close enough that it could be caused by

the drugs.

Interestingly, this ENT said that the ototoxic drugs only cause problems

with the balance portion of the ear. This doesn't sound right to me at all!

Despite the reputation this man has aas " tops " in his field, I'm beginning

to wonder. He actually threw up his hands (literally) in the middle of

Sam's exam, and said " I don't know what to make of this " and then later

joked that he and the audiologist had $50 riding on whomever was right

about Sam's case. I wasn't really amused.

[Guest guest]

--On Thursday, October 10, 2002, 10:35 AM -0400 DGIORDANO@... wrote:

> agree. Ototoxic drugs attack the cilia in both ears, high frequency

> first. The audiograms look almost identical.

This ENT does not believe that any loss would be due to the streptomycin

because neither hearing test has shown identical loss in both ears. The

first audiologist thought they were close enough that it could be caused by

the drugs.

Interestingly, this ENT said that the ototoxic drugs only cause problems

with the balance portion of the ear. This doesn't sound right to me at all!

Despite the reputation this man has aas " tops " in his field, I'm beginning

to wonder. He actually threw up his hands (literally) in the middle of

Sam's exam, and said " I don't know what to make of this " and then later

joked that he and the audiologist had $50 riding on whomever was right

about Sam's case. I wasn't really amused.

[Guest guest]

<<I don't understand how Sam's understanding of english or developmental delays

could

have any effect on the OAE test>>

It doesn't. And yes, you could lose precious time. We also went to a person

who was " tops in his field " . I found him to be rude and condescending but I

could have tolerated that if he had been correct. He wasn't...and my son was

the one who suffered for it. Run, don't walk, to a third opinion. Trust your

instincts.

Carol - mom to , 6.5, mod to severe/profound, EVAS

[Guest guest]

Trust your own instincts, you know your child better than anyone. If I had

listened to the first two audiologist my son who is profound would still be

going to speech therapy and we would still be believing he didn't have a hearing

loss at all.

Re: Our second opinion. Your opinion wanted!

<<I don't understand how Sam's understanding of english or developmental delays

could

have any effect on the OAE test>>

It doesn't. And yes, you could lose precious time. We also went to a person

who was " tops in his field " . I found him to be rude and condescending but I

could have tolerated that if he had been correct. He wasn't...and my son was

the one who suffered for it. Run, don't walk, to a third opinion. Trust your

instincts.

Carol - mom to , 6.5, mod to severe/profound, EVAS

[Guest guest]

Trust your own instincts, you know your child better than anyone. If I had

listened to the first two audiologist my son who is profound would still be

going to speech therapy and we would still be believing he didn't have a hearing

loss at all.

Re: Our second opinion. Your opinion wanted!

<<I don't understand how Sam's understanding of english or developmental delays

could

have any effect on the OAE test>>

It doesn't. And yes, you could lose precious time. We also went to a person

who was " tops in his field " . I found him to be rude and condescending but I

could have tolerated that if he had been correct. He wasn't...and my son was

the one who suffered for it. Run, don't walk, to a third opinion. Trust your

instincts.

Carol - mom to , 6.5, mod to severe/profound, EVAS

[Guest guest]

Trust your own instincts, you know your child better than anyone. If I had

listened to the first two audiologist my son who is profound would still be

going to speech therapy and we would still be believing he didn't have a hearing

loss at all.

Re: Our second opinion. Your opinion wanted!

<<I don't understand how Sam's understanding of english or developmental delays

could

have any effect on the OAE test>>

It doesn't. And yes, you could lose precious time. We also went to a person

who was " tops in his field " . I found him to be rude and condescending but I

could have tolerated that if he had been correct. He wasn't...and my son was

the one who suffered for it. Run, don't walk, to a third opinion. Trust your

instincts.

Carol - mom to , 6.5, mod to severe/profound, EVAS

[Guest guest]

Thank you, everyone!

I do need to trust my instincts (which is made a little harder by the fact

that my husband is leaning towards the ENT's opinion).

We're also seeing a pediatric neurologist. Sam had malaria, suffered a

seizure and has oral motor weakness, as well as the potential hearing loss.

There is something going on here, and I refuse to sit by and let any

specialist tell me to wait another three months before we take the next

step.

Thank you for the encouragement and support.

Schreiner

[Guest guest]

Thank you, everyone!

I do need to trust my instincts (which is made a little harder by the fact

that my husband is leaning towards the ENT's opinion).

We're also seeing a pediatric neurologist. Sam had malaria, suffered a

seizure and has oral motor weakness, as well as the potential hearing loss.

There is something going on here, and I refuse to sit by and let any

specialist tell me to wait another three months before we take the next

step.

Thank you for the encouragement and support.

Schreiner

[Guest guest]

Thank you, everyone!

I do need to trust my instincts (which is made a little harder by the fact

that my husband is leaning towards the ENT's opinion).

We're also seeing a pediatric neurologist. Sam had malaria, suffered a

seizure and has oral motor weakness, as well as the potential hearing loss.

There is something going on here, and I refuse to sit by and let any

specialist tell me to wait another three months before we take the next

step.

Thank you for the encouragement and support.

Schreiner

[Guest guest]

They did not perform either of these tests. The ENT's audiologist

repeated the same tests we had done two weeks ago...tympanogram, sound

proof booth, and OAE. The tests results were similar. The first

audiologist thought there was a moderate loss in the left ear/mild in the

right. She referred us to the ENT. The ENT had his audiologist repeat

the results. She thought that there was a profound loss in Sam's left

ear/no loss in the right. The ENT discounted both of these tests and said

his " hunch " is that Sam hears normally. He mentioned his age, only recent

exposure to english, and developmental delays for the reasons he does not

trust the results.

That doesn't make much sense to me, especially for an objective test, and

I'm kicking myself for not making a bigger fuss at the time.

--On Thursday, October 10, 2002, 1:32 PM +0000 beat4girl@... wrote:

> What results did they get from the ABR and the Middle Ear Muscle

> reflexes? That would help alot to have those tests done. Especially

> since this is obviously a confusing case.

> Elaine

> http://auditoryneuropathy.tripod.com/

> Jake 8yrs Auditory Neuropathy/ADHD/ODD---- Clarion S-Series CI 2/99

> Josh 9yrs Hearing/ADHD/ODD/AG

[Guest guest]

They did not perform either of these tests. The ENT's audiologist

repeated the same tests we had done two weeks ago...tympanogram, sound

proof booth, and OAE. The tests results were similar. The first

audiologist thought there was a moderate loss in the left ear/mild in the

right. She referred us to the ENT. The ENT had his audiologist repeat

the results. She thought that there was a profound loss in Sam's left

ear/no loss in the right. The ENT discounted both of these tests and said

his " hunch " is that Sam hears normally. He mentioned his age, only recent

exposure to english, and developmental delays for the reasons he does not

trust the results.

That doesn't make much sense to me, especially for an objective test, and

I'm kicking myself for not making a bigger fuss at the time.

--On Thursday, October 10, 2002, 1:32 PM +0000 beat4girl@... wrote:

> What results did they get from the ABR and the Middle Ear Muscle

> reflexes? That would help alot to have those tests done. Especially

> since this is obviously a confusing case.

> Elaine

> http://auditoryneuropathy.tripod.com/

> Jake 8yrs Auditory Neuropathy/ADHD/ODD---- Clarion S-Series CI 2/99

> Josh 9yrs Hearing/ADHD/ODD/AG

[Guest guest]

They did not perform either of these tests. The ENT's audiologist

repeated the same tests we had done two weeks ago...tympanogram, sound

proof booth, and OAE. The tests results were similar. The first

audiologist thought there was a moderate loss in the left ear/mild in the

right. She referred us to the ENT. The ENT had his audiologist repeat

the results. She thought that there was a profound loss in Sam's left

ear/no loss in the right. The ENT discounted both of these tests and said

his " hunch " is that Sam hears normally. He mentioned his age, only recent

exposure to english, and developmental delays for the reasons he does not

trust the results.

That doesn't make much sense to me, especially for an objective test, and

I'm kicking myself for not making a bigger fuss at the time.

--On Thursday, October 10, 2002, 1:32 PM +0000 beat4girl@... wrote:

> What results did they get from the ABR and the Middle Ear Muscle

> reflexes? That would help alot to have those tests done. Especially

> since this is obviously a confusing case.

> Elaine

> http://auditoryneuropathy.tripod.com/

> Jake 8yrs Auditory Neuropathy/ADHD/ODD---- Clarion S-Series CI 2/99

> Josh 9yrs Hearing/ADHD/ODD/AG