Re: Weird reaction - anyone else?

August 7, 2005

This is called intrahepatic cholestasis of pregnancy and can be serious. AFAIK,

there is no connection to celiac. A good non-celiac friend had this in her 7th

pregnancy and had to be closely monitored in her 8th pregnancy because she was

told the chance of the disease recurring is high.

RE: Weird reaction - anyone else?

> When I was pregnant, my chest, palms of my hands and soles of my feet

> itched so much that I made myself bleed. They took blood and said my liver

> enzymes were too high. After my daughter was born they went back to

> normal. Does this sound like it could be related? I was not off any foods

> at that time.

>

> e:

> >Trudy, This is so weird! I do get this itchy right foot every time I get

> >glutened. To me it feels sort of like the nerves are tingling (but not

> >like when your foot falls asleep). Nothing I do gets rid of it, it just

> >goes away after a few days (or weeks if the gluten exposure has been

> >substantial). I'm going to have to look up this mast cell thing, too.

> >

> >My sister also has MVP, and is most likely Celiac, but won't pursue testing

> >since she has no intention of following the diet.

> >

> >God bless,

> >nn

> >

> > " But I woke up in the middle of the night with the bottom of my right foot

> >itching like mad. Now that I think about it, this used to happen all the

> >time, at all times of the day and night, but hasn't since I've been GF. Has

> >anyone else experienced itching in one certain spot as a reaction to

> >wheat/gluten?

> >

> >Trudy "

>

August 8, 2005

No, we didn't go GFCF until 5 years later.

At 12:26 AM 8/8/2005, you wrote:

Sounds

similar. Have you ever had it again? Did you go GF right

after you daughter was born? This is too weird.

Trudy

When I was pregnant, my chest, palms of my hands and soles of

my feet itched so much that I made myself bleed. They took blood

and said my liver enzymes were too high. After my daughter was born

they went back to normal. Does this sound like it could be

related? I was not off any foods at that time.

August 8, 2005

No, we didn't go GFCF until 5 years later.

At 12:26 AM 8/8/2005, you wrote:

Sounds

similar. Have you ever had it again? Did you go GF right

after you daughter was born? This is too weird.

Trudy

When I was pregnant, my chest, palms of my hands and soles of

my feet itched so much that I made myself bleed. They took blood

and said my liver enzymes were too high. After my daughter was born

they went back to normal. Does this sound like it could be

related? I was not off any foods at that time.

August 8, 2005

No, we didn't go GFCF until 5 years later.

At 12:26 AM 8/8/2005, you wrote:

Sounds

similar. Have you ever had it again? Did you go GF right

after you daughter was born? This is too weird.

Trudy

When I was pregnant, my chest, palms of my hands and soles of

my feet itched so much that I made myself bleed. They took blood

and said my liver enzymes were too high. After my daughter was born

they went back to normal. Does this sound like it could be

related? I was not off any foods at that time.

August 8, 2005

Shirley,

I am so sorry for all you suffered! Drs. can be so snobbish when they

think you have an answer and they do not.

Thank you for sharing this info. with me. I would rather follow your

advice at this point. We want to keep our little one as safe with this

as possible.

May GOD bless you.

Lauretta

> Lauretta, First of all, I really have little faith in dermatologists. They

> used me as a guinea pig all of my teenaged years and then decided I was a

> hypochondriac and told my Mom to send me to a psychiatrist. It's been 4

> years since my diagnosis and the itching has subsided, mostly. I still get

> itching but it is not as severe and goes away quickly. I use Basis soap on

> my skin and Arm & Hammer laundry soap also Cetaphil lotion does help the

> itching. My rash is now an aggravating red rash, when I get it, and it

> comes in patches, mostly on my hands--kind of red and sandpapery. When it

> gets really itchy, I used over the counter cortizone-aloe ointment on it

> twice a day. Hope this helps. This disease is not easy, but much more

> manageable when you can remain totally gluten free. Shirley

>

> Lauretta McInnis wrote:

> Shirley,

> I am very confused about this itch thing. When my 4 yo gets all

> itchy, I am sure he got glutened, but the Dr. will not send him to a

> dermatologist to be sure, only tells us that he has mosquito bites

> which I am sure are not. It is hard to make an appt. because by the

> time he gets seen, it looks different. Can you give me any insight as

> to what to do. We have taken him out of Church and he is clearing up

> again. . I would appreciate anyone else's advice as well.I am sorry

> that you have had to suffer so much for so long. I am hoping to help

> my son not to go so long through this.

> Thank you,

> Lauretta

>

> > I, too, have had the pinprick feeling over the years. Everyone thought I

> > was a hypochondriac with all my allergies, rashes, etc. I started with DH

> > when I was 13-14 and it took them 54 years to diagnose me. Actually I did

> it

> > myself with the help of Danna Korn, whom I saw on TV, and asked my doctor

> > for the testing. The malnutrition is what finally got the better of me. I

> > also get the itchy feeling in just one spot when I get zapped by

> accidental

> > gluten. Most people just think I'm totally crazy, because I have so much

> > wrong with me, so now I don't even bring up the subject to most

> > acquaintences. I'm just happy to have been diagnosed and to get one with

> my

> > life (what's left of it) in moderate comfort. Weird reactions are just the

> > norm with most of us. Shirley

> >

> > Bill wrote:

> > I think that the gluten-based malnourishment definitly affected me.

> > I've had iron-deficient anemia, vitamin A deficiency (many years

> > ago), so many dental problems I've lost count, the heart stuff, and

> > more.

> >

> > Some astute MVP people on another forum had excellent advice about

> > calcium and magnesium supplementation. I'd guess that the Celiac

> > reduced my stores and it caused the Mitral Valve Prolapse Syndrome to

> > be worse for wear. I have not run into anybody else with MVP that

> > KNOWS they have Celiac, but I'm sure that there are some. Since IBS

> > is another symptom of MVP, that is exactly what I thought my Celiac

> > symptoms were - of course, this was before my wife matched my gastro

> > symptoms with celiac and we put two and two together. I then got

> > tested by blood, endo, and biopsy. All tests were positive, but the

> > doctor said I had a " mild to moderate " case; I guess he meant that it

> > could have been worse.

> >

> > I saw a neurologist last year (Sept. 2004) and went on Zoloft. This

> > may have helped, but I don't think that during the " gluten " period it

> > was being absorbed properly. I probably don't need it any more, but

> > I'm going to continue taking it for a while just to be on the

> > safe side.

> >

> > > That's very interesting. Glad your symptoms have gotten better.

> > My mother also has MVP. Do you think it is in any way related to

> > celiac? Or do you think eating gluten made your body less able to

> > handle any other ailments you have?

> > >

> > > Trudy

> >

August 8, 2005