Re: Weird reaction - anyone else?

[Guest guest]

I, too, have had the pinprick feeling over the years. Everyone thought I was a hypochondriac with all my allergies, rashes, etc. I started with DH when I was 13-14 and it took them 54 years to diagnose me. Actually I did it myself with the help of Danna Korn, whom I saw on TV, and asked my doctor for the testing. The malnutrition is what finally got the better of me. I also get the itchy feeling in just one spot when I get zapped by accidental gluten. Most people just think I'm totally crazy, because I have so much wrong with me, so now I don't even bring up the subject to most acquaintences. I'm just happy to have been diagnosed and to get one with my life (what's left of it) in moderate comfort. Weird reactions are just the norm with most of us. ShirleyBill wrote:

I think that the gluten-based malnourishment definitly affected me.I've had iron-deficient anemia, vitamin A deficiency (many yearsago), so many dental problems I've lost count, the heart stuff, andmore.Some astute MVP people on another forum had excellent advice aboutcalcium and magnesium supplementation. I'd guess that the Celiacreduced my stores and it caused the Mitral Valve Prolapse Syndrome tobe worse for wear. I have not run into anybody else with MVP that KNOWS they have Celiac, but I'm sure that there are some. Since IBS is another symptom of MVP, that is exactly what I thought my Celiac symptoms were - of course, this was before my wife matched my gastro symptoms with celiac and we put two and two together. I then got tested by blood, endo, and biopsy. All tests were positive, but the doctor said I had a "mild to

moderate" case; I guess he meant that it could have been worse.I saw a neurologist last year (Sept. 2004) and went on Zoloft. This may have helped, but I don't think that during the "gluten" period it was being absorbed properly. I probably don't need it any more, but I'm going to continue taking it for a while just to be on thesafe side.> That's very interesting. Glad your symptoms have gotten better.My mother also has MVP. Do you think it is in any way related toceliac? Or do you think eating gluten made your body less able tohandle any other ailments you have?>> Trudy

[Guest guest]

Hmmm. I'm also on Zoloft. Interesting point about absorption. And I've noticed eating gluten makes my anxiety worse. Maybe I will be able to decrease or stop altogether myself. Also interesting is that, after never having had a cavity in my life, I suddenly had 8 cavities a few years ago.

Thanks for your insight.

Trudy

Re: Weird reaction - anyone else?

I think that the gluten-based malnourishment definitly affected me. I've had iron-deficient anemia, vitamin A deficiency (many years ago), so many dental problems I've lost count, the heart stuff, and more. The some MVP people on another forum had excellent advice about calcium and magnesium supplementation. I'd guess that the Celiac reduced my stores and it caused the Mitral Valve Prolapse Syndrome to be worse for wear. I have not run into anybody with MVP that KNOWS they have Celiac. Since IBS is another symptom of MVP, that is exactly what I thought my Celiac symptoms were - of course, this was before my wife matched my gastro symptoms with celiac and we put two and two together. I then got tested by blood, endo, and biopsy. All tests were positive, but the doctor said I had a "mild to moderate" case; I guess he meant that it could have been worse. I saw a neurologist last Sept. and went on Zoloft. This may have helped, but I don't think that during the "gluten" period it was being absorbed properly. I probably don't need it any more, but I'm probably going to continue taking it for a while just to be on the safe side. > That's very interesting. Glad your symptoms have gotten better. My mother also has MVP. Do you think it is in any way related to celiac? Or do you think eating gluten made your body less able to handle any other ailments you have?> > Trudy

[Guest guest]

Hmmm. I'm also on Zoloft. Interesting point about absorption. And I've noticed eating gluten makes my anxiety worse. Maybe I will be able to decrease or stop altogether myself. Also interesting is that, after never having had a cavity in my life, I suddenly had 8 cavities a few years ago.

Thanks for your insight.

Trudy

Re: Weird reaction - anyone else?

I think that the gluten-based malnourishment definitly affected me. I've had iron-deficient anemia, vitamin A deficiency (many years ago), so many dental problems I've lost count, the heart stuff, and more. The some MVP people on another forum had excellent advice about calcium and magnesium supplementation. I'd guess that the Celiac reduced my stores and it caused the Mitral Valve Prolapse Syndrome to be worse for wear. I have not run into anybody with MVP that KNOWS they have Celiac. Since IBS is another symptom of MVP, that is exactly what I thought my Celiac symptoms were - of course, this was before my wife matched my gastro symptoms with celiac and we put two and two together. I then got tested by blood, endo, and biopsy. All tests were positive, but the doctor said I had a "mild to moderate" case; I guess he meant that it could have been worse. I saw a neurologist last Sept. and went on Zoloft. This may have helped, but I don't think that during the "gluten" period it was being absorbed properly. I probably don't need it any more, but I'm probably going to continue taking it for a while just to be on the safe side. > That's very interesting. Glad your symptoms have gotten better. My mother also has MVP. Do you think it is in any way related to celiac? Or do you think eating gluten made your body less able to handle any other ailments you have?> > Trudy

[Guest guest]

Hmmm. I'm also on Zoloft. Interesting point about absorption. And I've noticed eating gluten makes my anxiety worse. Maybe I will be able to decrease or stop altogether myself. Also interesting is that, after never having had a cavity in my life, I suddenly had 8 cavities a few years ago.

Thanks for your insight.

Trudy

Re: Weird reaction - anyone else?

I think that the gluten-based malnourishment definitly affected me. I've had iron-deficient anemia, vitamin A deficiency (many years ago), so many dental problems I've lost count, the heart stuff, and more. The some MVP people on another forum had excellent advice about calcium and magnesium supplementation. I'd guess that the Celiac reduced my stores and it caused the Mitral Valve Prolapse Syndrome to be worse for wear. I have not run into anybody with MVP that KNOWS they have Celiac. Since IBS is another symptom of MVP, that is exactly what I thought my Celiac symptoms were - of course, this was before my wife matched my gastro symptoms with celiac and we put two and two together. I then got tested by blood, endo, and biopsy. All tests were positive, but the doctor said I had a "mild to moderate" case; I guess he meant that it could have been worse. I saw a neurologist last Sept. and went on Zoloft. This may have helped, but I don't think that during the "gluten" period it was being absorbed properly. I probably don't need it any more, but I'm probably going to continue taking it for a while just to be on the safe side. > That's very interesting. Glad your symptoms have gotten better. My mother also has MVP. Do you think it is in any way related to celiac? Or do you think eating gluten made your body less able to handle any other ailments you have?> > Trudy

[Guest guest]

The strangest dental problem I ever had was when I had a tooth

extracted some 30 years ago, at about age 22, and a big lump of

tissue grew in the space. The dentist was stumped, and scared, and

sent me to an oral surgeon to have it cut out. They put me on a

heavy-duty Rx for vitamin A and it cleared up. At that time I was

not eating well - and my blood pressure was so low that they would

not take blood when I volunteered to donate.

Have you tried DPP-IV Forte enzyme from Kirkman labs? I've been

taking it for a few weeks and feel much better. It's the only

supplement on the market that is known to break up gluten. Another

company makes a multi-enzyme formula that contains it (so does

Kirkman). Although it is targeted towards autistic people (many of

whom have issues with gluten, or full-blown Celiac), I think that it

may help us also. They have a " trial " size for very little ($3.50).

A few people, such as those with mold allergies, cannot take it.

Many celiac sufferers simply will not take it because it is new and

not yet " proven " to work in humans, due to the long testing processes

involved. The scientists at Stanford cannot use animals to test DPP-

IV, because there are none with celiac. I cannot say for certain

that it really works, because I have not deliberately, or knowingly,

consumed gluten while taking it – but I feel much better anyway since

starting it. It's also a good way to get a sense of " empowerment "

over the disease, because you are sort-of putting an enzyme in your

system that nature left out.

Bill

Bill

> Hmmm. I'm also on Zoloft. Interesting point about absorption.

And I've noticed eating gluten makes my anxiety worse. Maybe I will

be able to decrease or stop altogether myself. Also interesting is

that, after never having had a cavity in my life, I suddenly had 8

cavities a few years ago.

>

[Guest guest]

The strangest dental problem I ever had was when I had a tooth

extracted some 30 years ago, at about age 22, and a big lump of

tissue grew in the space. The dentist was stumped, and scared, and

sent me to an oral surgeon to have it cut out. They put me on a

heavy-duty Rx for vitamin A and it cleared up. At that time I was

not eating well - and my blood pressure was so low that they would

not take blood when I volunteered to donate.

Have you tried DPP-IV Forte enzyme from Kirkman labs? I've been

taking it for a few weeks and feel much better. It's the only

supplement on the market that is known to break up gluten. Another

company makes a multi-enzyme formula that contains it (so does

Kirkman). Although it is targeted towards autistic people (many of

whom have issues with gluten, or full-blown Celiac), I think that it

may help us also. They have a " trial " size for very little ($3.50).

A few people, such as those with mold allergies, cannot take it.

Many celiac sufferers simply will not take it because it is new and

not yet " proven " to work in humans, due to the long testing processes

involved. The scientists at Stanford cannot use animals to test DPP-

IV, because there are none with celiac. I cannot say for certain

that it really works, because I have not deliberately, or knowingly,

consumed gluten while taking it – but I feel much better anyway since

starting it. It's also a good way to get a sense of " empowerment "

over the disease, because you are sort-of putting an enzyme in your

system that nature left out.

Bill

Bill

> Hmmm. I'm also on Zoloft. Interesting point about absorption.

And I've noticed eating gluten makes my anxiety worse. Maybe I will

be able to decrease or stop altogether myself. Also interesting is

that, after never having had a cavity in my life, I suddenly had 8

cavities a few years ago.

>

[Guest guest]

The strangest dental problem I ever had was when I had a tooth

extracted some 30 years ago, at about age 22, and a big lump of

tissue grew in the space. The dentist was stumped, and scared, and

sent me to an oral surgeon to have it cut out. They put me on a

heavy-duty Rx for vitamin A and it cleared up. At that time I was

not eating well - and my blood pressure was so low that they would

not take blood when I volunteered to donate.

Have you tried DPP-IV Forte enzyme from Kirkman labs? I've been

taking it for a few weeks and feel much better. It's the only

supplement on the market that is known to break up gluten. Another

company makes a multi-enzyme formula that contains it (so does

Kirkman). Although it is targeted towards autistic people (many of

whom have issues with gluten, or full-blown Celiac), I think that it

may help us also. They have a " trial " size for very little ($3.50).

A few people, such as those with mold allergies, cannot take it.

Many celiac sufferers simply will not take it because it is new and

not yet " proven " to work in humans, due to the long testing processes

involved. The scientists at Stanford cannot use animals to test DPP-

IV, because there are none with celiac. I cannot say for certain

that it really works, because I have not deliberately, or knowingly,

consumed gluten while taking it – but I feel much better anyway since

starting it. It's also a good way to get a sense of " empowerment "

over the disease, because you are sort-of putting an enzyme in your

system that nature left out.

Bill

Bill

> Hmmm. I'm also on Zoloft. Interesting point about absorption.

And I've noticed eating gluten makes my anxiety worse. Maybe I will

be able to decrease or stop altogether myself. Also interesting is

that, after never having had a cavity in my life, I suddenly had 8

cavities a few years ago.

>

[Guest guest]

Shirley,

I am very confused about this itch thing. When my 4 yo gets all

itchy, I am sure he got glutened, but the Dr. will not send him to a

dermatologist to be sure, only tells us that he has mosquito bites

which I am sure are not. It is hard to make an appt. because by the

time he gets seen, it looks different. Can you give me any insight as

to what to do. We have taken him out of Church and he is clearing up

again. . I would appreciate anyone else's advice as well.I am sorry

that you have had to suffer so much for so long. I am hoping to help

my son not to go so long through this.

Thank you,

Lauretta

> I, too, have had the pinprick feeling over the years. Everyone thought I

> was a hypochondriac with all my allergies, rashes, etc. I started with DH

> when I was 13-14 and it took them 54 years to diagnose me. Actually I did it

> myself with the help of Danna Korn, whom I saw on TV, and asked my doctor

> for the testing. The malnutrition is what finally got the better of me. I

> also get the itchy feeling in just one spot when I get zapped by accidental

> gluten. Most people just think I'm totally crazy, because I have so much

> wrong with me, so now I don't even bring up the subject to most

> acquaintences. I'm just happy to have been diagnosed and to get one with my

> life (what's left of it) in moderate comfort. Weird reactions are just the

> norm with most of us. Shirley

>

> Bill wrote:

> I think that the gluten-based malnourishment definitly affected me.

> I've had iron-deficient anemia, vitamin A deficiency (many years

> ago), so many dental problems I've lost count, the heart stuff, and

> more.

>

> Some astute MVP people on another forum had excellent advice about

> calcium and magnesium supplementation. I'd guess that the Celiac

> reduced my stores and it caused the Mitral Valve Prolapse Syndrome to

> be worse for wear. I have not run into anybody else with MVP that

> KNOWS they have Celiac, but I'm sure that there are some. Since IBS

> is another symptom of MVP, that is exactly what I thought my Celiac

> symptoms were - of course, this was before my wife matched my gastro

> symptoms with celiac and we put two and two together. I then got

> tested by blood, endo, and biopsy. All tests were positive, but the

> doctor said I had a " mild to moderate " case; I guess he meant that it

> could have been worse.

>

> I saw a neurologist last year (Sept. 2004) and went on Zoloft. This

> may have helped, but I don't think that during the " gluten " period it

> was being absorbed properly. I probably don't need it any more, but

> I'm going to continue taking it for a while just to be on the

> safe side.

>

>

> > That's very interesting. Glad your symptoms have gotten better.

> My mother also has MVP. Do you think it is in any way related to

> celiac? Or do you think eating gluten made your body less able to

> handle any other ailments you have?

> >

> > Trudy

>

>

>

>

>

[Guest guest]

Shirley,

I am very confused about this itch thing. When my 4 yo gets all

itchy, I am sure he got glutened, but the Dr. will not send him to a

dermatologist to be sure, only tells us that he has mosquito bites

which I am sure are not. It is hard to make an appt. because by the

time he gets seen, it looks different. Can you give me any insight as

to what to do. We have taken him out of Church and he is clearing up

again. . I would appreciate anyone else's advice as well.I am sorry

that you have had to suffer so much for so long. I am hoping to help

my son not to go so long through this.

Thank you,

Lauretta

> I, too, have had the pinprick feeling over the years. Everyone thought I

> was a hypochondriac with all my allergies, rashes, etc. I started with DH

> when I was 13-14 and it took them 54 years to diagnose me. Actually I did it

> myself with the help of Danna Korn, whom I saw on TV, and asked my doctor

> for the testing. The malnutrition is what finally got the better of me. I

> also get the itchy feeling in just one spot when I get zapped by accidental

> gluten. Most people just think I'm totally crazy, because I have so much

> wrong with me, so now I don't even bring up the subject to most

> acquaintences. I'm just happy to have been diagnosed and to get one with my

> life (what's left of it) in moderate comfort. Weird reactions are just the

> norm with most of us. Shirley

>

> Bill wrote:

> I think that the gluten-based malnourishment definitly affected me.

> I've had iron-deficient anemia, vitamin A deficiency (many years

> ago), so many dental problems I've lost count, the heart stuff, and

> more.

>

> Some astute MVP people on another forum had excellent advice about

> calcium and magnesium supplementation. I'd guess that the Celiac

> reduced my stores and it caused the Mitral Valve Prolapse Syndrome to

> be worse for wear. I have not run into anybody else with MVP that

> KNOWS they have Celiac, but I'm sure that there are some. Since IBS

> is another symptom of MVP, that is exactly what I thought my Celiac

> symptoms were - of course, this was before my wife matched my gastro

> symptoms with celiac and we put two and two together. I then got

> tested by blood, endo, and biopsy. All tests were positive, but the

> doctor said I had a " mild to moderate " case; I guess he meant that it

> could have been worse.

>

> I saw a neurologist last year (Sept. 2004) and went on Zoloft. This

> may have helped, but I don't think that during the " gluten " period it

> was being absorbed properly. I probably don't need it any more, but

> I'm going to continue taking it for a while just to be on the

> safe side.

>

>

> > That's very interesting. Glad your symptoms have gotten better.

> My mother also has MVP. Do you think it is in any way related to

> celiac? Or do you think eating gluten made your body less able to

> handle any other ailments you have?

> >

> > Trudy

>

>

>

>

>

[Guest guest]

Shirley,

I am very confused about this itch thing. When my 4 yo gets all

itchy, I am sure he got glutened, but the Dr. will not send him to a

dermatologist to be sure, only tells us that he has mosquito bites

which I am sure are not. It is hard to make an appt. because by the

time he gets seen, it looks different. Can you give me any insight as

to what to do. We have taken him out of Church and he is clearing up

again. . I would appreciate anyone else's advice as well.I am sorry

that you have had to suffer so much for so long. I am hoping to help

my son not to go so long through this.

Thank you,

Lauretta

> I, too, have had the pinprick feeling over the years. Everyone thought I

> was a hypochondriac with all my allergies, rashes, etc. I started with DH

> when I was 13-14 and it took them 54 years to diagnose me. Actually I did it

> myself with the help of Danna Korn, whom I saw on TV, and asked my doctor

> for the testing. The malnutrition is what finally got the better of me. I

> also get the itchy feeling in just one spot when I get zapped by accidental

> gluten. Most people just think I'm totally crazy, because I have so much

> wrong with me, so now I don't even bring up the subject to most

> acquaintences. I'm just happy to have been diagnosed and to get one with my

> life (what's left of it) in moderate comfort. Weird reactions are just the

> norm with most of us. Shirley

>

> Bill wrote:

> I think that the gluten-based malnourishment definitly affected me.

> I've had iron-deficient anemia, vitamin A deficiency (many years

> ago), so many dental problems I've lost count, the heart stuff, and

> more.

>

> Some astute MVP people on another forum had excellent advice about

> calcium and magnesium supplementation. I'd guess that the Celiac

> reduced my stores and it caused the Mitral Valve Prolapse Syndrome to

> be worse for wear. I have not run into anybody else with MVP that

> KNOWS they have Celiac, but I'm sure that there are some. Since IBS

> is another symptom of MVP, that is exactly what I thought my Celiac

> symptoms were - of course, this was before my wife matched my gastro

> symptoms with celiac and we put two and two together. I then got

> tested by blood, endo, and biopsy. All tests were positive, but the

> doctor said I had a " mild to moderate " case; I guess he meant that it

> could have been worse.

>

> I saw a neurologist last year (Sept. 2004) and went on Zoloft. This

> may have helped, but I don't think that during the " gluten " period it

> was being absorbed properly. I probably don't need it any more, but

> I'm going to continue taking it for a while just to be on the

> safe side.

>

>

> > That's very interesting. Glad your symptoms have gotten better.

> My mother also has MVP. Do you think it is in any way related to

> celiac? Or do you think eating gluten made your body less able to

> handle any other ailments you have?

> >

> > Trudy

>

>

>

>

>

[Guest guest]

Lauretta, First of all, I really have little faith in dermatologists. They used me as a guinea pig all of my teenaged years and then decided I was a hypochondriac and told my Mom to send me to a psychiatrist. It's been 4 years since my diagnosis and the itching has subsided, mostly. I still get itching but it is not as severe and goes away quickly. I use Basis soap on my skin and Arm & Hammer laundry soap also Cetaphil lotion does help the itching. My rash is now an aggravating red rash, when I get it, and it comes in patches, mostly on my hands--kind of red and sandpapery. When it gets really itchy, I used over the counter cortizone-aloe ointment on it twice a day. Hope this helps. This disease is not easy, but much more manageable when you can remain totally gluten free. ShirleyLauretta McInnis wrote:

Shirley,I am very confused about this itch thing. When my 4 yo gets allitchy, I am sure he got glutened, but the Dr. will not send him to adermatologist to be sure, only tells us that he has mosquito biteswhich I am sure are not. It is hard to make an appt. because by thetime he gets seen, it looks different. Can you give me any insight asto what to do. We have taken him out of Church and he is clearing upagain. . I would appreciate anyone else's advice as well.I am sorrythat you have had to suffer so much for so long. I am hoping to helpmy son not to go so long through this.Thank you,Lauretta> I, too, have had the pinprick feeling over the years. Everyone thought I> was a hypochondriac with all my allergies, rashes, etc. I started with DH> when I was 13-14 and

it took them 54 years to diagnose me. Actually I did it> myself with the help of Danna Korn, whom I saw on TV, and asked my doctor> for the testing. The malnutrition is what finally got the better of me. I> also get the itchy feeling in just one spot when I get zapped by accidental> gluten. Most people just think I'm totally crazy, because I have so much> wrong with me, so now I don't even bring up the subject to most> acquaintences. I'm just happy to have been diagnosed and to get one with my> life (what's left of it) in moderate comfort. Weird reactions are just the> norm with most of us. Shirley> > Bill wrote: > I think that the gluten-based malnourishment definitly affected me.> I've had iron-deficient anemia, vitamin A deficiency (many years> ago), so many dental problems I've lost count, the heart stuff, and> more.> > Some astute MVP people on

another forum had excellent advice about> calcium and magnesium supplementation. I'd guess that the Celiac> reduced my stores and it caused the Mitral Valve Prolapse Syndrome to> be worse for wear. I have not run into anybody else with MVP that > KNOWS they have Celiac, but I'm sure that there are some. Since IBS > is another symptom of MVP, that is exactly what I thought my Celiac > symptoms were - of course, this was before my wife matched my gastro > symptoms with celiac and we put two and two together. I then got > tested by blood, endo, and biopsy. All tests were positive, but the > doctor said I had a "mild to moderate" case; I guess he meant that it > could have been worse.> > I saw a neurologist last year (Sept. 2004) and went on Zoloft. This > may have helped, but I don't think that during the "gluten" period it > was being absorbed properly. I probably don't need it any more,

but > I'm going to continue taking it for a while just to be on the> safe side.> > > > That's very interesting. Glad your symptoms have gotten better.> My mother also has MVP. Do you think it is in any way related to> celiac? Or do you think eating gluten made your body less able to> handle any other ailments you have?> >> > Trudy> > > > >

[Guest guest]

Lauretta, First of all, I really have little faith in dermatologists. They used me as a guinea pig all of my teenaged years and then decided I was a hypochondriac and told my Mom to send me to a psychiatrist. It's been 4 years since my diagnosis and the itching has subsided, mostly. I still get itching but it is not as severe and goes away quickly. I use Basis soap on my skin and Arm & Hammer laundry soap also Cetaphil lotion does help the itching. My rash is now an aggravating red rash, when I get it, and it comes in patches, mostly on my hands--kind of red and sandpapery. When it gets really itchy, I used over the counter cortizone-aloe ointment on it twice a day. Hope this helps. This disease is not easy, but much more manageable when you can remain totally gluten free. ShirleyLauretta McInnis wrote:

Shirley,I am very confused about this itch thing. When my 4 yo gets allitchy, I am sure he got glutened, but the Dr. will not send him to adermatologist to be sure, only tells us that he has mosquito biteswhich I am sure are not. It is hard to make an appt. because by thetime he gets seen, it looks different. Can you give me any insight asto what to do. We have taken him out of Church and he is clearing upagain. . I would appreciate anyone else's advice as well.I am sorrythat you have had to suffer so much for so long. I am hoping to helpmy son not to go so long through this.Thank you,Lauretta> I, too, have had the pinprick feeling over the years. Everyone thought I> was a hypochondriac with all my allergies, rashes, etc. I started with DH> when I was 13-14 and

it took them 54 years to diagnose me. Actually I did it> myself with the help of Danna Korn, whom I saw on TV, and asked my doctor> for the testing. The malnutrition is what finally got the better of me. I> also get the itchy feeling in just one spot when I get zapped by accidental> gluten. Most people just think I'm totally crazy, because I have so much> wrong with me, so now I don't even bring up the subject to most> acquaintences. I'm just happy to have been diagnosed and to get one with my> life (what's left of it) in moderate comfort. Weird reactions are just the> norm with most of us. Shirley> > Bill wrote: > I think that the gluten-based malnourishment definitly affected me.> I've had iron-deficient anemia, vitamin A deficiency (many years> ago), so many dental problems I've lost count, the heart stuff, and> more.> > Some astute MVP people on

another forum had excellent advice about> calcium and magnesium supplementation. I'd guess that the Celiac> reduced my stores and it caused the Mitral Valve Prolapse Syndrome to> be worse for wear. I have not run into anybody else with MVP that > KNOWS they have Celiac, but I'm sure that there are some. Since IBS > is another symptom of MVP, that is exactly what I thought my Celiac > symptoms were - of course, this was before my wife matched my gastro > symptoms with celiac and we put two and two together. I then got > tested by blood, endo, and biopsy. All tests were positive, but the > doctor said I had a "mild to moderate" case; I guess he meant that it > could have been worse.> > I saw a neurologist last year (Sept. 2004) and went on Zoloft. This > may have helped, but I don't think that during the "gluten" period it > was being absorbed properly. I probably don't need it any more,

but > I'm going to continue taking it for a while just to be on the> safe side.> > > > That's very interesting. Glad your symptoms have gotten better.> My mother also has MVP. Do you think it is in any way related to> celiac? Or do you think eating gluten made your body less able to> handle any other ailments you have?> >> > Trudy> > > > >

[Guest guest]

Lauretta, First of all, I really have little faith in dermatologists. They used me as a guinea pig all of my teenaged years and then decided I was a hypochondriac and told my Mom to send me to a psychiatrist. It's been 4 years since my diagnosis and the itching has subsided, mostly. I still get itching but it is not as severe and goes away quickly. I use Basis soap on my skin and Arm & Hammer laundry soap also Cetaphil lotion does help the itching. My rash is now an aggravating red rash, when I get it, and it comes in patches, mostly on my hands--kind of red and sandpapery. When it gets really itchy, I used over the counter cortizone-aloe ointment on it twice a day. Hope this helps. This disease is not easy, but much more manageable when you can remain totally gluten free. ShirleyLauretta McInnis wrote:

Shirley,I am very confused about this itch thing. When my 4 yo gets allitchy, I am sure he got glutened, but the Dr. will not send him to adermatologist to be sure, only tells us that he has mosquito biteswhich I am sure are not. It is hard to make an appt. because by thetime he gets seen, it looks different. Can you give me any insight asto what to do. We have taken him out of Church and he is clearing upagain. . I would appreciate anyone else's advice as well.I am sorrythat you have had to suffer so much for so long. I am hoping to helpmy son not to go so long through this.Thank you,Lauretta> I, too, have had the pinprick feeling over the years. Everyone thought I> was a hypochondriac with all my allergies, rashes, etc. I started with DH> when I was 13-14 and

it took them 54 years to diagnose me. Actually I did it> myself with the help of Danna Korn, whom I saw on TV, and asked my doctor> for the testing. The malnutrition is what finally got the better of me. I> also get the itchy feeling in just one spot when I get zapped by accidental> gluten. Most people just think I'm totally crazy, because I have so much> wrong with me, so now I don't even bring up the subject to most> acquaintences. I'm just happy to have been diagnosed and to get one with my> life (what's left of it) in moderate comfort. Weird reactions are just the> norm with most of us. Shirley> > Bill wrote: > I think that the gluten-based malnourishment definitly affected me.> I've had iron-deficient anemia, vitamin A deficiency (many years> ago), so many dental problems I've lost count, the heart stuff, and> more.> > Some astute MVP people on

another forum had excellent advice about> calcium and magnesium supplementation. I'd guess that the Celiac> reduced my stores and it caused the Mitral Valve Prolapse Syndrome to> be worse for wear. I have not run into anybody else with MVP that > KNOWS they have Celiac, but I'm sure that there are some. Since IBS > is another symptom of MVP, that is exactly what I thought my Celiac > symptoms were - of course, this was before my wife matched my gastro > symptoms with celiac and we put two and two together. I then got > tested by blood, endo, and biopsy. All tests were positive, but the > doctor said I had a "mild to moderate" case; I guess he meant that it > could have been worse.> > I saw a neurologist last year (Sept. 2004) and went on Zoloft. This > may have helped, but I don't think that during the "gluten" period it > was being absorbed properly. I probably don't need it any more,

but > I'm going to continue taking it for a while just to be on the> safe side.> > > > That's very interesting. Glad your symptoms have gotten better.> My mother also has MVP. Do you think it is in any way related to> celiac? Or do you think eating gluten made your body less able to> handle any other ailments you have?> >> > Trudy> > > > >

[Guest guest]

Trudy, This is so weird! I do get this itchy right foot every time I get

glutened. To me it feels sort of like the nerves are tingling (but not

like when your foot falls asleep). Nothing I do gets rid of it, it just

goes away after a few days (or weeks if the gluten exposure has been

substantial). I'm going to have to look up this mast cell thing, too.

My sister also has MVP, and is most likely Celiac, but won't pursue testing

since she has no intention of following the diet.

God bless,

nn

" But I woke up in the middle of the night with the bottom of my right foot

itching like mad. Now that I think about it, this used to happen all the

time, at all times of the day and night, but hasn't since I've been GF. Has

anyone else experienced itching in one certain spot as a reaction to

wheat/gluten?

Trudy "

[Guest guest]

Trudy, This is so weird! I do get this itchy right foot every time I get

glutened. To me it feels sort of like the nerves are tingling (but not

like when your foot falls asleep). Nothing I do gets rid of it, it just

goes away after a few days (or weeks if the gluten exposure has been

substantial). I'm going to have to look up this mast cell thing, too.

My sister also has MVP, and is most likely Celiac, but won't pursue testing

since she has no intention of following the diet.

God bless,

nn

" But I woke up in the middle of the night with the bottom of my right foot

itching like mad. Now that I think about it, this used to happen all the

time, at all times of the day and night, but hasn't since I've been GF. Has

anyone else experienced itching in one certain spot as a reaction to

wheat/gluten?

Trudy "

[Guest guest]

Trudy, This is so weird! I do get this itchy right foot every time I get

glutened. To me it feels sort of like the nerves are tingling (but not

like when your foot falls asleep). Nothing I do gets rid of it, it just

goes away after a few days (or weeks if the gluten exposure has been

substantial). I'm going to have to look up this mast cell thing, too.

My sister also has MVP, and is most likely Celiac, but won't pursue testing

since she has no intention of following the diet.

God bless,

nn

" But I woke up in the middle of the night with the bottom of my right foot

itching like mad. Now that I think about it, this used to happen all the

time, at all times of the day and night, but hasn't since I've been GF. Has

anyone else experienced itching in one certain spot as a reaction to

wheat/gluten?

Trudy "

[Guest guest]

When I was pregnant, my chest, palms of my hands and soles of my

feet itched so much that I made myself bleed. They took blood and

said my liver enzymes were too high. After my daughter was born

they went back to normal. Does this sound like it could be

related? I was not off any foods at that time.

e:

Trudy, This is so

weird! I do get this itchy right foot every time I get

glutened. To me it feels sort of like the nerves are tingling (but

not

like when your foot falls asleep). Nothing I do gets rid of it, it

just

goes away after a few days (or weeks if the gluten exposure has been

substantial). I'm going to have to look up this mast cell thing,

too.

My sister also has MVP, and is most likely Celiac, but won't pursue

testing

since she has no intention of following the diet.

God bless,

nn

" But I woke up in the middle of the night with the bottom of my

right foot

itching like mad. Now that I think about it, this used to happen all

the

time, at all times of the day and night, but hasn't since I've been GF.

Has

anyone else experienced itching in one certain spot as a reaction to

wheat/gluten?

Trudy "

[Guest guest]

I have a little bump right in the center of my foot. I always thought it was where I stepped on a pencil when I was a kid, but maybe it's a group of these mast cells. Because that's exactly where it itches! I started to think I had some kind of fungus or something, but no matter what I did it wouldn't go away. Now it makes sense! Come to think of it, my hands sometimes itch really badly and I can't find the right place. Sometimes other places too. I'll have to pay better attention now.

Trudy

RE: Weird reaction - anyone else?

Trudy, This is so weird! I do get this itchy right foot every time I getglutened. To me it feels sort of like the nerves are tingling (but notlike when your foot falls asleep). Nothing I do gets rid of it, it justgoes away after a few days (or weeks if the gluten exposure has beensubstantial). I'm going to have to look up this mast cell thing, too.My sister also has MVP, and is most likely Celiac, but won't pursue testingsince she has no intention of following the diet. :(God bless,nn

[Guest guest]

I have a little bump right in the center of my foot. I always thought it was where I stepped on a pencil when I was a kid, but maybe it's a group of these mast cells. Because that's exactly where it itches! I started to think I had some kind of fungus or something, but no matter what I did it wouldn't go away. Now it makes sense! Come to think of it, my hands sometimes itch really badly and I can't find the right place. Sometimes other places too. I'll have to pay better attention now.

Trudy

RE: Weird reaction - anyone else?

Trudy, This is so weird! I do get this itchy right foot every time I getglutened. To me it feels sort of like the nerves are tingling (but notlike when your foot falls asleep). Nothing I do gets rid of it, it justgoes away after a few days (or weeks if the gluten exposure has beensubstantial). I'm going to have to look up this mast cell thing, too.My sister also has MVP, and is most likely Celiac, but won't pursue testingsince she has no intention of following the diet. :(God bless,nn

[Guest guest]

I have a little bump right in the center of my foot. I always thought it was where I stepped on a pencil when I was a kid, but maybe it's a group of these mast cells. Because that's exactly where it itches! I started to think I had some kind of fungus or something, but no matter what I did it wouldn't go away. Now it makes sense! Come to think of it, my hands sometimes itch really badly and I can't find the right place. Sometimes other places too. I'll have to pay better attention now.

Trudy

RE: Weird reaction - anyone else?

Trudy, This is so weird! I do get this itchy right foot every time I getglutened. To me it feels sort of like the nerves are tingling (but notlike when your foot falls asleep). Nothing I do gets rid of it, it justgoes away after a few days (or weeks if the gluten exposure has beensubstantial). I'm going to have to look up this mast cell thing, too.My sister also has MVP, and is most likely Celiac, but won't pursue testingsince she has no intention of following the diet. :(God bless,nn

[Guest guest]

Sounds similar. Have you ever had it again? Did you go GF right after you daughter was born? This is too weird.

Trudy

RE: Weird reaction - anyone else?

When I was pregnant, my chest, palms of my hands and soles of my feet itched so much that I made myself bleed. They took blood and said my liver enzymes were too high. After my daughter was born they went back to normal. Does this sound like it could be related? I was not off any foods at that time.e:

Trudy, This is so weird! I do get this itchy right foot every time I getglutened. To me it feels sort of like the nerves are tingling (but notlike when your foot falls asleep). Nothing I do gets rid of it, it justgoes away after a few days (or weeks if the gluten exposure has beensubstantial). I'm going to have to look up this mast cell thing, too.My sister also has MVP, and is most likely Celiac, but won't pursue testingsince she has no intention of following the diet. :(God bless,nn"But I woke up in the middle of the night with the bottom of my right footitching like mad. Now that I think about it, this used to happen all thetime, at all times of the day and night, but hasn't since I've been GF. Hasanyone else experienced itching in one certain spot as a reaction towheat/gluten?Trudy"

[Guest guest]

Sounds similar. Have you ever had it again? Did you go GF right after you daughter was born? This is too weird.

Trudy

RE: Weird reaction - anyone else?

When I was pregnant, my chest, palms of my hands and soles of my feet itched so much that I made myself bleed. They took blood and said my liver enzymes were too high. After my daughter was born they went back to normal. Does this sound like it could be related? I was not off any foods at that time.e:

Trudy, This is so weird! I do get this itchy right foot every time I getglutened. To me it feels sort of like the nerves are tingling (but notlike when your foot falls asleep). Nothing I do gets rid of it, it justgoes away after a few days (or weeks if the gluten exposure has beensubstantial). I'm going to have to look up this mast cell thing, too.My sister also has MVP, and is most likely Celiac, but won't pursue testingsince she has no intention of following the diet. :(God bless,nn"But I woke up in the middle of the night with the bottom of my right footitching like mad. Now that I think about it, this used to happen all thetime, at all times of the day and night, but hasn't since I've been GF. Hasanyone else experienced itching in one certain spot as a reaction towheat/gluten?Trudy"

[Guest guest]

Sounds similar. Have you ever had it again? Did you go GF right after you daughter was born? This is too weird.

Trudy

RE: Weird reaction - anyone else?

When I was pregnant, my chest, palms of my hands and soles of my feet itched so much that I made myself bleed. They took blood and said my liver enzymes were too high. After my daughter was born they went back to normal. Does this sound like it could be related? I was not off any foods at that time.e:

Trudy, This is so weird! I do get this itchy right foot every time I getglutened. To me it feels sort of like the nerves are tingling (but notlike when your foot falls asleep). Nothing I do gets rid of it, it justgoes away after a few days (or weeks if the gluten exposure has beensubstantial). I'm going to have to look up this mast cell thing, too.My sister also has MVP, and is most likely Celiac, but won't pursue testingsince she has no intention of following the diet. :(God bless,nn"But I woke up in the middle of the night with the bottom of my right footitching like mad. Now that I think about it, this used to happen all thetime, at all times of the day and night, but hasn't since I've been GF. Hasanyone else experienced itching in one certain spot as a reaction towheat/gluten?Trudy"

[Guest guest]

This is called intrahepatic cholestasis of pregnancy and can be serious. AFAIK,

there is no connection to celiac. A good non-celiac friend had this in her 7th

pregnancy and had to be closely monitored in her 8th pregnancy because she was

told the chance of the disease recurring is high.

RE: Weird reaction - anyone else?

> When I was pregnant, my chest, palms of my hands and soles of my feet

> itched so much that I made myself bleed. They took blood and said my liver

> enzymes were too high. After my daughter was born they went back to

> normal. Does this sound like it could be related? I was not off any foods

> at that time.

>

>

> e:

> >Trudy, This is so weird! I do get this itchy right foot every time I get

> >glutened. To me it feels sort of like the nerves are tingling (but not

> >like when your foot falls asleep). Nothing I do gets rid of it, it just

> >goes away after a few days (or weeks if the gluten exposure has been

> >substantial). I'm going to have to look up this mast cell thing, too.

> >

> >My sister also has MVP, and is most likely Celiac, but won't pursue testing

> >since she has no intention of following the diet.

> >

> >God bless,

> >nn

> >

> >

> >

> > " But I woke up in the middle of the night with the bottom of my right foot

> >itching like mad. Now that I think about it, this used to happen all the

> >time, at all times of the day and night, but hasn't since I've been GF. Has

> >anyone else experienced itching in one certain spot as a reaction to

> >wheat/gluten?

> >

> >Trudy "

>

[Guest guest]

This is called intrahepatic cholestasis of pregnancy and can be serious. AFAIK,

there is no connection to celiac. A good non-celiac friend had this in her 7th

pregnancy and had to be closely monitored in her 8th pregnancy because she was

told the chance of the disease recurring is high.

RE: Weird reaction - anyone else?

> When I was pregnant, my chest, palms of my hands and soles of my feet

> itched so much that I made myself bleed. They took blood and said my liver

> enzymes were too high. After my daughter was born they went back to

> normal. Does this sound like it could be related? I was not off any foods

> at that time.

>

>

> e:

> >Trudy, This is so weird! I do get this itchy right foot every time I get

> >glutened. To me it feels sort of like the nerves are tingling (but not

> >like when your foot falls asleep). Nothing I do gets rid of it, it just

> >goes away after a few days (or weeks if the gluten exposure has been

> >substantial). I'm going to have to look up this mast cell thing, too.

> >

> >My sister also has MVP, and is most likely Celiac, but won't pursue testing

> >since she has no intention of following the diet.

> >

> >God bless,

> >nn

> >

> >

> >

> > " But I woke up in the middle of the night with the bottom of my right foot

> >itching like mad. Now that I think about it, this used to happen all the

> >time, at all times of the day and night, but hasn't since I've been GF. Has

> >anyone else experienced itching in one certain spot as a reaction to

> >wheat/gluten?

> >

> >Trudy "

>