Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Hi Everyone, I'm new here and this is my second post regarding my husband's liver disease. I have a million questions about what to expect and could really use some input. He was diagnosed with PSC six years ago and has been pretty much holding his own for the most part. He doesn't have any major itching, only a few very minor bouts. His main symptoms have been jaundice, some liver pain, bloating and indigestion and within the past 12 months he has had two cholangitis attacks. Both times, he was not hospitalized and cipro cleared the infection. His main problem now is extreme fatigue and, in my opinion, a moderate case of depression. He is not experiencing any signs of chirrosis or cholangiocarcinoma (thank god!) and is not ready to be put on the transplant list. He takes Urso daily, which seems to be slowing down the progression of the disease. One of my questions is - how rapid does the disease start to progress after you start having bouts with cholangitis? We can trace back to around 1991 when we think he had his first signs of the disease and had his gallbladder removed. If that is the case, he has had the disease for at least 15 years. It was in 2000 that he was actually diagnosed with PSC. Also, what is the average waiting period for a liver transplant? Has any one had a living donor transplant? Has anyone had the transplant at the University Hospital of PA in Philadelphia? Thanks. Janice Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
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