Worth 's treatment/who else is doing this?

[Guest guest]

I am sure we have been

here before, but is Worth the only one using Remicade for his PSC? Does anyone

have more details on this story? I am thinking of things like at what point was

Worth when treatment was started? How old was Worth when diagnosed? What were

the factors that made is so the doctors considered him eligible for this versus

others not eligible and why are we not seeing more of us treated with this therapy?

I guess I ponder this after a talk with today in which I was discussing

taking Noah to the rheumie for his joint pain and whether or not they would be

able to actually treat him once we went due to all the medication restrictions with

the liver disease. Then I thought of Remicade and it reminded me of Worth’s

story. See how many things it takes to trigger an actual thought for me. How

pitiful?

Anyway…any ideas…I

would love thoughts on this.

Blessings,

www.caringbridge.org/pa/nwmartens