Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 wrote: > Haven't found one yet!!! I'm trying to get a handicapped parking permit and > my PCP won't give me one even though I have difficulty in walking sometimes. > She wants me to park as far away from the doors of stores as possible and > get the exercise because I should be walking at least a mile a day. > Sorry to hear this. At least my pcp gets it. She understands that I can't exercise. There are enough of us saying this that we *all* can't be lazy, there has to be some truth to this, and I wish those doctors who deny it could understand. I know I'm not lazy, I like to walk..it's my body that doesn't like to always walk anymore. What I don't get is what these doctors think I'm actually getting out of this. They always act like I'm being showered with money, attention and fame instead of often left out of thing, people forgetting to call me, and a lack of money. Never mind me...I'm in a dark mood right now. I'm just tired of the whole lot of non understanding doctors out there. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 wrote: > Haven't found one yet!!! I'm trying to get a handicapped parking permit and > my PCP won't give me one even though I have difficulty in walking sometimes. > She wants me to park as far away from the doors of stores as possible and > get the exercise because I should be walking at least a mile a day. > Sorry to hear this. At least my pcp gets it. She understands that I can't exercise. There are enough of us saying this that we *all* can't be lazy, there has to be some truth to this, and I wish those doctors who deny it could understand. I know I'm not lazy, I like to walk..it's my body that doesn't like to always walk anymore. What I don't get is what these doctors think I'm actually getting out of this. They always act like I'm being showered with money, attention and fame instead of often left out of thing, people forgetting to call me, and a lack of money. Never mind me...I'm in a dark mood right now. I'm just tired of the whole lot of non understanding doctors out there. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 wrote: > Haven't found one yet!!! I'm trying to get a handicapped parking permit and > my PCP won't give me one even though I have difficulty in walking sometimes. > She wants me to park as far away from the doors of stores as possible and > get the exercise because I should be walking at least a mile a day. > Sorry to hear this. At least my pcp gets it. She understands that I can't exercise. There are enough of us saying this that we *all* can't be lazy, there has to be some truth to this, and I wish those doctors who deny it could understand. I know I'm not lazy, I like to walk..it's my body that doesn't like to always walk anymore. What I don't get is what these doctors think I'm actually getting out of this. They always act like I'm being showered with money, attention and fame instead of often left out of thing, people forgetting to call me, and a lack of money. Never mind me...I'm in a dark mood right now. I'm just tired of the whole lot of non understanding doctors out there. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 --- Darcy Stockstill wrote: > > > wrote: > > > Haven't found one yet!!! I'm trying to get a > handicapped parking permit and > > my PCP won't give me one even though I have > difficulty in walking sometimes. > > She wants me to park as far away from the doors of > stores as possible and > > get the exercise because I should be walking at > least a mile a day. > > > > Sorry to hear this. At least my pcp gets it. She > understands that I > can't exercise. There are enough of us saying this > that we *all* can't > be lazy, there has to be some truth to this, and I > wish those doctors > who deny it could understand. I know I'm not lazy, > I like to walk..it's > my body that doesn't like to always walk anymore. > What I don't get is > what these doctors think I'm actually getting out of > this. They always > act like I'm being showered with money, attention > and fame instead of > often left out of thing, people forgetting to call > me, and a lack of > money. Never mind me...I'm in a dark mood right > now. I'm just tired of > the whole lot of non understanding doctors out > there. > Darcy > Hi and Darcy, There are some posts that I feel compelled to respond to even though the energy to do so seems to not be there. But this problem we have with people telling us to exercise really gets to me. I'm lucky that my primary doctor agreed to doing whatever needs to be done to get me the handicapped parking permit. The problem is, though I've had the form for over a month now, I haven't had the energy to mail it off to him. (I called the D.M.V. and they mailed me the form) But about the exercise issue, the problem might lie with studies I've read that say exercise helps people with fibromyalgia, BUT, I've also read studies that say people with CFS do not benefit by exercise and in fact it worsens symptoms. (That is the case with me unfortunately, or I'd be a size 8 again!) So people with both illnesses can't win and the uneducated 'doctors' don't even know there's a difference between the two. And some people with CFS and fibro, just get the fibro diagnosis. It does seem to me that fibromyalgia is less stigmatizing than CFS, these days for whatever that means. (except neither one should be stigmatized). But I seem to be telling people that I have fibro (and leave out the CFS) and get more sympathy and knowledge because everyone seems to know someone else who has fibro. I got off the topic there, but......I'll blame it on fibro fog and/or CFS's cognitive dysfunction. Take care fellow sufferers, Tymbom __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Marsha Lester wrote: > But about the exercise issue, the problem might lie > with studies I've read that say exercise helps people > with fibromyalgia, BUT, I've also read studies that > say people with CFS do not benefit by exercise and in > fact it worsens symptoms. (That is the case with me > unfortunately, or I'd be a size 8 again!) So people > with both illnesses can't win and the uneducated > 'doctors' don't even know there's a difference between > the two. And some people with CFS and fibro, just get > the fibro diagnosis. Well, the first rheumy I went to said she didn't believe in CFS, so no chance there. I'm not sure if I think I have it or not, but since I'm suffering from several things that list fatigue as a possible affect, it's no wonder I'm so fatigued all of the time. But I think you're right about it. > > It does seem to me that fibromyalgia is less > stigmatizing than CFS, these days for whatever that > means. (except neither one should be stigmatized). > But I seem to be telling people that I have fibro (and > leave out the CFS) and get more sympathy and knowledge > because everyone seems to know someone else who has > fibro. I think you're right, fibro is seen more of a " real " disease than CFS. People think CFS is some sort of thing lazy people make up when they don't want to do things. I know, when I tried to communicate sometimes at work, just how tired I was, people would say " oh, I know, I'm tired too. I just had the most exhausting weekend. " Well, I haven't seen them quit work due to a fatigue level, so I know they just aren't getting it. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Marsha Lester wrote: > But about the exercise issue, the problem might lie > with studies I've read that say exercise helps people > with fibromyalgia, BUT, I've also read studies that > say people with CFS do not benefit by exercise and in > fact it worsens symptoms. (That is the case with me > unfortunately, or I'd be a size 8 again!) So people > with both illnesses can't win and the uneducated > 'doctors' don't even know there's a difference between > the two. And some people with CFS and fibro, just get > the fibro diagnosis. Well, the first rheumy I went to said she didn't believe in CFS, so no chance there. I'm not sure if I think I have it or not, but since I'm suffering from several things that list fatigue as a possible affect, it's no wonder I'm so fatigued all of the time. But I think you're right about it. > > It does seem to me that fibromyalgia is less > stigmatizing than CFS, these days for whatever that > means. (except neither one should be stigmatized). > But I seem to be telling people that I have fibro (and > leave out the CFS) and get more sympathy and knowledge > because everyone seems to know someone else who has > fibro. I think you're right, fibro is seen more of a " real " disease than CFS. People think CFS is some sort of thing lazy people make up when they don't want to do things. I know, when I tried to communicate sometimes at work, just how tired I was, people would say " oh, I know, I'm tired too. I just had the most exhausting weekend. " Well, I haven't seen them quit work due to a fatigue level, so I know they just aren't getting it. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Marsha Lester wrote: > But about the exercise issue, the problem might lie > with studies I've read that say exercise helps people > with fibromyalgia, BUT, I've also read studies that > say people with CFS do not benefit by exercise and in > fact it worsens symptoms. (That is the case with me > unfortunately, or I'd be a size 8 again!) So people > with both illnesses can't win and the uneducated > 'doctors' don't even know there's a difference between > the two. And some people with CFS and fibro, just get > the fibro diagnosis. Well, the first rheumy I went to said she didn't believe in CFS, so no chance there. I'm not sure if I think I have it or not, but since I'm suffering from several things that list fatigue as a possible affect, it's no wonder I'm so fatigued all of the time. But I think you're right about it. > > It does seem to me that fibromyalgia is less > stigmatizing than CFS, these days for whatever that > means. (except neither one should be stigmatized). > But I seem to be telling people that I have fibro (and > leave out the CFS) and get more sympathy and knowledge > because everyone seems to know someone else who has > fibro. I think you're right, fibro is seen more of a " real " disease than CFS. People think CFS is some sort of thing lazy people make up when they don't want to do things. I know, when I tried to communicate sometimes at work, just how tired I was, people would say " oh, I know, I'm tired too. I just had the most exhausting weekend. " Well, I haven't seen them quit work due to a fatigue level, so I know they just aren't getting it. Darcy Quote Link to comment Share on other sites More sharing options...
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