Re: Update on the guai treatment - it's working!

[Guest guest]

Hi Jane -

I started on 300 mg. of guaifenesin a week ago today. (November 8th)

I immediately had my energy back. My feet - feeling like perpetual 'pins &

needles' while walking improved until yesterday. (I am better able to walk on

they but the swelling has returned and I stay off my feet as much as possible.

The 'burning' in my leg muscles had improved, but again for the past 2 days it

has kicked up and is more painful than before. The old neck ache - right side

5th & 6th cervical discs - has come back and I am using heat on that.

My question for you is - did it take a 5 day period to start hitting the rough

part of the treatment? If you have any insights please let me know.

My fm is not as sever as most and I have seen the posts from others who didn't

get the benefit of the guaifenesin treatment. If anyone is curious, I recommend

the link from Jane; http://www.guaidoc.com

This link had some handy items that could be made at home for relief;

http://www.fibrohugs.com/promotion/homemade/relief.html

My husband made me the 'muscle roller' and I can use it on my leg muscles while

lying in bed.

I made the 'rice socks' for my neck and shoulder. This was really simple.

I made the 'corn pillow' and it was a little tricky. Again, my hubby came up

with making channels - lengthwise -in the pillow to keep the corn from having

too much freedom.

I don't use the bath remedies but if they are as good as the ones we tried I

would say to give them a try, too.

Hugs to you all and happy Thanksgiving!

Jo

[Guest guest]

Hi Jane -

I started on 300 mg. of guaifenesin a week ago today. (November 8th)

I immediately had my energy back. My feet - feeling like perpetual 'pins &

needles' while walking improved until yesterday. (I am better able to walk on

they but the swelling has returned and I stay off my feet as much as possible.

The 'burning' in my leg muscles had improved, but again for the past 2 days it

has kicked up and is more painful than before. The old neck ache - right side

5th & 6th cervical discs - has come back and I am using heat on that.

My question for you is - did it take a 5 day period to start hitting the rough

part of the treatment? If you have any insights please let me know.

My fm is not as sever as most and I have seen the posts from others who didn't

get the benefit of the guaifenesin treatment. If anyone is curious, I recommend

the link from Jane; http://www.guaidoc.com

This link had some handy items that could be made at home for relief;

http://www.fibrohugs.com/promotion/homemade/relief.html

My husband made me the 'muscle roller' and I can use it on my leg muscles while

lying in bed.

I made the 'rice socks' for my neck and shoulder. This was really simple.

I made the 'corn pillow' and it was a little tricky. Again, my hubby came up

with making channels - lengthwise -in the pillow to keep the corn from having

too much freedom.

I don't use the bath remedies but if they are as good as the ones we tried I

would say to give them a try, too.

Hugs to you all and happy Thanksgiving!

Jo

[Guest guest]

Hi Jane -

I started on 300 mg. of guaifenesin a week ago today. (November 8th)

I immediately had my energy back. My feet - feeling like perpetual 'pins &

needles' while walking improved until yesterday. (I am better able to walk on

they but the swelling has returned and I stay off my feet as much as possible.

The 'burning' in my leg muscles had improved, but again for the past 2 days it

has kicked up and is more painful than before. The old neck ache - right side

5th & 6th cervical discs - has come back and I am using heat on that.

My question for you is - did it take a 5 day period to start hitting the rough

part of the treatment? If you have any insights please let me know.

My fm is not as sever as most and I have seen the posts from others who didn't

get the benefit of the guaifenesin treatment. If anyone is curious, I recommend

the link from Jane; http://www.guaidoc.com

This link had some handy items that could be made at home for relief;

http://www.fibrohugs.com/promotion/homemade/relief.html

My husband made me the 'muscle roller' and I can use it on my leg muscles while

lying in bed.

I made the 'rice socks' for my neck and shoulder. This was really simple.

I made the 'corn pillow' and it was a little tricky. Again, my hubby came up

with making channels - lengthwise -in the pillow to keep the corn from having

too much freedom.

I don't use the bath remedies but if they are as good as the ones we tried I

would say to give them a try, too.

Hugs to you all and happy Thanksgiving!

Jo

[Guest guest]

Jo,

It did take a few days for the treatment to " kick " - and I had new symptoms

start, which I had never had before! Most notably, I got the restless leg

syndrome stuff and the irritable bowel syndrome symptoms started bothering me

for the first time in 12 years. But St. Amand said to expect that sort of thing,

and these things have died down.

It did get much worse for a while, but I figured if the solution was drastic, it

would still be worth a try. I had to do something, things were getting very bad

for me. One thing that got very bad was the pain in my back from an old car

accident. I thought the vertebra had slipped more, so I went to the chiro and

she took new x-rays. It turns out the vertebra was completely in place, (the

disc was somewhat compressed), but my MD thinks it's just the junk from the old

injury site that the guai was flushing out that caused the pain.

I am beginning to cycle again, and my back is hurting again. My headache has

come back as well, but the symptoms are much better than before.

There is another Yahoo group that I belong to: GuaiNwithFibro. I have gotten a

lot of good advice there from people who have been on the treatment for a while.

Another thing that has really helped (tremendously) is my Sunbeam warming

blanket. I really had no idea that living in Los Angeles, sleeping under 2

blankets and a quilt, that perhaps I could benefit from an electric blanket. It

has made a huge difference, though, and unless the kids wake me up at night, I

sleep all the way through. This makes for better days, of course.

I hope you do well on the guai. Let me know how it goes.

-Jane

Re: Update on the guai treatment - it's working!

Hi Jane -

I started on 300 mg. of guaifenesin a week ago today. (November 8th)

I immediately had my energy back. My feet - feeling like perpetual 'pins &

needles' while walking improved until yesterday. (I am better able to walk on

they but the swelling has returned and I stay off my feet as much as possible.

The 'burning' in my leg muscles had improved, but again for the past 2 days it

has kicked up and is more painful than before. The old neck ache - right side

5th & 6th cervical discs - has come back and I am using heat on that.

My question for you is - did it take a 5 day period to start hitting the rough

part of the treatment? If you have any insights please let me know.

My fm is not as sever as most and I have seen the posts from others who didn't

get the benefit of the guaifenesin treatment. If anyone is curious, I recommend

the link from Jane; http://www.guaidoc.com

This link had some handy items that could be made at home for relief;

http://www.fibrohugs.com/promotion/homemade/relief.html

My husband made me the 'muscle roller' and I can use it on my leg muscles

while lying in bed.

I made the 'rice socks' for my neck and shoulder. This was really simple.

I made the 'corn pillow' and it was a little tricky. Again, my hubby came up

with making channels - lengthwise -in the pillow to keep the corn from having

too much freedom.

I don't use the bath remedies but if they are as good as the ones we tried I

would say to give them a try, too.

Hugs to you all and happy Thanksgiving!

Jo

[Guest guest]

I need to print out the info on guafensin. My doctor went ahead and put me

on it. It's jhelped a great deal. What do you mean by 5-6 pills a day?

What is your dosage? Also, can you send me the info so I can give it to

him? He's very interested.

Theresa

>

>Reply-To:

>To:

>Subject: Update on the guai treatment - it's working!

>Date: Thu, 15 Nov 2001 10:53:45 -0800

>

>I've been reading most of the posts here for the last few weeks, although

>I've only posted myself a few times. I am so glad to know that I'm not the

>only one with these myriad, bizarre, troublesome symptoms. I especially

>like reading about the fibrofog, because that is the most frightening one

>for me - what a relief to realize it's fibromyalgia and not early onset of

>Alzheimer's!!

>

>I also want to share with everyone how much better I'm doing with the

>guaifenesin treatment, which I started September 17th.

>

>I know most of you have probably checked it out, but for anyone who hasn't,

>I really do think this is the way out of this continual misery. I now have

>more energy than I've had at any time during the last year. My last flare

>was so mild! (I was off the guai temporarily, and experienced a flare.) I

>still felt like I had a touch of the flu, and my muscles were a LITTLE sore

>- but 3 months ago, I was waking up and sitting at the edge of my bed

>crying every morning - in too much pain to lay back down, and too much pain

>to walk the 10 steps to the tub. Sometimes I had to ask my husband or

>daughter to help dress me, because I couldn't do it by myself!

>

>Last night I walked to the store, and these past few weeks I've rearranged

>most of the furniture in the house and done some serious deep-cleaning

>(like carpets, walls, organizing kids' toys and going through the clothes -

>with 6 kids, this is a big task and my house had gotten into a terrible

>state. We even moved our bed into another room, turned the master bedroom

>into the schoolroom, and we're turning the old schoolroom into the clothes

>room now. We even cleaned out the garage!)

>

>I've taken the kids to the park, we've gone to the bookstore and Zany

>Brainy, I've been walking to the store regularly again with the kids.

>

>A few months ago I was losing hope of ever having any sort of life again. I

>hadn't left my house for 2 months, except for twice when my husband drove

>me to the store, and those were difficult trips for me.

>

>The guaifenesin is really, really helping. My depression has lifted (mostly

>because I feel better, I'm sure!) and I have real hope that my life will

>again be what it once was.

>

>If anyone wants to know more about the treatment, it's explained at

>http://www.guaidoc.com. The medicine is inexpensive (you can get it at

>around 10 - 30 cents per pill, most people take between 1 and 5 pills per

>day) and it is one of the safest medicines out there - safer than tylenol.

>It's been in use for over 100 years, and the only known side effect is a

>really rare case of nausea.

>

>It will increase symptoms for the first month or couple of months, so it's

>not an " easy " treatment at first, but I think it is well, well worth it.

>

>Anyone can email me if you want more info on this. My 5-year-old daughter

>has fibro symptoms, and I think we're going to get her started on treatment

>in the next few months (after I'm a better enough that I can deal with a

>kid in the painful first few months of treatment.) Also, a good friend of

>mine is looking into this. I just can't bear to see people living in this

>kind of agony when there may very well be an inexpensive, safe cure

>available!

>

>Gentle hugs to everyone,

>Jane

>

>

>

>

>

>

>

>

>

[Guest guest]

I need to print out the info on guafensin. My doctor went ahead and put me

on it. It's jhelped a great deal. What do you mean by 5-6 pills a day?

What is your dosage? Also, can you send me the info so I can give it to

him? He's very interested.

Theresa

>

>Reply-To:

>To:

>Subject: Update on the guai treatment - it's working!

>Date: Thu, 15 Nov 2001 10:53:45 -0800

>

>I've been reading most of the posts here for the last few weeks, although

>I've only posted myself a few times. I am so glad to know that I'm not the

>only one with these myriad, bizarre, troublesome symptoms. I especially

>like reading about the fibrofog, because that is the most frightening one

>for me - what a relief to realize it's fibromyalgia and not early onset of

>Alzheimer's!!

>

>I also want to share with everyone how much better I'm doing with the

>guaifenesin treatment, which I started September 17th.

>

>I know most of you have probably checked it out, but for anyone who hasn't,

>I really do think this is the way out of this continual misery. I now have

>more energy than I've had at any time during the last year. My last flare

>was so mild! (I was off the guai temporarily, and experienced a flare.) I

>still felt like I had a touch of the flu, and my muscles were a LITTLE sore

>- but 3 months ago, I was waking up and sitting at the edge of my bed

>crying every morning - in too much pain to lay back down, and too much pain

>to walk the 10 steps to the tub. Sometimes I had to ask my husband or

>daughter to help dress me, because I couldn't do it by myself!

>

>Last night I walked to the store, and these past few weeks I've rearranged

>most of the furniture in the house and done some serious deep-cleaning

>(like carpets, walls, organizing kids' toys and going through the clothes -

>with 6 kids, this is a big task and my house had gotten into a terrible

>state. We even moved our bed into another room, turned the master bedroom

>into the schoolroom, and we're turning the old schoolroom into the clothes

>room now. We even cleaned out the garage!)

>

>I've taken the kids to the park, we've gone to the bookstore and Zany

>Brainy, I've been walking to the store regularly again with the kids.

>

>A few months ago I was losing hope of ever having any sort of life again. I

>hadn't left my house for 2 months, except for twice when my husband drove

>me to the store, and those were difficult trips for me.

>

>The guaifenesin is really, really helping. My depression has lifted (mostly

>because I feel better, I'm sure!) and I have real hope that my life will

>again be what it once was.

>

>If anyone wants to know more about the treatment, it's explained at

>http://www.guaidoc.com. The medicine is inexpensive (you can get it at

>around 10 - 30 cents per pill, most people take between 1 and 5 pills per

>day) and it is one of the safest medicines out there - safer than tylenol.

>It's been in use for over 100 years, and the only known side effect is a

>really rare case of nausea.

>

>It will increase symptoms for the first month or couple of months, so it's

>not an " easy " treatment at first, but I think it is well, well worth it.

>

>Anyone can email me if you want more info on this. My 5-year-old daughter

>has fibro symptoms, and I think we're going to get her started on treatment

>in the next few months (after I'm a better enough that I can deal with a

>kid in the painful first few months of treatment.) Also, a good friend of

>mine is looking into this. I just can't bear to see people living in this

>kind of agony when there may very well be an inexpensive, safe cure

>available!

>

>Gentle hugs to everyone,

>Jane

>

>

>

>

>

>

>

>

>

[Guest guest]

do THE DOCTORS give this medicine? Where do you find it. I've been dealing

with severe muscle spasms and severe lack of energy and I'm Desperate I'm 31

and have 3 children, I want my life back. Keep us informed on how your doing

on it. Sincerely, Pamm

[Guest guest]

do THE DOCTORS give this medicine? Where do you find it. I've been dealing

with severe muscle spasms and severe lack of energy and I'm Desperate I'm 31

and have 3 children, I want my life back. Keep us informed on how your doing

on it. Sincerely, Pamm

[Guest guest]

PUSASALES@... wrote:

>

> do THE DOCTORS give this medicine? Where do you find it.

You can ask your doctor to prescribe it. There is a strict protocol for

using it, i.e. you have to avoid aspirin in all forms and other stuff.

I've never tried it as I know I couldn't avoid aspirin. It helps some

people and doesn't help others. If your doctor won't prescribe it, it

is found in cough medicine. There is a web site on it.

Darcy

[Guest guest]

PUSASALES@... wrote:

>

> do THE DOCTORS give this medicine? Where do you find it.

You can ask your doctor to prescribe it. There is a strict protocol for

using it, i.e. you have to avoid aspirin in all forms and other stuff.

I've never tried it as I know I couldn't avoid aspirin. It helps some

people and doesn't help others. If your doctor won't prescribe it, it

is found in cough medicine. There is a web site on it.

Darcy