Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congratulations!!!!!! I know you and Amy have worked very hard for this!!!! Congrats again!!!! brandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congratulations!!!!!! I know you and Amy have worked very hard for this!!!! Congrats again!!!! brandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 In a message dated 4/26/2002 8:25:33 AM Central Daylight Time, simon@... writes: > This free T4 result is where I'd end up hypo, so I think you are > right to be concerned, but how long has she been on the dose, as > if it is reasonably stable that in itself would persuade me to > stick with it, as I had trouble finding a reasonably stable dose > let alone one that made me feel healthy. Amy has been on 10 mg. Tapazole for eight weeks, a pretty short time, according to the doctor, to achieve somewhat normal levels. If he wanted to leave her at this continued dose for more than the two weeks I would definitely object, but I have been very pleased with his approach so far. I just wanted some input from this great group. Thanks for the response. Amy's Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 In a message dated 4/26/2002 8:25:33 AM Central Daylight Time, simon@... writes: > This free T4 result is where I'd end up hypo, so I think you are > right to be concerned, but how long has she been on the dose, as > if it is reasonably stable that in itself would persuade me to > stick with it, as I had trouble finding a reasonably stable dose > let alone one that made me feel healthy. Amy has been on 10 mg. Tapazole for eight weeks, a pretty short time, according to the doctor, to achieve somewhat normal levels. If he wanted to leave her at this continued dose for more than the two weeks I would definitely object, but I have been very pleased with his approach so far. I just wanted some input from this great group. Thanks for the response. Amy's Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 In a message dated 4/26/2002 8:25:33 AM Central Daylight Time, simon@... writes: > This free T4 result is where I'd end up hypo, so I think you are > right to be concerned, but how long has she been on the dose, as > if it is reasonably stable that in itself would persuade me to > stick with it, as I had trouble finding a reasonably stable dose > let alone one that made me feel healthy. Amy has been on 10 mg. Tapazole for eight weeks, a pretty short time, according to the doctor, to achieve somewhat normal levels. If he wanted to leave her at this continued dose for more than the two weeks I would definitely object, but I have been very pleased with his approach so far. I just wanted some input from this great group. Thanks for the response. Amy's Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 burback6pack wrote: > > It was amazing what it did for Amy to hear from " the professional " > that she is " normal. " She immediately perked up and started skipping > and laughing around the house. Good. > Here's the latest readings: > > Total T4 7.l range: 4.5 - 12.0 > > TSH by Immulite 0.451 range: 0.4 - 4.0 > > Free T4 1.0 range: 0.8 - 1.9 > > Total T3 138. range: 82 - 179 Sorry I'm a recent joiner so missed earlier comments. This free T4 result is where I'd end up hypo, so I think you are right to be concerned, but how long has she been on the dose, as if it is reasonably stable that in itself would persuade me to stick with it, as I had trouble finding a reasonably stable dose let alone one that made me feel healthy. How old is Amy? Simon -- " Don't get me started on intuitive. You know what's intuitive? Fear of heights. Everything else we call intuitive, such as walking or using a pencil took years of practice. " - Don Norman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 burback6pack wrote: > > It was amazing what it did for Amy to hear from " the professional " > that she is " normal. " She immediately perked up and started skipping > and laughing around the house. Good. > Here's the latest readings: > > Total T4 7.l range: 4.5 - 12.0 > > TSH by Immulite 0.451 range: 0.4 - 4.0 > > Free T4 1.0 range: 0.8 - 1.9 > > Total T3 138. range: 82 - 179 Sorry I'm a recent joiner so missed earlier comments. This free T4 result is where I'd end up hypo, so I think you are right to be concerned, but how long has she been on the dose, as if it is reasonably stable that in itself would persuade me to stick with it, as I had trouble finding a reasonably stable dose let alone one that made me feel healthy. How old is Amy? Simon -- " Don't get me started on intuitive. You know what's intuitive? Fear of heights. Everything else we call intuitive, such as walking or using a pencil took years of practice. " - Don Norman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 burback6pack wrote: > > It was amazing what it did for Amy to hear from " the professional " > that she is " normal. " She immediately perked up and started skipping > and laughing around the house. Good. > Here's the latest readings: > > Total T4 7.l range: 4.5 - 12.0 > > TSH by Immulite 0.451 range: 0.4 - 4.0 > > Free T4 1.0 range: 0.8 - 1.9 > > Total T3 138. range: 82 - 179 Sorry I'm a recent joiner so missed earlier comments. This free T4 result is where I'd end up hypo, so I think you are right to be concerned, but how long has she been on the dose, as if it is reasonably stable that in itself would persuade me to stick with it, as I had trouble finding a reasonably stable dose let alone one that made me feel healthy. How old is Amy? Simon -- " Don't get me started on intuitive. You know what's intuitive? Fear of heights. Everything else we call intuitive, such as walking or using a pencil took years of practice. " - Don Norman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Hi Amy's Pam, I tend to agree with you and posted a reference for this on about.com yesterday. It's a study described in Werner & Ingbar's The Thyroid commenting that 85% people on 10 mg Tapazole become euthyroid compared to 92% of people on 40 mg Tapazole. It says after they become euthyroid most people can be maintained on 2.5 to 5 mg tapazole daily and these are adults. Eosinophils are primarily increased in allergies and we often see people with up to 10% eos during allergy season. Ovalocytes are red blood cells that are more oval than round. Normally some cells are mis-shapen and a slight amount isn't significant. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congrats to Amy and Mom on the good labs! Enjoy this success and celebrate! Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congrats to Amy and Mom on the good labs! Enjoy this success and celebrate! Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 All right! Congrats to Amy - that is wonderful news! I'm especially glad to hear that she's feeling better emotionally, too! Just make sure to keep a close watch for the next 2 weeks and if she starts feeling hypo, call the doc for labs pronto! I'm so happy for you guys - you both have worked very hard! Normal levels! > Amy had a visit with the endocrinologist on Monday and the results > came back late Wednesday: the doctor says she's showing normal > levels for the first time! :-) > > The doctor wants to keep her at the same dosage of Tapazole (10 mg. > twice a day) for another two weeks, then do labs again. I'm not > entirely sure I agree with this, because I fear she'll slip into > hypo, but I hate to buck him since he's been very good so far. I'm > posting her latest numbers at the end for feedback from any of you > who have an opinion. . . > > It was amazing what it did for Amy to hear from " the professional " > that she is " normal. " She immediately perked up and started skipping > and laughing around the house. > > Here's the latest readings: > > Total T4 7.l range: 4.5 - 12.0 > > TSH by Immulite 0.451 range: 0.4 - 4.0 > > Free T4 1.0 range: 0.8 - 1.9 > > Total T3 138. range: 82 - 179 > > Her CBC numbers varied as usual, with only EOS being high off the > chart and something called Ovalo (?) showing " slight. " > > Anyone care to comment? Thanks for the continued support! > > Amy's Pam > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 All right! Congrats to Amy - that is wonderful news! I'm especially glad to hear that she's feeling better emotionally, too! Just make sure to keep a close watch for the next 2 weeks and if she starts feeling hypo, call the doc for labs pronto! I'm so happy for you guys - you both have worked very hard! Normal levels! > Amy had a visit with the endocrinologist on Monday and the results > came back late Wednesday: the doctor says she's showing normal > levels for the first time! :-) > > The doctor wants to keep her at the same dosage of Tapazole (10 mg. > twice a day) for another two weeks, then do labs again. I'm not > entirely sure I agree with this, because I fear she'll slip into > hypo, but I hate to buck him since he's been very good so far. I'm > posting her latest numbers at the end for feedback from any of you > who have an opinion. . . > > It was amazing what it did for Amy to hear from " the professional " > that she is " normal. " She immediately perked up and started skipping > and laughing around the house. > > Here's the latest readings: > > Total T4 7.l range: 4.5 - 12.0 > > TSH by Immulite 0.451 range: 0.4 - 4.0 > > Free T4 1.0 range: 0.8 - 1.9 > > Total T3 138. range: 82 - 179 > > Her CBC numbers varied as usual, with only EOS being high off the > chart and something called Ovalo (?) showing " slight. " > > Anyone care to comment? Thanks for the continued support! > > Amy's Pam > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 All right! Congrats to Amy - that is wonderful news! I'm especially glad to hear that she's feeling better emotionally, too! Just make sure to keep a close watch for the next 2 weeks and if she starts feeling hypo, call the doc for labs pronto! I'm so happy for you guys - you both have worked very hard! Normal levels! > Amy had a visit with the endocrinologist on Monday and the results > came back late Wednesday: the doctor says she's showing normal > levels for the first time! :-) > > The doctor wants to keep her at the same dosage of Tapazole (10 mg. > twice a day) for another two weeks, then do labs again. I'm not > entirely sure I agree with this, because I fear she'll slip into > hypo, but I hate to buck him since he's been very good so far. I'm > posting her latest numbers at the end for feedback from any of you > who have an opinion. . . > > It was amazing what it did for Amy to hear from " the professional " > that she is " normal. " She immediately perked up and started skipping > and laughing around the house. > > Here's the latest readings: > > Total T4 7.l range: 4.5 - 12.0 > > TSH by Immulite 0.451 range: 0.4 - 4.0 > > Free T4 1.0 range: 0.8 - 1.9 > > Total T3 138. range: 82 - 179 > > Her CBC numbers varied as usual, with only EOS being high off the > chart and something called Ovalo (?) showing " slight. " > > Anyone care to comment? Thanks for the continued support! > > Amy's Pam > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congratulations! Debbie R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congratulations! Debbie R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congratulations! Debbie R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Congratulations!! I'm so happy for her and for you. I think it's good that your doctor is planning to check her again in two weeks. I'd make sure she stays on the lookout for hypO symptoms because once it gets bad, it is pretty awful stuff. Best of luck to both of you and happy days for Amy!! Kristi Normal levels! Amy had a visit with the endocrinologist on Monday and the results came back late Wednesday: the doctor says she's showing normal levels for the first time! :-) The doctor wants to keep her at the same dosage of Tapazole (10 mg. twice a day) for another two weeks, then do labs again. I'm not entirely sure I agree with this, because I fear she'll slip into hypo, but I hate to buck him since he's been very good so far. I'm posting her latest numbers at the end for feedback from any of you who have an opinion. . . It was amazing what it did for Amy to hear from " the professional " that she is " normal. " She immediately perked up and started skipping and laughing around the house. Here's the latest readings: Total T4 7.l range: 4.5 - 12.0 TSH by Immulite 0.451 range: 0.4 - 4.0 Free T4 1.0 range: 0.8 - 1.9 Total T3 138. range: 82 - 179 Her CBC numbers varied as usual, with only EOS being high off the chart and something called Ovalo (?) showing " slight. " Anyone care to comment? Thanks for the continued support! Amy's Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 I still get so confused by lab numbers. My latest labs have my T4 and my FT4 just on the low end of normal. Would this tend to mean I am closer to hyper or hypo? Free T4 0.70 (0.61-1.76) T4 4.6 (4.5-12.0) TSH 1.52 (0.35-5.5) I have little energy during the day, and do wake up during the night with the heart palpitations, occasionally night sweats, and have a difficult time settling down to sleep again once I am awake. Any thoughts? Thanks, Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 fly423@... wrote: > > I still get so confused by lab numbers. My latest labs have my T4 and my FT4 > just on the low end of normal. Would this tend to mean I am closer to hyper > or hypo? Low end of normal for T4 and Free T4 is the hypo direction. Tired/Depressed/Achy/Cold I've felt pretty ill with a Free T4 this low before, but obviously free T4 isn't necessarily as directly related to how you feel as one might like and thus things vary. > Free T4 0.70 (0.61-1.76) > T4 4.6 (4.5-12.0) > TSH 1.52 (0.35-5.5) This TSH is near normal (it is actually above average indicating hypo as well), but in Graves you probably shouldn't focus on this much. > I have little energy during the day, and do wake up during the night with the > heart palpitations, occasionally night sweats, and have a difficult time > settling down to sleep again once I am awake. Any thoughts? Mention the heart palp to the doctor just to be sure. I think when the thyroid meds wear off you can get a bit of a jolt of thyroid hormones. What medication are you on? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 fly423@... wrote: > > I still get so confused by lab numbers. My latest labs have my T4 and my FT4 > just on the low end of normal. Would this tend to mean I am closer to hyper > or hypo? Low end of normal for T4 and Free T4 is the hypo direction. Tired/Depressed/Achy/Cold I've felt pretty ill with a Free T4 this low before, but obviously free T4 isn't necessarily as directly related to how you feel as one might like and thus things vary. > Free T4 0.70 (0.61-1.76) > T4 4.6 (4.5-12.0) > TSH 1.52 (0.35-5.5) This TSH is near normal (it is actually above average indicating hypo as well), but in Graves you probably shouldn't focus on this much. > I have little energy during the day, and do wake up during the night with the > heart palpitations, occasionally night sweats, and have a difficult time > settling down to sleep again once I am awake. Any thoughts? Mention the heart palp to the doctor just to be sure. I think when the thyroid meds wear off you can get a bit of a jolt of thyroid hormones. What medication are you on? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 In a message dated 4/27/02 6:06:22 PM Eastern Daylight Time, luckystrike@... writes: > I can't remember what your treatment is...if on ATD's you may want to cut a > morning dose in half, and keep the other dose(s) for the reg. times, see if > this helps. Jody, I am only on 50mg. PTU once a day, but have been taking it in the morning. I am going to try splitting it up. I go back to the endo in 2 weeks, and will bring up other issues at that time. I still have lots of questions to ask him. He tells me I do NOT have Grave's but a hyperfunctioning nodule. (I'm not sure what the difference in treatment is) As for the heart palpitations, I am going to to back and see the cardiologist and bring him up to date on the thyroid...maybe he has some input. Thanks again, Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 In a message dated 4/27/02 6:09:24 PM Eastern Daylight Time, simon@... writes: > This TSH is near normal (it is actually above average indicating > hypo as well), but in Graves you probably shouldn't focus on > Is it different when the hyperthyroidism isn't caused from Graves? I started in Nov. with a TSH of <0.03, went on 10mg. Tapazole TID, and in 4 weeks my TSH went up to 46.67 (with severe hypo symtoms), and was switched to 50mg. PTU once a day in Feb. As I said in my previous post, I am going to try splitting the PTU and see if it helps with my symptoms. Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 fly423@... wrote: > > Is it different when the hyperthyroidism isn't caused from Graves? Hey I just spent a decade learning about Graves I think you are probably wise to assume that the TSH MAY be misrepresentative with all hyperthyroid complaints, until it is clear that an " average " TSH corresponds with having had good stable thyroid hormone levels for a few months and feeling okay. Not saying it will be misleading, but faulty thyroids don't always behave like the textbooks say they will.... and TSH is based on the pituarity presumably assuming that the mix of hormones agrees with what a healthy thyroid does. I've yet to meet anyone with a TSH of 46 with hyper symptoms mind, but I dare say someone somewhere will have managed it by some means. > I started in Nov. with a TSH of <0.03, went on 10mg. Tapazole TID, and in 4 > weeks my TSH went up to 46.67 (with severe hypo symtoms), and was switched to > 50mg. PTU once a day in Feb. As I said in my previous post, I am going to > try splitting the PTU and see if it helps with my symptoms. I've just started 50mg PTU daily and have to split it to avoid " hot flushes " , so yes this probably accounts for the heart palps in the night if you take the dose in the morning your nodule can then misbehave drug free in the night. Splitting the PTU sounds like a good move, but let the docs know what and why, as they may catch anything that turns out to be silly or inappropriate for your condition (of course they may also get it wrong and prescribe PTU to be taken once daily like they did with me.....). My update on switching from Carbimazole to PTU contains some hints on cutting up pills . I lost (totally - how do things vanish in a bedroom) 2 halves of PTU pills by cutting then with a pen knife, in four days, despite carefully positioning things to stop the fragments escaping... Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 fly423@... wrote: > > Is it different when the hyperthyroidism isn't caused from Graves? Hey I just spent a decade learning about Graves I think you are probably wise to assume that the TSH MAY be misrepresentative with all hyperthyroid complaints, until it is clear that an " average " TSH corresponds with having had good stable thyroid hormone levels for a few months and feeling okay. Not saying it will be misleading, but faulty thyroids don't always behave like the textbooks say they will.... and TSH is based on the pituarity presumably assuming that the mix of hormones agrees with what a healthy thyroid does. I've yet to meet anyone with a TSH of 46 with hyper symptoms mind, but I dare say someone somewhere will have managed it by some means. > I started in Nov. with a TSH of <0.03, went on 10mg. Tapazole TID, and in 4 > weeks my TSH went up to 46.67 (with severe hypo symtoms), and was switched to > 50mg. PTU once a day in Feb. As I said in my previous post, I am going to > try splitting the PTU and see if it helps with my symptoms. I've just started 50mg PTU daily and have to split it to avoid " hot flushes " , so yes this probably accounts for the heart palps in the night if you take the dose in the morning your nodule can then misbehave drug free in the night. Splitting the PTU sounds like a good move, but let the docs know what and why, as they may catch anything that turns out to be silly or inappropriate for your condition (of course they may also get it wrong and prescribe PTU to be taken once daily like they did with me.....). My update on switching from Carbimazole to PTU contains some hints on cutting up pills . I lost (totally - how do things vanish in a bedroom) 2 halves of PTU pills by cutting then with a pen knife, in four days, despite carefully positioning things to stop the fragments escaping... Simon Quote Link to comment Share on other sites More sharing options...
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