Why get scoped?

February 5, 2006

Or why go GF?

If you have elevated levels on a Celiac Disease panel and one or both

of the gene markers, chances are your GI will say we need to do a biopsy.

If you feel comfortable with the blood results enough to say, no

biopsy, I'm going GF -- then do so. If you need the only medical

proof of CD available at this time, then have the biopsy and then go

GF if it comes back positive. Note though, if the biopsy comes back

negative, it may not be accurate, the intestines might have damage in

another location not biopsied, that is why a negative biopsy does not

rule CD 100% out, when blood levels are high and you should plan to

re-biospy in a few years.

Why go GF? If you have CD, then you dramatically increase your risk

of cancer by continuing to feed gluten into your system. You also

dramatically increase your chance of aquiring an auto-immune disorder.

Most disturbing is Diabetes Type I (insulin dependent) is not

reversible, it is life long and shortens your life span and comfort of

your life. Dr. Fasano said that teens who have CD but do not eat a GF

diet more than likely will have Insulin Dependent Diabetes by age 30.

This is from the appt we had with him last Tuesday for our 3 1/2 yr

old, whom we are not scoping at this time. My questions was medically

why do we need to scope when we are happy with the GF results and his

blood work -- to prove with photos to teens they are sick... Well,

I'm not convienced that will persuade even the most stubborn teen...

I think the best thing for anyone to do with questions is to read,

read and keep reading. I for one like

I'm reading Dangerous Grains right now, it is worth a read. I

requested our Library to get it and they did. I will likely buy a

copy of this one. The cancer gluten connection is really interesting.

Even though it is only my 1 middle child who is GF at this time, I

have no doubts that the entire family will be GF by the end of the

year. I feel the kids will be for their CD status and my husband and

I will eat GF b/c I'm not going to cook separately for everyone. As

it is right now, all dessert items are GF, it's easier.

My dh has DQ2 but negative test results. He is not totally clear how

he could have the gene and not the disease. I do not have the gene

markers, but I feel the opioid addiction to gluten, so I will likely

feel better going 100% GF (got some stuff to eat up first).

Rejoyce

Winchester, VA

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