Re: another testing question

[Guest guest]

As for us, we have the bloodwork results for our child and he is

positive for CD, but even if they came back negative, we already knew

the GF diet worked. Dr. Fasano asked me if I had any doubts about him

having CD, I said no. He said he didn't either, but could not give me

a firm dx w/o the biospy which we are not going to do to our little

boy right now. Dr. Fasano said that it was obvious our son was

thriving on a GF diet, symptoms gone etc and he would not recommend

that we ever put him back on a gluten diet -- except for the biopsy

purpose.

So, what I'm saying is, as an adult -- is there any benefit in knowing

for sure and for certain it's CD? Or can one be content in knowing

they feel better eating GF? That is a personal decision, but worth

looking into the pros and cons.

I asked Dr. Fasano if there was a medical reason for doing the biopsy

-- his answer was yes, but the reason was to prove to a teen they have

CD so they will more likely stick with the GF diet. If a teen does

stick to a GF diet they risk Insulin Dependent Diabetes hitting them

when they are 30ish. So, in my opinion, there is no real medical

necessity. I have a doctor who will sign the necessary forms for

special food at the school cafe when that time comes, if I choose to

pursue that.

A good community to chat with people about it is at

http://brain.hastypastry.net/forums/forumdisplay.php?f=141

Rejoyce

Winchester, VA

>

> Ok, I'll admit I'm at about my wits' end with the medical system

(long story

> and most of it off topic), but the whole gluten free thing is

figuring into

> my current frustration.

>

> Back in what was it? November? My gp advised me to try a wheat

elimination

> diet because I'd noticed that my " IBS-D " flared up with " wheatie "

meals. It

> worked. If I don't eat wheat, my IBS-D doesn't show up - but now if I

> cheat, my " IBS-D " kicks my behind. Oddly enough, I've noticed that

whether

> I eat wheat or not also plays a huge role in my allergy symptoms.

>

> I asked my gp about testing and she insists that it's " unnecessary " and

> " unwarranted " . She justifies this on the basis of my weight, something

> about overweight people can't be celiac. Yeah, so what, I'm not thin.

> Never have been and probably never will be - especially if thin is

defined

> by BMI standards (I have heavy bones and a very generous bone

structure).

> However, my system is so far out of whack that if I skip so much as one

> vitamin, I get a migraine that lasts until I start taking them again

- and

> even she admits that this is most likely due to deficiencies in either

> magnesium or perhaps one of the B vitamins (and she doesn't want to

test for

> these either) and any exposure to wheat starts up my IBS and

allergies. Is

> she right to avoid doing any testing beyond an elimination diet? I'd

> personally like to at least know why the diet seems to work before I go

> putting in all sorts of time and expense following the elimination

diet for

> life.

>

> Dee

>