Re: Symptom data collection

[Guest guest]

Hello

I think this is a great idea and if everyone in the group was willing to

participate the results could be very interesting. Put my name down for

this.

A lady called Tracey offered to carry out a similiar survey last

September but nothing happened.

Regards

Symptom data collection

> I've been observing this group for quite a while although I have only

subscribed quite recently.I've been scanning the med literature, journals,

CPS, etc. constantly in addition to all the rosacea symptom descriptions in

this group trying to figure out some sort of relationship between some of

the different types of symptoms rosaceans get -- must be the scientist in

me. The problem I'm finding (as I'm sure everyone in this group is aware) is

that the term " rosacea " is used as a sort of catch-phrase for a number of

different symptoms: prolonged flushing (usually heat/sun), emotional

blushing, papules, pustules, swelling, constant redness, redness that comes

and goes, sensitivity to all forms of light (not just sunlight), enlarged

pores, thickened skin, seb derm, and the list could go on and on.

>

> I was wondering if it might be helpful (and I don't know if anyone here

has tried this already) to survey the people of this group as to their exact

symptoms, products tried, medications, etc. Perhaps a better correlation

could be found between which treatments work for which combination of

symptoms in different sufferers. I would be willing to set something up if

anyone thought it might be useful.

>

>

[Guest guest]

Hello

I think this is a great idea and if everyone in the group was willing to

participate the results could be very interesting. Put my name down for

this.

A lady called Tracey offered to carry out a similiar survey last

September but nothing happened.

Regards

Symptom data collection

> I've been observing this group for quite a while although I have only

subscribed quite recently.I've been scanning the med literature, journals,

CPS, etc. constantly in addition to all the rosacea symptom descriptions in

this group trying to figure out some sort of relationship between some of

the different types of symptoms rosaceans get -- must be the scientist in

me. The problem I'm finding (as I'm sure everyone in this group is aware) is

that the term " rosacea " is used as a sort of catch-phrase for a number of

different symptoms: prolonged flushing (usually heat/sun), emotional

blushing, papules, pustules, swelling, constant redness, redness that comes

and goes, sensitivity to all forms of light (not just sunlight), enlarged

pores, thickened skin, seb derm, and the list could go on and on.

>

> I was wondering if it might be helpful (and I don't know if anyone here

has tried this already) to survey the people of this group as to their exact

symptoms, products tried, medications, etc. Perhaps a better correlation

could be found between which treatments work for which combination of

symptoms in different sufferers. I would be willing to set something up if

anyone thought it might be useful.

>

>

[Guest guest]

Hello

I think this is a great idea and if everyone in the group was willing to

participate the results could be very interesting. Put my name down for

this.

A lady called Tracey offered to carry out a similiar survey last

September but nothing happened.

Regards

Symptom data collection

> I've been observing this group for quite a while although I have only

subscribed quite recently.I've been scanning the med literature, journals,

CPS, etc. constantly in addition to all the rosacea symptom descriptions in

this group trying to figure out some sort of relationship between some of

the different types of symptoms rosaceans get -- must be the scientist in

me. The problem I'm finding (as I'm sure everyone in this group is aware) is

that the term " rosacea " is used as a sort of catch-phrase for a number of

different symptoms: prolonged flushing (usually heat/sun), emotional

blushing, papules, pustules, swelling, constant redness, redness that comes

and goes, sensitivity to all forms of light (not just sunlight), enlarged

pores, thickened skin, seb derm, and the list could go on and on.

>

> I was wondering if it might be helpful (and I don't know if anyone here

has tried this already) to survey the people of this group as to their exact

symptoms, products tried, medications, etc. Perhaps a better correlation

could be found between which treatments work for which combination of

symptoms in different sufferers. I would be willing to set something up if

anyone thought it might be useful.

>

>

[Guest guest]

,

This is a great idea and would benefit us all I am sure. Hope you do

go ahead, though it would be quite an undertaking.

-- In rosacea-supportegroups, " Harnett " <juliaph@h...>

wrote:

> I've been observing this group for quite a while although I have

only subscribed quite recently.I've been scanning the med literature,

journals, CPS, etc. constantly in addition to all the rosacea symptom

descriptions in this group trying to figure out some sort of

relationship between some of the different types of symptoms

rosaceans get -- must be the scientist in me. The problem I'm finding

(as I'm sure everyone in this group is aware) is that the

term " rosacea " is used as a sort of catch-phrase for a number of

different symptoms: prolonged flushing (usually heat/sun), emotional

blushing, papules, pustules, swelling, constant redness, redness that

comes and goes, sensitivity to all forms of light (not just

sunlight), enlarged pores, thickened skin, seb derm, and the list

could go on and on.

>

> I was wondering if it might be helpful (and I don't know if anyone

here has tried this already) to survey the people of this group as to

their exact symptoms, products tried, medications, etc. Perhaps a

better correlation could be found between which treatments work for

which combination of symptoms in different sufferers. I would be

willing to set something up if anyone thought it might be useful.

>

>

>

>

>

>

[Guest guest]

,

This is a great idea and would benefit us all I am sure. Hope you do

go ahead, though it would be quite an undertaking.

-- In rosacea-supportegroups, " Harnett " <juliaph@h...>

wrote:

> I've been observing this group for quite a while although I have

only subscribed quite recently.I've been scanning the med literature,

journals, CPS, etc. constantly in addition to all the rosacea symptom

descriptions in this group trying to figure out some sort of

relationship between some of the different types of symptoms

rosaceans get -- must be the scientist in me. The problem I'm finding

(as I'm sure everyone in this group is aware) is that the

term " rosacea " is used as a sort of catch-phrase for a number of

different symptoms: prolonged flushing (usually heat/sun), emotional

blushing, papules, pustules, swelling, constant redness, redness that

comes and goes, sensitivity to all forms of light (not just

sunlight), enlarged pores, thickened skin, seb derm, and the list

could go on and on.

>

> I was wondering if it might be helpful (and I don't know if anyone

here has tried this already) to survey the people of this group as to

their exact symptoms, products tried, medications, etc. Perhaps a

better correlation could be found between which treatments work for

which combination of symptoms in different sufferers. I would be

willing to set something up if anyone thought it might be useful.

>

>

>

>

>

>

[Guest guest]

,

This is a great idea and would benefit us all I am sure. Hope you do

go ahead, though it would be quite an undertaking.

-- In rosacea-supportegroups, " Harnett " <juliaph@h...>

wrote:

> I've been observing this group for quite a while although I have

only subscribed quite recently.I've been scanning the med literature,

journals, CPS, etc. constantly in addition to all the rosacea symptom

descriptions in this group trying to figure out some sort of

relationship between some of the different types of symptoms

rosaceans get -- must be the scientist in me. The problem I'm finding

(as I'm sure everyone in this group is aware) is that the

term " rosacea " is used as a sort of catch-phrase for a number of

different symptoms: prolonged flushing (usually heat/sun), emotional

blushing, papules, pustules, swelling, constant redness, redness that

comes and goes, sensitivity to all forms of light (not just

sunlight), enlarged pores, thickened skin, seb derm, and the list

could go on and on.

>

> I was wondering if it might be helpful (and I don't know if anyone

here has tried this already) to survey the people of this group as to

their exact symptoms, products tried, medications, etc. Perhaps a

better correlation could be found between which treatments work for

which combination of symptoms in different sufferers. I would be

willing to set something up if anyone thought it might be useful.

>

>

>

>

>

>

[Guest guest]

,

I will be glad to participate in your survey and will also help you interview

members if you would like help.

a

Symptom data collection

>I've been observing this group for quite a while although I have only

subscribed

quite recently.I've been scanning the med literature, journals, CPS, etc.

constantly in addition to all the rosacea symptom descriptions in this group

trying to figure out some sort of relationship between some of the different

types

of symptoms rosaceans get -- must be the scientist in me. The problem I'm

finding

(as I'm sure everyone in this group is aware) is that the term " rosacea " is used

as a sort of catch-phrase for a number of different symptoms: prolonged flushing

(usually heat/sun), emotional blushing, papules, pustules, swelling, constant

redness, redness that comes and goes, sensitivity to all forms of light (not

just

sunlight), enlarged pores, thickened skin, seb derm, and the list could go on

and

on.

>

>I was wondering if it might be helpful (and I don't know if anyone here has

tried

this already) to survey the people of this group as to their exact symptoms,

products tried, medications, etc. Perhaps a better correlation could be found

between which treatments work for which combination of symptoms in different

sufferers. I would be willing to set something up if anyone thought it might be

useful.

>

>

>

>

>

>

[Guest guest]

,

Yes, there do seem to be differences in our symptom groups and it

often seems that what works for one of us can cause problems for

someone else. The idea of collecting and correlating symptoms

and treatments is excellent. Here's my suggestion: after soliciting

ideas from people about symptoms, triggers, and what-works-for-me,

then post a questionnaire so that all the relevant data gets included.

What am I saying! If you're a scientist you know how to do this. (I

wasn't intending any insult, just enthusiasm for your idea)

It's 4am, been up since 2 after waking from a horrible nightmare

(shouldn't have watched that Shaft video last night, eh?)

Chris

[Guest guest]

,

Yes, there do seem to be differences in our symptom groups and it

often seems that what works for one of us can cause problems for

someone else. The idea of collecting and correlating symptoms

and treatments is excellent. Here's my suggestion: after soliciting

ideas from people about symptoms, triggers, and what-works-for-me,

then post a questionnaire so that all the relevant data gets included.

What am I saying! If you're a scientist you know how to do this. (I

wasn't intending any insult, just enthusiasm for your idea)

It's 4am, been up since 2 after waking from a horrible nightmare

(shouldn't have watched that Shaft video last night, eh?)

Chris

[Guest guest]

,

Yes, there do seem to be differences in our symptom groups and it

often seems that what works for one of us can cause problems for

someone else. The idea of collecting and correlating symptoms

and treatments is excellent. Here's my suggestion: after soliciting

ideas from people about symptoms, triggers, and what-works-for-me,

then post a questionnaire so that all the relevant data gets included.

What am I saying! If you're a scientist you know how to do this. (I

wasn't intending any insult, just enthusiasm for your idea)

It's 4am, been up since 2 after waking from a horrible nightmare

(shouldn't have watched that Shaft video last night, eh?)

Chris