Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 just wanted to let you know that I go through the same thing. Since we are getting into details I will share this….I push and push and push till I am ready to pass out and there it is and is. It is the weirdest thing once it starts there is no stopping it, it just rushes out like it was held by an air pocket or something. You might think I am crazy but when I feel the urge to go, I sometimes hold it for awhile then go. It’s a little uncomfortable but it’s much easier than feeling like I am forcing myself. If you don’t want to go through all that you can always eat something with gluten and it will happen instantly. cmwendy pandolfo wrote: I was wondering if any of you suffer from severe constipation. If you don't, don't feel like you have to read on. What ended up as a diagnosis of celiac for me, started as a quest for figuring out why I can't "go". I was diagnosed with IBS 20 years ago. Having a bm was always a major investment of time every day and I never had an "urge", rather just pressure in the lower left side. It finally got so I was getting very little done in the bathroom in a whole lot of time and I ended up having several medical tests, which resulted in a diagnosis of colon inertia. This is a problem with the nerves in the colon not sending the message to the muscles to move. A few months after that diagnosis, I had my positive biopsy for celiac. The celiac investigation came about when I ran into an old friend who is now a doc and told her of the bowel problems I was having. I happened to mention to her that the weird thing was, that which I could eventually move was soft and unformed and seemed like things moved though rather quickly (I know, at least one doc has looked at me and said that it just doesn't make sense...after all, isn't constipation supposed to be hard?) That was her alarm signal for the celiac, which ended up explaining the stool, but of course not the colon inertia. I write this to you because I can find no connection between colon inertia and celiac. As far as I know they are not connected. But both my gi doc and my colon rectal surgeon said that the gf diet may help....they don't know as much about celiac as they thought they did. I'm trying to have hope, but after one month I see no change in that regard. I also would like to find others with a similar problem to see what their experience has been like. Thanks, Yahoo! PhotosGot holiday prints? See all the ways to get quality prints in your hands ASAP. Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 just wanted to let you know that I go through the same thing. Since we are getting into details I will share this….I push and push and push till I am ready to pass out and there it is and is. It is the weirdest thing once it starts there is no stopping it, it just rushes out like it was held by an air pocket or something. You might think I am crazy but when I feel the urge to go, I sometimes hold it for awhile then go. It’s a little uncomfortable but it’s much easier than feeling like I am forcing myself. If you don’t want to go through all that you can always eat something with gluten and it will happen instantly. cmwendy pandolfo wrote: I was wondering if any of you suffer from severe constipation. If you don't, don't feel like you have to read on. What ended up as a diagnosis of celiac for me, started as a quest for figuring out why I can't "go". I was diagnosed with IBS 20 years ago. Having a bm was always a major investment of time every day and I never had an "urge", rather just pressure in the lower left side. It finally got so I was getting very little done in the bathroom in a whole lot of time and I ended up having several medical tests, which resulted in a diagnosis of colon inertia. This is a problem with the nerves in the colon not sending the message to the muscles to move. A few months after that diagnosis, I had my positive biopsy for celiac. The celiac investigation came about when I ran into an old friend who is now a doc and told her of the bowel problems I was having. I happened to mention to her that the weird thing was, that which I could eventually move was soft and unformed and seemed like things moved though rather quickly (I know, at least one doc has looked at me and said that it just doesn't make sense...after all, isn't constipation supposed to be hard?) That was her alarm signal for the celiac, which ended up explaining the stool, but of course not the colon inertia. I write this to you because I can find no connection between colon inertia and celiac. As far as I know they are not connected. But both my gi doc and my colon rectal surgeon said that the gf diet may help....they don't know as much about celiac as they thought they did. I'm trying to have hope, but after one month I see no change in that regard. I also would like to find others with a similar problem to see what their experience has been like. Thanks, Yahoo! PhotosGot holiday prints? See all the ways to get quality prints in your hands ASAP. Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 just wanted to let you know that I go through the same thing. Since we are getting into details I will share this….I push and push and push till I am ready to pass out and there it is and is. It is the weirdest thing once it starts there is no stopping it, it just rushes out like it was held by an air pocket or something. You might think I am crazy but when I feel the urge to go, I sometimes hold it for awhile then go. It’s a little uncomfortable but it’s much easier than feeling like I am forcing myself. If you don’t want to go through all that you can always eat something with gluten and it will happen instantly. cmwendy pandolfo wrote: I was wondering if any of you suffer from severe constipation. If you don't, don't feel like you have to read on. What ended up as a diagnosis of celiac for me, started as a quest for figuring out why I can't "go". I was diagnosed with IBS 20 years ago. Having a bm was always a major investment of time every day and I never had an "urge", rather just pressure in the lower left side. It finally got so I was getting very little done in the bathroom in a whole lot of time and I ended up having several medical tests, which resulted in a diagnosis of colon inertia. This is a problem with the nerves in the colon not sending the message to the muscles to move. A few months after that diagnosis, I had my positive biopsy for celiac. The celiac investigation came about when I ran into an old friend who is now a doc and told her of the bowel problems I was having. I happened to mention to her that the weird thing was, that which I could eventually move was soft and unformed and seemed like things moved though rather quickly (I know, at least one doc has looked at me and said that it just doesn't make sense...after all, isn't constipation supposed to be hard?) That was her alarm signal for the celiac, which ended up explaining the stool, but of course not the colon inertia. I write this to you because I can find no connection between colon inertia and celiac. As far as I know they are not connected. But both my gi doc and my colon rectal surgeon said that the gf diet may help....they don't know as much about celiac as they thought they did. I'm trying to have hope, but after one month I see no change in that regard. I also would like to find others with a similar problem to see what their experience has been like. Thanks, Yahoo! PhotosGot holiday prints? See all the ways to get quality prints in your hands ASAP. Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 > > > I was wondering if any of you suffer from severe constipation. If you don't, don't feel like you have to read on. > > What ended up as a diagnosis of celiac for me, started as a quest for figuring out why I can't " go " . I was diagnosed with IBS 20 years ago. Having a bm was always a major investment of time every day and I never had an " urge " , rather just pressure in the lower left side. It finally got so I was getting very little done in the bathroom in a whole lot of time and I ended up having several medical tests, which resulted in a diagnosis of colon inertia. This is a problem with the nerves in the colon not sending the message to the muscles to move. A few months after that diagnosis, I had my positive biopsy for celiac. > > The celiac investigation came about when I ran into an old friend who is now a doc and told her of the bowel problems I was having. I happened to mention to her that the weird thing was, that which I could eventually move was soft and unformed and seemed like things moved though rather quickly (I know, at least one doc has looked at me and said that it just doesn't make sense...after all, isn't constipation supposed to be hard?) That was her alarm signal for the celiac, which ended up explaining the stool, but of course not the colon inertia. > > I write this to you because I can find no connection between colon inertia and celiac. As far as I know they are not connected. But both my gi doc and my colon rectal surgeon said that the gf diet may help....they don't know as much about celiac as they thought they did. I'm trying to have hope, but after one month I see no change in that regard. > > I also would like to find others with a similar problem to see what their experience has been like. I used to have severely delayed defecation. Not so much constipation but simply slow lower bowel and small bowel. The solution is not a single thing, getting gluten out of your diet does not end the problem, unfortunately, there are secondary allergens. I found that I could not eat the following. 1. Peanuts 2. Chocolate 3. Avocados 4. Beef or chicken fat, gristle of meat. etc. In addition the body needs some sort of essential fatty acids and vitamins related to the metabolic pathway (vitamin B & fish oils) It turns out that these foods are high in fat and fats that are harder to digest in CD. Therefore fatty foods where the majority of that fat is not digested results in constipation and the commonly noted floating stools. Now-a-days I keep pretty constitutional by eating fish every day. I also have a bowl of been soup, lots of fresh veggies for dinner and fresh fruits for breakfast. My source of meat comes from two sources, since I never ate turkey when I had CD I had no allergies to it, and also I ate very little pork. I take smoked turkey legs and pork and cut them into small pieces and boil them for 4 hours at a simmering temperature till about 3/4 cup of water is left. This I use for making different dishes, it is very easy to digest. 3 lbs of this last me about 2 weeks. Twice a week I eat some version of cows stomach (menudo), this appears to keep my GI tract from going crazy, it is compose of phosphodiglycerides not fat, so the fat digestion issue is removed. I have also reduced fried foods to a minimal % of my diet. Fried foods have denatured oils and other chemicals that can irritate the stomach and upper GI. I found other problems, for example potatoes should be cooked very well and soft, the residual chemicals in partially cooked potatoes is a kind of poison that a person with a sensitive GI tract might react to. This also applies to other fruits and vegetables, stay away from those things that are not ripe, and vegetables, if they are supposed to be cooked, make sure they are fully cooked. The critical thing to remember is that Delayed gastric emptying on the stomach side can result in a number of complex things that result in dehydration in the lower bowel, this causes constipation, even slowing the motion of partially digested food to the lower bowel increases the time of water readsorption and further dries out the lower bowel. To prevent this one needs fluid mobility, so if you are having reflux problems or occasional dehydration the water that normally passes with your food may end up being diverted to other reservoirs. Irritation of the upper GI is critical and one needs to consume foods that do not irritate or otherwise sooth the upper GI to the point that the immune system does not cause swelling or cramping in the upper bowel. Find foods that are quickly digested and work up to more solid foods from their, keeping the eye open for potential allergens. Some allergens can be reversed with abstinence of that material for a year, others like peanuts, chocolate, shellfish never seem to reverse. It is not easy to get back to normality but it is possible with dietary alterations alone. Breaking the problem down, gluten is an irritant, but it has caused also other foods to become irritants, getting rid of the gluten prevents new food sources from becoming irritants, but old food sources will still continue to irritate until identified and abstained from, in some cases a year, in other cases lifelong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 > > > I was wondering if any of you suffer from severe constipation. If you don't, don't feel like you have to read on. > > What ended up as a diagnosis of celiac for me, started as a quest for figuring out why I can't " go " . I was diagnosed with IBS 20 years ago. Having a bm was always a major investment of time every day and I never had an " urge " , rather just pressure in the lower left side. It finally got so I was getting very little done in the bathroom in a whole lot of time and I ended up having several medical tests, which resulted in a diagnosis of colon inertia. This is a problem with the nerves in the colon not sending the message to the muscles to move. A few months after that diagnosis, I had my positive biopsy for celiac. > > The celiac investigation came about when I ran into an old friend who is now a doc and told her of the bowel problems I was having. I happened to mention to her that the weird thing was, that which I could eventually move was soft and unformed and seemed like things moved though rather quickly (I know, at least one doc has looked at me and said that it just doesn't make sense...after all, isn't constipation supposed to be hard?) That was her alarm signal for the celiac, which ended up explaining the stool, but of course not the colon inertia. > > I write this to you because I can find no connection between colon inertia and celiac. As far as I know they are not connected. But both my gi doc and my colon rectal surgeon said that the gf diet may help....they don't know as much about celiac as they thought they did. I'm trying to have hope, but after one month I see no change in that regard. > > I also would like to find others with a similar problem to see what their experience has been like. I used to have severely delayed defecation. Not so much constipation but simply slow lower bowel and small bowel. The solution is not a single thing, getting gluten out of your diet does not end the problem, unfortunately, there are secondary allergens. I found that I could not eat the following. 1. Peanuts 2. Chocolate 3. Avocados 4. Beef or chicken fat, gristle of meat. etc. In addition the body needs some sort of essential fatty acids and vitamins related to the metabolic pathway (vitamin B & fish oils) It turns out that these foods are high in fat and fats that are harder to digest in CD. Therefore fatty foods where the majority of that fat is not digested results in constipation and the commonly noted floating stools. Now-a-days I keep pretty constitutional by eating fish every day. I also have a bowl of been soup, lots of fresh veggies for dinner and fresh fruits for breakfast. My source of meat comes from two sources, since I never ate turkey when I had CD I had no allergies to it, and also I ate very little pork. I take smoked turkey legs and pork and cut them into small pieces and boil them for 4 hours at a simmering temperature till about 3/4 cup of water is left. This I use for making different dishes, it is very easy to digest. 3 lbs of this last me about 2 weeks. Twice a week I eat some version of cows stomach (menudo), this appears to keep my GI tract from going crazy, it is compose of phosphodiglycerides not fat, so the fat digestion issue is removed. I have also reduced fried foods to a minimal % of my diet. Fried foods have denatured oils and other chemicals that can irritate the stomach and upper GI. I found other problems, for example potatoes should be cooked very well and soft, the residual chemicals in partially cooked potatoes is a kind of poison that a person with a sensitive GI tract might react to. This also applies to other fruits and vegetables, stay away from those things that are not ripe, and vegetables, if they are supposed to be cooked, make sure they are fully cooked. The critical thing to remember is that Delayed gastric emptying on the stomach side can result in a number of complex things that result in dehydration in the lower bowel, this causes constipation, even slowing the motion of partially digested food to the lower bowel increases the time of water readsorption and further dries out the lower bowel. To prevent this one needs fluid mobility, so if you are having reflux problems or occasional dehydration the water that normally passes with your food may end up being diverted to other reservoirs. Irritation of the upper GI is critical and one needs to consume foods that do not irritate or otherwise sooth the upper GI to the point that the immune system does not cause swelling or cramping in the upper bowel. Find foods that are quickly digested and work up to more solid foods from their, keeping the eye open for potential allergens. Some allergens can be reversed with abstinence of that material for a year, others like peanuts, chocolate, shellfish never seem to reverse. It is not easy to get back to normality but it is possible with dietary alterations alone. Breaking the problem down, gluten is an irritant, but it has caused also other foods to become irritants, getting rid of the gluten prevents new food sources from becoming irritants, but old food sources will still continue to irritate until identified and abstained from, in some cases a year, in other cases lifelong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 ,Sorry I am so behind on reading my digests, but I wanted to replyto you and let you know that is my symptom as well.Even when I get glutened, it always makes me C, never D!That is why doctors never wanted to test me! Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Did it help when you went gf? My colon surgeon said that celiac would have nothing to do with the colon, but then after my diagnosis both he and my gi doc (who I "hired" to help me with my bowel...when I asked about celiac he said "oh, no you don't have that!") said you never can tell...everything they thought about celiac has changed. I'm still hopeful. I've been gf for about four weeks, but accidently got gluten twice the last week, so I'm still recoving from that. I really, really, hope my colon gets better...I really don't want to have to face a removal in the future.Ciara wrote: ,Sorry I am so behind on reading my digests, but I wanted to replyto you and let you know that is my symptom as well.Even when I get glutened, it always makes me C, never D!That is why doctors never wanted to test me! Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Did it help when you went gf? My colon surgeon said that celiac would have nothing to do with the colon, but then after my diagnosis both he and my gi doc (who I "hired" to help me with my bowel...when I asked about celiac he said "oh, no you don't have that!") said you never can tell...everything they thought about celiac has changed. I'm still hopeful. I've been gf for about four weeks, but accidently got gluten twice the last week, so I'm still recoving from that. I really, really, hope my colon gets better...I really don't want to have to face a removal in the future.Ciara wrote: ,Sorry I am so behind on reading my digests, but I wanted to replyto you and let you know that is my symptom as well.Even when I get glutened, it always makes me C, never D!That is why doctors never wanted to test me! Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Did it help when you went gf? My colon surgeon said that celiac would have nothing to do with the colon, but then after my diagnosis both he and my gi doc (who I "hired" to help me with my bowel...when I asked about celiac he said "oh, no you don't have that!") said you never can tell...everything they thought about celiac has changed. I'm still hopeful. I've been gf for about four weeks, but accidently got gluten twice the last week, so I'm still recoving from that. I really, really, hope my colon gets better...I really don't want to have to face a removal in the future.Ciara wrote: ,Sorry I am so behind on reading my digests, but I wanted to replyto you and let you know that is my symptom as well.Even when I get glutened, it always makes me C, never D!That is why doctors never wanted to test me! Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 , I wasn't in this thread originally, but way back before diagnosis, I had 18 years of severe constipation - the docs kept telling me to add wheat germ to to my food! Around the time when my body started becoming very ill with celiac symptoms, my output changed, too: from once per week (or less) to 5 to 7 times per day - mushy to liquid (ugh!) After about a year of that, I got a tentative diagnosis of celiac and went GF. I can't remember exactly how long it took things to normalize, but but fairly soon after going GF, the pattern switched to one major poop per day - as long as I drink plenty of water and eat enough fruits/veggies. Adequate water intake makes a really big difference to me. So I would yes, a GF diet can help chronic constipation. Maureen > > Did it help when you went gf? My colon surgeon said that celiac would have nothing to do with the colon, but then after my diagnosis both he and my gi doc (who I " hired " to help me with my bowel...when I asked about celiac he said " oh, no you don't have that! " ) said you never can tell...everything they thought about celiac has changed. I'm still hopeful. I've been gf for about four weeks, but accidently got gluten twice the last week, so I'm still recoving from that. I really, really, hope my colon gets better...I really don't want to have to face a removal in the future. > Quote Link to comment Share on other sites More sharing options...
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