Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 I have been a passive participant of the PSC Group for about 12 months. The last four years have been a rapid progression of health challenges and we've taken them as the present themselves. My PCS has been very managable, but added risk has presented a new challenge. I have been diagnosed with stage 4 intraheptic cholangiocarcinoma (CCA). I am currently working a Mayo team and I'm requesting a second from Memorial Sloan-Kettering; Dr. Fong. If anyone has special knowledge or experince in this area, we WILL persue every lead - every opportunity. Thanks in advance for your kindness and support. My prayers remain for me, my family & friends and all of you, that God graces us all with strength, hope and opportunities to win these health challenges. We will find a cure. In closing, my advice to ask for regular CA 19-9 blood test. This is the cancer marker for CCA. My CA 19-9 went from 16.7 to >900 in 12 months. More frequent tests (quarterly) may permit an earlier diagnosis, hence presenting more treatment options. Godsped, Dan RA '02; Crohn's '04; PSC '05; CCA '06 Quote Link to comment Share on other sites More sharing options...
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