Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 I wondered if this has happened to any other kid. I've already called the doctor. I just wanted to see if any of you had had experience with this. has never had a CAT scan or other such evaluation.>> Hi Darla, My son gets migraine headaches, sometimes as often as once a month, although they are less as he gets older. Sometimes they last more than a day and come complete with throwing up every couple of hours. Due to his inability to express himself well enough until this past year, he went undiagnosed for a long time. Also, now that he can use the right language, we're starting to see a pattern to the headaches and they may be triggered by allergies. (Hayfever types, not food allergies.) Our doctor was relatively unconcerned about them because, so far, can be helped with just Motrin (when he can keep it down.) We have to give it to him the minute he says his " eyes hurt " or he becomes sensitive to light. Since your child has a " visual disturbance " when he gets these headaches, I'd suspect migraines. Your doctor will be the best person to talk to, of course. didn't have a CT scan since he'd had one less than a year before to diagnose his EVAS, but I'm not sure it would have been ordered. (Migraine symptoms are pretty specific.) Also, headaches are very common in children, hearing or not...more common than I ever realized, even though my friend's son was diagnosed with them at age two. I actually found a book recently at the book store that was all about childhood headaches. It was quite informative but I read the chapter on migraines and decided we didn't need the whole book. There seems to be a hereditary component as well. Does anyone in your family seem prone to headaches or migraines? Carol - mom to , 6.2, mod to profound Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 I wondered if this has happened to any other kid. I've already called the doctor. I just wanted to see if any of you had had experience with this. has never had a CAT scan or other such evaluation.>> Hi Darla, My son gets migraine headaches, sometimes as often as once a month, although they are less as he gets older. Sometimes they last more than a day and come complete with throwing up every couple of hours. Due to his inability to express himself well enough until this past year, he went undiagnosed for a long time. Also, now that he can use the right language, we're starting to see a pattern to the headaches and they may be triggered by allergies. (Hayfever types, not food allergies.) Our doctor was relatively unconcerned about them because, so far, can be helped with just Motrin (when he can keep it down.) We have to give it to him the minute he says his " eyes hurt " or he becomes sensitive to light. Since your child has a " visual disturbance " when he gets these headaches, I'd suspect migraines. Your doctor will be the best person to talk to, of course. didn't have a CT scan since he'd had one less than a year before to diagnose his EVAS, but I'm not sure it would have been ordered. (Migraine symptoms are pretty specific.) Also, headaches are very common in children, hearing or not...more common than I ever realized, even though my friend's son was diagnosed with them at age two. I actually found a book recently at the book store that was all about childhood headaches. It was quite informative but I read the chapter on migraines and decided we didn't need the whole book. There seems to be a hereditary component as well. Does anyone in your family seem prone to headaches or migraines? Carol - mom to , 6.2, mod to profound Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 I get migraines and That's what it sounds like to me....Poor Kid!! ****** Jed 1/22/93 Liam 12/12/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 I get migraines and That's what it sounds like to me....Poor Kid!! ****** Jed 1/22/93 Liam 12/12/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 I get migraines and That's what it sounds like to me....Poor Kid!! ****** Jed 1/22/93 Liam 12/12/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Here are a couple of references for pediatric migraines: http://www.ama-assn.org/special/migraine/support/educate/child.htm http://www.medhelp.org/forums/ChildBehavior/messages/31019a.html My first thoughts upon reading about what your son is going through was a vestibular disorder, so here's a page about that: http://www.vestibular.org/children.html The eye movement is what makes me think of that, or a sensory integration disorder. It may be a bugger to track down just what it is and what's causing it. If it were me, I'l start keeping a detailed log of what your son was doing/eating just prior to each of these attacks, and maybe a pattern or trigger will become evident that will help in solving this for your son. It may even be a smell that sets it off, or a particular body movement, but the only way to find out is to keep a log. He probably is having pediatric migraines, but I feel it's only part of the picture and may be a part of something bigger that's going on, which you most certainly do want to try to solve. You and your son will be in my thoughts and I wish you a speedy resolution to the problems your son is having. I know it can't be any great joy for him, and even less so for you as you watch him go through this. Big hugs to both of you, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Here are a couple of references for pediatric migraines: http://www.ama-assn.org/special/migraine/support/educate/child.htm http://www.medhelp.org/forums/ChildBehavior/messages/31019a.html My first thoughts upon reading about what your son is going through was a vestibular disorder, so here's a page about that: http://www.vestibular.org/children.html The eye movement is what makes me think of that, or a sensory integration disorder. It may be a bugger to track down just what it is and what's causing it. If it were me, I'l start keeping a detailed log of what your son was doing/eating just prior to each of these attacks, and maybe a pattern or trigger will become evident that will help in solving this for your son. It may even be a smell that sets it off, or a particular body movement, but the only way to find out is to keep a log. He probably is having pediatric migraines, but I feel it's only part of the picture and may be a part of something bigger that's going on, which you most certainly do want to try to solve. You and your son will be in my thoughts and I wish you a speedy resolution to the problems your son is having. I know it can't be any great joy for him, and even less so for you as you watch him go through this. Big hugs to both of you, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Here are a couple of references for pediatric migraines: http://www.ama-assn.org/special/migraine/support/educate/child.htm http://www.medhelp.org/forums/ChildBehavior/messages/31019a.html My first thoughts upon reading about what your son is going through was a vestibular disorder, so here's a page about that: http://www.vestibular.org/children.html The eye movement is what makes me think of that, or a sensory integration disorder. It may be a bugger to track down just what it is and what's causing it. If it were me, I'l start keeping a detailed log of what your son was doing/eating just prior to each of these attacks, and maybe a pattern or trigger will become evident that will help in solving this for your son. It may even be a smell that sets it off, or a particular body movement, but the only way to find out is to keep a log. He probably is having pediatric migraines, but I feel it's only part of the picture and may be a part of something bigger that's going on, which you most certainly do want to try to solve. You and your son will be in my thoughts and I wish you a speedy resolution to the problems your son is having. I know it can't be any great joy for him, and even less so for you as you watch him go through this. Big hugs to both of you, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Carol , Thanks for the info. The doctor seems to think that what this may be, but seems to have them quite frequently lately. I have headaches, and sometimes migraines, yes. Darla On Fri, 26 Jul 2002 08:31:01 -0700 " CBenecke " writes: > > > Hi Darla, > > Since your child has a " visual disturbance " when he gets these > headaches, I'd suspect migraines. Your doctor will be the best > person to talk to, of course. There seems to be a hereditary component as well. Does anyone in > your family seem prone to headaches or migraines? > > Carol - mom to , 6.2, mod to profound > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Carol , Thanks for the info. The doctor seems to think that what this may be, but seems to have them quite frequently lately. I have headaches, and sometimes migraines, yes. Darla On Fri, 26 Jul 2002 08:31:01 -0700 " CBenecke " writes: > > > Hi Darla, > > Since your child has a " visual disturbance " when he gets these > headaches, I'd suspect migraines. Your doctor will be the best > person to talk to, of course. There seems to be a hereditary component as well. Does anyone in > your family seem prone to headaches or migraines? > > Carol - mom to , 6.2, mod to profound > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Carol , Thanks for the info. The doctor seems to think that what this may be, but seems to have them quite frequently lately. I have headaches, and sometimes migraines, yes. Darla On Fri, 26 Jul 2002 08:31:01 -0700 " CBenecke " writes: > > > Hi Darla, > > Since your child has a " visual disturbance " when he gets these > headaches, I'd suspect migraines. Your doctor will be the best > person to talk to, of course. There seems to be a hereditary component as well. Does anyone in > your family seem prone to headaches or migraines? > > Carol - mom to , 6.2, mod to profound > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Len Etlinger said: > Anybody have experience with headaches and nausea? I've had mine for a > while now and am having my levels checked today. I'll probably> have and MRI. > > Len > TT last December > Surgical Onset HPTH -- Hi Len, Are your calcium levels okay? If the levels are too high for *your normal*, headaches and nausea are classic signs of calcium levels higher than your body can tolerate. I'm thinking you have a handle on that, just wanted to mention it. 1965 TT P/F thyca & HP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Len Etlinger said: > Anybody have experience with headaches and nausea? I've had mine for a > while now and am having my levels checked today. I'll probably> have and MRI. > > Len > TT last December > Surgical Onset HPTH -- Hi Len, Are your calcium levels okay? If the levels are too high for *your normal*, headaches and nausea are classic signs of calcium levels higher than your body can tolerate. I'm thinking you have a handle on that, just wanted to mention it. 1965 TT P/F thyca & HP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Len Etlinger said: > Anybody have experience with headaches and nausea? I've had mine for a > while now and am having my levels checked today. I'll probably> have and MRI. > > Len > TT last December > Surgical Onset HPTH -- Hi Len, Are your calcium levels okay? If the levels are too high for *your normal*, headaches and nausea are classic signs of calcium levels higher than your body can tolerate. I'm thinking you have a handle on that, just wanted to mention it. 1965 TT P/F thyca & HP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Len, I had a TT on 9/27/02 and almost everyday I feel nauseous and have a headache - usually in the evening or sometimes when I wake up. I have noticed that it is usually if I move around too much. I just figured it was due to either recovering or being hypothyroid. Hope you're gonna be okay - keep us posted. Good Luck!! Michele Headaches Anybody have experience with headaches and nausea? I've had mine for a while now and am having my levels checked today. I'll probably have and MRI. Len TT last December Surgical Onset HPTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Len, I had a TT on 9/27/02 and almost everyday I feel nauseous and have a headache - usually in the evening or sometimes when I wake up. I have noticed that it is usually if I move around too much. I just figured it was due to either recovering or being hypothyroid. Hope you're gonna be okay - keep us posted. Good Luck!! Michele Headaches Anybody have experience with headaches and nausea? I've had mine for a while now and am having my levels checked today. I'll probably have and MRI. Len TT last December Surgical Onset HPTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Len, I had a TT on 9/27/02 and almost everyday I feel nauseous and have a headache - usually in the evening or sometimes when I wake up. I have noticed that it is usually if I move around too much. I just figured it was due to either recovering or being hypothyroid. Hope you're gonna be okay - keep us posted. Good Luck!! Michele Headaches Anybody have experience with headaches and nausea? I've had mine for a while now and am having my levels checked today. I'll probably have and MRI. Len TT last December Surgical Onset HPTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Oh yeah - forgot to mention that to Len. I was taking like 1200 mg of calcium a day after surgery - when I cut the dose in half it improved the nausea and headaches. Thanks for the reminder. Re: Headaches Len Etlinger said: > Anybody have experience with headaches and nausea? I've had mine for a > while now and am having my levels checked today. I'll probably> have and MRI. > > Len > TT last December > Surgical Onset HPTH -- Hi Len, Are your calcium levels okay? If the levels are too high for *your normal*, headaches and nausea are classic signs of calcium levels higher than your body can tolerate. I'm thinking you have a handle on that, just wanted to mention it. 1965 TT P/F thyca & HP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Oh yeah - forgot to mention that to Len. I was taking like 1200 mg of calcium a day after surgery - when I cut the dose in half it improved the nausea and headaches. Thanks for the reminder. Re: Headaches Len Etlinger said: > Anybody have experience with headaches and nausea? I've had mine for a > while now and am having my levels checked today. I'll probably> have and MRI. > > Len > TT last December > Surgical Onset HPTH -- Hi Len, Are your calcium levels okay? If the levels are too high for *your normal*, headaches and nausea are classic signs of calcium levels higher than your body can tolerate. I'm thinking you have a handle on that, just wanted to mention it. 1965 TT P/F thyca & HP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 spidergray66 wrote: > Hi , thanks for replying. I'm looking at the bottle and this is > exactyly what it says: Levothyroxine 0.1MG Tab. Any thoughts? The same thoughts as I wrote earlier. You omitted the decimal point in your first letter; not a big deal typographically, but a very big deal if you're prescribing meds :-) As I said, if the meds are causing your headaches, I'm sure it's the filler and not the T4. .1 (point one) mg = 100 mcg, not a very high dose; in fact, I suspect that as your proper dosage is found, it will be higher than that. Ask your doctor to prescribe a different brand (different fillers). Better yet, s/he can probably give you a week's worth of samples of different brands, and you can decide which one works best for you. BTW - have your headaches stopped when you stopped the Levoxyl? If not, then it's possible that they're caused by something else altogether, including being hypo, or even the stress of what you've been going through. - NYC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 spidergray66 wrote: > Hi , thanks for replying. I'm looking at the bottle and this is > exactyly what it says: Levothyroxine 0.1MG Tab. Any thoughts? The same thoughts as I wrote earlier. You omitted the decimal point in your first letter; not a big deal typographically, but a very big deal if you're prescribing meds :-) As I said, if the meds are causing your headaches, I'm sure it's the filler and not the T4. .1 (point one) mg = 100 mcg, not a very high dose; in fact, I suspect that as your proper dosage is found, it will be higher than that. Ask your doctor to prescribe a different brand (different fillers). Better yet, s/he can probably give you a week's worth of samples of different brands, and you can decide which one works best for you. BTW - have your headaches stopped when you stopped the Levoxyl? If not, then it's possible that they're caused by something else altogether, including being hypo, or even the stress of what you've been going through. - NYC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 spidergray66 wrote: > Hi , thanks for replying. I'm looking at the bottle and this is > exactyly what it says: Levothyroxine 0.1MG Tab. Any thoughts? The same thoughts as I wrote earlier. You omitted the decimal point in your first letter; not a big deal typographically, but a very big deal if you're prescribing meds :-) As I said, if the meds are causing your headaches, I'm sure it's the filler and not the T4. .1 (point one) mg = 100 mcg, not a very high dose; in fact, I suspect that as your proper dosage is found, it will be higher than that. Ask your doctor to prescribe a different brand (different fillers). Better yet, s/he can probably give you a week's worth of samples of different brands, and you can decide which one works best for you. BTW - have your headaches stopped when you stopped the Levoxyl? If not, then it's possible that they're caused by something else altogether, including being hypo, or even the stress of what you've been going through. - NYC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Hi Kathi, You and others might want to check out Neurontin. It was prescribed by my neurologist. I take 2400mg/day - 3, 2, 3. I began taking it in February for excruciating knifepoint pain above the right ear and a bit forward. It didn't spread out, but stopped me literally in my tracks in my breath in my speech for a second or two, every couple seconds/minutes/hours - sporadically. One series lasted 8 days, and the next lasted 11 days. Since then I've had only one short series of three or more pains a week apart, then none. The TT was horrible, but did not include this type of pain; it was in front. Munira Reply-To: Thyca Date: Sun, 10 Nov 2002 18:26:30 -0800 To: Thyca Subject: Re: Headaches Hi Li and jUNE. yES i SUFFER MONTHLY FROM HEADACHES AND THE only THING THAT WORKS TO RELIEVE THE UNBEARABLE PAIN IS iMITREX. i don't know what I would do without it. It comes in a nasel spray and the pills. The pills I have found are stronger work better, but the spray works faster. Kathi papillary dx 1998 TT For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Hi Kathi, You and others might want to check out Neurontin. It was prescribed by my neurologist. I take 2400mg/day - 3, 2, 3. I began taking it in February for excruciating knifepoint pain above the right ear and a bit forward. It didn't spread out, but stopped me literally in my tracks in my breath in my speech for a second or two, every couple seconds/minutes/hours - sporadically. One series lasted 8 days, and the next lasted 11 days. Since then I've had only one short series of three or more pains a week apart, then none. The TT was horrible, but did not include this type of pain; it was in front. Munira Reply-To: Thyca Date: Sun, 10 Nov 2002 18:26:30 -0800 To: Thyca Subject: Re: Headaches Hi Li and jUNE. yES i SUFFER MONTHLY FROM HEADACHES AND THE only THING THAT WORKS TO RELIEVE THE UNBEARABLE PAIN IS iMITREX. i don't know what I would do without it. It comes in a nasel spray and the pills. The pills I have found are stronger work better, but the spray works faster. Kathi papillary dx 1998 TT For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Hi Kathi, You and others might want to check out Neurontin. It was prescribed by my neurologist. I take 2400mg/day - 3, 2, 3. I began taking it in February for excruciating knifepoint pain above the right ear and a bit forward. It didn't spread out, but stopped me literally in my tracks in my breath in my speech for a second or two, every couple seconds/minutes/hours - sporadically. One series lasted 8 days, and the next lasted 11 days. Since then I've had only one short series of three or more pains a week apart, then none. The TT was horrible, but did not include this type of pain; it was in front. Munira Reply-To: Thyca Date: Sun, 10 Nov 2002 18:26:30 -0800 To: Thyca Subject: Re: Headaches Hi Li and jUNE. yES i SUFFER MONTHLY FROM HEADACHES AND THE only THING THAT WORKS TO RELIEVE THE UNBEARABLE PAIN IS iMITREX. i don't know what I would do without it. It comes in a nasel spray and the pills. The pills I have found are stronger work better, but the spray works faster. Kathi papillary dx 1998 TT For more information regarding thyroid cancer visit www.thyca.org. If you do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email to thyca-unsubscribe Quote Link to comment Share on other sites More sharing options...
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