Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Hi all - hope I can get your experienced opinions!! I was diagnosed as " wheat intolerant " by my GI in December, as he said my biopsy was negative. He said it was ok to eat barley, malt etc. I havn't, I'm afraid to and have had a lingering fear that he did not find any damage in my intestines due to scalloping (the things I learn in this forum!), or I am early enough in catching this that no damage has been done - yet. Not sure what to do next. Of course if I could expand my food choices to everything but wheat, great, but like I said, I hesitate because I can't really determine just how versed this GI is in celiac. I just want to do the right thing for myself. Thanks for any feedback or advice!! Dara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 I would get the EnteroLab genetic testing to see if you had either of the "celiac genes" DQ2 or DQ8. If you didn't have either, I would be more comfortable with the "wheat intolerant"thing. If you had the celiac gene, I would be more likely to wonder if it is celiac and just misdiagnosed. That is purely my 2 cents - no medical background at all. in GA What would you do? Hi all - hope I can get your experienced opinions!! I was diagnosed as "wheat intolerant" by my GI in December, as he said my biopsy was negative. He said it was ok to eat barley, malt etc. I havn't, I'm afraid to and have had a lingering fear that he did not find any damage in my intestines due to scalloping (the things I learn in this forum!), or I am early enough in catching this that no damage has been done - yet. Not sure what to do next. Of course if I could expand my food choices to everything but wheat, great, but like I said, I hesitate because I can't really determine just how versed this GI is in celiac. I just want to do the right thing for myself. Thanks for any feedback or advice!! Dara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 I would get the EnteroLab genetic testing to see if you had either of the "celiac genes" DQ2 or DQ8. If you didn't have either, I would be more comfortable with the "wheat intolerant"thing. If you had the celiac gene, I would be more likely to wonder if it is celiac and just misdiagnosed. That is purely my 2 cents - no medical background at all. in GA What would you do? Hi all - hope I can get your experienced opinions!! I was diagnosed as "wheat intolerant" by my GI in December, as he said my biopsy was negative. He said it was ok to eat barley, malt etc. I havn't, I'm afraid to and have had a lingering fear that he did not find any damage in my intestines due to scalloping (the things I learn in this forum!), or I am early enough in catching this that no damage has been done - yet. Not sure what to do next. Of course if I could expand my food choices to everything but wheat, great, but like I said, I hesitate because I can't really determine just how versed this GI is in celiac. I just want to do the right thing for myself. Thanks for any feedback or advice!! Dara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 I would get the EnteroLab genetic testing to see if you had either of the "celiac genes" DQ2 or DQ8. If you didn't have either, I would be more comfortable with the "wheat intolerant"thing. If you had the celiac gene, I would be more likely to wonder if it is celiac and just misdiagnosed. That is purely my 2 cents - no medical background at all. in GA What would you do? Hi all - hope I can get your experienced opinions!! I was diagnosed as "wheat intolerant" by my GI in December, as he said my biopsy was negative. He said it was ok to eat barley, malt etc. I havn't, I'm afraid to and have had a lingering fear that he did not find any damage in my intestines due to scalloping (the things I learn in this forum!), or I am early enough in catching this that no damage has been done - yet. Not sure what to do next. Of course if I could expand my food choices to everything but wheat, great, but like I said, I hesitate because I can't really determine just how versed this GI is in celiac. I just want to do the right thing for myself. Thanks for any feedback or advice!! Dara Quote Link to comment Share on other sites More sharing options...
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