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Thank you so much for this information. Oatmeal is one of the staples I miss most. I'm going to be thrilled to add it back to my breakfast routine. " M." wrote: > Donna, can you give us the website for this company? I'd love to support them. I'm not Donna - but it sounds like this place: http://www.glutenfreeoats.com/ Best, -patrick

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Thank you so much for this information. Oatmeal is one of the staples I miss most. I'm going to be thrilled to add it back to my breakfast routine. " M." wrote: > Donna, can you give us the website for this company? I'd love to support them. I'm not Donna - but it sounds like this place: http://www.glutenfreeoats.com/ Best, -patrick

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Just remember that OATS cannot actually be labeled as gluten free in any

country but the US (which has no legal definition of GF). Canada and

Australia specifically exclude oats (with barley and rye) from this

designation. No doubt because oats cause the exact same rise in TTG levels

(with corresponding anti-avenin antibodies, rather than anti-gliadin ones)

in those who have biopsy confirmed CD. The conclusions of researchers are

NOW showing that the even in the short time periods involved, the antibody

increases are significant (remember, not everyones gliadin antibodies rise

quickly, even on a 3 week challenge).

The few studies that declared " oats are safe " compared them to a low gliadin

wheat starch diet (and the group eating oats had double the drop-out rate as

those eating wheat starch). These studies have been very small and have NOT

shown that oats are " safe " - just that for some (the symptomless ones), they

aren't much worse than eating low gliadin wheat starch -- although the

dropout rate was double, due to people being unable to tolerate them, plus

their TTG antibodies didn't drop as much as those who consumed wheat

starch - and neither group dropped to the negative level a year after being

diagnosed and put on one diet or the other.

-----Original Message-----

I'm not Donna - but it sounds like this place:

http://www.glutenfreeoats.com/

---

[This E-mail scanned for viruses by Declude Virus]

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Just remember that OATS cannot actually be labeled as gluten free in any

country but the US (which has no legal definition of GF). Canada and

Australia specifically exclude oats (with barley and rye) from this

designation. No doubt because oats cause the exact same rise in TTG levels

(with corresponding anti-avenin antibodies, rather than anti-gliadin ones)

in those who have biopsy confirmed CD. The conclusions of researchers are

NOW showing that the even in the short time periods involved, the antibody

increases are significant (remember, not everyones gliadin antibodies rise

quickly, even on a 3 week challenge).

The few studies that declared " oats are safe " compared them to a low gliadin

wheat starch diet (and the group eating oats had double the drop-out rate as

those eating wheat starch). These studies have been very small and have NOT

shown that oats are " safe " - just that for some (the symptomless ones), they

aren't much worse than eating low gliadin wheat starch -- although the

dropout rate was double, due to people being unable to tolerate them, plus

their TTG antibodies didn't drop as much as those who consumed wheat

starch - and neither group dropped to the negative level a year after being

diagnosed and put on one diet or the other.

-----Original Message-----

I'm not Donna - but it sounds like this place:

http://www.glutenfreeoats.com/

---

[This E-mail scanned for viruses by Declude Virus]

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Just remember that OATS cannot actually be labeled as gluten free in any

country but the US (which has no legal definition of GF). Canada and

Australia specifically exclude oats (with barley and rye) from this

designation. No doubt because oats cause the exact same rise in TTG levels

(with corresponding anti-avenin antibodies, rather than anti-gliadin ones)

in those who have biopsy confirmed CD. The conclusions of researchers are

NOW showing that the even in the short time periods involved, the antibody

increases are significant (remember, not everyones gliadin antibodies rise

quickly, even on a 3 week challenge).

The few studies that declared " oats are safe " compared them to a low gliadin

wheat starch diet (and the group eating oats had double the drop-out rate as

those eating wheat starch). These studies have been very small and have NOT

shown that oats are " safe " - just that for some (the symptomless ones), they

aren't much worse than eating low gliadin wheat starch -- although the

dropout rate was double, due to people being unable to tolerate them, plus

their TTG antibodies didn't drop as much as those who consumed wheat

starch - and neither group dropped to the negative level a year after being

diagnosed and put on one diet or the other.

-----Original Message-----

I'm not Donna - but it sounds like this place:

http://www.glutenfreeoats.com/

---

[This E-mail scanned for viruses by Declude Virus]

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I have a child diagnosed with Celiac at the Hospital for Sick Children in Toronto, Canada. At a yearly follow-up, I mentioned a new location in Canada (outside Montreal) that has "Guaranteed 100% pure Oats". They are called Cream Hill Estates (www.creamhillestates.com). Their flyer refers to Canadian Celiac Association's Professional Advisory Board Position Statement on Oats found at www.celiac.ca/Articles/PABoats.html. Their statement says they meet or exceed government standards for growing and manufacturing oats, contract only with farmers who know the importance of growing oats free of cross contamination (and have fields that have been wheat, barley and rye-free for minimum 3 years, including the equipment, the processing, etc. They retail and wholesale their products and the website has a toll-free number. Maybe that can give you the extra information you need? I sent them an email to inquire about suppliers in the Toronto area but haven't heard anything back yet. They just opened operations in December 2005 so may be very busy. marcianar wrote: Can you provide links to the studies you mention? Names of theresearchers, etc? I'd like to see these studies for myself becauseyour conclusions differ from all the info I have been able to find onoats.For example, a recent paper put forth by the Coeliac Societies'Medical Advisory Council (UK) concludes with the following:"· Moderate amounts of oats may be consumed by most Coeliacs withoutrisk. This also applies to people with dermatitis herpetiformis, butthe evidence in

children is less convincing.· Severe Coeliacs should probably not be allowed oats.· With due information and explanation, patient preference must betaken into account.· Care must be taken to use uncontaminated oat products.· Careful follow-up is necessary in the present state of knowledge."which does rather suggest that oats are considered acceptable for someceliacs in the UK. they even reference a 5 yer study in Finland. Maureen>> Just remember that OATS cannot actually be labeled as gluten free in any> country but the US (which has no legal definition of GF). Canada and> Australia specifically exclude oats (with barley and rye) from this> designation. No doubt because oats cause the exact same rise in TTGlevels> (with corresponding anti-avenin antibodies, rather than anti-gliadinones)> in those who have biopsy

confirmed CD. The conclusions ofresearchers are> NOW showing that the even in the short time periods involved, theantibody> increases are significant (remember, not everyones gliadinantibodies rise> quickly, even on a 3 week challenge).> > The few studies that declared "oats are safe" compared them to a lowgliadin> wheat starch diet (and the group eating oats had double the drop-outrate as> those eating wheat starch). These studies have been very small andhave NOT> shown that oats are "safe" - just that for some (the symptomlessones), they> aren't much worse than eating low gliadin wheat starch -- although the> dropout rate was double, due to people being unable to toleratethem, plus> their TTG antibodies didn't drop as much as those who consumed wheat> starch - and neither group dropped to the negative level a yearafter being> diagnosed and put on one diet

or the other.> > -----Original Message-----> > I'm not Donna - but it sounds like this place:> > http://www.glutenfreeoats.com/> > ---> [This E-mail scanned for viruses by Declude Virus]>

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I have a child diagnosed with Celiac at the Hospital for Sick Children in Toronto, Canada. At a yearly follow-up, I mentioned a new location in Canada (outside Montreal) that has "Guaranteed 100% pure Oats". They are called Cream Hill Estates (www.creamhillestates.com). Their flyer refers to Canadian Celiac Association's Professional Advisory Board Position Statement on Oats found at www.celiac.ca/Articles/PABoats.html. Their statement says they meet or exceed government standards for growing and manufacturing oats, contract only with farmers who know the importance of growing oats free of cross contamination (and have fields that have been wheat, barley and rye-free for minimum 3 years, including the equipment, the processing, etc. They retail and wholesale their products and the website has a toll-free number. Maybe that can give you the extra information you need? I sent them an email to inquire about suppliers in the Toronto area but haven't heard anything back yet. They just opened operations in December 2005 so may be very busy. marcianar wrote: Can you provide links to the studies you mention? Names of theresearchers, etc? I'd like to see these studies for myself becauseyour conclusions differ from all the info I have been able to find onoats.For example, a recent paper put forth by the Coeliac Societies'Medical Advisory Council (UK) concludes with the following:"· Moderate amounts of oats may be consumed by most Coeliacs withoutrisk. This also applies to people with dermatitis herpetiformis, butthe evidence in

children is less convincing.· Severe Coeliacs should probably not be allowed oats.· With due information and explanation, patient preference must betaken into account.· Care must be taken to use uncontaminated oat products.· Careful follow-up is necessary in the present state of knowledge."which does rather suggest that oats are considered acceptable for someceliacs in the UK. they even reference a 5 yer study in Finland. Maureen>> Just remember that OATS cannot actually be labeled as gluten free in any> country but the US (which has no legal definition of GF). Canada and> Australia specifically exclude oats (with barley and rye) from this> designation. No doubt because oats cause the exact same rise in TTGlevels> (with corresponding anti-avenin antibodies, rather than anti-gliadinones)> in those who have biopsy

confirmed CD. The conclusions ofresearchers are> NOW showing that the even in the short time periods involved, theantibody> increases are significant (remember, not everyones gliadinantibodies rise> quickly, even on a 3 week challenge).> > The few studies that declared "oats are safe" compared them to a lowgliadin> wheat starch diet (and the group eating oats had double the drop-outrate as> those eating wheat starch). These studies have been very small andhave NOT> shown that oats are "safe" - just that for some (the symptomlessones), they> aren't much worse than eating low gliadin wheat starch -- although the> dropout rate was double, due to people being unable to toleratethem, plus> their TTG antibodies didn't drop as much as those who consumed wheat> starch - and neither group dropped to the negative level a yearafter being> diagnosed and put on one diet

or the other.> > -----Original Message-----> > I'm not Donna - but it sounds like this place:> > http://www.glutenfreeoats.com/> > ---> [This E-mail scanned for viruses by Declude Virus]>

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I have a child diagnosed with Celiac at the Hospital for Sick Children in Toronto, Canada. At a yearly follow-up, I mentioned a new location in Canada (outside Montreal) that has "Guaranteed 100% pure Oats". They are called Cream Hill Estates (www.creamhillestates.com). Their flyer refers to Canadian Celiac Association's Professional Advisory Board Position Statement on Oats found at www.celiac.ca/Articles/PABoats.html. Their statement says they meet or exceed government standards for growing and manufacturing oats, contract only with farmers who know the importance of growing oats free of cross contamination (and have fields that have been wheat, barley and rye-free for minimum 3 years, including the equipment, the processing, etc. They retail and wholesale their products and the website has a toll-free number. Maybe that can give you the extra information you need? I sent them an email to inquire about suppliers in the Toronto area but haven't heard anything back yet. They just opened operations in December 2005 so may be very busy. marcianar wrote: Can you provide links to the studies you mention? Names of theresearchers, etc? I'd like to see these studies for myself becauseyour conclusions differ from all the info I have been able to find onoats.For example, a recent paper put forth by the Coeliac Societies'Medical Advisory Council (UK) concludes with the following:"· Moderate amounts of oats may be consumed by most Coeliacs withoutrisk. This also applies to people with dermatitis herpetiformis, butthe evidence in

children is less convincing.· Severe Coeliacs should probably not be allowed oats.· With due information and explanation, patient preference must betaken into account.· Care must be taken to use uncontaminated oat products.· Careful follow-up is necessary in the present state of knowledge."which does rather suggest that oats are considered acceptable for someceliacs in the UK. they even reference a 5 yer study in Finland. Maureen>> Just remember that OATS cannot actually be labeled as gluten free in any> country but the US (which has no legal definition of GF). Canada and> Australia specifically exclude oats (with barley and rye) from this> designation. No doubt because oats cause the exact same rise in TTGlevels> (with corresponding anti-avenin antibodies, rather than anti-gliadinones)> in those who have biopsy

confirmed CD. The conclusions ofresearchers are> NOW showing that the even in the short time periods involved, theantibody> increases are significant (remember, not everyones gliadinantibodies rise> quickly, even on a 3 week challenge).> > The few studies that declared "oats are safe" compared them to a lowgliadin> wheat starch diet (and the group eating oats had double the drop-outrate as> those eating wheat starch). These studies have been very small andhave NOT> shown that oats are "safe" - just that for some (the symptomlessones), they> aren't much worse than eating low gliadin wheat starch -- although the> dropout rate was double, due to people being unable to toleratethem, plus> their TTG antibodies didn't drop as much as those who consumed wheat> starch - and neither group dropped to the negative level a yearafter being> diagnosed and put on one diet

or the other.> > -----Original Message-----> > I'm not Donna - but it sounds like this place:> > http://www.glutenfreeoats.com/> > ---> [This E-mail scanned for viruses by Declude Virus]>

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Thanks for the link, but since link you posted pretty much confirms

what I've read before, it's not quite what I was asking for. K. Oland

posted some very strong anti-oats claims, I'm asking for some evidence

to back them up.

Maureen

> >

> > Just remember that OATS cannot actually be labeled as gluten free

in any

> > country but the US (which has no legal definition of GF). Canada and

> > Australia specifically exclude oats (with barley and rye) from this

> > designation. No doubt because oats cause the exact same rise in TTG

> levels

> > (with corresponding anti-avenin antibodies, rather than anti-gliadin

> ones)

> > in those who have biopsy confirmed CD. The conclusions of

> researchers are

> > NOW showing that the even in the short time periods involved, the

> antibody

> > increases are significant (remember, not everyones gliadin

> antibodies rise

> > quickly, even on a 3 week challenge).

> >

> > The few studies that declared " oats are safe " compared them to a low

> gliadin

> > wheat starch diet (and the group eating oats had double the drop-out

> rate as

> > those eating wheat starch). These studies have been very small and

> have NOT

> > shown that oats are " safe " - just that for some (the symptomless

> ones), they

> > aren't much worse than eating low gliadin wheat starch -- although the

> > dropout rate was double, due to people being unable to tolerate

> them, plus

> > their TTG antibodies didn't drop as much as those who consumed wheat

> > starch - and neither group dropped to the negative level a year

> after being

> > diagnosed and put on one diet or the other.

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Thanks for the link, but since link you posted pretty much confirms

what I've read before, it's not quite what I was asking for. K. Oland

posted some very strong anti-oats claims, I'm asking for some evidence

to back them up.

Maureen

> >

> > Just remember that OATS cannot actually be labeled as gluten free

in any

> > country but the US (which has no legal definition of GF). Canada and

> > Australia specifically exclude oats (with barley and rye) from this

> > designation. No doubt because oats cause the exact same rise in TTG

> levels

> > (with corresponding anti-avenin antibodies, rather than anti-gliadin

> ones)

> > in those who have biopsy confirmed CD. The conclusions of

> researchers are

> > NOW showing that the even in the short time periods involved, the

> antibody

> > increases are significant (remember, not everyones gliadin

> antibodies rise

> > quickly, even on a 3 week challenge).

> >

> > The few studies that declared " oats are safe " compared them to a low

> gliadin

> > wheat starch diet (and the group eating oats had double the drop-out

> rate as

> > those eating wheat starch). These studies have been very small and

> have NOT

> > shown that oats are " safe " - just that for some (the symptomless

> ones), they

> > aren't much worse than eating low gliadin wheat starch -- although the

> > dropout rate was double, due to people being unable to tolerate

> them, plus

> > their TTG antibodies didn't drop as much as those who consumed wheat

> > starch - and neither group dropped to the negative level a year

> after being

> > diagnosed and put on one diet or the other.

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Thanks for the link, but since link you posted pretty much confirms

what I've read before, it's not quite what I was asking for. K. Oland

posted some very strong anti-oats claims, I'm asking for some evidence

to back them up.

Maureen

> >

> > Just remember that OATS cannot actually be labeled as gluten free

in any

> > country but the US (which has no legal definition of GF). Canada and

> > Australia specifically exclude oats (with barley and rye) from this

> > designation. No doubt because oats cause the exact same rise in TTG

> levels

> > (with corresponding anti-avenin antibodies, rather than anti-gliadin

> ones)

> > in those who have biopsy confirmed CD. The conclusions of

> researchers are

> > NOW showing that the even in the short time periods involved, the

> antibody

> > increases are significant (remember, not everyones gliadin

> antibodies rise

> > quickly, even on a 3 week challenge).

> >

> > The few studies that declared " oats are safe " compared them to a low

> gliadin

> > wheat starch diet (and the group eating oats had double the drop-out

> rate as

> > those eating wheat starch). These studies have been very small and

> have NOT

> > shown that oats are " safe " - just that for some (the symptomless

> ones), they

> > aren't much worse than eating low gliadin wheat starch -- although the

> > dropout rate was double, due to people being unable to tolerate

> them, plus

> > their TTG antibodies didn't drop as much as those who consumed wheat

> > starch - and neither group dropped to the negative level a year

> after being

> > diagnosed and put on one diet or the other.

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What you posted says "care must be taken to consume uncontaminated oats products" and that's really the problem here in the US. It's very hard to find uncontaminated oats as they are transported or stored in conjunction with wheat products, so they get contaminated very frequently. Oats themselves are theorhetically ok for Celiacs to eat (some do react even to uncontaminated ones, but I suspect they would even if not Celiac)

From: SillyYaks [mailto:SillyYaks ] On Behalf Of marcianarSent: Tuesday, January 31, 2006 1:42 PMTo: SillyYaks Subject: Re: Gluten Free Oats Company

Thanks for the link, but since link you posted pretty much confirmswhat I've read before, it's not quite what I was asking for. K. Olandposted some very strong anti-oats claims, I'm asking for some evidenceto back them up.Maureen> >> > Just remember that OATS cannot actually be labeled as gluten freein any> > country but the US (which has no legal definition of GF). Canada and> > Australia specifically exclude oats (with barley and rye) from this> > designation. No doubt because oats cause the exact same rise in TTG> levels> > (with corresponding anti-avenin antibodies, rather than anti-gliadin> ones)> > in those who have biopsy confirmed CD. The conclusions of> researchers are> > NOW showing that the even in the short time periods involved, the> antibody> > increases are significant (remember, not everyones gliadin> antibodies rise> > quickly, even on a 3 week challenge).> > > > The few studies that declared "oats are safe" compared them to a low> gliadin> > wheat starch diet (and the group eating oats had double the drop-out> rate as> > those eating wheat starch). These studies have been very small and> have NOT> > shown that oats are "safe" - just that for some (the symptomless> ones), they> > aren't much worse than eating low gliadin wheat starch -- although the> > dropout rate was double, due to people being unable to tolerate> them, plus> > their TTG antibodies didn't drop as much as those who consumed wheat> > starch - and neither group dropped to the negative level a year> after being> > diagnosed and put on one diet or the other.

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What you posted says "care must be taken to consume uncontaminated oats products" and that's really the problem here in the US. It's very hard to find uncontaminated oats as they are transported or stored in conjunction with wheat products, so they get contaminated very frequently. Oats themselves are theorhetically ok for Celiacs to eat (some do react even to uncontaminated ones, but I suspect they would even if not Celiac)

From: SillyYaks [mailto:SillyYaks ] On Behalf Of marcianarSent: Tuesday, January 31, 2006 1:42 PMTo: SillyYaks Subject: Re: Gluten Free Oats Company

Thanks for the link, but since link you posted pretty much confirmswhat I've read before, it's not quite what I was asking for. K. Olandposted some very strong anti-oats claims, I'm asking for some evidenceto back them up.Maureen> >> > Just remember that OATS cannot actually be labeled as gluten freein any> > country but the US (which has no legal definition of GF). Canada and> > Australia specifically exclude oats (with barley and rye) from this> > designation. No doubt because oats cause the exact same rise in TTG> levels> > (with corresponding anti-avenin antibodies, rather than anti-gliadin> ones)> > in those who have biopsy confirmed CD. The conclusions of> researchers are> > NOW showing that the even in the short time periods involved, the> antibody> > increases are significant (remember, not everyones gliadin> antibodies rise> > quickly, even on a 3 week challenge).> > > > The few studies that declared "oats are safe" compared them to a low> gliadin> > wheat starch diet (and the group eating oats had double the drop-out> rate as> > those eating wheat starch). These studies have been very small and> have NOT> > shown that oats are "safe" - just that for some (the symptomless> ones), they> > aren't much worse than eating low gliadin wheat starch -- although the> > dropout rate was double, due to people being unable to tolerate> them, plus> > their TTG antibodies didn't drop as much as those who consumed wheat> > starch - and neither group dropped to the negative level a year> after being> > diagnosed and put on one diet or the other.

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What you posted says "care must be taken to consume uncontaminated oats products" and that's really the problem here in the US. It's very hard to find uncontaminated oats as they are transported or stored in conjunction with wheat products, so they get contaminated very frequently. Oats themselves are theorhetically ok for Celiacs to eat (some do react even to uncontaminated ones, but I suspect they would even if not Celiac)

From: SillyYaks [mailto:SillyYaks ] On Behalf Of marcianarSent: Tuesday, January 31, 2006 1:42 PMTo: SillyYaks Subject: Re: Gluten Free Oats Company

Thanks for the link, but since link you posted pretty much confirmswhat I've read before, it's not quite what I was asking for. K. Olandposted some very strong anti-oats claims, I'm asking for some evidenceto back them up.Maureen> >> > Just remember that OATS cannot actually be labeled as gluten freein any> > country but the US (which has no legal definition of GF). Canada and> > Australia specifically exclude oats (with barley and rye) from this> > designation. No doubt because oats cause the exact same rise in TTG> levels> > (with corresponding anti-avenin antibodies, rather than anti-gliadin> ones)> > in those who have biopsy confirmed CD. The conclusions of> researchers are> > NOW showing that the even in the short time periods involved, the> antibody> > increases are significant (remember, not everyones gliadin> antibodies rise> > quickly, even on a 3 week challenge).> > > > The few studies that declared "oats are safe" compared them to a low> gliadin> > wheat starch diet (and the group eating oats had double the drop-out> rate as> > those eating wheat starch). These studies have been very small and> have NOT> > shown that oats are "safe" - just that for some (the symptomless> ones), they> > aren't much worse than eating low gliadin wheat starch -- although the> > dropout rate was double, due to people being unable to tolerate> them, plus> > their TTG antibodies didn't drop as much as those who consumed wheat> > starch - and neither group dropped to the negative level a year> after being> > diagnosed and put on one diet or the other.

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Here are two. There are many more, all in the same vein. Often, just reading

the study that is quoted as saying oats are OK reveals that there were major

problems with the study (such as one that said it's ok, but if you looked at

the numbers, people newly diagnosed were put on a " standard gf diet " (per

EU, standards, with wheat starch) or the same plus oats. Twice as many

eating oats dropped out (due to not tolerating the diet, plus one whose

pediatrician forced him out of the study, has he wasn't growing after 6

months " gf plus oats " ) and those eating oats had a 50% less drop in TTG

numbers (the average of neither group went to negative values after a year).

http://tinyurl.com/abgdk

http://tinyurl.com/9jswe

Fiber, soluable or otherwise, is present in many more sources than oats. It

isn't a necessary part of anyones diet, any more than you must consume wheat

starch to be " satisfied " with gf food (the justification most often used for

setting codex wheat starch levels, rather than banning wheat from gf

labeling).

Studies that only look at anti-gliadin antibodies when consuming pure oats

are pretty much useless, as well (same for the other major grains - you get

some cross reaction, but these antibodies are specific to the individual

grains -- even TTG isn't " one " antibody, but several, which react to the

four grains in slighly different manners).

> -----Original Message-----

>

> Can you provide links to the studies you mention? Names of the

> researchers, etc? I'd like to see these studies for myself because

> your conclusions differ from all the info I have been able to find on

> oats.

---

[This E-mail scanned for viruses by Declude Virus]

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Here are two. There are many more, all in the same vein. Often, just reading

the study that is quoted as saying oats are OK reveals that there were major

problems with the study (such as one that said it's ok, but if you looked at

the numbers, people newly diagnosed were put on a " standard gf diet " (per

EU, standards, with wheat starch) or the same plus oats. Twice as many

eating oats dropped out (due to not tolerating the diet, plus one whose

pediatrician forced him out of the study, has he wasn't growing after 6

months " gf plus oats " ) and those eating oats had a 50% less drop in TTG

numbers (the average of neither group went to negative values after a year).

http://tinyurl.com/abgdk

http://tinyurl.com/9jswe

Fiber, soluable or otherwise, is present in many more sources than oats. It

isn't a necessary part of anyones diet, any more than you must consume wheat

starch to be " satisfied " with gf food (the justification most often used for

setting codex wheat starch levels, rather than banning wheat from gf

labeling).

Studies that only look at anti-gliadin antibodies when consuming pure oats

are pretty much useless, as well (same for the other major grains - you get

some cross reaction, but these antibodies are specific to the individual

grains -- even TTG isn't " one " antibody, but several, which react to the

four grains in slighly different manners).

> -----Original Message-----

>

> Can you provide links to the studies you mention? Names of the

> researchers, etc? I'd like to see these studies for myself because

> your conclusions differ from all the info I have been able to find on

> oats.

---

[This E-mail scanned for viruses by Declude Virus]

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Share on other sites

Here are two. There are many more, all in the same vein. Often, just reading

the study that is quoted as saying oats are OK reveals that there were major

problems with the study (such as one that said it's ok, but if you looked at

the numbers, people newly diagnosed were put on a " standard gf diet " (per

EU, standards, with wheat starch) or the same plus oats. Twice as many

eating oats dropped out (due to not tolerating the diet, plus one whose

pediatrician forced him out of the study, has he wasn't growing after 6

months " gf plus oats " ) and those eating oats had a 50% less drop in TTG

numbers (the average of neither group went to negative values after a year).

http://tinyurl.com/abgdk

http://tinyurl.com/9jswe

Fiber, soluable or otherwise, is present in many more sources than oats. It

isn't a necessary part of anyones diet, any more than you must consume wheat

starch to be " satisfied " with gf food (the justification most often used for

setting codex wheat starch levels, rather than banning wheat from gf

labeling).

Studies that only look at anti-gliadin antibodies when consuming pure oats

are pretty much useless, as well (same for the other major grains - you get

some cross reaction, but these antibodies are specific to the individual

grains -- even TTG isn't " one " antibody, but several, which react to the

four grains in slighly different manners).

> -----Original Message-----

>

> Can you provide links to the studies you mention? Names of the

> researchers, etc? I'd like to see these studies for myself because

> your conclusions differ from all the info I have been able to find on

> oats.

---

[This E-mail scanned for viruses by Declude Virus]

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I have a child diagnosed with Celiac at the Hospital for Sick Children in Toronto, Canada. At a yearly follow-up, I mentioned a new location in Canada (outside Montreal) that has " Guaranteed 100% pure Oats " . They are called Cream Hill Estates (www.creamhillestates.com <http://www.creamhillestates.com> ). Their flyer refers to Canadian Celiac Association's Professional Advisory Board Position Statement on Oats found at www.celiac.ca/Articles/PABoats.html <http://www.celiac.ca/Articles/PABoats.html> .

Their statement says they meet or exceed government standards for growing and manufacturing oats, contract only with farmers who know the importance of growing oats free of cross contamination (and have fields that have been wheat, barley and rye-free for minimum 3 years, including the equipment, the processing, etc. They retail and wholesale their products and the website has a toll-free number.

Maybe that can give you the extra information you need?

I sent them an email to inquire about suppliers in the Toronto area but haven't heard anything back yet. They just opened operations in December 2005 so may be very busy.

marcianar wrote:

Can you provide links to the studies you mention? Names of the

researchers, etc? I'd like to see these studies for myself because

your conclusions differ from all the info I have been able to find on

oats.

For example, a recent paper put forth by the Coeliac Societies'

Medical Advisory Council (UK) concludes with the following:

" · Moderate amounts of oats may be consumed by most Coeliacs without

risk. This also applies to people with dermatitis herpetiformis, but

the evidence in children is less convincing.

· Severe Coeliacs should probably not be allowed oats.

· With due information and explanation, patient preference must be

taken into account.

· Care must be taken to use uncontaminated oat products.

· Careful follow-up is necessary in the present state of knowledge. "

which does rather suggest that oats are considered acceptable for some

celiacs in the UK. they even reference a 5 yer study in Finland.

Maureen

>

> Just remember that OATS cannot actually be labeled as gluten free in any

> country but the US (which has no legal definition of GF). Canada and

> Australia specifically exclude oats (with barley and rye) from this

> designation. No doubt because oats cause the exact same rise in TTG

levels

> (with corresponding anti-avenin antibodies, rather than anti-gliadin

ones)

> in those who have biopsy confirmed CD. The conclusions of

researchers are

> NOW showing that the even in the short time periods involved, the

antibody

> increases are significant (remember, not everyones gliadin

antibodies rise

> quickly, even on a 3 week challenge).

>

> The few studies that declared " oats are safe " compared them to a low

gliadin

> wheat starch diet (and the group eating oats had double the drop-out

rate as

> those eating wheat starch). These studies have been very small and

have NOT

> shown that oats are " safe " - just that for some (the symptomless

ones), they

> aren't much worse than eating low gliadin wheat starch -- although the

> dropout rate was double, due to people being unable to tolerate

them, plus

> their TTG antibodies didn't drop as much as those who consumed wheat

> starch - and neither group dropped to the negative level a year

after being

> diagnosed and put on one diet or the other.

>

> -----Original Message-----

>

> I'm not Donna - but it sounds like this place:

>

> http://www.glutenfreeoats.com/

>

> ---

> [This E-mail scanned for viruses by Declude Virus]

>

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I have a child diagnosed with Celiac at the Hospital for Sick Children in Toronto, Canada. At a yearly follow-up, I mentioned a new location in Canada (outside Montreal) that has " Guaranteed 100% pure Oats " . They are called Cream Hill Estates (www.creamhillestates.com <http://www.creamhillestates.com> ). Their flyer refers to Canadian Celiac Association's Professional Advisory Board Position Statement on Oats found at www.celiac.ca/Articles/PABoats.html <http://www.celiac.ca/Articles/PABoats.html> .

Their statement says they meet or exceed government standards for growing and manufacturing oats, contract only with farmers who know the importance of growing oats free of cross contamination (and have fields that have been wheat, barley and rye-free for minimum 3 years, including the equipment, the processing, etc. They retail and wholesale their products and the website has a toll-free number.

Maybe that can give you the extra information you need?

I sent them an email to inquire about suppliers in the Toronto area but haven't heard anything back yet. They just opened operations in December 2005 so may be very busy.

marcianar wrote:

Can you provide links to the studies you mention? Names of the

researchers, etc? I'd like to see these studies for myself because

your conclusions differ from all the info I have been able to find on

oats.

For example, a recent paper put forth by the Coeliac Societies'

Medical Advisory Council (UK) concludes with the following:

" · Moderate amounts of oats may be consumed by most Coeliacs without

risk. This also applies to people with dermatitis herpetiformis, but

the evidence in children is less convincing.

· Severe Coeliacs should probably not be allowed oats.

· With due information and explanation, patient preference must be

taken into account.

· Care must be taken to use uncontaminated oat products.

· Careful follow-up is necessary in the present state of knowledge. "

which does rather suggest that oats are considered acceptable for some

celiacs in the UK. they even reference a 5 yer study in Finland.

Maureen

>

> Just remember that OATS cannot actually be labeled as gluten free in any

> country but the US (which has no legal definition of GF). Canada and

> Australia specifically exclude oats (with barley and rye) from this

> designation. No doubt because oats cause the exact same rise in TTG

levels

> (with corresponding anti-avenin antibodies, rather than anti-gliadin

ones)

> in those who have biopsy confirmed CD. The conclusions of

researchers are

> NOW showing that the even in the short time periods involved, the

antibody

> increases are significant (remember, not everyones gliadin

antibodies rise

> quickly, even on a 3 week challenge).

>

> The few studies that declared " oats are safe " compared them to a low

gliadin

> wheat starch diet (and the group eating oats had double the drop-out

rate as

> those eating wheat starch). These studies have been very small and

have NOT

> shown that oats are " safe " - just that for some (the symptomless

ones), they

> aren't much worse than eating low gliadin wheat starch -- although the

> dropout rate was double, due to people being unable to tolerate

them, plus

> their TTG antibodies didn't drop as much as those who consumed wheat

> starch - and neither group dropped to the negative level a year

after being

> diagnosed and put on one diet or the other.

>

> -----Original Message-----

>

> I'm not Donna - but it sounds like this place:

>

> http://www.glutenfreeoats.com/

>

> ---

> [This E-mail scanned for viruses by Declude Virus]

>

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Share on other sites

I have a child diagnosed with Celiac at the Hospital for Sick Children in Toronto, Canada. At a yearly follow-up, I mentioned a new location in Canada (outside Montreal) that has " Guaranteed 100% pure Oats " . They are called Cream Hill Estates (www.creamhillestates.com <http://www.creamhillestates.com> ). Their flyer refers to Canadian Celiac Association's Professional Advisory Board Position Statement on Oats found at www.celiac.ca/Articles/PABoats.html <http://www.celiac.ca/Articles/PABoats.html> .

Their statement says they meet or exceed government standards for growing and manufacturing oats, contract only with farmers who know the importance of growing oats free of cross contamination (and have fields that have been wheat, barley and rye-free for minimum 3 years, including the equipment, the processing, etc. They retail and wholesale their products and the website has a toll-free number.

Maybe that can give you the extra information you need?

I sent them an email to inquire about suppliers in the Toronto area but haven't heard anything back yet. They just opened operations in December 2005 so may be very busy.

marcianar wrote:

Can you provide links to the studies you mention? Names of the

researchers, etc? I'd like to see these studies for myself because

your conclusions differ from all the info I have been able to find on

oats.

For example, a recent paper put forth by the Coeliac Societies'

Medical Advisory Council (UK) concludes with the following:

" · Moderate amounts of oats may be consumed by most Coeliacs without

risk. This also applies to people with dermatitis herpetiformis, but

the evidence in children is less convincing.

· Severe Coeliacs should probably not be allowed oats.

· With due information and explanation, patient preference must be

taken into account.

· Care must be taken to use uncontaminated oat products.

· Careful follow-up is necessary in the present state of knowledge. "

which does rather suggest that oats are considered acceptable for some

celiacs in the UK. they even reference a 5 yer study in Finland.

Maureen

>

> Just remember that OATS cannot actually be labeled as gluten free in any

> country but the US (which has no legal definition of GF). Canada and

> Australia specifically exclude oats (with barley and rye) from this

> designation. No doubt because oats cause the exact same rise in TTG

levels

> (with corresponding anti-avenin antibodies, rather than anti-gliadin

ones)

> in those who have biopsy confirmed CD. The conclusions of

researchers are

> NOW showing that the even in the short time periods involved, the

antibody

> increases are significant (remember, not everyones gliadin

antibodies rise

> quickly, even on a 3 week challenge).

>

> The few studies that declared " oats are safe " compared them to a low

gliadin

> wheat starch diet (and the group eating oats had double the drop-out

rate as

> those eating wheat starch). These studies have been very small and

have NOT

> shown that oats are " safe " - just that for some (the symptomless

ones), they

> aren't much worse than eating low gliadin wheat starch -- although the

> dropout rate was double, due to people being unable to tolerate

them, plus

> their TTG antibodies didn't drop as much as those who consumed wheat

> starch - and neither group dropped to the negative level a year

after being

> diagnosed and put on one diet or the other.

>

> -----Original Message-----

>

> I'm not Donna - but it sounds like this place:

>

> http://www.glutenfreeoats.com/

>

> ---

> [This E-mail scanned for viruses by Declude Virus]

>

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