RE: When do you test a child for celiac disease?

[Guest guest]

And while you're at it, insist on a lab that specializes in celiac testing. Some of these tests take a trained eye. If you use Prometheus, they will run a celiac panel. If it comes back negative or inconclusive, they will automatically do gene testing. My pediatrician was fine with doing testing, but balked at using Prometheus. After I told her my GI had used it for me, she agreed to investigate further. After talking to my GI and a ped GI, she agreed to use it too.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

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Sometimes you just have to insist.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of cph_cdhSent: Wednesday, January 25, 2006 1:49 PMTo: SillyYaks Subject: When do you test a child for celiac disease?

My daughter is almost 2 and has been having tummy troubles for the last month. Her pediatrician referred us to a gastroenterologist but said that he didn't think they would test her for celiac. Her daddy has celiac so there is certainly a possibility that she has it too. I would rather know sooner rather than later so that we can modify her diet before it does damage.

[Guest guest]

Oh, definitely. Your hospitals lab cannot test for this. If they tell you the results will be back in a day or so, freak out. It should take more like 10 days bc they will have to send it out (there are only 5 labs in the entire country that do this analysis accurately/reliably) You can't request a specific lab, most hospitals will have a contract with a specific lab. As long as it's one of the five (Mayo Clinic in MN is one) then it's ok.

From: SillyYaks [mailto:SillyYaks ] On Behalf Of tverzosa@...Sent: Thursday, January 26, 2006 2:38 PMTo: SillyYaks Subject: RE: When do you test a child for celiac disease?

And while you're at it, insist on a lab that specializes in celiac testing. Some of these tests take a trained eye. If you use Prometheus, they will run a celiac panel. If it comes back negative or inconclusive, they will automatically do gene testing. My pediatrician was fine with doing testing, but balked at using Prometheus. After I told her my GI had used it for me, she agreed to investigate further. After talking to my GI and a ped GI, she agreed to use it too.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

-------------- Original message --------------

Sometimes you just have to insist.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of cph_cdhSent: Wednesday, January 25, 2006 1:49 PMTo: SillyYaks Subject: When do you test a child for celiac disease?

My daughter is almost 2 and has been having tummy troubles for the last month. Her pediatrician referred us to a gastroenterologist but said that he didn't think they would test her for celiac. Her daddy has celiac so there is certainly a possibility that she has it too. I would rather know sooner rather than later so that we can modify her diet before it does damage.