?? nothing consistent

[Guest guest]

I was just thinking about this as I wrote another message:

Has anyone had trouble determining whether ANYTHING helps. I am having a hard

time with that. It seems like there is no " usual " level of symptoms for me,

everything varies so extremely without any kind of pattern that I can tell! And

even when Ican find SOME reason (like something was making it worse, it seems to

only explain a small percentage of this constant changing.) I can't tell how

mnay things I have tried , and thought they helped, only to find a day or so

later I felt bad again. And other times feel good like that for No reason.

Sometimes there are pattern to this, other times none at all:

Here are some examples of things that are more consistent:

-I usually feel better late at night.

-Worse during my period.

Here are examples that fluctuate constantly:

-(sometimes I fall asleep in <3 min, other times >2 hours and not related to

amount of sleep, time of day, anything)

-I feel much better some days and much worse others. Sometimes this can be

just a day, portion of a day, or several. There is no consistent pattern other

than the " bad days " are much more than good.

-overall,, my symptoms just appear to fluctuate randomly, both within minutes,

(example I can go from feeling reaonably okay one minute, to feeling almost like

in an " adrenal crisis " - with no infection or anything, and I'm on an adequate

cortef does) and over longer periods (days, weeks, etc)

So, how do I tell if anything helps if nothing seems to? It seems like there

is no " baseline " to compare to since every day is so different, and nothing

seems to DRAMATICALLY help. Is there something I should be trying that would

make a huge difference, that would then let me feel more consistenlty better to

fine tune the other things?

I am trying

-supplements (lots, although I dont know any that really help other than

magnesium for muscle cramps)

-thyroid - Armour

-iron for low ferretin

-cortef (not trying this, have to be on it)

etc.

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