Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Suzi, I am 43 and was just diagnosed one year ago after a lifetime of problems! As soon as I was diagnosed, my general practitioner ran a series of tests, including a bone density scan. I also was diagnosed with osteopenia. They were very encouraging that it can improve. I joined a gym and have been going regularly, which is supposed to help. My doctor said it would be a waste of time to try medication for it until my intestines healed. And, actually, from what I've read about those meds, I'm not sure I'd even want to! I do take calcium supplements (in capsules, so it is easier to absorb!). I've been gluten free fo 11 months and I was just thinking I need to check with my doctor to see when she wants to check if anything has improved since I've healed. Best of luck, Ellen in land > > Anyone else diagnosised with this? I guess I am on my way to > osteoporosis, I am 41. > Suzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Suzi, I am 43 and was just diagnosed one year ago after a lifetime of problems! As soon as I was diagnosed, my general practitioner ran a series of tests, including a bone density scan. I also was diagnosed with osteopenia. They were very encouraging that it can improve. I joined a gym and have been going regularly, which is supposed to help. My doctor said it would be a waste of time to try medication for it until my intestines healed. And, actually, from what I've read about those meds, I'm not sure I'd even want to! I do take calcium supplements (in capsules, so it is easier to absorb!). I've been gluten free fo 11 months and I was just thinking I need to check with my doctor to see when she wants to check if anything has improved since I've healed. Best of luck, Ellen in land > > Anyone else diagnosised with this? I guess I am on my way to > osteoporosis, I am 41. > Suzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Suzi, I am 43 and was just diagnosed one year ago after a lifetime of problems! As soon as I was diagnosed, my general practitioner ran a series of tests, including a bone density scan. I also was diagnosed with osteopenia. They were very encouraging that it can improve. I joined a gym and have been going regularly, which is supposed to help. My doctor said it would be a waste of time to try medication for it until my intestines healed. And, actually, from what I've read about those meds, I'm not sure I'd even want to! I do take calcium supplements (in capsules, so it is easier to absorb!). I've been gluten free fo 11 months and I was just thinking I need to check with my doctor to see when she wants to check if anything has improved since I've healed. Best of luck, Ellen in land > > Anyone else diagnosised with this? I guess I am on my way to > osteoporosis, I am 41. > Suzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 What does a bone density scan involve? The GI doc thinks I should do that one, now that I'm finally healing after going GF. I'm 43 too. My sister, 53, has osteoporosis. And so does my mom (in her 80s), something wicked. (She even broke her wrist while SLEEPING! How scary is THAT??!!) > > > > Anyone else diagnosised with this? I guess I am on my way to > > osteoporosis, I am 41. > > Suzi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 What does a bone density scan involve? The GI doc thinks I should do that one, now that I'm finally healing after going GF. I'm 43 too. My sister, 53, has osteoporosis. And so does my mom (in her 80s), something wicked. (She even broke her wrist while SLEEPING! How scary is THAT??!!) > > > > Anyone else diagnosised with this? I guess I am on my way to > > osteoporosis, I am 41. > > Suzi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 What does a bone density scan involve? The GI doc thinks I should do that one, now that I'm finally healing after going GF. I'm 43 too. My sister, 53, has osteoporosis. And so does my mom (in her 80s), something wicked. (She even broke her wrist while SLEEPING! How scary is THAT??!!) > > > > Anyone else diagnosised with this? I guess I am on my way to > > osteoporosis, I am 41. > > Suzi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 > Anyone else diagnosised with this? I guess I am on my way to > osteoporosis, I am 41. ========== 43 in a week with osteoporosis. docs are blaming a combination of undiagnosed CD for 42 years and 10 years on steroids for what we now know where symptoms of gluten intolerance. Be very careful about letting the doctors talk you into taking Bisphosphanates. they have not been proven to treat osteoporosis. If you do a good literature search you will see that the underlying premise is dodgy. They are also implicated in a dreadful disease called avascular necrosis (your bones die). Believe me when I say that you don't want AVN. I have it and it is painful beyond your worst imaginings. Then of course there is the increased risk of esophageal cancer that this class of drug brings with it. Docs put their patients of Fosomax and its brethren very easily and don't tell you that controlled studies show that women on these bisphosphonates break their bones just as often as non treated women. If you are able to, start doing weight bearing exercise and be extra careful about being 100% GF. You have to ensure that your gut is completely healed so that it can absorb the nutrients it needs. I am still battling with the small intestinal damaged caused by the undiagnosed CD. my doc has put me on this calcium supplement http:// www.nutramed.com/anonline/scripts/prodView.asp?idproduct=32 as he says that the absorption is good. Shez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 You're not necessarily doomed. Many people report significant improvements to bone density after going GF. You do need to be very careful you are compliant with the diet. Also take supplements and do weight bearing exercise as much as you are able. Sue in Denver > > Anyone else diagnosised with this? I guess I am on my way to > osteoporosis, I am 41. > Suzi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Dx with it at 36...I don't think we are doomed....we just found it earlier than most people do, we caught it and maybe now we won't have osteoporosis ( sp) --- zoemom2001 wrote: > You're not necessarily doomed. Many people report > significant > improvements to bone density after going GF. You do > need to be very > careful you are compliant with the diet. Also take > supplements and do > weight bearing exercise as much as you are able. > > Sue in Denver > > > > > > Anyone else diagnosised with this? I guess I am on > my way to > > osteoporosis, I am 41. > > Suzi > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 A bone density scan (I think it may be called a Dexa scan, or something like that) is a special type of x-ray. You lay on your back on a special table and it x-rays certain parts of your body. The radiologist measures this for bone density. If I remember correctly, I may take about a half-hour or so. It was very easy and comfortable. Ellen in land > > > > > > Anyone else diagnosised with this? I guess I am on my way to > > > osteoporosis, I am 41. > > > Suzi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 I was just diagnosed about 3 weeks ago with it. I have been GF now for 3 1/2 years. I should have been on a GF diet over 20 years ago but all the Drs. said it was IBS. I am 52 and I also have Fibromyligia, Chronic Fatigue Syndrome, Restless Leg Syndrome, I go in every month for medial nerve blocks in my lower spine.I can not do very much any more I have to use a cane all the time and when we go out to do our shopping I have to use a motorized cart or it would take me 3 hours in the store and I could fall very easy. You name it and I more then likely have it. I have suffered from depression since I was in my teens. I am a recovering alcoholic, drug addict I have not used anything in over 14 years now. All the different medications that I am on the Drs. think have caused my bones to thin as fast as they have. Hugs!!!! Anyone else diagnosised with this? I guess I am on my way to osteoporosis, I am 41. Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 I was just diagnosed about 3 weeks ago with it. I have been GF now for 3 1/2 years. I should have been on a GF diet over 20 years ago but all the Drs. said it was IBS. I am 52 and I also have Fibromyligia, Chronic Fatigue Syndrome, Restless Leg Syndrome, I go in every month for medial nerve blocks in my lower spine.I can not do very much any more I have to use a cane all the time and when we go out to do our shopping I have to use a motorized cart or it would take me 3 hours in the store and I could fall very easy. You name it and I more then likely have it. I have suffered from depression since I was in my teens. I am a recovering alcoholic, drug addict I have not used anything in over 14 years now. All the different medications that I am on the Drs. think have caused my bones to thin as fast as they have. Hugs!!!! Anyone else diagnosised with this? I guess I am on my way to osteoporosis, I am 41. Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 I was diagnosed with osteopenia at 35. I am now 38, and have been gf for 4 years, and taken plenty of calcium, etc. I have recently found that it has not been enough, and I have had more bone loss. I believe I will choose Miacalcin, only because it does not seem to have the same negative gut effects as the others. Anyone else having any luck? Suzie From: SillyYaks [mailto:SillyYaks ] On Behalf Of Sent: Saturday, January 21, 2006 7:19 PM To: SillyYaks Subject: Re: Osteopenia I was just diagnosed about 3 weeks ago with it. I have been GF now for 3 1/2 years. I should have been on a GF diet over 20 years ago but all the Drs. said it was IBS. I am 52 and I also have Fibromyligia, Chronic Fatigue Syndrome, Restless Leg Syndrome, I go in every month for medial nerve blocks in my lower spine.I can not do very much any more I have to use a cane all the time and when we go out to do our shopping I have to use a motorized cart or it would take me 3 hours in the store and I could fall very easy. You name it and I more then likely have it. I have suffered from depression since I was in my teens. I am a recovering alcoholic, drug addict I have not used anything in over 14 years now. All the different medications that I am on the Drs. think have caused my bones to thin as fast as they have. Hugs!!!! Anyone else diagnosised with this? I guess I am on my way to osteoporosis, I am 41. Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 I was diagnosed with osteopenia at 35. I am now 38, and have been gf for 4 years, and taken plenty of calcium, etc. I have recently found that it has not been enough, and I have had more bone loss. I believe I will choose Miacalcin, only because it does not seem to have the same negative gut effects as the others. Anyone else having any luck? Suzie From: SillyYaks [mailto:SillyYaks ] On Behalf Of Sent: Saturday, January 21, 2006 7:19 PM To: SillyYaks Subject: Re: Osteopenia I was just diagnosed about 3 weeks ago with it. I have been GF now for 3 1/2 years. I should have been on a GF diet over 20 years ago but all the Drs. said it was IBS. I am 52 and I also have Fibromyligia, Chronic Fatigue Syndrome, Restless Leg Syndrome, I go in every month for medial nerve blocks in my lower spine.I can not do very much any more I have to use a cane all the time and when we go out to do our shopping I have to use a motorized cart or it would take me 3 hours in the store and I could fall very easy. You name it and I more then likely have it. I have suffered from depression since I was in my teens. I am a recovering alcoholic, drug addict I have not used anything in over 14 years now. All the different medications that I am on the Drs. think have caused my bones to thin as fast as they have. Hugs!!!! Anyone else diagnosised with this? I guess I am on my way to osteoporosis, I am 41. Suzi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Hi I'm a lurker here. I was diagnosed almost a year ago(on my 40th birthday) with osteopenia in my neck and lower back and mild osteoporosis in my hips. I've been gf since Sept 2003. I do have a family history(my mom can sneeze and crack a rib)plus I had a total hysterectomy in 2002, not on hormone replacement, had an eating disorder in college, over-exercised and I'm lactose intolerant, so lots of other factors besides Celiacs. Anyways my Gynocologist is big in to " here's a pill " He put me on Actonel. I tried it for 3 months and felt horrible. I'm almost sure its what caused my hypothyroid. My thyroid levels were perfect right before going on Actonel. I had horrible joint pain while on it too. Yet my mom takes it with no problems. My internist took me off the Actonel, she said to take 1500mg of calcium, exercise every day-need to start weight training though, she said that would make a huge difference and as soon as the pool opens at our new Ymca, she said I need to take water aerobics. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Hi I'm a lurker here. I was diagnosed almost a year ago(on my 40th birthday) with osteopenia in my neck and lower back and mild osteoporosis in my hips. I've been gf since Sept 2003. I do have a family history(my mom can sneeze and crack a rib)plus I had a total hysterectomy in 2002, not on hormone replacement, had an eating disorder in college, over-exercised and I'm lactose intolerant, so lots of other factors besides Celiacs. Anyways my Gynocologist is big in to " here's a pill " He put me on Actonel. I tried it for 3 months and felt horrible. I'm almost sure its what caused my hypothyroid. My thyroid levels were perfect right before going on Actonel. I had horrible joint pain while on it too. Yet my mom takes it with no problems. My internist took me off the Actonel, she said to take 1500mg of calcium, exercise every day-need to start weight training though, she said that would make a huge difference and as soon as the pool opens at our new Ymca, she said I need to take water aerobics. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Hi I'm a lurker here. I was diagnosed almost a year ago(on my 40th birthday) with osteopenia in my neck and lower back and mild osteoporosis in my hips. I've been gf since Sept 2003. I do have a family history(my mom can sneeze and crack a rib)plus I had a total hysterectomy in 2002, not on hormone replacement, had an eating disorder in college, over-exercised and I'm lactose intolerant, so lots of other factors besides Celiacs. Anyways my Gynocologist is big in to " here's a pill " He put me on Actonel. I tried it for 3 months and felt horrible. I'm almost sure its what caused my hypothyroid. My thyroid levels were perfect right before going on Actonel. I had horrible joint pain while on it too. Yet my mom takes it with no problems. My internist took me off the Actonel, she said to take 1500mg of calcium, exercise every day-need to start weight training though, she said that would make a huge difference and as soon as the pool opens at our new Ymca, she said I need to take water aerobics. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 AH , My heart goes out to you. Your story is so sad! I wish you the very best and will pray for your health! Is it true, then that Irish are more prone to Celiacs? My side of the family is Irish--just wondering. TIA, & Mike Osteopenia Hi everyone, I've been reading the posts today on osteopenia and I had to write in. I too have osteopenia and have been on the GF diet since my diagnosis last August. I was misdiagnosed for almost 20 years with multiple stomach problems. I'm 38 and the only way these so called GI experts found out that I had Celiac disease was because I broke 4 bones in just over a year. I had the bone density test done and it showed that I had bones of an 80 year old. I am a very tall and very thin Irish redhead, and was a ballet dancer for many years of my life. I found out that these factors were against me once I learned more about Celiac disease. Since then, I take 1800 mg. of calcium a day that's not including all the peanut butter and chocolate ice cream I can eat in a week. Anyway, my recent bone scan showed no sign of improvement being on a strict GF diet. My doctor said drugs like Fosamax would not work for me so I started the drug Forteo on Jan 12th. Unfortunately, this drug is not an easy pill to take. For it is an injection I have to give myself every 24 hours for the next 2 years. Primary site, in your abdomen. It's not pretty, my stomach is covered in bruises. So how this drug works differently from Fosamax that it actually creates new bone. It does have it side effects like any other drug though; I get horrible nausea and dizziness. To a point where you don't even want to get in a car. Just curious to see if any of you with bone troubles are on Forteo. I just dread the hours of 6 to 9 p.m. when it's supposed to given. I usually wait until 8:59 when my husband is hanging over me to make sure I do it. I'm just so tired of living in a cast. Thanks for listening to me vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 AH , My heart goes out to you. Your story is so sad! I wish you the very best and will pray for your health! Is it true, then that Irish are more prone to Celiacs? My side of the family is Irish--just wondering. TIA, & Mike Osteopenia Hi everyone, I've been reading the posts today on osteopenia and I had to write in. I too have osteopenia and have been on the GF diet since my diagnosis last August. I was misdiagnosed for almost 20 years with multiple stomach problems. I'm 38 and the only way these so called GI experts found out that I had Celiac disease was because I broke 4 bones in just over a year. I had the bone density test done and it showed that I had bones of an 80 year old. I am a very tall and very thin Irish redhead, and was a ballet dancer for many years of my life. I found out that these factors were against me once I learned more about Celiac disease. Since then, I take 1800 mg. of calcium a day that's not including all the peanut butter and chocolate ice cream I can eat in a week. Anyway, my recent bone scan showed no sign of improvement being on a strict GF diet. My doctor said drugs like Fosamax would not work for me so I started the drug Forteo on Jan 12th. Unfortunately, this drug is not an easy pill to take. For it is an injection I have to give myself every 24 hours for the next 2 years. Primary site, in your abdomen. It's not pretty, my stomach is covered in bruises. So how this drug works differently from Fosamax that it actually creates new bone. It does have it side effects like any other drug though; I get horrible nausea and dizziness. To a point where you don't even want to get in a car. Just curious to see if any of you with bone troubles are on Forteo. I just dread the hours of 6 to 9 p.m. when it's supposed to given. I usually wait until 8:59 when my husband is hanging over me to make sure I do it. I'm just so tired of living in a cast. Thanks for listening to me vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Thanks for your thoughts karen. Yes, studies show that 1 in 50 persons in Ireland have Celiac disease. Pretty amazing. - In SillyYaks , " & Mike " <Mikea@a...> wrote: > > AH , My heart goes out to you. Your story is so sad! I wish you > the very best and will pray for your health! Is it true, then that Irish > are more prone to Celiacs? My side of the family is Irish--just wondering. > > > > > TIA, > > & Mike > > > Osteopenia > > Hi everyone, > > I've been reading the posts today on osteopenia and I had to write in. > I too have osteopenia and have been on the GF diet since my diagnosis last > August. I was misdiagnosed for almost 20 years with multiple stomach > problems. I'm 38 and the only way these so called GI experts found out that > I had Celiac disease was because I broke 4 bones in just over a year. I had > the bone density test done and it showed that I had bones of an 80 year old. > I am a very tall and very thin Irish redhead, and was a ballet dancer for > many years of my life. I found out that these factors were against me once > I learned more about Celiac disease. Since then, I take 1800 mg. of calcium > a day that's not including all the peanut butter and chocolate ice cream I > can eat in a week. Anyway, my recent bone scan showed no sign of > improvement being on a strict GF diet. My doctor said drugs like Fosamax > would not work for me so I started the drug Forteo on Jan 12th. > Unfortunately, this drug is not an easy pill to take. For it is an injection > I have to give myself every 24 hours for the next 2 years. Primary site, in > your abdomen. It's not pretty, my stomach is covered in bruises. So how > this drug works differently from Fosamax that it actually creates new bone. > It does have it side effects like any other drug though; I get horrible > nausea and dizziness. To a point where you don't even want to get in a car. > Just curious to see if any of you with bone troubles are on Forteo. I just > dread the hours of 6 to 9 p.m. > when it's supposed to given. I usually wait until 8:59 when my husband is > hanging over me to make sure I do it. I'm just so tired of living in a cast. > Thanks for listening to me vent. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Thanks for your thoughts karen. Yes, studies show that 1 in 50 persons in Ireland have Celiac disease. Pretty amazing. - In SillyYaks , " & Mike " <Mikea@a...> wrote: > > AH , My heart goes out to you. Your story is so sad! I wish you > the very best and will pray for your health! Is it true, then that Irish > are more prone to Celiacs? My side of the family is Irish--just wondering. > > > > > TIA, > > & Mike > > > Osteopenia > > Hi everyone, > > I've been reading the posts today on osteopenia and I had to write in. > I too have osteopenia and have been on the GF diet since my diagnosis last > August. I was misdiagnosed for almost 20 years with multiple stomach > problems. I'm 38 and the only way these so called GI experts found out that > I had Celiac disease was because I broke 4 bones in just over a year. I had > the bone density test done and it showed that I had bones of an 80 year old. > I am a very tall and very thin Irish redhead, and was a ballet dancer for > many years of my life. I found out that these factors were against me once > I learned more about Celiac disease. Since then, I take 1800 mg. of calcium > a day that's not including all the peanut butter and chocolate ice cream I > can eat in a week. Anyway, my recent bone scan showed no sign of > improvement being on a strict GF diet. My doctor said drugs like Fosamax > would not work for me so I started the drug Forteo on Jan 12th. > Unfortunately, this drug is not an easy pill to take. For it is an injection > I have to give myself every 24 hours for the next 2 years. Primary site, in > your abdomen. It's not pretty, my stomach is covered in bruises. So how > this drug works differently from Fosamax that it actually creates new bone. > It does have it side effects like any other drug though; I get horrible > nausea and dizziness. To a point where you don't even want to get in a car. > Just curious to see if any of you with bone troubles are on Forteo. I just > dread the hours of 6 to 9 p.m. > when it's supposed to given. I usually wait until 8:59 when my husband is > hanging over me to make sure I do it. I'm just so tired of living in a cast. > Thanks for listening to me vent. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Thanks for your thoughts karen. Yes, studies show that 1 in 50 persons in Ireland have Celiac disease. Pretty amazing. - In SillyYaks , " & Mike " <Mikea@a...> wrote: > > AH , My heart goes out to you. Your story is so sad! I wish you > the very best and will pray for your health! Is it true, then that Irish > are more prone to Celiacs? My side of the family is Irish--just wondering. > > > > > TIA, > > & Mike > > > Osteopenia > > Hi everyone, > > I've been reading the posts today on osteopenia and I had to write in. > I too have osteopenia and have been on the GF diet since my diagnosis last > August. I was misdiagnosed for almost 20 years with multiple stomach > problems. I'm 38 and the only way these so called GI experts found out that > I had Celiac disease was because I broke 4 bones in just over a year. I had > the bone density test done and it showed that I had bones of an 80 year old. > I am a very tall and very thin Irish redhead, and was a ballet dancer for > many years of my life. I found out that these factors were against me once > I learned more about Celiac disease. Since then, I take 1800 mg. of calcium > a day that's not including all the peanut butter and chocolate ice cream I > can eat in a week. Anyway, my recent bone scan showed no sign of > improvement being on a strict GF diet. My doctor said drugs like Fosamax > would not work for me so I started the drug Forteo on Jan 12th. > Unfortunately, this drug is not an easy pill to take. For it is an injection > I have to give myself every 24 hours for the next 2 years. Primary site, in > your abdomen. It's not pretty, my stomach is covered in bruises. So how > this drug works differently from Fosamax that it actually creates new bone. > It does have it side effects like any other drug though; I get horrible > nausea and dizziness. To a point where you don't even want to get in a car. > Just curious to see if any of you with bone troubles are on Forteo. I just > dread the hours of 6 to 9 p.m. > when it's supposed to given. I usually wait until 8:59 when my husband is > hanging over me to make sure I do it. I'm just so tired of living in a cast. > Thanks for listening to me vent. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hold on! Don't get depressed. I might have something you and your doctor can discuss about trying. It's called Calcitriol. It's a pill. I was diagnosed with Celiac Disease about 2 1/2 years ago. I had my first bone scan about 1 month after I was diagnosed. I had and still have osteopenia. But I have improved a great deal! I have had a total of 3 bone scans and my bone density has improved 4% since the last bone scan in 2004. Woo Hoo! The scan technician (doctor) was amazed that it had improved that much in 1 year and asked what I was taking so that he could recommend it to his other patients. I still take it to this day and will continue until my endocrinologist says that it's time to quit. I hope this might help you too! Good luck! Becky > > Hi everyone, > > I've been reading the posts today on osteopenia and I had to write > in. > I too have osteopenia and have been on the GF diet since my > diagnosis last August. I was misdiagnosed for almost 20 years with > multiple stomach problems. I'm 38 and the only way these so called > GI experts found out that I had Celiac disease was because I broke 4 > bones in just over a year. I had the bone density test done and it > showed that I had bones of an 80 year old. I am a very tall and > very thin Irish redhead, and was a ballet dancer for many years of > my life. I found out that these factors were against me once I > learned more about Celiac disease. Since then, I take 1800 mg. of > calcium a day that's not including all the peanut butter and > chocolate ice cream I can eat in a week. Anyway, my recent bone > scan showed no sign of improvement being on a strict GF diet. My > doctor said drugs like Fosamax would not work for me so I started > the drug Forteo on Jan 12th. Unfortunately, this drug is not an > easy pill to take. For it is an injection I have to give myself > every 24 hours for the next 2 years. Primary site, in your > abdomen. It's not pretty, my stomach is covered in bruises. So how > this drug works differently from Fosamax that it actually creates > new bone. It does have it side effects like any other drug though; > I get horrible nausea and dizziness. To a point where you don't > even want to get in a car. Just curious to see if any of you with > bone troubles are on Forteo. I just dread the hours of 6 to 9 p.m. > when it's supposed to given. I usually wait until 8:59 when my > husband is hanging over me to make sure I do it. I'm just so tired > of living in a cast. Thanks for listening to me vent. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hold on! Don't get depressed. I might have something you and your doctor can discuss about trying. It's called Calcitriol. It's a pill. I was diagnosed with Celiac Disease about 2 1/2 years ago. I had my first bone scan about 1 month after I was diagnosed. I had and still have osteopenia. But I have improved a great deal! I have had a total of 3 bone scans and my bone density has improved 4% since the last bone scan in 2004. Woo Hoo! The scan technician (doctor) was amazed that it had improved that much in 1 year and asked what I was taking so that he could recommend it to his other patients. I still take it to this day and will continue until my endocrinologist says that it's time to quit. I hope this might help you too! Good luck! Becky > > Hi everyone, > > I've been reading the posts today on osteopenia and I had to write > in. > I too have osteopenia and have been on the GF diet since my > diagnosis last August. I was misdiagnosed for almost 20 years with > multiple stomach problems. I'm 38 and the only way these so called > GI experts found out that I had Celiac disease was because I broke 4 > bones in just over a year. I had the bone density test done and it > showed that I had bones of an 80 year old. I am a very tall and > very thin Irish redhead, and was a ballet dancer for many years of > my life. I found out that these factors were against me once I > learned more about Celiac disease. Since then, I take 1800 mg. of > calcium a day that's not including all the peanut butter and > chocolate ice cream I can eat in a week. Anyway, my recent bone > scan showed no sign of improvement being on a strict GF diet. My > doctor said drugs like Fosamax would not work for me so I started > the drug Forteo on Jan 12th. Unfortunately, this drug is not an > easy pill to take. For it is an injection I have to give myself > every 24 hours for the next 2 years. Primary site, in your > abdomen. It's not pretty, my stomach is covered in bruises. So how > this drug works differently from Fosamax that it actually creates > new bone. It does have it side effects like any other drug though; > I get horrible nausea and dizziness. To a point where you don't > even want to get in a car. Just curious to see if any of you with > bone troubles are on Forteo. I just dread the hours of 6 to 9 p.m. > when it's supposed to given. I usually wait until 8:59 when my > husband is hanging over me to make sure I do it. I'm just so tired > of living in a cast. Thanks for listening to me vent. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Just another short word. I was diagnosed at 29. I hope all of you will discuss this with your doctor. I still take 1750mg of calcium citrate (it's easier to digest) a day. I also take 2 prenatal vitamins a day as a multivitamin. Hope this helps! Becky > > > > Hi everyone, > > > > I've been reading the posts today on osteopenia and I had to write > > in. > > I too have osteopenia and have been on the GF diet since my > > diagnosis last August. I was misdiagnosed for almost 20 years > with > > multiple stomach problems. I'm 38 and the only way these so > called > > GI experts found out that I had Celiac disease was because I broke > 4 > > bones in just over a year. I had the bone density test done and it > > showed that I had bones of an 80 year old. I am a very tall and > > very thin Irish redhead, and was a ballet dancer for many years of > > my life. I found out that these factors were against me once I > > learned more about Celiac disease. Since then, I take 1800 mg. of > > calcium a day that's not including all the peanut butter and > > chocolate ice cream I can eat in a week. Anyway, my recent bone > > scan showed no sign of improvement being on a strict GF diet. My > > doctor said drugs like Fosamax would not work for me so I started > > the drug Forteo on Jan 12th. Unfortunately, this drug is not an > > easy pill to take. For it is an injection I have to give myself > > every 24 hours for the next 2 years. Primary site, in your > > abdomen. It's not pretty, my stomach is covered in bruises. So > how > > this drug works differently from Fosamax that it actually creates > > new bone. It does have it side effects like any other drug > though; > > I get horrible nausea and dizziness. To a point where you don't > > even want to get in a car. Just curious to see if any of you with > > bone troubles are on Forteo. I just dread the hours of 6 to 9 > p.m. > > when it's supposed to given. I usually wait until 8:59 when my > > husband is hanging over me to make sure I do it. I'm just so tired > > of living in a cast. Thanks for listening to me vent. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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