Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Art, Glad to hear your son is doing well. And, thanks for your kind words. Melonie > > > > > > " For those of you that have children with cd... did your child > have growth > > issues? That is Mattie's only symptom of cd that we know of.. his > poor > > growth. He is 6 1/2 and weighs 42 lbs and is 43 inches tall. > Little guy. " > > > > My 8 1/2 year old is also really small. He just weighs 48 pounds > and is 46 > > inches tall. He gained one inch on his trial G/F diet since > November. He > > also really has no symptoms of Celiac, but little sister is a > Celiac. He is > > allowed to cheat sometimes on his diet since he is asymptomatic, > however I > > am keeping an eye on his behavior since cheating. He started with > some > > garlic bread last night and an In & Out burger today. No > behavioral or > > physical symptoms in the least. We're not sure he is Celiac, but > since he > > grew and inch in just about 10 weeks, we're considering he might > be. He > > will be back to a complete GF diet starting tomorrow for several > more > > months. Then after 6 months they will draw some blood. Our GI said > it was no > > use poking him since he grew the inch--something he hardly ever > does! He's > > the size of an average 5 year old--that is tiny! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Art, Glad to hear your son is doing well. And, thanks for your kind words. Melonie > > > > > > " For those of you that have children with cd... did your child > have growth > > issues? That is Mattie's only symptom of cd that we know of.. his > poor > > growth. He is 6 1/2 and weighs 42 lbs and is 43 inches tall. > Little guy. " > > > > My 8 1/2 year old is also really small. He just weighs 48 pounds > and is 46 > > inches tall. He gained one inch on his trial G/F diet since > November. He > > also really has no symptoms of Celiac, but little sister is a > Celiac. He is > > allowed to cheat sometimes on his diet since he is asymptomatic, > however I > > am keeping an eye on his behavior since cheating. He started with > some > > garlic bread last night and an In & Out burger today. No > behavioral or > > physical symptoms in the least. We're not sure he is Celiac, but > since he > > grew and inch in just about 10 weeks, we're considering he might > be. He > > will be back to a complete GF diet starting tomorrow for several > more > > months. Then after 6 months they will draw some blood. Our GI said > it was no > > use poking him since he grew the inch--something he hardly ever > does! He's > > the size of an average 5 year old--that is tiny! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Sally - if Mattie has CD, he got the gentic predisposition from one or both of you. You (parents) may not have the disease, but at least one of you has a gene for it. I tired the "K" sandwhich bread the other day and my picky guy ate it. My nine year old stopped gaining weight and getting taller several years ago - during the short time he's been GF he's grown 3/4 inch, still no weight gain though. He just turned 9 and is 72 pounds and 54" tall - hard to get people to "hear" that your concerned about his growth - although his peds endocrinologist has been tracking this closely. If your little one doesn't show signs of growth soon - may want to check his growth hormone levels. Best of luck - Kerrisallyjd2001 wrote: Hi,This is Sally, mom to Mattie with cd diagnosed 3 weeks ago. Just wanted to say thanks to all who emailed and responded to my questions re: what foods to buy first. And... great suggestion from whomever wrote and said try not to replace his favorites with faux gluten free. We are trying so many new foods with him (Mattie has lots of sensory issues with food so I was so hesitant to do this) and so far so good. Still haven't found a good substitute for white bread but I haven't order the kinnikinick? bread yet or made my own, just tryed whole foods, and ener-g.My only mistake I think I have made so far was to order chinese friday night. We had them make his former favorite chicken lo mein without the noodles and the cook promised not to "cross contaminate" but I realized later that the sauce most likely had soy sauce in it and probably not GF. Oh well, live and learn. Mattie has never had any intestinal reaction to gluten that we know of so we will just be careful next time.I have a few questions of course. For those of you that have children with cd... did your child have growth issues? That is Mattie's only symptom of cd that we know of.. his poor growth. He is 6 1/2 and weighs 42 lbs and is 43 inches tall. Little guy. My husband and I come from very tall families both of us have brothers that are 6'6" so we have been trying to figure this out for awhile now. Anyway... I was wondering how long did it take before you saw a big change in growth? I am hoping to see some changes in 6 months or is that unrealistic?Also, how common is it that cd is genetic and is passed from the parent to child? My husband and I have not been "tested" yet.. our dr's want us to see them before ordering the bloodwork, trying to schedule that. We have 3 kids... our 4 1/2 year old was tested and was negative, our 9 month old won't be tested until she is at least 2. TMI, right??? Anyway... things are going well, just feel like I have to plan my meals so much more in advance but can honestly say he is handling it as best as we could expect. Thanks again for all the great ideas and advice,Sally Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Sally - me again. Has he had his thryoid levels checked? Poor growth is kids can be associated with thyroid disease - which is closely associated with CD. Kerrisallyjd2001 wrote: Hi,This is Sally, mom to Mattie with cd diagnosed 3 weeks ago. Just wanted to say thanks to all who emailed and responded to my questions re: what foods to buy first. And... great suggestion from whomever wrote and said try not to replace his favorites with faux gluten free. We are trying so many new foods with him (Mattie has lots of sensory issues with food so I was so hesitant to do this) and so far so good. Still haven't found a good substitute for white bread but I haven't order the kinnikinick? bread yet or made my own, just tryed whole foods, and ener-g.My only mistake I think I have made so far was to order chinese friday night. We had them make his former favorite chicken lo mein without the noodles and the cook promised not to "cross contaminate" but I realized later that the sauce most likely had soy sauce in it and probably not GF. Oh well, live and learn. Mattie has never had any intestinal reaction to gluten that we know of so we will just be careful next time.I have a few questions of course. For those of you that have children with cd... did your child have growth issues? That is Mattie's only symptom of cd that we know of.. his poor growth. He is 6 1/2 and weighs 42 lbs and is 43 inches tall. Little guy. My husband and I come from very tall families both of us have brothers that are 6'6" so we have been trying to figure this out for awhile now. Anyway... I was wondering how long did it take before you saw a big change in growth? I am hoping to see some changes in 6 months or is that unrealistic?Also, how common is it that cd is genetic and is passed from the parent to child? My husband and I have not been "tested" yet.. our dr's want us to see them before ordering the bloodwork, trying to schedule that. We have 3 kids... our 4 1/2 year old was tested and was negative, our 9 month old won't be tested until she is at least 2. TMI, right??? Anyway... things are going well, just feel like I have to plan my meals so much more in advance but can honestly say he is handling it as best as we could expect. Thanks again for all the great ideas and advice,Sally Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
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