Diagnosis question

[Guest guest]

Hello, I am so glad to find this site and have been reading steadily

as often as possible. My name is Marie, and I have an almost 18

month old son, , who is " wheat/guten sensitive " . Right now,

I'm feeling a bit overwhelmed. I understand that the only real

diagnosis includes all the testing by the GI, but if someone is

already GF, is it necessary? I'm a bit confused, so any advice will

be welcomed.

3 years ago I was put on a GFD and I felt so much better, and I try

very hard to avoid it, though I admit, I'm not always great about

it. I asked my doctor about actually getting tested, and he

indicated that it wasn't necessary to test me for celiac sprue and

that I should just stay GF.

With my youngest, I'm almost afraid of pursuing further because I

understand he would have to be on a diet with gluten for a while for

the tests, but it causes him such visible pain that I don't want to

put him through that.

I guess what my question is, if the only diagnosis comes from the

elimination diet, will it be taken seriously (schools, doctors,

etc.)? or will it just be blown off as overprotective parents?

Thanks, and any advice on this is appreciated.

Marie

' mom

[Guest guest]

A "real" diagnosis is important when it comes to kids, however already being GF presents some true problems. If your son is already GF without a doctors diagnosis, getting tested now is going to "say" he's not Celiac. That's the beauty of being GF, it heals you! But it sure makes it tough to diagnose if you weren't tested pre-GF. Adding to that is your sons age. 18 months is that "age" where diagnosis is not always accurate, even when eating a gluten-filled diet. Mainly bc at that age, they've had such little (relatively speaking) exposure to gluten that there may not be enough antibodies to "show" in a test. I know some people say you either are or aren't, but I really do believe that people have varying degrees of tolerance to gluten in their bodies. Which is why it seems like no two people react the same, if at all.

If your son is going to be in school that receives federal funding (publics, some privates, etc...) then having an "official" diagnosis will be important to make sure he is properly accomodated. Without the official documentation, they will not have to accomodate dietery "needs," etc... so it is very important. Someone here knows the small amount you can give your son to do sufficient "damage" while not having a total gluten-feast every day. It does suck, but the test is important. However, before you go through all this make sure you find a doctor who will take you and this seriously. You do not want to put your child through this, only to find out his doctor doesn't "believe" in Celiac. Or doesn't understand it, and therefore wouldn't order the right tests.

Bridget

From: SillyYaks [mailto:SillyYaks ] On Behalf Of marmingerSent: Monday, January 23, 2006 2:38 PMTo: SillyYaks Subject: Diagnosis question

Hello, I am so glad to find this site and have been reading steadily as often as possible. My name is Marie, and I have an almost 18 month old son, , who is "wheat/guten sensitive". Right now, I'm feeling a bit overwhelmed. I understand that the only real diagnosis includes all the testing by the GI, but if someone is already GF, is it necessary? I'm a bit confused, so any advice will be welcomed.3 years ago I was put on a GFD and I felt so much better, and I try very hard to avoid it, though I admit, I'm not always great about it. I asked my doctor about actually getting tested, and he indicated that it wasn't necessary to test me for celiac sprue and that I should just stay GF.With my youngest, I'm almost afraid of pursuing further because I understand he would have to be on a diet with gluten for a while for the tests, but it causes him such visible pain that I don't want to put him through that.I guess what my question is, if the only diagnosis comes from the elimination diet, will it be taken seriously (schools, doctors, etc.)? or will it just be blown off as overprotective parents?Thanks, and any advice on this is appreciated.Marie' mom

[Guest guest]

Thank you for your response. It makes plenty of sense. The

elimination diet had been initiated by one of my son's doctors, so I

am very lucky in that, at least they already know why he is GF. I

will be taking him in again to his doctors in the next couple weeks

so it is good to have a little advice from other parents before going

in.

>

> A " real " diagnosis is important when it comes to kids, however

already

> being GF presents some true problems. If your son is already GF

without

> a doctors diagnosis, getting tested now is going to " say " he's not

> Celiac. That's the beauty of being GF, it heals you! But it sure

makes

> it tough to diagnose if you weren't tested pre-GF. Adding to that is

> your sons age. 18 months is that " age " where diagnosis is not always

> accurate, even when eating a gluten-filled diet. Mainly bc at that

age,

> they've had such little (relatively speaking) exposure to gluten

that

> there may not be enough antibodies to " show " in a test. I know some

> people say you either are or aren't, but I really do believe that

people

> have varying degrees of tolerance to gluten in their bodies. Which

is

> why it seems like no two people react the same, if at all.

>

> If your son is going to be in school that receives federal funding

> (publics, some privates, etc...) then having an " official " diagnosis

> will be important to make sure he is properly accomodated. Without

the

> official documentation, they will not have to accomodate dietery

> " needs, " etc... so it is very important. Someone here knows the

small

> amount you can give your son to do sufficient " damage " while not

having

> a total gluten-feast every day. It does suck, but the test is

important.

> However, before you go through all this make sure you find a doctor

who

> will take you and this seriously. You do not want to put your child

> through this, only to find out his doctor doesn't " believe " in

Celiac.

> Or doesn't understand it, and therefore wouldn't order the right

tests.

>

> Bridget

>

>

> ________________________________

>

> From: SillyYaks [mailto:SillyYaks ]

On

> Behalf Of marminger

> Sent: Monday, January 23, 2006 2:38 PM

> To: SillyYaks

> Subject: Diagnosis question

>

>

> Hello, I am so glad to find this site and have been reading

steadily

> as often as possible. My name is Marie, and I have an almost 18

> month old son, , who is " wheat/guten sensitive " . Right now,

> I'm feeling a bit overwhelmed. I understand that the only real

> diagnosis includes all the testing by the GI, but if someone is

> already GF, is it necessary? I'm a bit confused, so any advice

will

> be welcomed.

>

> 3 years ago I was put on a GFD and I felt so much better, and I try

> very hard to avoid it, though I admit, I'm not always great about

> it. I asked my doctor about actually getting tested, and he

> indicated that it wasn't necessary to test me for celiac sprue and

> that I should just stay GF.

>

> With my youngest, I'm almost afraid of pursuing further because I

> understand he would have to be on a diet with gluten for a while

for

> the tests, but it causes him such visible pain that I don't want to

> put him through that.

>

> I guess what my question is, if the only diagnosis comes from the

> elimination diet, will it be taken seriously (schools, doctors,

> etc.)? or will it just be blown off as overprotective parents?

>

> Thanks, and any advice on this is appreciated.

> Marie

> ' mom

>

>

>

>

>

>

>

[Guest guest]

my son, who just turned 4, was 2.5 when diagnosed so I know how stressful this is!

From: SillyYaks [mailto:SillyYaks ] On Behalf Of marmingerSent: Monday, January 23, 2006 3:46 PMTo: SillyYaks Subject: Re: Diagnosis question

Thank you for your response. It makes plenty of sense. The elimination diet had been initiated by one of my son's doctors, so I am very lucky in that, at least they already know why he is GF. I will be taking him in again to his doctors in the next couple weeks so it is good to have a little advice from other parents before going in.>> A "real" diagnosis is important when it comes to kids, however already> being GF presents some true problems. If your son is already GF without> a doctors diagnosis, getting tested now is going to "say" he's not> Celiac. That's the beauty of being GF, it heals you! But it sure makes> it tough to diagnose if you weren't tested pre-GF. Adding to that is> your sons age. 18 months is that "age" where diagnosis is not always> accurate, even when eating a gluten-filled diet. Mainly bc at that age,> they've had such little (relatively speaking) exposure to gluten that> there may not be enough antibodies to "show" in a test. I know some> people say you either are or aren't, but I really do believe that people> have varying degrees of tolerance to gluten in their bodies. Which is> why it seems like no two people react the same, if at all. > > If your son is going to be in school that receives federal funding> (publics, some privates, etc...) then having an "official" diagnosis> will be important to make sure he is properly accomodated. Without the> official documentation, they will not have to accomodate dietery> "needs," etc... so it is very important. Someone here knows the small> amount you can give your son to do sufficient "damage" while not having> a total gluten-feast every day. It does suck, but the test is important.> However, before you go through all this make sure you find a doctor who> will take you and this seriously. You do not want to put your child> through this, only to find out his doctor doesn't "believe" in Celiac.> Or doesn't understand it, and therefore wouldn't order the right tests.> > Bridget> > > ________________________________> > From: SillyYaks [mailto:SillyYaks ] On> Behalf Of marminger> Sent: Monday, January 23, 2006 2:38 PM> To: SillyYaks > Subject: Diagnosis question> > > Hello, I am so glad to find this site and have been reading steadily > as often as possible. My name is Marie, and I have an almost 18 > month old son, , who is "wheat/guten sensitive". Right now, > I'm feeling a bit overwhelmed. I understand that the only real > diagnosis includes all the testing by the GI, but if someone is > already GF, is it necessary? I'm a bit confused, so any advice will > be welcomed.> > 3 years ago I was put on a GFD and I felt so much better, and I try > very hard to avoid it, though I admit, I'm not always great about > it. I asked my doctor about actually getting tested, and he > indicated that it wasn't necessary to test me for celiac sprue and > that I should just stay GF.> > With my youngest, I'm almost afraid of pursuing further because I > understand he would have to be on a diet with gluten for a while for > the tests, but it causes him such visible pain that I don't want to > put him through that.> > I guess what my question is, if the only diagnosis comes from the > elimination diet, will it be taken seriously (schools, doctors, > etc.)? or will it just be blown off as overprotective parents?> > Thanks, and any advice on this is appreciated.> Marie> ' mom> > > > > > >

[Guest guest]

Having taken care of teenage kids with chronic health issues, I couldn't agree more that you need an official Dx. There is a whole "psychology" involved with chronic diseases - and teeage compliance without an official Dx and /or strong memories of what it felt like to eat gluten is unlikly."Calacci, Bridget" wrote: A "real" diagnosis is important when it comes to kids, however already being GF presents some true problems. If your son is already GF without a doctors diagnosis, getting tested now is going to "say" he's not Celiac. That's the beauty of being GF, it heals you! But it sure makes it tough to diagnose if you weren't tested pre-GF. Adding to that

is your sons age. 18 months is that "age" where diagnosis is not always accurate, even when eating a gluten-filled diet. Mainly bc at that age, they've had such little (relatively speaking) exposure to gluten that there may not be enough antibodies to "show" in a test. I know some people say you either are or aren't, but I really do believe that people have varying degrees of tolerance to gluten in their bodies. Which is why it seems like no two people react the same, if at all. If your son is going to be in school that receives federal funding (publics, some privates, etc...) then having an "official" diagnosis will be important to make sure he is properly accomodated. Without the official documentation, they will not have to accomodate dietery "needs," etc... so it is very important.

Someone here knows the small amount you can give your son to do sufficient "damage" while not having a total gluten-feast every day. It does suck, but the test is important. However, before you go through all this make sure you find a doctor who will take you and this seriously. You do not want to put your child through this, only to find out his doctor doesn't "believe" in Celiac. Or doesn't understand it, and therefore wouldn't order the right tests. Bridget From: SillyYaks [mailto:SillyYaks ] On Behalf Of marmingerSent:

Monday, January 23, 2006 2:38 PMTo: SillyYaks Subject: Diagnosis question Hello, I am so glad to find this site and have been reading steadily as often as possible. My name is Marie, and I have an almost 18 month old son, , who is "wheat/guten sensitive". Right now, I'm feeling a bit overwhelmed. I understand that the only real diagnosis includes all the testing by the GI, but if someone is already GF, is it necessary? I'm a bit confused, so any advice will be welcomed.3 years ago I was put on a GFD and I felt so much better, and I try very hard to avoid it, though I admit, I'm not always great about it. I asked my doctor about actually getting tested, and he indicated that it wasn't necessary to test me for celiac sprue and that I should just stay GF.With my youngest, I'm almost afraid of pursuing further

because I understand he would have to be on a diet with gluten for a while for the tests, but it causes him such visible pain that I don't want to put him through that.I guess what my question is, if the only diagnosis comes from the elimination diet, will it be taken seriously (schools, doctors, etc.)? or will it just be blown off as overprotective parents?Thanks, and any advice on this is appreciated.Marie' mom

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

Having taken care of teenage kids with chronic health issues, I couldn't agree more that you need an official Dx. There is a whole "psychology" involved with chronic diseases - and teeage compliance without an official Dx and /or strong memories of what it felt like to eat gluten is unlikly."Calacci, Bridget" wrote: A "real" diagnosis is important when it comes to kids, however already being GF presents some true problems. If your son is already GF without a doctors diagnosis, getting tested now is going to "say" he's not Celiac. That's the beauty of being GF, it heals you! But it sure makes it tough to diagnose if you weren't tested pre-GF. Adding to that

is your sons age. 18 months is that "age" where diagnosis is not always accurate, even when eating a gluten-filled diet. Mainly bc at that age, they've had such little (relatively speaking) exposure to gluten that there may not be enough antibodies to "show" in a test. I know some people say you either are or aren't, but I really do believe that people have varying degrees of tolerance to gluten in their bodies. Which is why it seems like no two people react the same, if at all. If your son is going to be in school that receives federal funding (publics, some privates, etc...) then having an "official" diagnosis will be important to make sure he is properly accomodated. Without the official documentation, they will not have to accomodate dietery "needs," etc... so it is very important.

Someone here knows the small amount you can give your son to do sufficient "damage" while not having a total gluten-feast every day. It does suck, but the test is important. However, before you go through all this make sure you find a doctor who will take you and this seriously. You do not want to put your child through this, only to find out his doctor doesn't "believe" in Celiac. Or doesn't understand it, and therefore wouldn't order the right tests. Bridget From: SillyYaks [mailto:SillyYaks ] On Behalf Of marmingerSent:

Monday, January 23, 2006 2:38 PMTo: SillyYaks Subject: Diagnosis question Hello, I am so glad to find this site and have been reading steadily as often as possible. My name is Marie, and I have an almost 18 month old son, , who is "wheat/guten sensitive". Right now, I'm feeling a bit overwhelmed. I understand that the only real diagnosis includes all the testing by the GI, but if someone is already GF, is it necessary? I'm a bit confused, so any advice will be welcomed.3 years ago I was put on a GFD and I felt so much better, and I try very hard to avoid it, though I admit, I'm not always great about it. I asked my doctor about actually getting tested, and he indicated that it wasn't necessary to test me for celiac sprue and that I should just stay GF.With my youngest, I'm almost afraid of pursuing further

because I understand he would have to be on a diet with gluten for a while for the tests, but it causes him such visible pain that I don't want to put him through that.I guess what my question is, if the only diagnosis comes from the elimination diet, will it be taken seriously (schools, doctors, etc.)? or will it just be blown off as overprotective parents?Thanks, and any advice on this is appreciated.Marie' mom

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

Having taken care of teenage kids with chronic health issues, I couldn't agree more that you need an official Dx. There is a whole "psychology" involved with chronic diseases - and teeage compliance without an official Dx and /or strong memories of what it felt like to eat gluten is unlikly."Calacci, Bridget" wrote: A "real" diagnosis is important when it comes to kids, however already being GF presents some true problems. If your son is already GF without a doctors diagnosis, getting tested now is going to "say" he's not Celiac. That's the beauty of being GF, it heals you! But it sure makes it tough to diagnose if you weren't tested pre-GF. Adding to that

is your sons age. 18 months is that "age" where diagnosis is not always accurate, even when eating a gluten-filled diet. Mainly bc at that age, they've had such little (relatively speaking) exposure to gluten that there may not be enough antibodies to "show" in a test. I know some people say you either are or aren't, but I really do believe that people have varying degrees of tolerance to gluten in their bodies. Which is why it seems like no two people react the same, if at all. If your son is going to be in school that receives federal funding (publics, some privates, etc...) then having an "official" diagnosis will be important to make sure he is properly accomodated. Without the official documentation, they will not have to accomodate dietery "needs," etc... so it is very important.

Someone here knows the small amount you can give your son to do sufficient "damage" while not having a total gluten-feast every day. It does suck, but the test is important. However, before you go through all this make sure you find a doctor who will take you and this seriously. You do not want to put your child through this, only to find out his doctor doesn't "believe" in Celiac. Or doesn't understand it, and therefore wouldn't order the right tests. Bridget From: SillyYaks [mailto:SillyYaks ] On Behalf Of marmingerSent:

Monday, January 23, 2006 2:38 PMTo: SillyYaks Subject: Diagnosis question Hello, I am so glad to find this site and have been reading steadily as often as possible. My name is Marie, and I have an almost 18 month old son, , who is "wheat/guten sensitive". Right now, I'm feeling a bit overwhelmed. I understand that the only real diagnosis includes all the testing by the GI, but if someone is already GF, is it necessary? I'm a bit confused, so any advice will be welcomed.3 years ago I was put on a GFD and I felt so much better, and I try very hard to avoid it, though I admit, I'm not always great about it. I asked my doctor about actually getting tested, and he indicated that it wasn't necessary to test me for celiac sprue and that I should just stay GF.With my youngest, I'm almost afraid of pursuing further

because I understand he would have to be on a diet with gluten for a while for the tests, but it causes him such visible pain that I don't want to put him through that.I guess what my question is, if the only diagnosis comes from the elimination diet, will it be taken seriously (schools, doctors, etc.)? or will it just be blown off as overprotective parents?Thanks, and any advice on this is appreciated.Marie' mom

Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever.

[Guest guest]

We are waiting to do the biopsy. Our pediatrician is fine with that,

she is the one that suggested CD after reviewing charts from 3 other

doctors. She also has another CD patient who is not doing a biopsy,

the father of that child has CD. So, I've got someone on my side who

will look at the results of the GF diet rather than looking for that

'gold standard'. The Pedi GI is not so fine with waiting, but that is

just tough.

My little boy is 3 1/2 (well almost 4 now). He has had intestinal

issues since birth. It was obvious then he was in pain but we didn't

know why and now I have proof enough for me. And I cried my eyes out

for days realizing how much pain our little boy had been in.

Since we realized a long time ago that certain foods brought about

symptoms of exposive, mucousy diarrhea, our son has been on a very

low gluten diet all of his life. He naturally choose not to eat

breads, cookies, cakes, donuts, pasta, etc. And we certainly couldn't

force him to eat them. He did like those Ritz Crackers but it was

obvious after a while that they were causing extreme reactions when

eating more than say 2. On occassion he would take a bit or two from

a PB & J, but he was probably desprately hungry. Simply put he would

eat the veggies, fruits and meat and leave the rest. He is small for

his age compared to his peers in Preschool. He just started to wear

size 3T at age 3 1/2 mostly b/c I put the 2Ts on his little sister who

is 23 months younger.

The sight of the two of them in the bath tub was very disturbing. One

ribs, boney arms and legs, gaunt looking and the other plump, chubby,

round with thighs!!! And the doctors are telling me she is small!!!

So, as for test results -- First off only the TTG was run in the first

round of test. I had requested the entire panel, but something in the

line of communication between the doctor and the lab failed and I

didn't know it until I had already put him on a GF diet. The TTG was

normal -- duh, my child does not eat a lot of gluten.

The second round was the entire panel done at 60days GF. Only the IGG

came back positive and DQ2. Additionally, all symptoms were gone on

the GF diet. He is gaining weight and height -- FINALLY. He might

actually need size 4 before winters end at this rate.

I'm not worried about school. I'm pretty sure I can get the Ped to

write something useful and 1X is all I need.

As for biospy, if we do it, we want to wait until he is old enough to

understand why he needs to eat gluten after we have worked so hard in

educating him not to eat it. He ask if everything 'gots wheats?'

before he eats it. Additionally, at his age now, we fear he would

simply stop eating again. He is not able to distinguish hungry pain

from true stomach pain, I don't know if he ever will but I simply can

not put him on gluten until he is able to tell me more about how he feels.

The Pedi GI wanted us to do it now, put him on a gluten diet and we

said no way. He can't be having diarrhea at preschool. Think about

what that does to a kids metal and emotional state??? We told him

maybe during the summer when we can have him at home and in diapers.

The Periactin causes him to wet himself, so we aren't doing that no

either. He seems to have difficulty in bowel control as well, so why

would I put him on gluten???

I'm hoping a better test comes out for those already GF. It seems

really stupid to put a thriving child on a diet that causes muscle

wasting, cancer, type I diabetes, etc to see if they have a disease.

And then what if they don't biopsy the right section of small

intestine and it comes back fine where the rest is not? It just is

not a perfected method and yet it's all they've got. This is

particularly troublesome for small children since the damage is not

like that of an adult having eaten gluten for 40+ years. I think the

best chance for seeing damage in my son was when he was a year old --

still nursing, getting my high gluten diet effects, plus some cracker

products. And now, it's healed, so why cause damage just to prove

something on a test???

That being said, if our oldest test positive for CD through blood

test, we will go forward with the biospy before going GF. He is not

in pain, does not have behavior issues and is older. And loves gluten

laden products. Even though waiting from test results to biospy time

will take every grain of my existance to not put him on a GF diet

immediately (it is taking at least that much now not to do it, he is

so thin, sooooo thin less than 5th% now age 7).

If my child liked gluten products it would be easier to say okay we'll

do a gluten challenge with a biospy. If he didn't suffer so with

diarrhea from even the tiniest amount of gluten, then again sure. If

his behavior were no so angry and uncontrollable on gluten, then okay

for a little bit it would be okay. We believe the anger was a result

of constitant pain. But that isn't the case with my little guy. It

is so much better not to have him hitting his little sister and me.

It is so much better no to have him soiling his underpants every hour.

Life is just so much better GF for him.

Rejoyce

VA

[Guest guest]

We are waiting to do the biopsy. Our pediatrician is fine with that,

she is the one that suggested CD after reviewing charts from 3 other

doctors. She also has another CD patient who is not doing a biopsy,

the father of that child has CD. So, I've got someone on my side who

will look at the results of the GF diet rather than looking for that

'gold standard'. The Pedi GI is not so fine with waiting, but that is

just tough.

My little boy is 3 1/2 (well almost 4 now). He has had intestinal

issues since birth. It was obvious then he was in pain but we didn't

know why and now I have proof enough for me. And I cried my eyes out

for days realizing how much pain our little boy had been in.

Since we realized a long time ago that certain foods brought about

symptoms of exposive, mucousy diarrhea, our son has been on a very

low gluten diet all of his life. He naturally choose not to eat

breads, cookies, cakes, donuts, pasta, etc. And we certainly couldn't

force him to eat them. He did like those Ritz Crackers but it was

obvious after a while that they were causing extreme reactions when

eating more than say 2. On occassion he would take a bit or two from

a PB & J, but he was probably desprately hungry. Simply put he would

eat the veggies, fruits and meat and leave the rest. He is small for

his age compared to his peers in Preschool. He just started to wear

size 3T at age 3 1/2 mostly b/c I put the 2Ts on his little sister who

is 23 months younger.

The sight of the two of them in the bath tub was very disturbing. One

ribs, boney arms and legs, gaunt looking and the other plump, chubby,

round with thighs!!! And the doctors are telling me she is small!!!

So, as for test results -- First off only the TTG was run in the first

round of test. I had requested the entire panel, but something in the

line of communication between the doctor and the lab failed and I

didn't know it until I had already put him on a GF diet. The TTG was

normal -- duh, my child does not eat a lot of gluten.

The second round was the entire panel done at 60days GF. Only the IGG

came back positive and DQ2. Additionally, all symptoms were gone on

the GF diet. He is gaining weight and height -- FINALLY. He might

actually need size 4 before winters end at this rate.

I'm not worried about school. I'm pretty sure I can get the Ped to

write something useful and 1X is all I need.

As for biospy, if we do it, we want to wait until he is old enough to

understand why he needs to eat gluten after we have worked so hard in

educating him not to eat it. He ask if everything 'gots wheats?'

before he eats it. Additionally, at his age now, we fear he would

simply stop eating again. He is not able to distinguish hungry pain

from true stomach pain, I don't know if he ever will but I simply can

not put him on gluten until he is able to tell me more about how he feels.

The Pedi GI wanted us to do it now, put him on a gluten diet and we

said no way. He can't be having diarrhea at preschool. Think about

what that does to a kids metal and emotional state??? We told him

maybe during the summer when we can have him at home and in diapers.

The Periactin causes him to wet himself, so we aren't doing that no

either. He seems to have difficulty in bowel control as well, so why

would I put him on gluten???

I'm hoping a better test comes out for those already GF. It seems

really stupid to put a thriving child on a diet that causes muscle

wasting, cancer, type I diabetes, etc to see if they have a disease.

And then what if they don't biopsy the right section of small

intestine and it comes back fine where the rest is not? It just is

not a perfected method and yet it's all they've got. This is

particularly troublesome for small children since the damage is not

like that of an adult having eaten gluten for 40+ years. I think the

best chance for seeing damage in my son was when he was a year old --

still nursing, getting my high gluten diet effects, plus some cracker

products. And now, it's healed, so why cause damage just to prove

something on a test???

That being said, if our oldest test positive for CD through blood

test, we will go forward with the biospy before going GF. He is not

in pain, does not have behavior issues and is older. And loves gluten

laden products. Even though waiting from test results to biospy time

will take every grain of my existance to not put him on a GF diet

immediately (it is taking at least that much now not to do it, he is

so thin, sooooo thin less than 5th% now age 7).

If my child liked gluten products it would be easier to say okay we'll

do a gluten challenge with a biospy. If he didn't suffer so with

diarrhea from even the tiniest amount of gluten, then again sure. If

his behavior were no so angry and uncontrollable on gluten, then okay

for a little bit it would be okay. We believe the anger was a result

of constitant pain. But that isn't the case with my little guy. It

is so much better not to have him hitting his little sister and me.

It is so much better no to have him soiling his underpants every hour.

Life is just so much better GF for him.

Rejoyce

VA

[Guest guest]

We are waiting to do the biopsy. Our pediatrician is fine with that,

she is the one that suggested CD after reviewing charts from 3 other

doctors. She also has another CD patient who is not doing a biopsy,

the father of that child has CD. So, I've got someone on my side who

will look at the results of the GF diet rather than looking for that

'gold standard'. The Pedi GI is not so fine with waiting, but that is

just tough.

My little boy is 3 1/2 (well almost 4 now). He has had intestinal

issues since birth. It was obvious then he was in pain but we didn't

know why and now I have proof enough for me. And I cried my eyes out

for days realizing how much pain our little boy had been in.

Since we realized a long time ago that certain foods brought about

symptoms of exposive, mucousy diarrhea, our son has been on a very

low gluten diet all of his life. He naturally choose not to eat

breads, cookies, cakes, donuts, pasta, etc. And we certainly couldn't

force him to eat them. He did like those Ritz Crackers but it was

obvious after a while that they were causing extreme reactions when

eating more than say 2. On occassion he would take a bit or two from

a PB & J, but he was probably desprately hungry. Simply put he would

eat the veggies, fruits and meat and leave the rest. He is small for

his age compared to his peers in Preschool. He just started to wear

size 3T at age 3 1/2 mostly b/c I put the 2Ts on his little sister who

is 23 months younger.

The sight of the two of them in the bath tub was very disturbing. One

ribs, boney arms and legs, gaunt looking and the other plump, chubby,

round with thighs!!! And the doctors are telling me she is small!!!

So, as for test results -- First off only the TTG was run in the first

round of test. I had requested the entire panel, but something in the

line of communication between the doctor and the lab failed and I

didn't know it until I had already put him on a GF diet. The TTG was

normal -- duh, my child does not eat a lot of gluten.

The second round was the entire panel done at 60days GF. Only the IGG

came back positive and DQ2. Additionally, all symptoms were gone on

the GF diet. He is gaining weight and height -- FINALLY. He might

actually need size 4 before winters end at this rate.

I'm not worried about school. I'm pretty sure I can get the Ped to

write something useful and 1X is all I need.

As for biospy, if we do it, we want to wait until he is old enough to

understand why he needs to eat gluten after we have worked so hard in

educating him not to eat it. He ask if everything 'gots wheats?'

before he eats it. Additionally, at his age now, we fear he would

simply stop eating again. He is not able to distinguish hungry pain

from true stomach pain, I don't know if he ever will but I simply can

not put him on gluten until he is able to tell me more about how he feels.

The Pedi GI wanted us to do it now, put him on a gluten diet and we

said no way. He can't be having diarrhea at preschool. Think about

what that does to a kids metal and emotional state??? We told him

maybe during the summer when we can have him at home and in diapers.

The Periactin causes him to wet himself, so we aren't doing that no

either. He seems to have difficulty in bowel control as well, so why

would I put him on gluten???

I'm hoping a better test comes out for those already GF. It seems

really stupid to put a thriving child on a diet that causes muscle

wasting, cancer, type I diabetes, etc to see if they have a disease.

And then what if they don't biopsy the right section of small

intestine and it comes back fine where the rest is not? It just is

not a perfected method and yet it's all they've got. This is

particularly troublesome for small children since the damage is not

like that of an adult having eaten gluten for 40+ years. I think the

best chance for seeing damage in my son was when he was a year old --

still nursing, getting my high gluten diet effects, plus some cracker

products. And now, it's healed, so why cause damage just to prove

something on a test???

That being said, if our oldest test positive for CD through blood

test, we will go forward with the biospy before going GF. He is not

in pain, does not have behavior issues and is older. And loves gluten

laden products. Even though waiting from test results to biospy time

will take every grain of my existance to not put him on a GF diet

immediately (it is taking at least that much now not to do it, he is

so thin, sooooo thin less than 5th% now age 7).

If my child liked gluten products it would be easier to say okay we'll

do a gluten challenge with a biospy. If he didn't suffer so with

diarrhea from even the tiniest amount of gluten, then again sure. If

his behavior were no so angry and uncontrollable on gluten, then okay

for a little bit it would be okay. We believe the anger was a result

of constitant pain. But that isn't the case with my little guy. It

is so much better not to have him hitting his little sister and me.

It is so much better no to have him soiling his underpants every hour.

Life is just so much better GF for him.

Rejoyce

VA

[Guest guest]

Hi Marie,

Doctors differ in their opinion on whether the "gold standard" tests are necessary. My son and daughter are the only ones who had testing before gluten free. I was so sure that my son (2 years old at the time and had fallen off the growth chart) had it, that I started him on the gluten free diet before getting the test results back. The test results came back "non-conclusive", but his bowel movements went from 6-8 a day down to 1-2 a day. His height and weight increased dramatically. His swollen belly disappeared. His doctor said since he improved on a gluten free diet, he's got celiac.

My husband used to lie on the floor in pain before going gluten free. He had other symptoms that disappeared with going gluten free, only to reoccur with any accidental glutening, no matter how small. When we changed doctors for insurance reasons, the new internist was also a gastroenterologist. He agreed with the diagnosis, but was a bit disappointed that he didn't get to diagnose it. Other members of the family have similar stories.

No doctor has ever challenged us about the diagnosis, though I'm sure there are some that would. In my opinion, if the doctor believes the diagnosis is valid and is willing to give a note to that effect, a school would not be educated enough to inquire whether certain tests were done to verify. There are some people who claim that staying gluten free is easier with a diagnosis done through tests rather than elimination diet, but our symptoms are so severe with accidental glutening, that we have no desire to cheat. It does help that all but our adopted son are gluten free.

Diagnosis question

Hello, I am so glad to find this site and have been reading steadily as often as possible. My name is Marie, and I have an almost 18 month old son, , who is "wheat/guten sensitive". Right now, I'm feeling a bit overwhelmed. I understand that the only real diagnosis includes all the testing by the GI, but if someone is already GF, is it necessary? I'm a bit confused, so any advice will be welcomed.3 years ago I was put on a GFD and I felt so much better, and I try very hard to avoid it, though I admit, I'm not always great about it. I asked my doctor about actually getting tested, and he indicated that it wasn't necessary to test me for celiac sprue and that I should just stay GF.With my youngest, I'm almost afraid of pursuing further because I understand he would have to be on a diet with gluten for a while for the tests, but it causes him such visible pain that I don't want to put him through that.I guess what my question is, if the only diagnosis comes from the elimination diet, will it be taken seriously (schools, doctors, etc.)? or will it just be blown off as overprotective parents?Thanks, and any advice on this is appreciated.Marie' mom

[Guest guest]

Hi Marie,

Doctors differ in their opinion on whether the "gold standard" tests are necessary. My son and daughter are the only ones who had testing before gluten free. I was so sure that my son (2 years old at the time and had fallen off the growth chart) had it, that I started him on the gluten free diet before getting the test results back. The test results came back "non-conclusive", but his bowel movements went from 6-8 a day down to 1-2 a day. His height and weight increased dramatically. His swollen belly disappeared. His doctor said since he improved on a gluten free diet, he's got celiac.

My husband used to lie on the floor in pain before going gluten free. He had other symptoms that disappeared with going gluten free, only to reoccur with any accidental glutening, no matter how small. When we changed doctors for insurance reasons, the new internist was also a gastroenterologist. He agreed with the diagnosis, but was a bit disappointed that he didn't get to diagnose it. Other members of the family have similar stories.

No doctor has ever challenged us about the diagnosis, though I'm sure there are some that would. In my opinion, if the doctor believes the diagnosis is valid and is willing to give a note to that effect, a school would not be educated enough to inquire whether certain tests were done to verify. There are some people who claim that staying gluten free is easier with a diagnosis done through tests rather than elimination diet, but our symptoms are so severe with accidental glutening, that we have no desire to cheat. It does help that all but our adopted son are gluten free.

Diagnosis question

Hello, I am so glad to find this site and have been reading steadily as often as possible. My name is Marie, and I have an almost 18 month old son, , who is "wheat/guten sensitive". Right now, I'm feeling a bit overwhelmed. I understand that the only real diagnosis includes all the testing by the GI, but if someone is already GF, is it necessary? I'm a bit confused, so any advice will be welcomed.3 years ago I was put on a GFD and I felt so much better, and I try very hard to avoid it, though I admit, I'm not always great about it. I asked my doctor about actually getting tested, and he indicated that it wasn't necessary to test me for celiac sprue and that I should just stay GF.With my youngest, I'm almost afraid of pursuing further because I understand he would have to be on a diet with gluten for a while for the tests, but it causes him such visible pain that I don't want to put him through that.I guess what my question is, if the only diagnosis comes from the elimination diet, will it be taken seriously (schools, doctors, etc.)? or will it just be blown off as overprotective parents?Thanks, and any advice on this is appreciated.Marie' mom

[Guest guest]

Hi Marie,

Doctors differ in their opinion on whether the "gold standard" tests are necessary. My son and daughter are the only ones who had testing before gluten free. I was so sure that my son (2 years old at the time and had fallen off the growth chart) had it, that I started him on the gluten free diet before getting the test results back. The test results came back "non-conclusive", but his bowel movements went from 6-8 a day down to 1-2 a day. His height and weight increased dramatically. His swollen belly disappeared. His doctor said since he improved on a gluten free diet, he's got celiac.

My husband used to lie on the floor in pain before going gluten free. He had other symptoms that disappeared with going gluten free, only to reoccur with any accidental glutening, no matter how small. When we changed doctors for insurance reasons, the new internist was also a gastroenterologist. He agreed with the diagnosis, but was a bit disappointed that he didn't get to diagnose it. Other members of the family have similar stories.

No doctor has ever challenged us about the diagnosis, though I'm sure there are some that would. In my opinion, if the doctor believes the diagnosis is valid and is willing to give a note to that effect, a school would not be educated enough to inquire whether certain tests were done to verify. There are some people who claim that staying gluten free is easier with a diagnosis done through tests rather than elimination diet, but our symptoms are so severe with accidental glutening, that we have no desire to cheat. It does help that all but our adopted son are gluten free.

Diagnosis question

Hello, I am so glad to find this site and have been reading steadily as often as possible. My name is Marie, and I have an almost 18 month old son, , who is "wheat/guten sensitive". Right now, I'm feeling a bit overwhelmed. I understand that the only real diagnosis includes all the testing by the GI, but if someone is already GF, is it necessary? I'm a bit confused, so any advice will be welcomed.3 years ago I was put on a GFD and I felt so much better, and I try very hard to avoid it, though I admit, I'm not always great about it. I asked my doctor about actually getting tested, and he indicated that it wasn't necessary to test me for celiac sprue and that I should just stay GF.With my youngest, I'm almost afraid of pursuing further because I understand he would have to be on a diet with gluten for a while for the tests, but it causes him such visible pain that I don't want to put him through that.I guess what my question is, if the only diagnosis comes from the elimination diet, will it be taken seriously (schools, doctors, etc.)? or will it just be blown off as overprotective parents?Thanks, and any advice on this is appreciated.Marie' mom

[Guest guest]

I am so glad that I am not alone in all this. Question, with your

doctor saying that because your son improved on the diet that he was

celiac, how did that work out with the schools? Did the school

simply accept the doctor's note on the subject?

was so tiny to me. He was very skinny as a little guy with

this big belly and was always withering in pain. He also always

looked like he had two black eyes. Actually, the black eyes are how

we know if he got ahold of something he shouldn't have, they show up

usually in less than 15 minutes of him eating something. Within a

half hour he usually is very upset and in obvious pain.

Problem is, doesn't understand.

I don't understand though why the doctor would encourage him to be on

a GF diet and stay on it and not encourage the testing. If it

weren't for me looking on web sites and trying to educate myself I

wouldn't have even know about the testing that can be done or

question that I may need the tests done to prove what is going on.

Sorry, I'm still trying to learn and am still very uneducated on alot

of this. But, I am trying. Thanks again for all your help and

sharing your experiences.

>

> Hi Marie,

> Doctors differ in their opinion on whether the " gold standard "

tests are necessary. My son and daughter are the only ones who had

testing before gluten free. I was so sure that my son (2 years old at

the time and had fallen off the growth chart) had it, that I started

him on the gluten free diet before getting the test results back. The

test results came back " non-conclusive " , but his bowel movements went

from 6-8 a day down to 1-2 a day. His height and weight increased

dramatically. His swollen belly disappeared. His doctor said since he

improved on a gluten free diet, he's got celiac.

> My husband used to lie on the floor in pain before going gluten

free. He had other symptoms that disappeared with going gluten free,

only to reoccur with any accidental glutening, no matter how small.

When we changed doctors for insurance reasons, the new internist was

also a gastroenterologist. He agreed with the diagnosis, but was a

bit disappointed that he didn't get to diagnose it. Other members of

the family have similar stories.

> No doctor has ever challenged us about the diagnosis, though I'm

sure there are some that would. In my opinion, if the doctor believes

the diagnosis is valid and is willing to give a note to that effect,

a school would not be educated enough to inquire whether certain

tests were done to verify. There are some people who claim that

staying gluten free is easier with a diagnosis done through tests

rather than elimination diet, but our symptoms are so severe with

accidental glutening, that we have no desire to cheat. It does help

that all but our adopted son are gluten free.

>

> Diagnosis question

>

>

> Hello, I am so glad to find this site and have been reading

steadily

> as often as possible. My name is Marie, and I have an almost 18

> month old son, , who is " wheat/guten sensitive " . Right

now,

> I'm feeling a bit overwhelmed. I understand that the only real

> diagnosis includes all the testing by the GI, but if someone is

> already GF, is it necessary? I'm a bit confused, so any advice

will

> be welcomed.

>

> 3 years ago I was put on a GFD and I felt so much better, and I

try

> very hard to avoid it, though I admit, I'm not always great about

> it. I asked my doctor about actually getting tested, and he

> indicated that it wasn't necessary to test me for celiac sprue

and

> that I should just stay GF.

>

> With my youngest, I'm almost afraid of pursuing further because I

> understand he would have to be on a diet with gluten for a while

for

> the tests, but it causes him such visible pain that I don't want

to

> put him through that.

>

> I guess what my question is, if the only diagnosis comes from the

> elimination diet, will it be taken seriously (schools, doctors,

> etc.)? or will it just be blown off as overprotective parents?

>

> Thanks, and any advice on this is appreciated.

> Marie

> ' mom

>

>

>

>

>

>

[Guest guest]

I am so glad that I am not alone in all this. Question, with your

doctor saying that because your son improved on the diet that he was

celiac, how did that work out with the schools? Did the school

simply accept the doctor's note on the subject?

was so tiny to me. He was very skinny as a little guy with

this big belly and was always withering in pain. He also always

looked like he had two black eyes. Actually, the black eyes are how

we know if he got ahold of something he shouldn't have, they show up

usually in less than 15 minutes of him eating something. Within a

half hour he usually is very upset and in obvious pain.

Problem is, doesn't understand.

I don't understand though why the doctor would encourage him to be on

a GF diet and stay on it and not encourage the testing. If it

weren't for me looking on web sites and trying to educate myself I

wouldn't have even know about the testing that can be done or

question that I may need the tests done to prove what is going on.

Sorry, I'm still trying to learn and am still very uneducated on alot

of this. But, I am trying. Thanks again for all your help and

sharing your experiences.

>

> Hi Marie,

> Doctors differ in their opinion on whether the " gold standard "

tests are necessary. My son and daughter are the only ones who had

testing before gluten free. I was so sure that my son (2 years old at

the time and had fallen off the growth chart) had it, that I started

him on the gluten free diet before getting the test results back. The

test results came back " non-conclusive " , but his bowel movements went

from 6-8 a day down to 1-2 a day. His height and weight increased

dramatically. His swollen belly disappeared. His doctor said since he

improved on a gluten free diet, he's got celiac.

> My husband used to lie on the floor in pain before going gluten

free. He had other symptoms that disappeared with going gluten free,

only to reoccur with any accidental glutening, no matter how small.

When we changed doctors for insurance reasons, the new internist was

also a gastroenterologist. He agreed with the diagnosis, but was a

bit disappointed that he didn't get to diagnose it. Other members of

the family have similar stories.

> No doctor has ever challenged us about the diagnosis, though I'm

sure there are some that would. In my opinion, if the doctor believes

the diagnosis is valid and is willing to give a note to that effect,

a school would not be educated enough to inquire whether certain

tests were done to verify. There are some people who claim that

staying gluten free is easier with a diagnosis done through tests

rather than elimination diet, but our symptoms are so severe with

accidental glutening, that we have no desire to cheat. It does help

that all but our adopted son are gluten free.

>

> Diagnosis question

>

>

> Hello, I am so glad to find this site and have been reading

steadily

> as often as possible. My name is Marie, and I have an almost 18

> month old son, , who is " wheat/guten sensitive " . Right

now,

> I'm feeling a bit overwhelmed. I understand that the only real

> diagnosis includes all the testing by the GI, but if someone is

> already GF, is it necessary? I'm a bit confused, so any advice

will

> be welcomed.

>

> 3 years ago I was put on a GFD and I felt so much better, and I

try

> very hard to avoid it, though I admit, I'm not always great about

> it. I asked my doctor about actually getting tested, and he

> indicated that it wasn't necessary to test me for celiac sprue

and

> that I should just stay GF.

>

> With my youngest, I'm almost afraid of pursuing further because I

> understand he would have to be on a diet with gluten for a while

for

> the tests, but it causes him such visible pain that I don't want

to

> put him through that.

>

> I guess what my question is, if the only diagnosis comes from the

> elimination diet, will it be taken seriously (schools, doctors,

> etc.)? or will it just be blown off as overprotective parents?

>

> Thanks, and any advice on this is appreciated.

> Marie

> ' mom

>

>

>

>

>

>

[Guest guest]

I am so glad that I am not alone in all this. Question, with your

doctor saying that because your son improved on the diet that he was

celiac, how did that work out with the schools? Did the school

simply accept the doctor's note on the subject?

was so tiny to me. He was very skinny as a little guy with

this big belly and was always withering in pain. He also always

looked like he had two black eyes. Actually, the black eyes are how

we know if he got ahold of something he shouldn't have, they show up

usually in less than 15 minutes of him eating something. Within a

half hour he usually is very upset and in obvious pain.

Problem is, doesn't understand.

I don't understand though why the doctor would encourage him to be on

a GF diet and stay on it and not encourage the testing. If it

weren't for me looking on web sites and trying to educate myself I

wouldn't have even know about the testing that can be done or

question that I may need the tests done to prove what is going on.

Sorry, I'm still trying to learn and am still very uneducated on alot

of this. But, I am trying. Thanks again for all your help and

sharing your experiences.

>

> Hi Marie,

> Doctors differ in their opinion on whether the " gold standard "

tests are necessary. My son and daughter are the only ones who had

testing before gluten free. I was so sure that my son (2 years old at

the time and had fallen off the growth chart) had it, that I started

him on the gluten free diet before getting the test results back. The

test results came back " non-conclusive " , but his bowel movements went

from 6-8 a day down to 1-2 a day. His height and weight increased

dramatically. His swollen belly disappeared. His doctor said since he

improved on a gluten free diet, he's got celiac.

> My husband used to lie on the floor in pain before going gluten

free. He had other symptoms that disappeared with going gluten free,

only to reoccur with any accidental glutening, no matter how small.

When we changed doctors for insurance reasons, the new internist was

also a gastroenterologist. He agreed with the diagnosis, but was a

bit disappointed that he didn't get to diagnose it. Other members of

the family have similar stories.

> No doctor has ever challenged us about the diagnosis, though I'm

sure there are some that would. In my opinion, if the doctor believes

the diagnosis is valid and is willing to give a note to that effect,

a school would not be educated enough to inquire whether certain

tests were done to verify. There are some people who claim that

staying gluten free is easier with a diagnosis done through tests

rather than elimination diet, but our symptoms are so severe with

accidental glutening, that we have no desire to cheat. It does help

that all but our adopted son are gluten free.

>

> Diagnosis question

>

>

> Hello, I am so glad to find this site and have been reading

steadily

> as often as possible. My name is Marie, and I have an almost 18

> month old son, , who is " wheat/guten sensitive " . Right

now,

> I'm feeling a bit overwhelmed. I understand that the only real

> diagnosis includes all the testing by the GI, but if someone is

> already GF, is it necessary? I'm a bit confused, so any advice

will

> be welcomed.

>

> 3 years ago I was put on a GFD and I felt so much better, and I

try

> very hard to avoid it, though I admit, I'm not always great about

> it. I asked my doctor about actually getting tested, and he

> indicated that it wasn't necessary to test me for celiac sprue

and

> that I should just stay GF.

>

> With my youngest, I'm almost afraid of pursuing further because I

> understand he would have to be on a diet with gluten for a while

for

> the tests, but it causes him such visible pain that I don't want

to

> put him through that.

>

> I guess what my question is, if the only diagnosis comes from the

> elimination diet, will it be taken seriously (schools, doctors,

> etc.)? or will it just be blown off as overprotective parents?

>

> Thanks, and any advice on this is appreciated.

> Marie

> ' mom

>

>

>

>

>

>

[Guest guest]

I homeschool my celiacs. I had such a horrible time with my adoptive son with ADHD in school that I didn't trust them with my celiacs. My son with celiac also had asthma that required round the clock respiratory treatments if he got a cold, which seemed to be all the time. We opted for the homeschool route which has been an awesome experience for us. I don't recommend it for everyone, but for us it has been great. I really don't think a school would question the doctor's diagnosis. Health care professionals know so little about celiac. I don't see those in the education field being more knowledgable about it, unless they have direct experience with it.

I remember that our pediatrician that diagnosed my failure to thrive son telling me not to feed my youngest daughter gluten until she turned two because the family history for celiac was so strong. He wanted her to reach some major growth milestones that occur under two years old. We tried feeding her gluten a few times after she turned two and she developed diarrhea each time.

Diagnosis question> > > Hello, I am so glad to find this site and have been reading steadily > as often as possible. My name is Marie, and I have an almost 18 > month old son, , who is "wheat/guten sensitive". Right now, > I'm feeling a bit overwhelmed. I understand that the only real > diagnosis includes all the testing by the GI, but if someone is > already GF, is it necessary? I'm a bit confused, so any advice will > be welcomed.> > 3 years ago I was put on a GFD and I felt so much better, and I try > very hard to avoid it, though I admit, I'm not always great about > it. I asked my doctor about actually getting tested, and he > indicated that it wasn't necessary to test me for celiac sprue and > that I should just stay GF.> > With my youngest, I'm almost afraid of pursuing further because I > understand he would have to be on a diet with gluten for a while for > the tests, but it causes him such visible pain that I don't want to > put him through that.> > I guess what my question is, if the only diagnosis comes from the > elimination diet, will it be taken seriously (schools, doctors, > etc.)? or will it just be blown off as overprotective parents?> > Thanks, and any advice on this is appreciated.> Marie> ' mom> > > > > >

[Guest guest]

I homeschool my celiacs. I had such a horrible time with my adoptive son with ADHD in school that I didn't trust them with my celiacs. My son with celiac also had asthma that required round the clock respiratory treatments if he got a cold, which seemed to be all the time. We opted for the homeschool route which has been an awesome experience for us. I don't recommend it for everyone, but for us it has been great. I really don't think a school would question the doctor's diagnosis. Health care professionals know so little about celiac. I don't see those in the education field being more knowledgable about it, unless they have direct experience with it.

I remember that our pediatrician that diagnosed my failure to thrive son telling me not to feed my youngest daughter gluten until she turned two because the family history for celiac was so strong. He wanted her to reach some major growth milestones that occur under two years old. We tried feeding her gluten a few times after she turned two and she developed diarrhea each time.

Diagnosis question> > > Hello, I am so glad to find this site and have been reading steadily > as often as possible. My name is Marie, and I have an almost 18 > month old son, , who is "wheat/guten sensitive". Right now, > I'm feeling a bit overwhelmed. I understand that the only real > diagnosis includes all the testing by the GI, but if someone is > already GF, is it necessary? I'm a bit confused, so any advice will > be welcomed.> > 3 years ago I was put on a GFD and I felt so much better, and I try > very hard to avoid it, though I admit, I'm not always great about > it. I asked my doctor about actually getting tested, and he > indicated that it wasn't necessary to test me for celiac sprue and > that I should just stay GF.> > With my youngest, I'm almost afraid of pursuing further because I > understand he would have to be on a diet with gluten for a while for > the tests, but it causes him such visible pain that I don't want to > put him through that.> > I guess what my question is, if the only diagnosis comes from the > elimination diet, will it be taken seriously (schools, doctors, > etc.)? or will it just be blown off as overprotective parents?> > Thanks, and any advice on this is appreciated.> Marie> ' mom> > > > > >

[Guest guest]

My DD(almost 3) gets those huge dark circles too. We are getting blood tests on Thursday. She is anything but underweight (20th for height and 80th for weight), but so am I! Hopefully we'll catch it early if it's there and avoid any problems down the line.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

-------------- Original message -------------- From: "marminger" marminger@...

He also always looked like he had two black eyes. Actually, the black eyes are how we know if he got ahold of something he shouldn't have, they show up usually in less than 15 minutes of him eating something. Within a half hour he usually is very upset and in obvious pain.

[Guest guest]

My DD(almost 3) gets those huge dark circles too. We are getting blood tests on Thursday. She is anything but underweight (20th for height and 80th for weight), but so am I! Hopefully we'll catch it early if it's there and avoid any problems down the line.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

-------------- Original message -------------- From: "marminger" marminger@...

He also always looked like he had two black eyes. Actually, the black eyes are how we know if he got ahold of something he shouldn't have, they show up usually in less than 15 minutes of him eating something. Within a half hour he usually is very upset and in obvious pain.

[Guest guest]

I was always told that the dark circles I have always complained about were sinus related allergy. It's not?tverzosa@... wrote: My DD(almost 3) gets those huge dark circles too. We are getting blood tests on Thursday. She is anything but underweight (20th for height and 80th for weight), but so am I! Hopefully we'll catch it early if it's there and avoid any problems down the line. --Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire -------------- Original message -------------- From: "marminger" marminger@... He also always looked like he had two black eyes. Actually, the black eyes are how we know if he got ahold of something he shouldn't have, they show up usually in less than 15 minutes of him eating something. Within a half hour he usually is very upset and in obvious pain.

[Guest guest]

I was always told that the dark circles I have always complained about were sinus related allergy. It's not?tverzosa@... wrote: My DD(almost 3) gets those huge dark circles too. We are getting blood tests on Thursday. She is anything but underweight (20th for height and 80th for weight), but so am I! Hopefully we'll catch it early if it's there and avoid any problems down the line. --Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire -------------- Original message -------------- From: "marminger" marminger@... He also always looked like he had two black eyes. Actually, the black eyes are how we know if he got ahold of something he shouldn't have, they show up usually in less than 15 minutes of him eating something. Within a half hour he usually is very upset and in obvious pain.

[Guest guest]

I was always told that the dark circles I have always complained about were sinus related allergy. It's not?tverzosa@... wrote: My DD(almost 3) gets those huge dark circles too. We are getting blood tests on Thursday. She is anything but underweight (20th for height and 80th for weight), but so am I! Hopefully we'll catch it early if it's there and avoid any problems down the line. --Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire -------------- Original message -------------- From: "marminger" marminger@... He also always looked like he had two black eyes. Actually, the black eyes are how we know if he got ahold of something he shouldn't have, they show up usually in less than 15 minutes of him eating something. Within a half hour he usually is very upset and in obvious pain.

[Guest guest]

I think it can be caused by a number of things. My sister got them all the time as a child...and even as an adult. She went GF a couple months ago and she doesn't get them anymore.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

-------------- Original message --------------

I was always told that the dark circles I have always complained about were sinus

related allergy. It's not?tverzosa@... wrote:

My DD(almost 3) gets those huge dark circles too. We are getting blood tests on Thursday. She is anything but underweight (20th for height and 80th for weight), but so am I! Hopefully we'll catch it early if it's there and avoid any problems down the line.

--Trudy San , CA "People who believe in absurdities will eventually commit atrocities." ~Voltaire

-------------- Original message -------------- From: "marminger" marminger@...

He also always looked like he had two black eyes. Actually, the black eyes are how we know if he got ahold of something he shouldn't have, they show up usually in less than 15 minutes of him eating something. Within a half hour he usually is very upset and in obvious pain.