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Lee & ,

The medication she is on is a liquid medication called Gastrocrom. It is an oral

concentrate that she mixes with water four times a day - she says it's tasteless

(thank goodness!).

I have hesitated to say anything about it, still waiting for the axe to drop,

but I think we may have found the missing link. We are now going to start

spacing the Remicade treatments out further in an effort to start weaning her

off of those treatments. It has always been questionable as to whether the

Remicade had any effect, so this is a logical (and welcomed) next step.

She looks great - her spirits are so high. It's like I got my little girl back.

Okay, she's not little - she's 17, but will always be my little girl!

LINDA

-------------- Original message ----------------------

> What medication is she on that would treat an allergy scenario?

> Lee

>

> > Just a quick update on Suzanne - Dr. Keljo put her on medication to

> > treat her as though she has an allergy affecting her colon even

> > though the tests came up negative. S

> > LINDA

> > (Mom of Suzanne, 17; IBD 1/04; PSC 3/04)

> > -

Dear LInda,

This is just great news! I was so happy to see it.

All my best to you guys, Suzanne deserves a break and so do you.

What medication is she on that would treat an allergy scenario?

Antihistamines?

Lee

On Sep 17, 2006, at 1:32 PM, llduqcomcast (DOT) net wrote:

> Horray!!! I am so glad to hear good news - you certainly needed

> some. I am also glad to hear about your experiences in Pittsbugh. I

> really like Dr. Keljo as well.

>

> Just a quick update on Suzanne - Dr. Keljo put her on medication to

> treat her as though she has an allergy affecting her colon even

> though the tests came up negative. She is doing GREAT! She's feel

> better than she has felt in over a year. She's back in school,

> working at a new job with more hours and loving life.

>

> I too love Pittsburgh!

> LINDA

> (Mom of Suzanne, 17; IBD 1/04; PSC 3/04)

> -

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