RE: New here with 12 year old daughter(long)

[Guest guest]

Not everyone displays the classic symptoms

with failure to thrive, short stature, diarrhea, etc. I think part of the

reason it took so long to diagnose me is that I am 5’11’’ and

definitely Not underweight. I wasn’t overly heavy but clearly

packing some extra pounds and it just didn’t fit the picture my g.i. was

looking for. He diagnosed me with a biopsy and was apparently quite

surprised.

I had a similar reaction with my son –

he was 17 and 6’4’’ and the doc’s first reaction was-

he can’t have CD he’s too tall! But his bloodwork came back with

a very strong positive and he has responded very well to the diet. My

daughter is one of the taller kids in her class and has a solid build.

She also is diagnosed CD and responded well to the diet. So, don’t

be thrown off course because she doesn’t look the part of a classic CD

case. Her symptoms sound very much like the ones I had.

I am so glad you found a doc you

like! That is great.

Becky

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Pam Province

Sent: Monday, January 23, 2006

8:37 AM

To: SillyYaks

Subject: New here with

12 year old daughter(long)

Hello all. I just joined this group. My daughter is currently being

tested

for celiac disease. She just had her blood work on

Friday, and I don't even

have the results yet, but her new pediatrician

(who is WONDERFUL) thinks my

daughter's symptoms sound like they could be

caused by it. She has been so

ill for the last couple of years--NO energy at

all, feels nauseous all the

time, depressed, irritable, stomach aches.

She misses a LOT of school. Any

physical activity will cause her to be practically

bed ridden for a couple

of days. She has been to a rheumatologist

and an endocrinologist, in

addition to the pediatrician, all with normal

results. (In the process, she

was also diagnosed with PCOS by an adolescent

gynecologist, but that is not

the cause of these symptoms.) We have a strong

history of autoimmune illness

in our family. Our former pediatrician just

blew us off, because her CBC

was normal. I think he just thought she is

stressed out (which she IS, but

that is NOT the sole cause of her problems!)

Needless to say, we have

switched pediatricians, and now we may be on to a

diagnosis and hope for a

better life for her! (One thing I am

confused about though, is that she is

a tall, chubby child, with no failure to thrive

issues at all.) I am hoping

to learn more about the diagnosis of CD. I am

planning to take her to a

pediatric gastroenterologist who knows a lot about

CD (her new pediatrician

recommended her. Did I say I LOVE her new

pediatrician??!)

Thanks!

Pam P.

Missouri

[Guest guest]

Hi Pam,

We’re fairly new as well. I have a

firm CD diagnosis, but my 13 year old son is a needle-phobe so he asked to

self-diagnose with the diet. Your daughter’s symptoms sound exactly like

his, plus insomnia. AND he is very tall and has tended toward chubby also!

Three weeks GF and he thinks he’s sleeping better. He’s definitely

less grumpy. I might be sorry that I didn’t get a blood test for him, but

that’s how it is here.

So glad you found a wonderful

pediatrician. It’s huge.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Pam Province

Sent: Monday, January 23, 2006

9:37 AM

To: SillyYaks

Subject: New here with

12 year old daughter(long)

Hello all. I just joined this group. My daughter is currently being

tested

for celiac disease. She just had her blood work on

Friday, and I don't even

have the results yet, but her new pediatrician

(who is WONDERFUL) thinks my

daughter's symptoms sound like they could be

caused by it. She has been so

ill for the last couple of years--NO energy at

all, feels nauseous all the

time, depressed, irritable, stomach aches.

She misses a LOT of school. Any

physical activity will cause her to be practically

bed ridden for a couple

of days. She has been to a rheumatologist

and an endocrinologist, in

addition to the pediatrician, all with normal

results. (In the process, she

was also diagnosed with PCOS by an adolescent

gynecologist, but that is not

the cause of these symptoms.) We have a strong

history of autoimmune illness

in our family. Our former pediatrician just

blew us off, because her CBC

was normal. I think he just thought she is

stressed out (which she IS, but

that is NOT the sole cause of her problems!)

Needless to say, we have

switched pediatricians, and now we may be on to a

diagnosis and hope for a

better life for her! (One thing I am

confused about though, is that she is

a tall, chubby child, with no failure to thrive

issues at all.) I am hoping

to learn more about the diagnosis of CD. I am

planning to take her to a

pediatric gastroenterologist who knows a lot about

CD (her new pediatrician

recommended her. Did I say I LOVE her new

pediatrician??!)

Thanks!

Pam P.

Missouri

[Guest guest]

Hi Pam,

We’re fairly new as well. I have a

firm CD diagnosis, but my 13 year old son is a needle-phobe so he asked to

self-diagnose with the diet. Your daughter’s symptoms sound exactly like

his, plus insomnia. AND he is very tall and has tended toward chubby also!

Three weeks GF and he thinks he’s sleeping better. He’s definitely

less grumpy. I might be sorry that I didn’t get a blood test for him, but

that’s how it is here.

So glad you found a wonderful

pediatrician. It’s huge.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Pam Province

Sent: Monday, January 23, 2006

9:37 AM

To: SillyYaks

Subject: New here with

12 year old daughter(long)

Hello all. I just joined this group. My daughter is currently being

tested

for celiac disease. She just had her blood work on

Friday, and I don't even

have the results yet, but her new pediatrician

(who is WONDERFUL) thinks my

daughter's symptoms sound like they could be

caused by it. She has been so

ill for the last couple of years--NO energy at

all, feels nauseous all the

time, depressed, irritable, stomach aches.

She misses a LOT of school. Any

physical activity will cause her to be practically

bed ridden for a couple

of days. She has been to a rheumatologist

and an endocrinologist, in

addition to the pediatrician, all with normal

results. (In the process, she

was also diagnosed with PCOS by an adolescent

gynecologist, but that is not

the cause of these symptoms.) We have a strong

history of autoimmune illness

in our family. Our former pediatrician just

blew us off, because her CBC

was normal. I think he just thought she is

stressed out (which she IS, but

that is NOT the sole cause of her problems!)

Needless to say, we have

switched pediatricians, and now we may be on to a

diagnosis and hope for a

better life for her! (One thing I am

confused about though, is that she is

a tall, chubby child, with no failure to thrive

issues at all.) I am hoping

to learn more about the diagnosis of CD. I am

planning to take her to a

pediatric gastroenterologist who knows a lot about

CD (her new pediatrician

recommended her. Did I say I LOVE her new

pediatrician??!)

Thanks!

Pam P.

Missouri

[Guest guest]

> (One thing I am confused about though, is that she is

> a tall, chubby child, with no failure to thrive issues at all.)

===========

my four year old twins are in the 125 percentile for height and 80th

for weight and I had to fight for a CD test. I was dx'd with CD last

Feb and I wanted both my children tested but everyone kept on telling

me that since they were so tall they just couldn't have CD. Never

mind that both of them had dreadful reflux, severe colic as infants,

chronic diarrhea and kwashiorkor type bellies. Our DD was also

chronically fatigued and overly emotional. Our boy was hyperactive to

say the least.

anyway, to cut a long story short, I prevailed and lo and behold both

children have CD. within three weeks of going GFCF (they are also

allergic to casein) the children were completely different. Their

reflux was gone, DD had more energy and DS calmed down. BM's were

normal and their weird bellies disappeared.

Shez

[Guest guest]

> (One thing I am confused about though, is that she is

> a tall, chubby child, with no failure to thrive issues at all.)

===========

my four year old twins are in the 125 percentile for height and 80th

for weight and I had to fight for a CD test. I was dx'd with CD last

Feb and I wanted both my children tested but everyone kept on telling

me that since they were so tall they just couldn't have CD. Never

mind that both of them had dreadful reflux, severe colic as infants,

chronic diarrhea and kwashiorkor type bellies. Our DD was also

chronically fatigued and overly emotional. Our boy was hyperactive to

say the least.

anyway, to cut a long story short, I prevailed and lo and behold both

children have CD. within three weeks of going GFCF (they are also

allergic to casein) the children were completely different. Their

reflux was gone, DD had more energy and DS calmed down. BM's were

normal and their weird bellies disappeared.

Shez

[Guest guest]

> (One thing I am confused about though, is that she is

> a tall, chubby child, with no failure to thrive issues at all.)

===========

my four year old twins are in the 125 percentile for height and 80th

for weight and I had to fight for a CD test. I was dx'd with CD last

Feb and I wanted both my children tested but everyone kept on telling

me that since they were so tall they just couldn't have CD. Never

mind that both of them had dreadful reflux, severe colic as infants,

chronic diarrhea and kwashiorkor type bellies. Our DD was also

chronically fatigued and overly emotional. Our boy was hyperactive to

say the least.

anyway, to cut a long story short, I prevailed and lo and behold both

children have CD. within three weeks of going GFCF (they are also

allergic to casein) the children were completely different. Their

reflux was gone, DD had more energy and DS calmed down. BM's were

normal and their weird bellies disappeared.

Shez

[Guest guest]

Can we get an informal poll- how many of

the female celiacs are also PCOS-

I was diagnosed with it about 10 years

ago, couldn’t take the metformin, but am trying it again in the new

extended release version. 3 days in, its promising. The side effects of the

regular were like the worst gi gluten systems- but I didn’t know I needed

to be gf in those days.

I saw a new nutritionist today, who will

measure my metabolism once the met dose gets stabilized. It should definitely

increase it to close to normal, I am told. Anyhow, I think the weight gain from

the pcos precluded a celiac diagnosis, as if skewed the classic symptoms. Over

the years, at least three drs told me they would check for celiac, but they don’t

see it in pcos. Maybe untreated celiac can push someone into a pcos worsening,

like with other ailments (hashimoto’s comes to mind). Perhaps this

anecdotal evidence could suggest a previously unknown link between the two

ailments.

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Pam Province

Sent: Monday, January 23, 2006

9:37 AM

To: SillyYaks

Subject: New here with

12 year old daughter(long)

Hello all. I just joined this group. My daughter is currently being

tested

for celiac disease. She just had her blood work on

Friday, and I don't even

have the results yet, but her new pediatrician

(who is WONDERFUL) thinks my

daughter's symptoms sound like they could be

caused by it. She has been so

ill for the last couple of years--NO energy at

all, feels nauseous all the

time, depressed, irritable, stomach aches.

She misses a LOT of school. Any

physical activity will cause her to be practically

bed ridden for a couple

of days. She has been to a rheumatologist

and an endocrinologist, in

addition to the pediatrician, all with normal

results. (In the process, she

was also diagnosed with PCOS by an adolescent

gynecologist, but that is not

the cause of these symptoms.) We have a strong

history of autoimmune illness

in our family. Our former pediatrician just

blew us off, because her CBC

was normal. I think he just thought she is

stressed out (which she IS, but

that is NOT the sole cause of her problems!)

Needless to say, we have

switched pediatricians, and now we may be on to a

diagnosis and hope for a

better life for her! (One thing I am

confused about though, is that she is

a tall, chubby child, with no failure to thrive

issues at all.) I am hoping

to learn more about the diagnosis of CD. I am

planning to take her to a

pediatric gastroenterologist who knows a lot about

CD (her new pediatrician

recommended her. Did I say I LOVE her new

pediatrician??!)

Thanks!

Pam P.

Missouri

[Guest guest]

Can we get an informal poll- how many of

the female celiacs are also PCOS-

I was diagnosed with it about 10 years

ago, couldn’t take the metformin, but am trying it again in the new

extended release version. 3 days in, its promising. The side effects of the

regular were like the worst gi gluten systems- but I didn’t know I needed

to be gf in those days.

I saw a new nutritionist today, who will

measure my metabolism once the met dose gets stabilized. It should definitely

increase it to close to normal, I am told. Anyhow, I think the weight gain from

the pcos precluded a celiac diagnosis, as if skewed the classic symptoms. Over

the years, at least three drs told me they would check for celiac, but they don’t

see it in pcos. Maybe untreated celiac can push someone into a pcos worsening,

like with other ailments (hashimoto’s comes to mind). Perhaps this

anecdotal evidence could suggest a previously unknown link between the two

ailments.

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Pam Province

Sent: Monday, January 23, 2006

9:37 AM

To: SillyYaks

Subject: New here with

12 year old daughter(long)

Hello all. I just joined this group. My daughter is currently being

tested

for celiac disease. She just had her blood work on

Friday, and I don't even

have the results yet, but her new pediatrician

(who is WONDERFUL) thinks my

daughter's symptoms sound like they could be

caused by it. She has been so

ill for the last couple of years--NO energy at

all, feels nauseous all the

time, depressed, irritable, stomach aches.

She misses a LOT of school. Any

physical activity will cause her to be practically

bed ridden for a couple

of days. She has been to a rheumatologist

and an endocrinologist, in

addition to the pediatrician, all with normal

results. (In the process, she

was also diagnosed with PCOS by an adolescent

gynecologist, but that is not

the cause of these symptoms.) We have a strong

history of autoimmune illness

in our family. Our former pediatrician just

blew us off, because her CBC

was normal. I think he just thought she is

stressed out (which she IS, but

that is NOT the sole cause of her problems!)

Needless to say, we have

switched pediatricians, and now we may be on to a

diagnosis and hope for a

better life for her! (One thing I am

confused about though, is that she is

a tall, chubby child, with no failure to thrive

issues at all.) I am hoping

to learn more about the diagnosis of CD. I am

planning to take her to a

pediatric gastroenterologist who knows a lot about

CD (her new pediatrician

recommended her. Did I say I LOVE her new

pediatrician??!)

Thanks!

Pam P.

Missouri

[Guest guest]

Can we get an informal poll- how many of

the female celiacs are also PCOS-

I was diagnosed with it about 10 years

ago, couldn’t take the metformin, but am trying it again in the new

extended release version. 3 days in, its promising. The side effects of the

regular were like the worst gi gluten systems- but I didn’t know I needed

to be gf in those days.

I saw a new nutritionist today, who will

measure my metabolism once the met dose gets stabilized. It should definitely

increase it to close to normal, I am told. Anyhow, I think the weight gain from

the pcos precluded a celiac diagnosis, as if skewed the classic symptoms. Over

the years, at least three drs told me they would check for celiac, but they don’t

see it in pcos. Maybe untreated celiac can push someone into a pcos worsening,

like with other ailments (hashimoto’s comes to mind). Perhaps this

anecdotal evidence could suggest a previously unknown link between the two

ailments.

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Pam Province

Sent: Monday, January 23, 2006

9:37 AM

To: SillyYaks

Subject: New here with

12 year old daughter(long)

Hello all. I just joined this group. My daughter is currently being

tested

for celiac disease. She just had her blood work on

Friday, and I don't even

have the results yet, but her new pediatrician

(who is WONDERFUL) thinks my

daughter's symptoms sound like they could be

caused by it. She has been so

ill for the last couple of years--NO energy at

all, feels nauseous all the

time, depressed, irritable, stomach aches.

She misses a LOT of school. Any

physical activity will cause her to be practically

bed ridden for a couple

of days. She has been to a rheumatologist

and an endocrinologist, in

addition to the pediatrician, all with normal

results. (In the process, she

was also diagnosed with PCOS by an adolescent

gynecologist, but that is not

the cause of these symptoms.) We have a strong

history of autoimmune illness

in our family. Our former pediatrician just

blew us off, because her CBC

was normal. I think he just thought she is

stressed out (which she IS, but

that is NOT the sole cause of her problems!)

Needless to say, we have

switched pediatricians, and now we may be on to a

diagnosis and hope for a

better life for her! (One thing I am

confused about though, is that she is

a tall, chubby child, with no failure to thrive

issues at all.) I am hoping

to learn more about the diagnosis of CD. I am

planning to take her to a

pediatric gastroenterologist who knows a lot about

CD (her new pediatrician

recommended her. Did I say I LOVE her new

pediatrician??!)

Thanks!

Pam P.

Missouri