Re: New to group/questions ECA helmet

[Guest guest]

Hi Jenna,

Late to reply! We decided on ECA over CT primarily because the

plastic surgeon we saw who is apparently one of the top in the

country with children's head and jaw issues (Posnick) recommended

them and thought we would have a better outcome. Also they do not

charge for a second or third device if it is needed.

Our son was born in October of 04, we also noticed flattening

immediately, tried positioning etc. but it did not help. He did

have some assymetry. I started the process when he was about 4.5

months old and he got his helmet at close to six months.

wore the helmet for about 3.5 months and it did a great job.

Good luck with your decision and treatment.

CT grad August 05

> Hello Jenna!

>

> Welcome to the group!

>

> I wanted to post really quickly just to ask if you had been to ECA

> (Eastern Cranial Affiliate)'s website... they have a neat one with

> some detailed info on their helmet. Just click on " ECA " on this

page:

>

> http://www.infinitetech.org/

>

> In addition, not too long ago, a Washington Post reporter ended up

> banding his son and writing an article about it. This reporter was

> even available on a webchat after his article was published, which

was

> kind of neat. His son was in an ECA helmet:

>

> http://www.washingtonpost.com/wp-dyn/articles/A14258-2005Mar7.html

>

> I know we have had at least one other group member who posted on

the

> message board use ECA, but I don't know if they are still active.

> I've put ECA in the thread subject line to hopefully grab their

> attention if they are still reading posts.

>

> I am so pleased that your son has been diagnosed earlier rather

than

> later, or even too late, to try treatment options for plagio. At

his

> young age, you could choose aggressive repositioning for a short

while

> to see it you can correct his plagio that way if you'd like. I

> created a document titled " Is my baby a good candidate for repo " in

> the Files/Repo Headquarters/Repo Techiques folder that may help you

> evaluate the non-helmet option. There are lots of reasons why repo

> might not be a good option for your situations specifically, not to

> mention just personal choice. Some babies do round out to normal

> dimensions, some round out some but not to normal, and some babies

> don't round out. It's impossible to predict what the future might

> hold specifically for your son, but he is so young that you do have

> all of your treatment options in front of you.

>

> Would you let us know how your decision process is coming along?

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

> --- In Plagiocephaly , " jenna10948 " <jenna10948@>

wrote:

> >

> > Hello to Everyone,

> >

> > My name is Jenna and I am new to this group. My 13 week old

son,

> > Zachary, has head flattening limited to the back right side of

his

> > head. He doesn't have any facial asymmetry.

> >

> > I brought Zach to a craniofacial specialist, who thinks I should

> > watch and wait until he's about 5 months old. I don't know what

to

> > do. From what I have read, better results and shorter treatment

> > durations are seen with earlier intervention. The doctor also

> > referred me to Eastern Cranial Affiliates (ECA,)located in

> > Arlington, VA, (they also have a location in Garden City Park,

NY)

> > should I choose to go the route of the helmet.

> >

> > I have heard lots of different anecdotal stories and they all

seem

> > to contradict each other. I often hear that this should mostly

> > correct on its own, I then hear that it never does. I suppose I

> > could wait until Zach is 5 months old, but then I wonder if he

will

> > have a better outcome and shorter treatment duration if I take

> > action now. Another complicating factor is that Zach has 3

> > strawberry hemangionmas on his head.

> >

> > My questions to the group are:

> > 1. Does any part of my story sound like yours and if so, what

has

> > been your experience?

> >

> > 2. Does anyone else's child have the complicating factor of the

> > hemangiomas?

> >

> > 3. Did any of you use ECA in either the Virginia or New York

> > location and if so, what was your experience?

> >

> > 4. Any other pearls?

> >

> > Thank you!

> >

> > Jenna Steckler

> > Rockville, land

> >

>

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi Jenna,

Late to reply! We decided on ECA over CT primarily because the

plastic surgeon we saw who is apparently one of the top in the

country with children's head and jaw issues (Posnick) recommended

them and thought we would have a better outcome. Also they do not

charge for a second or third device if it is needed.

Our son was born in October of 04, we also noticed flattening

immediately, tried positioning etc. but it did not help. He did

have some assymetry. I started the process when he was about 4.5

months old and he got his helmet at close to six months.

wore the helmet for about 3.5 months and it did a great job.

Good luck with your decision and treatment.

CT grad August 05

> Hello Jenna!

>

> Welcome to the group!

>

> I wanted to post really quickly just to ask if you had been to ECA

> (Eastern Cranial Affiliate)'s website... they have a neat one with

> some detailed info on their helmet. Just click on " ECA " on this

page:

>

> http://www.infinitetech.org/

>

> In addition, not too long ago, a Washington Post reporter ended up

> banding his son and writing an article about it. This reporter was

> even available on a webchat after his article was published, which

was

> kind of neat. His son was in an ECA helmet:

>

> http://www.washingtonpost.com/wp-dyn/articles/A14258-2005Mar7.html

>

> I know we have had at least one other group member who posted on

the

> message board use ECA, but I don't know if they are still active.

> I've put ECA in the thread subject line to hopefully grab their

> attention if they are still reading posts.

>

> I am so pleased that your son has been diagnosed earlier rather

than

> later, or even too late, to try treatment options for plagio. At

his

> young age, you could choose aggressive repositioning for a short

while

> to see it you can correct his plagio that way if you'd like. I

> created a document titled " Is my baby a good candidate for repo " in

> the Files/Repo Headquarters/Repo Techiques folder that may help you

> evaluate the non-helmet option. There are lots of reasons why repo

> might not be a good option for your situations specifically, not to

> mention just personal choice. Some babies do round out to normal

> dimensions, some round out some but not to normal, and some babies

> don't round out. It's impossible to predict what the future might

> hold specifically for your son, but he is so young that you do have

> all of your treatment options in front of you.

>

> Would you let us know how your decision process is coming along?

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

> --- In Plagiocephaly , " jenna10948 " <jenna10948@>

wrote:

> >

> > Hello to Everyone,

> >

> > My name is Jenna and I am new to this group. My 13 week old

son,

> > Zachary, has head flattening limited to the back right side of

his

> > head. He doesn't have any facial asymmetry.

> >

> > I brought Zach to a craniofacial specialist, who thinks I should

> > watch and wait until he's about 5 months old. I don't know what

to

> > do. From what I have read, better results and shorter treatment

> > durations are seen with earlier intervention. The doctor also

> > referred me to Eastern Cranial Affiliates (ECA,)located in

> > Arlington, VA, (they also have a location in Garden City Park,

NY)

> > should I choose to go the route of the helmet.

> >

> > I have heard lots of different anecdotal stories and they all

seem

> > to contradict each other. I often hear that this should mostly

> > correct on its own, I then hear that it never does. I suppose I

> > could wait until Zach is 5 months old, but then I wonder if he

will

> > have a better outcome and shorter treatment duration if I take

> > action now. Another complicating factor is that Zach has 3

> > strawberry hemangionmas on his head.

> >

> > My questions to the group are:

> > 1. Does any part of my story sound like yours and if so, what

has

> > been your experience?

> >

> > 2. Does anyone else's child have the complicating factor of the

> > hemangiomas?

> >

> > 3. Did any of you use ECA in either the Virginia or New York

> > location and if so, what was your experience?

> >

> > 4. Any other pearls?

> >

> > Thank you!

> >

> > Jenna Steckler

> > Rockville, land

> >

>

>

>

>

>

>

>

> For more plagio info