Sissi Re: Re: How many of you have heard this ???? -

[Guest guest]

> Has a doctor ever told you that Boone's

> penis abnormality has a name?

LOL -- You are talking to a woman who investigates everything when it comes

to my kids. I'm an investigative reporter, so it's my nature to do this.

It's a mild hypospadias with chordee. After talking to several doctors we

decided against surgery because it can be very painful and can have adverse

psychological effects. I also joined a list of parents who have kids with

the condition. They said they would never have the surgery on a mild case. I

believe them.

As for vaccines, Boone hasn't had most of his and he won't ever have them --

especially the MMR. Not because of autism, since he's already autistic. I

refuse vaccines based on Dillon's disease. Vaccines are a proven trigger for

HSP.

> I wonder what gene therapy could do for autism in the future.

Probably destroy many brilliant minds.

Sissi

[Guest guest]

> Has a doctor ever told you that Boone's

> penis abnormality has a name?

LOL -- You are talking to a woman who investigates everything when it comes

to my kids. I'm an investigative reporter, so it's my nature to do this.

It's a mild hypospadias with chordee. After talking to several doctors we

decided against surgery because it can be very painful and can have adverse

psychological effects. I also joined a list of parents who have kids with

the condition. They said they would never have the surgery on a mild case. I

believe them.

As for vaccines, Boone hasn't had most of his and he won't ever have them --

especially the MMR. Not because of autism, since he's already autistic. I

refuse vaccines based on Dillon's disease. Vaccines are a proven trigger for

HSP.

> I wonder what gene therapy could do for autism in the future.

Probably destroy many brilliant minds.

Sissi

[Guest guest]

hmmm, ah, is there perhaps an ASD/penis connection? My son was born with

what they called hypospadias, technically I think this means that the

opening of the urethra is not centered on the end of the penis, tho I think

n's looks normal to me. Sometimes surgery is required, but more often

than not it is a minor thing that is left alone. I think it is fairly

common. However, with n they were more interested in the fact that he

had very little foreskin, and as such they did not want him circumcised.

Strange ....

Sissi Re: Re: How many of you have heard this

???? -

> I see what you are saying. Has a doctor ever told you that Boone's

> penis abnormality has a name? I've heard of this but I can't remember

> the name of it. I think it starts with an " S " .

>

> I can't help but wonder if all Autism has a genetic link of some kind.

> Why would some children develop vaccine induced autism, but not all

> vaccinated children (not even the majority of vaccinated children)?

> It seems like there has to be some kind of a genetic predisposition to

> it at least. In some families it's easier to follow the links than in

> others. I guess it's easier for you to see since you have kids in

> every family on the spectrum. As far as I can tell Jake is the first

> in our families that are on the spectrum except for that one nephew I

> wrote in about a while back.

>

> I wonder what gene therapy could do for autism in the future.

>

> ~ Karin

>

>

>

>

>

> > Karin,

> >

> > The point I was trying to make is that, compared to the other people

> in our

> > family -- people with the exact same genes and similar (very similar)

> > features -- Boone's ears are set significantly lower than his siblings'

> > ears.

> >

> > The page I referred to mentioned lower set ears and the corners of

> the mouth

> > being lower than the center.

> >

> > Boone fits this particular profile, especially when compared to

> those who

> > share his DNA -- not necessarily the population in general.

> >

> > The page goes on to mention absence of certain brain structures such

> as the

> > superior olive and the shortening of the brain stem.

> >

> > Which makes me wonder if Boone's other problem isn't also related.

> >

> > The HOXA1 gene can cause shortening of the brain stem and causes certain

> > physical abnormalities as well. Maybe this, or another gene which is

> active

> > at the same time during fetal development, is the reason Boone has an

> > abnormality with his penis. It's normal looking until he pees, then

> it bends

> > at a 90 degree angle.

> >

> > I bet anything Boone has this gene. My LFA/MR nephew has very low

> set ears

> > and a mouth similar to Boone's -- in fact he has a cleft lip and palate.

> >

> > I'm pretty sure autism is genetic in our family, considering the

> fact that

> > all of my siblings have at least one child on the spectrum and we had an

> > autistic uncle.

> >

> > I'm also betting this HOXA1 gene is the culprit and it's recessive

> since it

> > apparently skipped a generation.

> >

> > Sissi

>

>

>

[Guest guest]

hmmm, ah, is there perhaps an ASD/penis connection? My son was born with

what they called hypospadias, technically I think this means that the

opening of the urethra is not centered on the end of the penis, tho I think

n's looks normal to me. Sometimes surgery is required, but more often

than not it is a minor thing that is left alone. I think it is fairly

common. However, with n they were more interested in the fact that he

had very little foreskin, and as such they did not want him circumcised.

Strange ....

Sissi Re: Re: How many of you have heard this

???? -

> I see what you are saying. Has a doctor ever told you that Boone's

> penis abnormality has a name? I've heard of this but I can't remember

> the name of it. I think it starts with an " S " .

>

> I can't help but wonder if all Autism has a genetic link of some kind.

> Why would some children develop vaccine induced autism, but not all

> vaccinated children (not even the majority of vaccinated children)?

> It seems like there has to be some kind of a genetic predisposition to

> it at least. In some families it's easier to follow the links than in

> others. I guess it's easier for you to see since you have kids in

> every family on the spectrum. As far as I can tell Jake is the first

> in our families that are on the spectrum except for that one nephew I

> wrote in about a while back.

>

> I wonder what gene therapy could do for autism in the future.

>

> ~ Karin

>

>

>

>

>

> > Karin,

> >

> > The point I was trying to make is that, compared to the other people

> in our

> > family -- people with the exact same genes and similar (very similar)

> > features -- Boone's ears are set significantly lower than his siblings'

> > ears.

> >

> > The page I referred to mentioned lower set ears and the corners of

> the mouth

> > being lower than the center.

> >

> > Boone fits this particular profile, especially when compared to

> those who

> > share his DNA -- not necessarily the population in general.

> >

> > The page goes on to mention absence of certain brain structures such

> as the

> > superior olive and the shortening of the brain stem.

> >

> > Which makes me wonder if Boone's other problem isn't also related.

> >

> > The HOXA1 gene can cause shortening of the brain stem and causes certain

> > physical abnormalities as well. Maybe this, or another gene which is

> active

> > at the same time during fetal development, is the reason Boone has an

> > abnormality with his penis. It's normal looking until he pees, then

> it bends

> > at a 90 degree angle.

> >

> > I bet anything Boone has this gene. My LFA/MR nephew has very low

> set ears

> > and a mouth similar to Boone's -- in fact he has a cleft lip and palate.

> >

> > I'm pretty sure autism is genetic in our family, considering the

> fact that

> > all of my siblings have at least one child on the spectrum and we had an

> > autistic uncle.

> >

> > I'm also betting this HOXA1 gene is the culprit and it's recessive

> since it

> > apparently skipped a generation.

> >

> > Sissi

>

>

>

[Guest guest]

> It's a mild hypospadias with chordee. After talking to several

doctors we

> decided against surgery because it can be very painful and can have

adverse

> psychological effects. I also joined a list of parents who have kids

with

> the condition. They said they would never have the surgery on a mild

case. I

> believe them.

Yes! That's it. I've heard the same thing, not to correct it unless

it's a real problem.

>

> As for vaccines, Boone hasn't had most of his and he won't ever have

them --

> especially the MMR. Not because of autism, since he's already

autistic. I

> refuse vaccines based on Dillon's disease. Vaccines are a proven

trigger for

> HSP.

Would you have vaccinated without the HSP in the family? I'm just

curious about your opinion on this one.

>

> > I wonder what gene therapy could do for autism in the future.

>

> Probably destroy many brilliant minds.

I hope not! In some cases it might unlock a brilliant mind??? My son

doesn't have the savant qualities that Boone has, so I wouldn't be

afraid to try it. Well, I take that back. I probably would be afraid

and I may not even try it when the time came. But, that is not even

an option right now so it's moot.

You asked if I am in the medical field. Sort of. I'm a Midwife.

Also, I studied homeopathy for several years. I really respect a

person like you who researches their own medical condition(s) and

plays an active part in the decisions regarding their health care. I

feel the same way.

~ Karin

[Guest guest]

yes! yes! this is exactly what they told me " natural circumcision " !

Essentially they said there wasn't enough there to warrent removing. And it

did look that way as a newborn, tho now it looks sort of inbetween natural

and circumcised ... my husband worries about having it " touched up " ...

Re: Sissi Re: Re: How many of you have heard

this ???? -

>

> > hmmm, ah, is there perhaps an ASD/penis connection? My son was born

with

> > what they called hypospadias,

>

> was born with what the doctors told me was a 'natural circumcision'!

I

> don't know the medical name for it, but his foreskin is very loose and not

> closed at the tip.

[Guest guest]

yes! yes! this is exactly what they told me " natural circumcision " !

Essentially they said there wasn't enough there to warrent removing. And it

did look that way as a newborn, tho now it looks sort of inbetween natural

and circumcised ... my husband worries about having it " touched up " ...

Re: Sissi Re: Re: How many of you have heard

this ???? -

>

> > hmmm, ah, is there perhaps an ASD/penis connection? My son was born

with

> > what they called hypospadias,

>

> was born with what the doctors told me was a 'natural circumcision'!

I

> don't know the medical name for it, but his foreskin is very loose and not

> closed at the tip.

[Guest guest]

yes! yes! this is exactly what they told me " natural circumcision " !

Essentially they said there wasn't enough there to warrent removing. And it

did look that way as a newborn, tho now it looks sort of inbetween natural

and circumcised ... my husband worries about having it " touched up " ...

Re: Sissi Re: Re: How many of you have heard

this ???? -

>

> > hmmm, ah, is there perhaps an ASD/penis connection? My son was born

with

> > what they called hypospadias,

>

> was born with what the doctors told me was a 'natural circumcision'!

I

> don't know the medical name for it, but his foreskin is very loose and not

> closed at the tip.

[Guest guest]

> Why would some children develop vaccine induced autism, but not all

> vaccinated children (not even the majority of vaccinated children)?

I think Seroussi addresses that in 'Unraveling the Mystery of Autism'.

Have you read it?

Jacquie

[Guest guest]

> Why would some children develop vaccine induced autism, but not all

> vaccinated children (not even the majority of vaccinated children)?

I think Seroussi addresses that in 'Unraveling the Mystery of Autism'.

Have you read it?

Jacquie

[Guest guest]

> > I wonder what gene therapy could do for autism in the future.

>

> Probably destroy many brilliant minds.

Like mine. :-)

Jacquie

[Guest guest]

> > I wonder what gene therapy could do for autism in the future.

>

> Probably destroy many brilliant minds.

Like mine. :-)

Jacquie

[Guest guest]

> > I wonder what gene therapy could do for autism in the future.

>

> Probably destroy many brilliant minds.

Like mine. :-)

Jacquie