Re: ?? About Danmar Helmets -- New to Board

[Guest guest]

Hi Shanna,

Welcome to the group. The Danmar helmet is passive. A passive helmet

relies totally on growth and it most likely won't correct your baby's

facial asymmetry. Passive helmets work best on babies who are younger

than 6 months. The most rapid head growth occurs in the first 6 months

of life, afte that is slows down dramatically. Where are you located?

>

> Hi. My name is Shanna, and my 8 month old has been in a Danmar helmet

> since 12/20/05 for a mild case of plagio on his left side. He has

> some facial asymmetry (sp?) which results in his ears being uneven and

> bossing on the right side of his forehead. He also has mild metopic

> ridging which his dr (plastic surgeon) feels is due to the plagio.

> His metopic suture has begun closing but hte PS says that he does not

> have cranio. We are watching the ridging just in case it gets worse.

>

> This is my question. Has anyone else used the Danmar soft shell

> helmet? If so, how long did your child have to wear it? How long

> did it take before you noticed any changes? I have pics of his ct

> scan, if anyone wants to see them.

>

> Thank you for your input!

>

> --Shanna

> mother of Reece (3 years old) and Logan (8 months old; dx with mild l

> plagio w/ facial asymmetry)

>

[Guest guest]

Hi Shanna,

Welcome to the group. The Danmar helmet is passive. A passive helmet

relies totally on growth and it most likely won't correct your baby's

facial asymmetry. Passive helmets work best on babies who are younger

than 6 months. The most rapid head growth occurs in the first 6 months

of life, afte that is slows down dramatically. Where are you located?

>

> Hi. My name is Shanna, and my 8 month old has been in a Danmar helmet

> since 12/20/05 for a mild case of plagio on his left side. He has

> some facial asymmetry (sp?) which results in his ears being uneven and

> bossing on the right side of his forehead. He also has mild metopic

> ridging which his dr (plastic surgeon) feels is due to the plagio.

> His metopic suture has begun closing but hte PS says that he does not

> have cranio. We are watching the ridging just in case it gets worse.

>

> This is my question. Has anyone else used the Danmar soft shell

> helmet? If so, how long did your child have to wear it? How long

> did it take before you noticed any changes? I have pics of his ct

> scan, if anyone wants to see them.

>

> Thank you for your input!

>

> --Shanna

> mother of Reece (3 years old) and Logan (8 months old; dx with mild l

> plagio w/ facial asymmetry)

>

[Guest guest]

Hi . I live in a tiny town called Denton, located in central NC.

Logan is going to Wake Forest Univ Baptist Medical Center in

Winston-Salem NC. I am praying that there has been some type of

improvement when we take him back to see the plastic surgeon next

month. The main reason that she put Logan in a helmet is to keep the

asymmetry and ridge from getting worse. He sleeps with his head to

the left, whether he is on his back, stomach, or in a car seat. I

have really been paying attention to how I lay him down now, and he

seems to favor that side a lot more...At least with the helmet, he

isn't actually laying on his head and it shouldn't get any worse.

>

> Hi Shanna,

> Welcome to the group. The Danmar helmet is passive. A passive helmet

> relies totally on growth and it most likely won't correct your baby's

> facial asymmetry. Passive helmets work best on babies who are younger

> than 6 months. The most rapid head growth occurs in the first 6 months

> of life, afte that is slows down dramatically. Where are you located?

>

> --- In Plagiocephaly , " Shanna " <walkerlady888@a...>

wrote:

> >

> > Hi. My name is Shanna, and my 8 month old has been in a Danmar helmet

> > since 12/20/05 for a mild case of plagio on his left side. He has

> > some facial asymmetry (sp?) which results in his ears being uneven and

> > bossing on the right side of his forehead. He also has mild metopic

> > ridging which his dr (plastic surgeon) feels is due to the plagio.

> > His metopic suture has begun closing but hte PS says that he does not

> > have cranio. We are watching the ridging just in case it gets worse.

> >

> > This is my question. Has anyone else used the Danmar soft shell

> > helmet? If so, how long did your child have to wear it? How long

> > did it take before you noticed any changes? I have pics of his ct

> > scan, if anyone wants to see them.

> >

> > Thank you for your input!

> >

> > --Shanna

> > mother of Reece (3 years old) and Logan (8 months old; dx with mild l

> > plagio w/ facial asymmetry)

> >

>

[Guest guest]

Hi . I live in a tiny town called Denton, located in central NC.

Logan is going to Wake Forest Univ Baptist Medical Center in

Winston-Salem NC. I am praying that there has been some type of

improvement when we take him back to see the plastic surgeon next

month. The main reason that she put Logan in a helmet is to keep the

asymmetry and ridge from getting worse. He sleeps with his head to

the left, whether he is on his back, stomach, or in a car seat. I

have really been paying attention to how I lay him down now, and he

seems to favor that side a lot more...At least with the helmet, he

isn't actually laying on his head and it shouldn't get any worse.

>

> Hi Shanna,

> Welcome to the group. The Danmar helmet is passive. A passive helmet

> relies totally on growth and it most likely won't correct your baby's

> facial asymmetry. Passive helmets work best on babies who are younger

> than 6 months. The most rapid head growth occurs in the first 6 months

> of life, afte that is slows down dramatically. Where are you located?

>

> --- In Plagiocephaly , " Shanna " <walkerlady888@a...>

wrote:

> >

> > Hi. My name is Shanna, and my 8 month old has been in a Danmar helmet

> > since 12/20/05 for a mild case of plagio on his left side. He has

> > some facial asymmetry (sp?) which results in his ears being uneven and

> > bossing on the right side of his forehead. He also has mild metopic

> > ridging which his dr (plastic surgeon) feels is due to the plagio.

> > His metopic suture has begun closing but hte PS says that he does not

> > have cranio. We are watching the ridging just in case it gets worse.

> >

> > This is my question. Has anyone else used the Danmar soft shell

> > helmet? If so, how long did your child have to wear it? How long

> > did it take before you noticed any changes? I have pics of his ct

> > scan, if anyone wants to see them.

> >

> > Thank you for your input!

> >

> > --Shanna

> > mother of Reece (3 years old) and Logan (8 months old; dx with mild l

> > plagio w/ facial asymmetry)

> >

>

[Guest guest]

Hi,

Has your son been checked for torticollis? You can learn more about it

by going here:

http://www.drhull.com/EncyMaster/T/torticollis.html

http://www.pedisurg.com/PtEduc/Torticollis.htm

http://www.infant-torticollis.org/

Plagio and tort go hand in hand. Usually if a baby has tort they'll

develop plagio.

I can understand your pediatrician not wanting Logan to get any worse.

There are so many other options in NC that WOULD correct the facial

asymmetry and make his head round again. I don't understand why she

didn't refer you to one of those places.

The window of opportunity to correct plagio isn't a big one. At your

son's age he could receive awesome correction from an active band. If

your interested the info on these places is listed in the Database. We

have a helmet/band database providers are listed by state. Keep us

posted on your little one.

> > >

> > > Hi. My name is Shanna, and my 8 month old has been in a Danmar

helmet

> > > since 12/20/05 for a mild case of plagio on his left side. He has

> > > some facial asymmetry (sp?) which results in his ears being

uneven and

> > > bossing on the right side of his forehead. He also has mild metopic

> > > ridging which his dr (plastic surgeon) feels is due to the plagio.

> > > His metopic suture has begun closing but hte PS says that he

does not

> > > have cranio. We are watching the ridging just in case it gets worse.

> > >

> > > This is my question. Has anyone else used the Danmar soft shell

> > > helmet? If so, how long did your child have to wear it? How long

> > > did it take before you noticed any changes? I have pics of his ct

> > > scan, if anyone wants to see them.

> > >

> > > Thank you for your input!

> > >

> > > --Shanna

> > > mother of Reece (3 years old) and Logan (8 months old; dx with

mild l

> > > plagio w/ facial asymmetry)

> > >

> >

>

[Guest guest]

Hi,

Has your son been checked for torticollis? You can learn more about it

by going here:

http://www.drhull.com/EncyMaster/T/torticollis.html

http://www.pedisurg.com/PtEduc/Torticollis.htm

http://www.infant-torticollis.org/

Plagio and tort go hand in hand. Usually if a baby has tort they'll

develop plagio.

I can understand your pediatrician not wanting Logan to get any worse.

There are so many other options in NC that WOULD correct the facial

asymmetry and make his head round again. I don't understand why she

didn't refer you to one of those places.

The window of opportunity to correct plagio isn't a big one. At your

son's age he could receive awesome correction from an active band. If

your interested the info on these places is listed in the Database. We

have a helmet/band database providers are listed by state. Keep us

posted on your little one.

> > >

> > > Hi. My name is Shanna, and my 8 month old has been in a Danmar

helmet

> > > since 12/20/05 for a mild case of plagio on his left side. He has

> > > some facial asymmetry (sp?) which results in his ears being

uneven and

> > > bossing on the right side of his forehead. He also has mild metopic

> > > ridging which his dr (plastic surgeon) feels is due to the plagio.

> > > His metopic suture has begun closing but hte PS says that he

does not

> > > have cranio. We are watching the ridging just in case it gets worse.

> > >

> > > This is my question. Has anyone else used the Danmar soft shell

> > > helmet? If so, how long did your child have to wear it? How long

> > > did it take before you noticed any changes? I have pics of his ct

> > > scan, if anyone wants to see them.

> > >

> > > Thank you for your input!

> > >

> > > --Shanna

> > > mother of Reece (3 years old) and Logan (8 months old; dx with

mild l

> > > plagio w/ facial asymmetry)

> > >

> >

>

[Guest guest]

,

Logan's dr didn't say anything about tort when I took him in. I had

done a little research when I took him in and had read a little about

the tort. One thing about Logan is that when he is up, he does fine

with his neck. He is extremely active nad moves his head/neck

everywhere. It is just when he is sleeping that he is picky about

whre he lays his head.

As far as the helmet, if there is no improvement when we go in on the

14th, I am going to see what other options she can recommend. His dr

is part of a team of craniofacial surgeons and dealswith a lot of

children as she is at the hospital attached to Brenners Childrens

Hospital. Hopefully, it will correct the problem since it is not very

severe. If it is okay with you, I would like to send you a pic of his

CT scan that shows how severe his ear asymmetry is.

Thanks!

Shanna

> > > >

> > > > Hi. My name is Shanna, and my 8 month old has been in a Danmar

> helmet

> > > > since 12/20/05 for a mild case of plagio on his left side. He has

> > > > some facial asymmetry (sp?) which results in his ears being

> uneven and

> > > > bossing on the right side of his forehead. He also has mild

metopic

> > > > ridging which his dr (plastic surgeon) feels is due to the

plagio.

> > > > His metopic suture has begun closing but hte PS says that he

> does not

> > > > have cranio. We are watching the ridging just in case it gets

worse.

> > > >

> > > > This is my question. Has anyone else used the Danmar soft shell

> > > > helmet? If so, how long did your child have to wear it? How

long

> > > > did it take before you noticed any changes? I have pics of his ct

> > > > scan, if anyone wants to see them.

> > > >

> > > > Thank you for your input!

> > > >

> > > > --Shanna

> > > > mother of Reece (3 years old) and Logan (8 months old; dx with

> mild l

> > > > plagio w/ facial asymmetry)

> > > >

> > >

> >

>

[Guest guest]

,

Logan's dr didn't say anything about tort when I took him in. I had

done a little research when I took him in and had read a little about

the tort. One thing about Logan is that when he is up, he does fine

with his neck. He is extremely active nad moves his head/neck

everywhere. It is just when he is sleeping that he is picky about

whre he lays his head.

As far as the helmet, if there is no improvement when we go in on the

14th, I am going to see what other options she can recommend. His dr

is part of a team of craniofacial surgeons and dealswith a lot of

children as she is at the hospital attached to Brenners Childrens

Hospital. Hopefully, it will correct the problem since it is not very

severe. If it is okay with you, I would like to send you a pic of his

CT scan that shows how severe his ear asymmetry is.

Thanks!

Shanna

> > > >

> > > > Hi. My name is Shanna, and my 8 month old has been in a Danmar

> helmet

> > > > since 12/20/05 for a mild case of plagio on his left side. He has

> > > > some facial asymmetry (sp?) which results in his ears being

> uneven and

> > > > bossing on the right side of his forehead. He also has mild

metopic

> > > > ridging which his dr (plastic surgeon) feels is due to the

plagio.

> > > > His metopic suture has begun closing but hte PS says that he

> does not

> > > > have cranio. We are watching the ridging just in case it gets

worse.

> > > >

> > > > This is my question. Has anyone else used the Danmar soft shell

> > > > helmet? If so, how long did your child have to wear it? How

long

> > > > did it take before you noticed any changes? I have pics of his ct

> > > > scan, if anyone wants to see them.

> > > >

> > > > Thank you for your input!

> > > >

> > > > --Shanna

> > > > mother of Reece (3 years old) and Logan (8 months old; dx with

> mild l

> > > > plagio w/ facial asymmetry)

> > > >

> > >

> >

>

[Guest guest]

Hi Shanna,

That's great that he doesn't have tort!! Sure you can send me his

scans, I don't know if I'll be able to " read " them or not. lol I don't

think it'll be too hard to find his ears though. ;-) My email address

is taime @ optonline.net. Get rid of the spaces before and after the @

sign.

Have you looked in our photos section at the before and after

pictures? You'll see that a lot of our babies had facial/ear asymmetry

and with active banding it corrected. My fingers are crossed that your

son shows improvement at his next appointment.

> > > > >

> > > > > Hi. My name is Shanna, and my 8 month old has been in a Danmar

> > helmet

> > > > > since 12/20/05 for a mild case of plagio on his left side.

He has

> > > > > some facial asymmetry (sp?) which results in his ears being

> > uneven and

> > > > > bossing on the right side of his forehead. He also has mild

> metopic

> > > > > ridging which his dr (plastic surgeon) feels is due to the

> plagio.

> > > > > His metopic suture has begun closing but hte PS says that he

> > does not

> > > > > have cranio. We are watching the ridging just in case it gets

> worse.

> > > > >

> > > > > This is my question. Has anyone else used the Danmar soft shell

> > > > > helmet? If so, how long did your child have to wear it? How

> long

> > > > > did it take before you noticed any changes? I have pics of

his ct

> > > > > scan, if anyone wants to see them.

> > > > >

> > > > > Thank you for your input!

> > > > >

> > > > > --Shanna

> > > > > mother of Reece (3 years old) and Logan (8 months old; dx with

> > mild l

> > > > > plagio w/ facial asymmetry)

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Shanna,

That's great that he doesn't have tort!! Sure you can send me his

scans, I don't know if I'll be able to " read " them or not. lol I don't

think it'll be too hard to find his ears though. ;-) My email address

is taime @ optonline.net. Get rid of the spaces before and after the @

sign.

Have you looked in our photos section at the before and after

pictures? You'll see that a lot of our babies had facial/ear asymmetry

and with active banding it corrected. My fingers are crossed that your

son shows improvement at his next appointment.

> > > > >

> > > > > Hi. My name is Shanna, and my 8 month old has been in a Danmar

> > helmet

> > > > > since 12/20/05 for a mild case of plagio on his left side.

He has

> > > > > some facial asymmetry (sp?) which results in his ears being

> > uneven and

> > > > > bossing on the right side of his forehead. He also has mild

> metopic

> > > > > ridging which his dr (plastic surgeon) feels is due to the

> plagio.

> > > > > His metopic suture has begun closing but hte PS says that he

> > does not

> > > > > have cranio. We are watching the ridging just in case it gets

> worse.

> > > > >

> > > > > This is my question. Has anyone else used the Danmar soft shell

> > > > > helmet? If so, how long did your child have to wear it? How

> long

> > > > > did it take before you noticed any changes? I have pics of

his ct

> > > > > scan, if anyone wants to see them.

> > > > >

> > > > > Thank you for your input!

> > > > >

> > > > > --Shanna

> > > > > mother of Reece (3 years old) and Logan (8 months old; dx with

> > mild l

> > > > > plagio w/ facial asymmetry)

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Shanna,

Welcome. I see has already given you some great info. so I will

just say welcome for now.

CAROLG

--- In Plagiocephaly , " Shanna " <walkerlady888@a...>

wrote:

>

> Hi. My name is Shanna, and my 8 month old has been in a Danmar

helmet

> since 12/20/05 for a mild case of plagio on his left side. He has

> some facial asymmetry (sp?) which results in his ears being uneven

and

> bossing on the right side of his forehead. He also has mild metopic

> ridging which his dr (plastic surgeon) feels is due to the plagio.

> His metopic suture has begun closing but hte PS says that he does

not

> have cranio. We are watching the ridging just in case it gets worse.

>

> This is my question. Has anyone else used the Danmar soft shell

> helmet? If so, how long did your child have to wear it? How long

> did it take before you noticed any changes? I have pics of his ct

> scan, if anyone wants to see them.

>

> Thank you for your input!

>

> --Shanna

> mother of Reece (3 years old) and Logan (8 months old; dx with mild

l

> plagio w/ facial asymmetry)

>

[Guest guest]

Shanna,

Welcome. I see has already given you some great info. so I will

just say welcome for now.

CAROLG

--- In Plagiocephaly , " Shanna " <walkerlady888@a...>

wrote:

>

> Hi. My name is Shanna, and my 8 month old has been in a Danmar

helmet

> since 12/20/05 for a mild case of plagio on his left side. He has

> some facial asymmetry (sp?) which results in his ears being uneven

and

> bossing on the right side of his forehead. He also has mild metopic

> ridging which his dr (plastic surgeon) feels is due to the plagio.

> His metopic suture has begun closing but hte PS says that he does

not

> have cranio. We are watching the ridging just in case it gets worse.

>

> This is my question. Has anyone else used the Danmar soft shell

> helmet? If so, how long did your child have to wear it? How long

> did it take before you noticed any changes? I have pics of his ct

> scan, if anyone wants to see them.

>

> Thank you for your input!

>

> --Shanna

> mother of Reece (3 years old) and Logan (8 months old; dx with mild

l

> plagio w/ facial asymmetry)

>