Non-gastro gluten reactions

[Guest guest]

I get gut reactions, along with brain fog, joint pain, skin issues

(kp flares up, detox sores pop up, eczema, blistery rash than may or

may not be DH), and I have horrid sleep difficulties.

I have fibro and CFIDS. It's possible that the symptoms from those

came about from CD. No way to know, other than time and a GF

diet. Since going GF, my neuropathy and neuralgia have eased

considerably, so I'm considering those to be related to CD.

I also have an anaphylactic wheat allergy, but *that* reaction is

pretty obvious.

ygg

[Guest guest]

I thought I would jump in here and say that although I was recently DX'd

I have learned I have osteoporosis from it and the recent bone density test

showed a 17% BONE LOSS in my spine. And for the record I had a bone density

test less then 18 months ago and no osteoporosis was noted at that time :-(

I had been scoped and no celiac noted 18 months ago. How fast things change.

My doctors say that I am too young (51) for so much bone loss..................so

i am very alarmed.

Mimi in NH

eye of newt wrote:

I

get gut reactions, along with brain fog, joint pain, skin issues

(kp flares up, detox sores pop up, eczema, blistery rash than may or

may not be DH), and I have horrid sleep difficulties.

I have fibro and CFIDS. It's possible that the symptoms from those

came about from CD. No way to know, other than time and a GF

diet. Since going GF, my neuropathy and neuralgia have eased

considerably, so I'm considering those to be related to CD.

I also have an anaphylactic wheat allergy, but *that* reaction is

pretty obvious.

ygg

[Guest guest]

I thought I would jump in here and say that although I was recently DX'd

I have learned I have osteoporosis from it and the recent bone density test

showed a 17% BONE LOSS in my spine. And for the record I had a bone density

test less then 18 months ago and no osteoporosis was noted at that time :-(

I had been scoped and no celiac noted 18 months ago. How fast things change.

My doctors say that I am too young (51) for so much bone loss..................so

i am very alarmed.

Mimi in NH

eye of newt wrote:

I

get gut reactions, along with brain fog, joint pain, skin issues

(kp flares up, detox sores pop up, eczema, blistery rash than may or

may not be DH), and I have horrid sleep difficulties.

I have fibro and CFIDS. It's possible that the symptoms from those

came about from CD. No way to know, other than time and a GF

diet. Since going GF, my neuropathy and neuralgia have eased

considerably, so I'm considering those to be related to CD.

I also have an anaphylactic wheat allergy, but *that* reaction is

pretty obvious.

ygg

[Guest guest]

FYI- You are tired when you start a GF diet because

your body needs time to heal, and goes into that mode.

Everytime you go back to gluten you set off your

immune system again and then the healing will have to

start all over. Sure, gluten reactions can cause

tiredness too, but staying GF will solve the problem

in the long run (assuming Celiac is the only problem).

Molly

--- wendy pandolfo wrote:

> Man...that's really terrible. I'm sorry it hits you

> so hard. And it makes me wonder if I'd be better

> off just returning to a regular non-gluten free

> diet. I mean, I was getting kindof used to the okay

> days and the really tired days and was just learning

> how to structure my day around it. I've never been

> so tired that others were that worried about me.

>

> I also tend to moniter my tiredness around my

> menstral cycle, therefore I think in terms months.

> Last month, before my diagnosis, I felt really good.

> My thyroid levels were good and I wasn't draggy and

> sleepy. But this entire month, on the gluten-free

> diet, I have been tired the whole time. This past

> week was a bit better, but now I'm a few days from

> my period so the whole cycle starts again. If I

> don't feel better I'm going to go to a doctor that

> knows how to moniter hormone levels to see if there

> are some answers there

>

> Thanks for answering.

>

__________________________________________________

[Guest guest]

FYI- You are tired when you start a GF diet because

your body needs time to heal, and goes into that mode.

Everytime you go back to gluten you set off your

immune system again and then the healing will have to

start all over. Sure, gluten reactions can cause

tiredness too, but staying GF will solve the problem

in the long run (assuming Celiac is the only problem).

Molly

--- wendy pandolfo wrote:

> Man...that's really terrible. I'm sorry it hits you

> so hard. And it makes me wonder if I'd be better

> off just returning to a regular non-gluten free

> diet. I mean, I was getting kindof used to the okay

> days and the really tired days and was just learning

> how to structure my day around it. I've never been

> so tired that others were that worried about me.

>

> I also tend to moniter my tiredness around my

> menstral cycle, therefore I think in terms months.

> Last month, before my diagnosis, I felt really good.

> My thyroid levels were good and I wasn't draggy and

> sleepy. But this entire month, on the gluten-free

> diet, I have been tired the whole time. This past

> week was a bit better, but now I'm a few days from

> my period so the whole cycle starts again. If I

> don't feel better I'm going to go to a doctor that

> knows how to moniter hormone levels to see if there

> are some answers there

>

> Thanks for answering.

>

__________________________________________________

[Guest guest]

FYI- You are tired when you start a GF diet because

your body needs time to heal, and goes into that mode.

Everytime you go back to gluten you set off your

immune system again and then the healing will have to

start all over. Sure, gluten reactions can cause

tiredness too, but staying GF will solve the problem

in the long run (assuming Celiac is the only problem).

Molly

--- wendy pandolfo wrote:

> Man...that's really terrible. I'm sorry it hits you

> so hard. And it makes me wonder if I'd be better

> off just returning to a regular non-gluten free

> diet. I mean, I was getting kindof used to the okay

> days and the really tired days and was just learning

> how to structure my day around it. I've never been

> so tired that others were that worried about me.

>

> I also tend to moniter my tiredness around my

> menstral cycle, therefore I think in terms months.

> Last month, before my diagnosis, I felt really good.

> My thyroid levels were good and I wasn't draggy and

> sleepy. But this entire month, on the gluten-free

> diet, I have been tired the whole time. This past

> week was a bit better, but now I'm a few days from

> my period so the whole cycle starts again. If I

> don't feel better I'm going to go to a doctor that

> knows how to moniter hormone levels to see if there

> are some answers there

>

> Thanks for answering.

>

__________________________________________________