Re: [ Twins with Plagiocephaly ] STARband & UHC

[Guest guest]

Kai,

Welcome to the group. Your boys are just adorable!!! So does the

band always sit so low on Nicklas? How are they adjusting? Are you

seeing good correction? I hope so.

na, DOC Grad X2

Kiersten, DOC Band 1/10/06, Tort

www.thefilyaws.com/plagio/plagio.html

--- In Plagiocephaly , " kpooagith " <kpooagith@...>

wrote:

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly.

Nicklas

> has moderately severe left plagiocephaly while has

moderately

> severe right plagiocephaly. Nicklas and Bird got their

helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to

the

> photo albumn. Nicklas is wearing the blue helmet while is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because

the

> proposed cranial remolding orthosis is/are not eligible for

benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Kai,

Welcome to the group. Your boys are just adorable!!! So does the

band always sit so low on Nicklas? How are they adjusting? Are you

seeing good correction? I hope so.

na, DOC Grad X2

Kiersten, DOC Band 1/10/06, Tort

www.thefilyaws.com/plagio/plagio.html

--- In Plagiocephaly , " kpooagith " <kpooagith@...>

wrote:

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly.

Nicklas

> has moderately severe left plagiocephaly while has

moderately

> severe right plagiocephaly. Nicklas and Bird got their

helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to

the

> photo albumn. Nicklas is wearing the blue helmet while is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because

the

> proposed cranial remolding orthosis is/are not eligible for

benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Hello Kai,

Welcome to the group!

Your little ones look so precious in their bands, thank you for

sharing their photos!! Have you seen any correction yet in the month

or so that they have been wearing them? I hope they are getting some

good rounding.

Yes, we do have other group members with twins, so hopefully they will

see " twins " in the subject line and reply with a hello.

Best of luck to you with your appeal. Have you already visited the

Files/Insurance help part of this group site? There are a ton of

sample letters, etc. to help you craft various appeals, if you think

that might assist you. Would you keep us posted on how your appeal is

going?

Take care,

Christie (Mom to Repo'd Remy)

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly. Nicklas

> has moderately severe left plagiocephaly while has moderately

> severe right plagiocephaly. Nicklas and Bird got their helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to the

> photo albumn. Nicklas is wearing the blue helmet while is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because the

> proposed cranial remolding orthosis is/are not eligible for benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Hello Kai,

Welcome to the group!

Your little ones look so precious in their bands, thank you for

sharing their photos!! Have you seen any correction yet in the month

or so that they have been wearing them? I hope they are getting some

good rounding.

Yes, we do have other group members with twins, so hopefully they will

see " twins " in the subject line and reply with a hello.

Best of luck to you with your appeal. Have you already visited the

Files/Insurance help part of this group site? There are a ton of

sample letters, etc. to help you craft various appeals, if you think

that might assist you. Would you keep us posted on how your appeal is

going?

Take care,

Christie (Mom to Repo'd Remy)

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly. Nicklas

> has moderately severe left plagiocephaly while has moderately

> severe right plagiocephaly. Nicklas and Bird got their helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to the

> photo albumn. Nicklas is wearing the blue helmet while is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because the

> proposed cranial remolding orthosis is/are not eligible for benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Hi Kai welcome to the group.Sorry I haven't replied sooner but have

been busy this week with my twins bands. I have twin 1 year old twin

boys who got starbands on Feb 16, 06. I haven't got to post any

pictures yet b/c I just found the USB cable for the camera. The boys

had got a hold of it and decided to hide it. Good luck with your

appeal. Thankfully my husband is in the Air Force and after being

turned down by tricare and by the state of CA Air Force Aid gave us a

grant to cover our helmets. has severe right plagio and

Vedder's head was completely flat in the back. They both just got

mesured on this past thursday. Both are makeing good progress. I am

happy so far in what I see. Good luck with your insurance battle and

let me know if you have any questions.

Sunshine mommie to Gabe and Vedder one year old twin starbands

--- In Plagiocephaly , " kpooagith " <kpooagith@...>

wrote:

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly.

Nicklas

> has moderately severe left plagiocephaly while has

moderately

> severe right plagiocephaly. Nicklas and Bird got their

helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to

the

> photo albumn. Nicklas is wearing the blue helmet while is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because

the

> proposed cranial remolding orthosis is/are not eligible for

benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Hi Kai welcome to the group.Sorry I haven't replied sooner but have

been busy this week with my twins bands. I have twin 1 year old twin

boys who got starbands on Feb 16, 06. I haven't got to post any

pictures yet b/c I just found the USB cable for the camera. The boys

had got a hold of it and decided to hide it. Good luck with your

appeal. Thankfully my husband is in the Air Force and after being

turned down by tricare and by the state of CA Air Force Aid gave us a

grant to cover our helmets. has severe right plagio and

Vedder's head was completely flat in the back. They both just got

mesured on this past thursday. Both are makeing good progress. I am

happy so far in what I see. Good luck with your insurance battle and

let me know if you have any questions.

Sunshine mommie to Gabe and Vedder one year old twin starbands

--- In Plagiocephaly , " kpooagith " <kpooagith@...>

wrote:

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly.

Nicklas

> has moderately severe left plagiocephaly while has

moderately

> severe right plagiocephaly. Nicklas and Bird got their

helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to

the

> photo albumn. Nicklas is wearing the blue helmet while is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because

the

> proposed cranial remolding orthosis is/are not eligible for

benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Hi there. Welcome to the group. I have 19 month old b/g twins

Andre and Lesly. Andre has plagio and torticollis. He just

recently graduated from his doc band and he is lookin good. Lesly's

head is fine and is kind off like a helmet all on it's own. When

they bump heads andre always looses. She takes after her dad. I

can't imagine two babies in bands. You are an amazing mom. Keep us

posted.

Haylee

mom to andre doc band grad

--- In Plagiocephaly , " kpooagith " <kpooagith@...>

wrote:

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly.

Nicklas

> has moderately severe left plagiocephaly while has

moderately

> severe right plagiocephaly. Nicklas and Bird got their

helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to

the

> photo albumn. Nicklas is wearing the blue helmet while

is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because

the

> proposed cranial remolding orthosis is/are not eligible for

benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Hi there. Welcome to the group. I have 19 month old b/g twins

Andre and Lesly. Andre has plagio and torticollis. He just

recently graduated from his doc band and he is lookin good. Lesly's

head is fine and is kind off like a helmet all on it's own. When

they bump heads andre always looses. She takes after her dad. I

can't imagine two babies in bands. You are an amazing mom. Keep us

posted.

Haylee

mom to andre doc band grad

--- In Plagiocephaly , " kpooagith " <kpooagith@...>

wrote:

>

> Hi! Everyone,

>

> I'm new to the group. I have twin boys with plagiocephaly.

Nicklas

> has moderately severe left plagiocephaly while has

moderately

> severe right plagiocephaly. Nicklas and Bird got their

helmets

> on Feb 13, 2006. I've added a picture of Nicklas and to

the

> photo albumn. Nicklas is wearing the blue helmet while

is

> wearing the white helmet. Anyone with twins ?

>

> I have UHC PPO and in the process of submitting an appeal, because

the

> proposed cranial remolding orthosis is/are not eligible for

benefits.

>

> Wish me luck !

>

> Kai

> Mother of Nicklas & Bird

>

[Guest guest]

Dear Sunshinyday01: Please check out plagiocephaly.org and look under the Front Page "News Alerts" to review where I am at with the Florida Legislation that I plan to take to the U.S. Congress. I need help now from parents, physicians, all orthotic banding companies around the country. If I can get this legislation to pass in Florida, I have a platform to get federal legislation that will mandate coverage in all 50 state as well as all military families health plans. My contact information is listed in the information on Dr. 's website at plagiocephaly.org or just Google "'s Law". I hope that all is going well with your twin boys and the information that I provided help in some small way. Sincerely, A. Schultz Plagiocepahly Parent Advocate sunshinyday01

<sunshinyday01@...> wrote: Hi Kai welcome to the group.Sorry I haven't replied sooner but have been busy this week with my twins bands. I have twin 1 year old twin boys who got starbands on Feb 16, 06. I haven't got to post any pictures yet b/c I just found the USB cable for the camera. The boys had got a hold of it and decided to hide it. Good luck with your appeal. Thankfully my husband is in the Air Force and after being turned down by tricare and by the state of CA Air Force Aid gave us a grant to cover our helmets. has severe right plagio and Vedder's head was completely flat in the back. They both just got mesured on this past thursday. Both are makeing good progress. I am happy so far in what I see. Good luck with your insurance battle and let me know if you have any questions.

Sunshine mommie to Gabe and Vedder one year old twin starbands>> Hi! Everyone,> > I'm new to the group. I have twin boys with plagiocephaly. Nicklas > has moderately severe left plagiocephaly while has moderately > severe right plagiocephaly. Nicklas and Bird got their helmets > on Feb 13, 2006. I've added a picture of Nicklas and to the > photo albumn. Nicklas is wearing the blue helmet while is > wearing the white helmet. Anyone with twins ?> > I have UHC PPO and in the process of submitting an appeal, because the > proposed cranial remolding orthosis is/are not eligible for benefits.> > Wish me luck !> > Kai> Mother of Nicklas &

Bird>

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Dear Sunshinyday01: Please check out plagiocephaly.org and look under the Front Page "News Alerts" to review where I am at with the Florida Legislation that I plan to take to the U.S. Congress. I need help now from parents, physicians, all orthotic banding companies around the country. If I can get this legislation to pass in Florida, I have a platform to get federal legislation that will mandate coverage in all 50 state as well as all military families health plans. My contact information is listed in the information on Dr. 's website at plagiocephaly.org or just Google "'s Law". I hope that all is going well with your twin boys and the information that I provided help in some small way. Sincerely, A. Schultz Plagiocepahly Parent Advocate sunshinyday01

<sunshinyday01@...> wrote: Hi Kai welcome to the group.Sorry I haven't replied sooner but have been busy this week with my twins bands. I have twin 1 year old twin boys who got starbands on Feb 16, 06. I haven't got to post any pictures yet b/c I just found the USB cable for the camera. The boys had got a hold of it and decided to hide it. Good luck with your appeal. Thankfully my husband is in the Air Force and after being turned down by tricare and by the state of CA Air Force Aid gave us a grant to cover our helmets. has severe right plagio and Vedder's head was completely flat in the back. They both just got mesured on this past thursday. Both are makeing good progress. I am happy so far in what I see. Good luck with your insurance battle and let me know if you have any questions.

Sunshine mommie to Gabe and Vedder one year old twin starbands>> Hi! Everyone,> > I'm new to the group. I have twin boys with plagiocephaly. Nicklas > has moderately severe left plagiocephaly while has moderately > severe right plagiocephaly. Nicklas and Bird got their helmets > on Feb 13, 2006. I've added a picture of Nicklas and to the > photo albumn. Nicklas is wearing the blue helmet while is > wearing the white helmet. Anyone with twins ?> > I have UHC PPO and in the process of submitting an appeal, because the > proposed cranial remolding orthosis is/are not eligible for benefits.> > Wish me luck !> > Kai> Mother of Nicklas &

Bird>

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Hi, ,

Thank You....

We have an appointment on Friday April 14 for another ajustment. We

need get Nicklas's band trim up a little bit. They're wearing their

bands almost 23 hours a day ( some days we leave if off for a couple

of hours so their heads can breathe.) I can see some corrections.

At the moment, has to wear his 3-4 months while Nicklas has to

wear his 4-5 months.

Kai

Nicklas & , STARBand

> >

> > Hi! Everyone,

> >

> > I'm new to the group. I have twin boys with plagiocephaly.

> Nicklas

> > has moderately severe left plagiocephaly while has

> moderately

> > severe right plagiocephaly. Nicklas and Bird got their

> helmets

> > on Feb 13, 2006. I've added a picture of Nicklas and to

> the

> > photo albumn. Nicklas is wearing the blue helmet while

is

> > wearing the white helmet. Anyone with twins ?

> >

> > I have UHC PPO and in the process of submitting an appeal,

because

> the

> > proposed cranial remolding orthosis is/are not eligible for

> benefits.

> >

> > Wish me luck !

> >

> > Kai

> > Mother of Nicklas & Bird

> >

>