Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Hi everybody I haven't posted for a while due to a flare up and I'm writing a book, so I'm on deadline on top of everything else, and just got a letter from Social Security saying I owed them thousands of dollars in back payments so I'm appealing it; I think they're penalizing me for the way I get my income. I get royalties twice a year, so they figure I shouldn't get disability payments during those months which means I'd have to use all that money to pay all my bills ahead of time (who can buy 6 months worth of groceries and gas for crying out loud?). I think they're just hopelessly confused and understaffed and have no idea what they're doing. Rest of update is below. Vimala *************** > Subject: Re: dr today/update > > I wish he could > have handed over a muscle relaxant.. but I > couldn't bring myself just to ask for one. Serena I agree, you need to ask. But go in looking spiffy, smiling, and acting like you're there for a job interview. TELL the doc you'd like to try it. The assertive (not aggressive) approach has always worked much better for me than showing my pain. I don't get it, but there you go. Or if I take a man with me and HE tells the doc to give it to me, that doctor can't whip out his script pad fast enough. Go figure. Vimala ******************* >> Also - I get scalp sores during a flare. Anyone else experience this? > > Jo, > yes I am 21 years old...I have had MAJOR problems with this for the past > year...ever since I found out I had FMS...I started getting sores on my > scalp...I would (still do) unconciously pick at the scabs ALL THE > TIME...(obsessive) Your info is helpful, thank you! I've had Shingles a couple times since getting FMS and I would have assumed that's what it was. I get sores all over the inside of my mouth and all around my tongue when I get a bad flare, and my gums bleed like crazy. Anybody else? Vimala ********************** > Subject: The Importance of Pets > > Hi All: > > I am trying to collect information on the importance > that having a pet or pets is to those of us suffering > chronic pain and/or those of us unable to work. My cat Lucy, who passed at 18 last June, was a Healing Cat. She always stayed with me when I was having a big flare up and wouldn't leave me until I was feeling better. She draped her body over the part that hurt the most (you should have seen me when I had a migraine, with a cat hat!) and purred so it was like this warm heating pad vibrator with love coming out of it. She was extremely important to me and I miss her so much. She stayed absolutely pasted to me (we called her Velcro Cat) when I was flaring. Vimala **************************** > > I've tried both these, although I tried the Valerian root as a sleeping > aid. THe valerian root put me to sleep one time, and didn't help the > next time I tried it. The kava kava helps if I'm only mildly anxious, > it will relax me. If I'm really upset or anxious, it doesn't touch > anything. I don't know how well they'd work as muscle relaxants. Just > my experience. > Darcy I've tried Valerian root but it smells like old socks when you're cooking it up and didn't do anything. Kava Kava actually brought ON a panic attack. Go figure. I use Ultram and have every day for about 9 years; it doesn't make me sleepy at all, and I take 8 a day. Yesterday I finally found an anti-depressant I hadn't tried yet, Wellbutrin, and my doc put me on it, one in the morning, I'm not up to a therapeutic dose but so far so good. It would be great to reduce the narcotics and just take an anti-depressant and my Ultram like I used to be able to. I'm also taking ms Contin, Prevacid for my stomach, and Clonopin for sleep and anxiety. It would be nice to cut down or eliminate some of these. Oh yeah, and Phenergan suppositories if/when I get nauseated, which I always do when my pain level exceeds my tolerance. I am SO GRATEFUL to have a group of physicians who are cooperative and work with me as a team to keep me functioning. Without them I was a hopeless wreck. love, Vimala ******************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Vimala, Thanks hon.. what kind of book are you working on? Is the flare up better? I really hope so... ::hugs:: Serena ===== Believe more deeply. Hold your face up to the light, even though for the moment you do not see. Bill W __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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