~Re: Another Dominick update: Early Intervention nightmare/CAROL

[Guest guest]

Carol,

Hello! I hope things are going better for you this week! I'm really

sorry for all the troubles you've been having with the Early

Intervention. ( We've had some issues also, our case worker

finally quit! Whoo Hoo! I know how frustrating it can be when you

just want the best for your child, your lost and nobody seems to want

to help. I just wanted to let you know, you're doing a great job and

I hope everything works out for you. Things do tend to fall in

place. Good Luck I'll be thinking about you!

)

Mayson's Mamma

Oly, WA

> >

> > Hey all,

> > I get this phone message Monday at 3:00pm from my EI caseworker

> that

> > says, " Just making sure you are still expecting us tomorrow at

> > 9:30am " . OK, well I never set up an appointment so I was like

WHAT,

> > but figured oh well I might as well just do it. I originally had

> left

> > things as I would make an appt. after Dom's surgery and after the

> > written report from the dev/beh ped came in. It was also supposed

> to

> > be a meeting just to get to know the new case worker and let her

> meet

> > Dominick.So.....

> > I pull in the driveway Tuesday morning from taking Carly to

school

> > late(still not

> > feeling great) at 9:05 and there is a car in the driveway. It is

> the

> > OT and she says, I must be wrong but my book says that we were

> > supposed to be here at 9:00. I said I wasn't even aware of this

> and I

> > had 9:30. At 10:00 the caseworker and the PT show up, that's what

> > they wrote down and to top it off it turns out this was set up for

> > Dominick's annual review for services. I figure I will just lay

> down

> > the basics of the dev. ped appt and then we'll do his evaluation

> and

> > then after the report comes in we can decide what we need to do.

> > Right off the bat the OT is very conservative again. It seems

> > whenever she is here alone she is all " let's do this and that and

> he

> > has this issue and that " and when anyone else from EI is here she

> is

> > totally different and all by the book. The PT does her stuff and

> says

> > Dominick is great motor wise and his funny walking is not from

> > anything that would need PT. That is what I expected so great one

> > down. Well then the OT is doing the entire rest of the evaluation.

> > Tell me again what qualifies an OT to do developmental,

> > cognitive,social/emotional, vision and hearing evaluations!!!! So

> we

> > start the whole million questions thing and I start by saying what

> > happened at the dev. ped and she writes it down. Then she says

> > something to the PT and they both look at each other and roll

thier

> > eyes. Then the PT says well he is young to be diagnosed as

autistic

> > and so I go through the whole thing about how he is not autistic

> but

> > has traits and blah, blah, blah. She says I only know what I know

> and

> > that is he is in great shape motor dev. wise so I will pass the

> other

> > issues off to the OT. I answer all the questions I can and when

> there

> > is an answer that requires an explanation like, " He says mama, but

> > also uses mama for anything emotional he wants from anyone(picked

> up,

> > attention,etc), so he doesn't use it specifically " , they look at

> each

> > other and roll thier frickin eyes. I was getting very irritated.

> The

> > whole time the case worker is just sitting there. Imagine there

are

> > three of them in my little upstairs livingroom(11x11) and Dom

stuck

> > in the middle of them being put through one routine after

another.

> He

> > gets up and comes to me and I put him on my lap,he pushes his back

> > against my tummy so hard and then literally takes my arms and

wraps

> > them around him and pushes(this means he wants me to squeeze

him),

> so

> > I squeeze tighter and tighter until it is enough pressure that he

> > calms and then I have to hold him like that. He will do this when

> > upset or overloaded,it makes him feel better. They start saying

> > things like well he has met just about all of goals(all of

> them,lol)

> > of drinking from a straw or sippy, and eating more table foods,

and

> > will go to bed without beating his head 5 out of 7 nights. This is

> > all he had set up by the old caseworker. I'm thinking, what are

> they

> > saying, he is not going to get services anymore are they crazy. He

> > has still not had the speech eval. I was promised and is now

> > requested by the ped., nothing was formerly written up on his

> sensory

> > issues other than feeding and now he has all this stuff the dev.

> ped

> > wants done. So the OT starts explaining to me how he is doing ok

> and

> > that he meets the checklist for what they have. If I ask a

question

> > she reads from a little guideline book to answer me. I was getting

> > frustrated and I said what about all the other issues that are

not

> on

> > your little checklist. What about the head banging and the

walking,

> > the fact that he is a different baby when not in his own house and

> > the million other things? She says well in the guidelines it says

> > that at the annual review we are to simply do a reveiw of his

> > evaluation , so I didn't bring any of my tools or anything. The

> case

> > worker asks about where he meets the criteria for services and

they

> > say, well if we put down that he needs some behavoir/sensory help

I

> > can probably come out every three to four months. I was so upset

at

> > this point. I said to them you people don't live this baby every

> day

> > and know anything about what my life is like. You don't realize

> that

> > my entire family has adapted thier lives to fit Dominick's needs.

> You

> > aren't here when he is in his own world and you can't get through

> to

> > him. You aren't there when I watch other children his age and see

> how

> > absolutely different he is. I was in tears as I continued to tell

> > them basically how my entire life has been turned upside down and

> how

> > much it hurts to know that your baby has something wrong that may

> > never be fixed. I told them to write up the papers and I would

sign

> > them, that I get it, he doesn't qualify. I picked up Dom and

walked

> > in the kitchen. Then they start saying well maybe if we do this or

> > that and I finally said, just write the papers and I will sign to

> > decline your services because why in God's name would I want

people

> > like you to be around my baby, with your eye rolling and

> patronizing

> > attitudes. Well the PT and the OT were in tears and they quickly

> > write up his papers and leave but the caseworker stayed. She sat

> down

> > with me and we talked while I fed Dom lunch. I said I was sorry

but

> > this is not fair. He doesn't fit into your paperwork guidelines

so

> he

> > doesn't get services, what the hell is wrong with the system.She

> > asked about the dev. ped and I explained, then her manner

changed.

> I

> > asked if they had the AAP booklet that I have outlining the new

> > guidelines for early detection of ASD and she said " no, I didn't

> even

> > know there was one " . I showed her and she read it. The next thing

> she

> > said is " I wonder how well trained the OT is in dealing with this

> > stuff " ........WHAT!!!! Then she said " I don't think we have

anyone

> on

> > staff at all who could deal with this " ..........DUH!!!!! By the

> time

> > she left she said that she wrote stuff up so that if I changed my

> > mind and she could get something better going for Dom after

getting

> > the diagnosis from the dev. ped she would contact me. She said

that

> > she saw his walking problem and that she would send me info. on a

> > place to get some communication equipment to help with his speech

> and

> > communication skills. Once she left I picked up the copy of the

> > report on his development and it just made me more upset.Remember

> > Dominick is 18mo. He is at a 14 month old level for speech, a 15

> > month level for fine motor skills, and he ranges between 15 months

> > and 18 months for cognitive skills, but more towards 15 because he

> > has no attention span. Excuse me isn't this delayed, what is it

> that

> > they want to give him services???? I could go on and on about what

> > has been happening with Dominick over the past two months alone,

> like

> > losing his words that he used to say, but I won't. I will simply

> say

> > I see signs of him slipping away and noone will help me. I will

> just

> > have to do this on my own and I will find a way. Poor Dominick

> spent

> > the afternoon under his playpen mat and today he has been so

quiet

> I

> > feel bad for him. Hopefully tomorrow he will feel better. Well so

> > that's it, I have to cry this out again now.

> > CAROLG

> >

>

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Carol,

Hello! I hope things are going better for you this week! I'm really

sorry for all the troubles you've been having with the Early

Intervention. ( We've had some issues also, our case worker

finally quit! Whoo Hoo! I know how frustrating it can be when you

just want the best for your child, your lost and nobody seems to want

to help. I just wanted to let you know, you're doing a great job and

I hope everything works out for you. Things do tend to fall in

place. Good Luck I'll be thinking about you!

)

Mayson's Mamma

Oly, WA

> >

> > Hey all,

> > I get this phone message Monday at 3:00pm from my EI caseworker

> that

> > says, " Just making sure you are still expecting us tomorrow at

> > 9:30am " . OK, well I never set up an appointment so I was like

WHAT,

> > but figured oh well I might as well just do it. I originally had

> left

> > things as I would make an appt. after Dom's surgery and after the

> > written report from the dev/beh ped came in. It was also supposed

> to

> > be a meeting just to get to know the new case worker and let her

> meet

> > Dominick.So.....

> > I pull in the driveway Tuesday morning from taking Carly to

school

> > late(still not

> > feeling great) at 9:05 and there is a car in the driveway. It is

> the

> > OT and she says, I must be wrong but my book says that we were

> > supposed to be here at 9:00. I said I wasn't even aware of this

> and I

> > had 9:30. At 10:00 the caseworker and the PT show up, that's what

> > they wrote down and to top it off it turns out this was set up for

> > Dominick's annual review for services. I figure I will just lay

> down

> > the basics of the dev. ped appt and then we'll do his evaluation

> and

> > then after the report comes in we can decide what we need to do.

> > Right off the bat the OT is very conservative again. It seems

> > whenever she is here alone she is all " let's do this and that and

> he

> > has this issue and that " and when anyone else from EI is here she

> is

> > totally different and all by the book. The PT does her stuff and

> says

> > Dominick is great motor wise and his funny walking is not from

> > anything that would need PT. That is what I expected so great one

> > down. Well then the OT is doing the entire rest of the evaluation.

> > Tell me again what qualifies an OT to do developmental,

> > cognitive,social/emotional, vision and hearing evaluations!!!! So

> we

> > start the whole million questions thing and I start by saying what

> > happened at the dev. ped and she writes it down. Then she says

> > something to the PT and they both look at each other and roll

thier

> > eyes. Then the PT says well he is young to be diagnosed as

autistic

> > and so I go through the whole thing about how he is not autistic

> but

> > has traits and blah, blah, blah. She says I only know what I know

> and

> > that is he is in great shape motor dev. wise so I will pass the

> other

> > issues off to the OT. I answer all the questions I can and when

> there

> > is an answer that requires an explanation like, " He says mama, but

> > also uses mama for anything emotional he wants from anyone(picked

> up,

> > attention,etc), so he doesn't use it specifically " , they look at

> each

> > other and roll thier frickin eyes. I was getting very irritated.

> The

> > whole time the case worker is just sitting there. Imagine there

are

> > three of them in my little upstairs livingroom(11x11) and Dom

stuck

> > in the middle of them being put through one routine after

another.

> He

> > gets up and comes to me and I put him on my lap,he pushes his back

> > against my tummy so hard and then literally takes my arms and

wraps

> > them around him and pushes(this means he wants me to squeeze

him),

> so

> > I squeeze tighter and tighter until it is enough pressure that he

> > calms and then I have to hold him like that. He will do this when

> > upset or overloaded,it makes him feel better. They start saying

> > things like well he has met just about all of goals(all of

> them,lol)

> > of drinking from a straw or sippy, and eating more table foods,

and

> > will go to bed without beating his head 5 out of 7 nights. This is

> > all he had set up by the old caseworker. I'm thinking, what are

> they

> > saying, he is not going to get services anymore are they crazy. He

> > has still not had the speech eval. I was promised and is now

> > requested by the ped., nothing was formerly written up on his

> sensory

> > issues other than feeding and now he has all this stuff the dev.

> ped

> > wants done. So the OT starts explaining to me how he is doing ok

> and

> > that he meets the checklist for what they have. If I ask a

question

> > she reads from a little guideline book to answer me. I was getting

> > frustrated and I said what about all the other issues that are

not

> on

> > your little checklist. What about the head banging and the

walking,

> > the fact that he is a different baby when not in his own house and

> > the million other things? She says well in the guidelines it says

> > that at the annual review we are to simply do a reveiw of his

> > evaluation , so I didn't bring any of my tools or anything. The

> case

> > worker asks about where he meets the criteria for services and

they

> > say, well if we put down that he needs some behavoir/sensory help

I

> > can probably come out every three to four months. I was so upset

at

> > this point. I said to them you people don't live this baby every

> day

> > and know anything about what my life is like. You don't realize

> that

> > my entire family has adapted thier lives to fit Dominick's needs.

> You

> > aren't here when he is in his own world and you can't get through

> to

> > him. You aren't there when I watch other children his age and see

> how

> > absolutely different he is. I was in tears as I continued to tell

> > them basically how my entire life has been turned upside down and

> how

> > much it hurts to know that your baby has something wrong that may

> > never be fixed. I told them to write up the papers and I would

sign

> > them, that I get it, he doesn't qualify. I picked up Dom and

walked

> > in the kitchen. Then they start saying well maybe if we do this or

> > that and I finally said, just write the papers and I will sign to

> > decline your services because why in God's name would I want

people

> > like you to be around my baby, with your eye rolling and

> patronizing

> > attitudes. Well the PT and the OT were in tears and they quickly

> > write up his papers and leave but the caseworker stayed. She sat

> down

> > with me and we talked while I fed Dom lunch. I said I was sorry

but

> > this is not fair. He doesn't fit into your paperwork guidelines

so

> he

> > doesn't get services, what the hell is wrong with the system.She

> > asked about the dev. ped and I explained, then her manner

changed.

> I

> > asked if they had the AAP booklet that I have outlining the new

> > guidelines for early detection of ASD and she said " no, I didn't

> even

> > know there was one " . I showed her and she read it. The next thing

> she

> > said is " I wonder how well trained the OT is in dealing with this

> > stuff " ........WHAT!!!! Then she said " I don't think we have

anyone

> on

> > staff at all who could deal with this " ..........DUH!!!!! By the

> time

> > she left she said that she wrote stuff up so that if I changed my

> > mind and she could get something better going for Dom after

getting

> > the diagnosis from the dev. ped she would contact me. She said

that

> > she saw his walking problem and that she would send me info. on a

> > place to get some communication equipment to help with his speech

> and

> > communication skills. Once she left I picked up the copy of the

> > report on his development and it just made me more upset.Remember

> > Dominick is 18mo. He is at a 14 month old level for speech, a 15

> > month level for fine motor skills, and he ranges between 15 months

> > and 18 months for cognitive skills, but more towards 15 because he

> > has no attention span. Excuse me isn't this delayed, what is it

> that

> > they want to give him services???? I could go on and on about what

> > has been happening with Dominick over the past two months alone,

> like

> > losing his words that he used to say, but I won't. I will simply

> say

> > I see signs of him slipping away and noone will help me. I will

> just

> > have to do this on my own and I will find a way. Poor Dominick

> spent

> > the afternoon under his playpen mat and today he has been so

quiet

> I

> > feel bad for him. Hopefully tomorrow he will feel better. Well so

> > that's it, I have to cry this out again now.

> > CAROLG

> >

>

>

>

>

>

>

>

> For more plagio info