in Canada

[Guest guest]

Hi ,

I don't know where in Canada you live but I can relate my story in

Calgary. It was a battle to get my daughter to just be seen and

evaluated. There is a huge lack of education about tort and plagio

and alot of doctors still say that it will go away on it's own. I

would use this website to find out about the nearest helmet or band

clinic near you that you could commit to visiting every 2 weeks or

so. I would find out the contact people etc. THen I would re-visit

your family doctor and tell her specifically who you want a referral

to go see. Give her the name, location, phone and fax number of the

center you picked. She can say it's not necessary etc but it's not

up to her. Politely explain that you would feel better if a

specialist who sees hundreds of kids with plagio and tort told you

that. If she still refuses, go to a walk-in clinic and insist on

it. They CANNOT refuse. If you do this and see the head-shaping

clinic be prepared that you may have to fight there too. Look at

the photos on this site and educate yourself. See if you can get

your child scanned so that you can have an objective measurement of

how bad etc the plagio is. I was told by the OT and PT at the

headshaping clinic that my daughter was only moderate. Her STarBAnd

showed her to be severe and this was AFTER 3 mths of very intense

repo work at home and physiotherapy. Trust your instincts and push

for what you think is right.

Good luck,

> >

> > hi there,

> >

> > thanks for answering my post......well I would like to get one

but

> > my chiro seems to think that when the tort is fixed the head

will

> > naturally round out on its own because the pressure of the

muscles

> > pulling on the skull will be relieved (that said he also thinks

his

> > flat spot is worse than it should given his mild tort) so i

would

> > like to get a helmet but am unsure if they will give me

one....my

> > fam phys said it wasn't bad so i would need to get her on board

for

> > a referral or another lady said she just called the orthotica

dept

> > at sick kids hospital and they just called her dr and then she

got

> > in to see the orthotist......i am in canada so don't have access

to

> > DOC Band - and won't be going to the States just to get it -

they

> > have helmets here at the hosp.....but the lady who posted said

she

> > wasn't happy with it...so what to do!! I need a letter from a

dr to

> > give to my insureance company and then they review it and then

we

> > have 100% coverage so I can't go it alone, I need that note!

> > The chiro is doing some light adjusting with this little poker

they

> > use for babies - he says Logans top bone in the neck movement is

> > stationary and this is why the tort has developed so we need to

get

> > the bone functioning and rotating as it needs then we can do

> > stretching with the PT to help the muscle part of it....make

sense??

> > I am so frustrated I tell you!!

> > Why are we not to let them sleep on their side???

> >

> >

> >

>

[Guest guest]

Hi ,

I don't know where in Canada you live but I can relate my story in

Calgary. It was a battle to get my daughter to just be seen and

evaluated. There is a huge lack of education about tort and plagio

and alot of doctors still say that it will go away on it's own. I

would use this website to find out about the nearest helmet or band

clinic near you that you could commit to visiting every 2 weeks or

so. I would find out the contact people etc. THen I would re-visit

your family doctor and tell her specifically who you want a referral

to go see. Give her the name, location, phone and fax number of the

center you picked. She can say it's not necessary etc but it's not

up to her. Politely explain that you would feel better if a

specialist who sees hundreds of kids with plagio and tort told you

that. If she still refuses, go to a walk-in clinic and insist on

it. They CANNOT refuse. If you do this and see the head-shaping

clinic be prepared that you may have to fight there too. Look at

the photos on this site and educate yourself. See if you can get

your child scanned so that you can have an objective measurement of

how bad etc the plagio is. I was told by the OT and PT at the

headshaping clinic that my daughter was only moderate. Her STarBAnd

showed her to be severe and this was AFTER 3 mths of very intense

repo work at home and physiotherapy. Trust your instincts and push

for what you think is right.

Good luck,

> >

> > hi there,

> >

> > thanks for answering my post......well I would like to get one

but

> > my chiro seems to think that when the tort is fixed the head

will

> > naturally round out on its own because the pressure of the

muscles

> > pulling on the skull will be relieved (that said he also thinks

his

> > flat spot is worse than it should given his mild tort) so i

would

> > like to get a helmet but am unsure if they will give me

one....my

> > fam phys said it wasn't bad so i would need to get her on board

for

> > a referral or another lady said she just called the orthotica

dept

> > at sick kids hospital and they just called her dr and then she

got

> > in to see the orthotist......i am in canada so don't have access

to

> > DOC Band - and won't be going to the States just to get it -

they

> > have helmets here at the hosp.....but the lady who posted said

she

> > wasn't happy with it...so what to do!! I need a letter from a

dr to

> > give to my insureance company and then they review it and then

we

> > have 100% coverage so I can't go it alone, I need that note!

> > The chiro is doing some light adjusting with this little poker

they

> > use for babies - he says Logans top bone in the neck movement is

> > stationary and this is why the tort has developed so we need to

get

> > the bone functioning and rotating as it needs then we can do

> > stretching with the PT to help the muscle part of it....make

sense??

> > I am so frustrated I tell you!!

> > Why are we not to let them sleep on their side???

> >

> >

> >

>