Re: No longer tolerate T4 in thyroid?

[Guest guest]

>

> > I am having a hard time making it out to my car....or walking accross

> > the room.

> > >

>

> I was like that sometimes before I got Cortef, but not every day.

>

> > > The reason I dropped T4 ( very gradually tapering off!) was

> because I

> > > have trouble with the rapid heart beat too. In my case I think some

> > > of it is due to adrenaline surges with insufficient cortisol.

> > > Cortisol does settle it down for me. I haven't had any trouble with

> > > breathing difficulty.

> >

> When I am having an anxiety attack I will do this too, but I'm not

> having difficulty breathing, just focusing on deep breathing.

>

>

> IMR>>>>NOt sure if it is actually breathing difficulty...just feels

> like it.....

As I've mentioned, I have had lots of anxiety/panic issues, and

breathing symptoms are a significant part of it for me. I have

also had asthma attacks, so I know what it feels like to really

not be getting enough oxygen. In the latter case, your fingernails

and lips will turn a bit blue and, well, it is obvious you are not

getting enough oxygen. Not sure how to describe it, but it is

totally different.

When it is " just " anxiety/panic, you will feel like something is

wrong with your breathing, but it will be hard to pin down exactly

what is wrong. The very worst times for me are when I feel like

I have to pay attention to my breathing because the exhale seems

to not want to end on its own. I feel like if I let my body do

its own thing, I will never inhale again. If this happens when

I am trying to fall asleep, sometimes I will start to drift off

into sleep and suddenly gasp.

I don't get any pounding heart any more. I think that is usually

an adrenaline thing. I haven't had that for a long time. When

my adrenals are in the worst shape (at least by my judgment), my

heart rate slows down. I'm sure this could vary, though, and your

adrenals could still be fried whether adrenaline is making your

heart pound or not.

I find it very comforting to check out my fingernails and lips

when the breathing trouble is happening. I might look a bit

pale and awful, but if my lips and fingernails look white or

pink or a combination of white/pink, I feel some reassurance.

> I think adrenal fatigue may be a factor and there may be other factors

> as well.

>

>

> IMR>>>>Today I added another 2.5 mg of prednisolone and am feeling

> better yet....not great, but much better. For some odd reason, hot

> showers have been very helpful in making me feel better....seems to

> some how relax and open up the lungs or something...can't quite put

> my finger on it, except that I took about 7 showers yesterday, LOL.

In chinese medicine kidney chi (which is related to adrenals) is

strongly affected by cold. Keeping yourself as warm as possible,

always wearing shoes and socks/hose and consuming warm foods and

warming herbs is very helpful for adrenals. Ginger tea is a good

warming herb.

> Then, in the middle of the night, even thogh I took some predniolosne

> right before gong to bed, about 2 hours later I woke up feelng

> badly,and my oral temp was down to 96.2, even though I felt warm and

> jsut crawled out of a toasty down bed. Two hot showers brought it

> back up into the 97.? ranges....

>

> -----------------

>

>

> Were you less stressed when you tapered off the cortef and more

> stressed lately? I have heard of people who wean off of cortef but

> still use it for stress and for infection. I have found that physical

> stress takes about double the usual dose and psychological stress can

> take triple.

>

>

> IMR>>>>>>Hard to say , ...maybe I don't even really know what

> stress is anymore. I fought a good part of the year to keep my

> husband form being sent to prison and send him to a rehab instead.

> and they still gave him a 4 year sentence for DUI, and he didn't hurt

> anybody or damage anything, sigh. That is a lot of stress in and of

> itself...then when I got back up here to Idaho (where I currently

> live) for the second tme this year, it alwasy feels so stressful to

> be up here becasue there is nobody and nothing around me.....peace

> and quiet & isolation, I have found can have its own stress.

When the obvious external stress lets up, sometimes the internal

stress finally gets a chance to express itself. Do you have good

ways to express your feelings? Writing or art (didn't you say

you are an artist?), perhaps some physical expression, or

someone you can talk to about stresses?

> ------------

> >

> > , are you still on large doses of HC?

>

> Yes, more than 20, but still less than pharmacological doses. I have

> been under extreme stress lately.

>

> If I wanted to avoid taking so much HC, I would have to lie around all

> day, and get nothing done. Trouble is that would only increase stress

> levels. HC has been a real life saver for me.

>

> Is there any way that you could get a blood test for electrolytes when

> you are having problems? And maybe have a doc listen to your heart

> and lungs?

>

> IMR>>>>>>>Where would I get the money for that...that is always the

> problem.....I am really all alone now up here, with nobody to help. I

> don't even have a working car now to drive to the town that is not

> too far form here, sigh.....

>

> ....a treadmill test I did 5 years ago, I never could get a square

> answer out of them...when they did an MRI 5 years ago when I had

> eColi, they said there was just a little enlarging of the heart and

> an aorta that was slightly distended and twisted.....(they never told

> me this, but last year I ordered my hospital reports form there and

> saw it on my charts).....more recent EKG's have been fine.... I have

> had a heart murmer detected ever since I was very little (what does

> that mean in practice???)..

Sometimes it is pretty scary to read those reports, because they

will put a lot of information in there to be thorough, but it is

just reporting on your individual characteristics and they are

not always signs of any disease. Usually somewhere on the report

is a summary statement or diagnosis that says what their general

finding is. That would be more informative.

Of course, it would not hurt to contact the doctor who ordered

the test and ask him/her to explain exactly what the results mean

and could what they describe lead to problems and symptoms. You

might also talk a bit what you are experiencing now. Even without

seeing you, they might be able to say something by phone that

would relieve your concerns.

--

> The BEST I have felt for some time was whenI was down in California

> this last time, fighting in the courts, right after I quit the

> Armour, got on T3, took some Angioprim to clear arteries, and got off

> steroids. Within two months afterwards though, every thing has come

> caving in, so it must be from fried adrenals, I am thinking.

> , I think I have heart failure and the steroids weakened my

> heart muscle even more....but now I think I am in quite pronounced

> adrenal stress, and can not get by without the steroids now. I have

> posted about this at the NTH forum as well....they think i need to be

> on more Armour....waiting for more responses.....

>

> somehow the message got cut off here.

>

>

>

> Hmmmmm...I don'think there was much more, if anything else that I had

> posted...

>

> Thanks,

>

> Inga

[Guest guest]

>

> > I am having a hard time making it out to my car....or walking accross

> > the room.

> > >

>

> I was like that sometimes before I got Cortef, but not every day.

>

> > > The reason I dropped T4 ( very gradually tapering off!) was

> because I

> > > have trouble with the rapid heart beat too. In my case I think some

> > > of it is due to adrenaline surges with insufficient cortisol.

> > > Cortisol does settle it down for me. I haven't had any trouble with

> > > breathing difficulty.

> >

> When I am having an anxiety attack I will do this too, but I'm not

> having difficulty breathing, just focusing on deep breathing.

>

>

> IMR>>>>NOt sure if it is actually breathing difficulty...just feels

> like it.....

As I've mentioned, I have had lots of anxiety/panic issues, and

breathing symptoms are a significant part of it for me. I have

also had asthma attacks, so I know what it feels like to really

not be getting enough oxygen. In the latter case, your fingernails

and lips will turn a bit blue and, well, it is obvious you are not

getting enough oxygen. Not sure how to describe it, but it is

totally different.

When it is " just " anxiety/panic, you will feel like something is

wrong with your breathing, but it will be hard to pin down exactly

what is wrong. The very worst times for me are when I feel like

I have to pay attention to my breathing because the exhale seems

to not want to end on its own. I feel like if I let my body do

its own thing, I will never inhale again. If this happens when

I am trying to fall asleep, sometimes I will start to drift off

into sleep and suddenly gasp.

I don't get any pounding heart any more. I think that is usually

an adrenaline thing. I haven't had that for a long time. When

my adrenals are in the worst shape (at least by my judgment), my

heart rate slows down. I'm sure this could vary, though, and your

adrenals could still be fried whether adrenaline is making your

heart pound or not.

I find it very comforting to check out my fingernails and lips

when the breathing trouble is happening. I might look a bit

pale and awful, but if my lips and fingernails look white or

pink or a combination of white/pink, I feel some reassurance.

> I think adrenal fatigue may be a factor and there may be other factors

> as well.

>

>

> IMR>>>>Today I added another 2.5 mg of prednisolone and am feeling

> better yet....not great, but much better. For some odd reason, hot

> showers have been very helpful in making me feel better....seems to

> some how relax and open up the lungs or something...can't quite put

> my finger on it, except that I took about 7 showers yesterday, LOL.

In chinese medicine kidney chi (which is related to adrenals) is

strongly affected by cold. Keeping yourself as warm as possible,

always wearing shoes and socks/hose and consuming warm foods and

warming herbs is very helpful for adrenals. Ginger tea is a good

warming herb.

> Then, in the middle of the night, even thogh I took some predniolosne

> right before gong to bed, about 2 hours later I woke up feelng

> badly,and my oral temp was down to 96.2, even though I felt warm and

> jsut crawled out of a toasty down bed. Two hot showers brought it

> back up into the 97.? ranges....

>

> -----------------

>

>

> Were you less stressed when you tapered off the cortef and more

> stressed lately? I have heard of people who wean off of cortef but

> still use it for stress and for infection. I have found that physical

> stress takes about double the usual dose and psychological stress can

> take triple.

>

>

> IMR>>>>>>Hard to say , ...maybe I don't even really know what

> stress is anymore. I fought a good part of the year to keep my

> husband form being sent to prison and send him to a rehab instead.

> and they still gave him a 4 year sentence for DUI, and he didn't hurt

> anybody or damage anything, sigh. That is a lot of stress in and of

> itself...then when I got back up here to Idaho (where I currently

> live) for the second tme this year, it alwasy feels so stressful to

> be up here becasue there is nobody and nothing around me.....peace

> and quiet & isolation, I have found can have its own stress.

When the obvious external stress lets up, sometimes the internal

stress finally gets a chance to express itself. Do you have good

ways to express your feelings? Writing or art (didn't you say

you are an artist?), perhaps some physical expression, or

someone you can talk to about stresses?

> ------------

> >

> > , are you still on large doses of HC?

>

> Yes, more than 20, but still less than pharmacological doses. I have

> been under extreme stress lately.

>

> If I wanted to avoid taking so much HC, I would have to lie around all

> day, and get nothing done. Trouble is that would only increase stress

> levels. HC has been a real life saver for me.

>

> Is there any way that you could get a blood test for electrolytes when

> you are having problems? And maybe have a doc listen to your heart

> and lungs?

>

> IMR>>>>>>>Where would I get the money for that...that is always the

> problem.....I am really all alone now up here, with nobody to help. I

> don't even have a working car now to drive to the town that is not

> too far form here, sigh.....

>

> ....a treadmill test I did 5 years ago, I never could get a square

> answer out of them...when they did an MRI 5 years ago when I had

> eColi, they said there was just a little enlarging of the heart and

> an aorta that was slightly distended and twisted.....(they never told

> me this, but last year I ordered my hospital reports form there and

> saw it on my charts).....more recent EKG's have been fine.... I have

> had a heart murmer detected ever since I was very little (what does

> that mean in practice???)..

Sometimes it is pretty scary to read those reports, because they

will put a lot of information in there to be thorough, but it is

just reporting on your individual characteristics and they are

not always signs of any disease. Usually somewhere on the report

is a summary statement or diagnosis that says what their general

finding is. That would be more informative.

Of course, it would not hurt to contact the doctor who ordered

the test and ask him/her to explain exactly what the results mean

and could what they describe lead to problems and symptoms. You

might also talk a bit what you are experiencing now. Even without

seeing you, they might be able to say something by phone that

would relieve your concerns.

--

> The BEST I have felt for some time was whenI was down in California

> this last time, fighting in the courts, right after I quit the

> Armour, got on T3, took some Angioprim to clear arteries, and got off

> steroids. Within two months afterwards though, every thing has come

> caving in, so it must be from fried adrenals, I am thinking.

> , I think I have heart failure and the steroids weakened my

> heart muscle even more....but now I think I am in quite pronounced

> adrenal stress, and can not get by without the steroids now. I have

> posted about this at the NTH forum as well....they think i need to be

> on more Armour....waiting for more responses.....

>

> somehow the message got cut off here.

>

>

>

> Hmmmmm...I don'think there was much more, if anything else that I had

> posted...

>

> Thanks,

>

> Inga

[Guest guest]

>

> > I am having a hard time making it out to my car....or walking accross

> > the room.

> > >

>

> I was like that sometimes before I got Cortef, but not every day.

>

> > > The reason I dropped T4 ( very gradually tapering off!) was

> because I

> > > have trouble with the rapid heart beat too. In my case I think some

> > > of it is due to adrenaline surges with insufficient cortisol.

> > > Cortisol does settle it down for me. I haven't had any trouble with

> > > breathing difficulty.

> >

> When I am having an anxiety attack I will do this too, but I'm not

> having difficulty breathing, just focusing on deep breathing.

>

>

> IMR>>>>NOt sure if it is actually breathing difficulty...just feels

> like it.....

As I've mentioned, I have had lots of anxiety/panic issues, and

breathing symptoms are a significant part of it for me. I have

also had asthma attacks, so I know what it feels like to really

not be getting enough oxygen. In the latter case, your fingernails

and lips will turn a bit blue and, well, it is obvious you are not

getting enough oxygen. Not sure how to describe it, but it is

totally different.

When it is " just " anxiety/panic, you will feel like something is

wrong with your breathing, but it will be hard to pin down exactly

what is wrong. The very worst times for me are when I feel like

I have to pay attention to my breathing because the exhale seems

to not want to end on its own. I feel like if I let my body do

its own thing, I will never inhale again. If this happens when

I am trying to fall asleep, sometimes I will start to drift off

into sleep and suddenly gasp.

I don't get any pounding heart any more. I think that is usually

an adrenaline thing. I haven't had that for a long time. When

my adrenals are in the worst shape (at least by my judgment), my

heart rate slows down. I'm sure this could vary, though, and your

adrenals could still be fried whether adrenaline is making your

heart pound or not.

I find it very comforting to check out my fingernails and lips

when the breathing trouble is happening. I might look a bit

pale and awful, but if my lips and fingernails look white or

pink or a combination of white/pink, I feel some reassurance.

> I think adrenal fatigue may be a factor and there may be other factors

> as well.

>

>

> IMR>>>>Today I added another 2.5 mg of prednisolone and am feeling

> better yet....not great, but much better. For some odd reason, hot

> showers have been very helpful in making me feel better....seems to

> some how relax and open up the lungs or something...can't quite put

> my finger on it, except that I took about 7 showers yesterday, LOL.

In chinese medicine kidney chi (which is related to adrenals) is

strongly affected by cold. Keeping yourself as warm as possible,

always wearing shoes and socks/hose and consuming warm foods and

warming herbs is very helpful for adrenals. Ginger tea is a good

warming herb.

> Then, in the middle of the night, even thogh I took some predniolosne

> right before gong to bed, about 2 hours later I woke up feelng

> badly,and my oral temp was down to 96.2, even though I felt warm and

> jsut crawled out of a toasty down bed. Two hot showers brought it

> back up into the 97.? ranges....

>

> -----------------

>

>

> Were you less stressed when you tapered off the cortef and more

> stressed lately? I have heard of people who wean off of cortef but

> still use it for stress and for infection. I have found that physical

> stress takes about double the usual dose and psychological stress can

> take triple.

>

>

> IMR>>>>>>Hard to say , ...maybe I don't even really know what

> stress is anymore. I fought a good part of the year to keep my

> husband form being sent to prison and send him to a rehab instead.

> and they still gave him a 4 year sentence for DUI, and he didn't hurt

> anybody or damage anything, sigh. That is a lot of stress in and of

> itself...then when I got back up here to Idaho (where I currently

> live) for the second tme this year, it alwasy feels so stressful to

> be up here becasue there is nobody and nothing around me.....peace

> and quiet & isolation, I have found can have its own stress.

When the obvious external stress lets up, sometimes the internal

stress finally gets a chance to express itself. Do you have good

ways to express your feelings? Writing or art (didn't you say

you are an artist?), perhaps some physical expression, or

someone you can talk to about stresses?

> ------------

> >

> > , are you still on large doses of HC?

>

> Yes, more than 20, but still less than pharmacological doses. I have

> been under extreme stress lately.

>

> If I wanted to avoid taking so much HC, I would have to lie around all

> day, and get nothing done. Trouble is that would only increase stress

> levels. HC has been a real life saver for me.

>

> Is there any way that you could get a blood test for electrolytes when

> you are having problems? And maybe have a doc listen to your heart

> and lungs?

>

> IMR>>>>>>>Where would I get the money for that...that is always the

> problem.....I am really all alone now up here, with nobody to help. I

> don't even have a working car now to drive to the town that is not

> too far form here, sigh.....

>

> ....a treadmill test I did 5 years ago, I never could get a square

> answer out of them...when they did an MRI 5 years ago when I had

> eColi, they said there was just a little enlarging of the heart and

> an aorta that was slightly distended and twisted.....(they never told

> me this, but last year I ordered my hospital reports form there and

> saw it on my charts).....more recent EKG's have been fine.... I have

> had a heart murmer detected ever since I was very little (what does

> that mean in practice???)..

Sometimes it is pretty scary to read those reports, because they

will put a lot of information in there to be thorough, but it is

just reporting on your individual characteristics and they are

not always signs of any disease. Usually somewhere on the report

is a summary statement or diagnosis that says what their general

finding is. That would be more informative.

Of course, it would not hurt to contact the doctor who ordered

the test and ask him/her to explain exactly what the results mean

and could what they describe lead to problems and symptoms. You

might also talk a bit what you are experiencing now. Even without

seeing you, they might be able to say something by phone that

would relieve your concerns.

--

> The BEST I have felt for some time was whenI was down in California

> this last time, fighting in the courts, right after I quit the

> Armour, got on T3, took some Angioprim to clear arteries, and got off

> steroids. Within two months afterwards though, every thing has come

> caving in, so it must be from fried adrenals, I am thinking.

> , I think I have heart failure and the steroids weakened my

> heart muscle even more....but now I think I am in quite pronounced

> adrenal stress, and can not get by without the steroids now. I have

> posted about this at the NTH forum as well....they think i need to be

> on more Armour....waiting for more responses.....

>

> somehow the message got cut off here.

>

>

>

> Hmmmmm...I don'think there was much more, if anything else that I had

> posted...

>

> Thanks,

>

> Inga

[Guest guest]

>

>

> IMR>>>>NOt sure if it is actually breathing difficulty...just feels

> like it.....

I find it very comforting to check out my fingernails and lips

when the breathing trouble is happening. I might look a bit

pale and awful, but if my lips and fingernails look white or

pink or a combination of white/pink, I feel some reassurance.

IMR>>>>>>>I like this idea.

tell me, does your face get all awful, horrible and distorted looking

too, and there is no way y9u can make it look normal no matter what?

> I think adrenal fatigue may be a factor and there may be other

factors

> as well.

>

>

> IMR>>>>Today I added another 2.5 mg of prednisolone and am feeling

> better yet....not great, but much better. For some odd reason, hot

> showers have been very helpful in making me feel better....seems to

> some how relax and open up the lungs or something...can't quite put

> my finger on it, except that I took about 7 showers yesterday, LOL.

In chinese medicine kidney chi (which is related to adrenals) is

strongly affected by cold. Keeping yourself as warm as possible,

always wearing shoes and socks/hose and consuming warm foods and

warming herbs is very helpful for adrenals. Ginger tea is a good

warming herb.

IMR>>>>Thanks...good idea... I just happen to have a whole ton of

dried ginger I bought at a CHinese store I can dig out.

When the obvious external stress lets up, sometimes the internal

stress finally gets a chance to express itself. Do you have good

ways to express your feelings? Writing or art (didn't you say

you are an artist?), perhaps some physical expression, or

someone you can talk to about stresses?

IMR>>>>Yes, ithought agout that too. One of the biger stressors I

have had n the last couple of years, is that my creativity and

ability to make manifesrt anything with it has gone out the window,

so this is yet another added stress...my natural born creative outlet

is gone. I reall need to find some way to get out of here and back

amongst people again, as I think that would help, but with no money,

that is a very tall order....will keep on praying for am answer.....

> ------------

>

Sometimes it is pretty scary to read those reports, because they

will put a lot of information in there to be thorough, but it is

just reporting on your individual characteristics and they are

not always signs of any disease. Usually somewhere on the report

is a summary statement or diagnosis that says what their general

finding is. That would be more informative.

IMR>>>>Ah, good,...that is encouraging.....

Of course, it would not hurt to contact the doctor who ordered

the test and ask him/her to explain exactly what the results mean

and could what they describe lead to problems and symptoms. You

might also talk a bit what you are experiencing now. Even without

seeing you, they might be able to say something by phone that

would relieve your concerns.

IMR>>>>Thanks, . I will try that again and see if I can get

anywhere with it this time.

~Inga

-

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[Guest guest]

>

>

> IMR>>>>NOt sure if it is actually breathing difficulty...just feels

> like it.....

I find it very comforting to check out my fingernails and lips

when the breathing trouble is happening. I might look a bit

pale and awful, but if my lips and fingernails look white or

pink or a combination of white/pink, I feel some reassurance.

IMR>>>>>>>I like this idea.

tell me, does your face get all awful, horrible and distorted looking

too, and there is no way y9u can make it look normal no matter what?

> I think adrenal fatigue may be a factor and there may be other

factors

> as well.

>

>

> IMR>>>>Today I added another 2.5 mg of prednisolone and am feeling

> better yet....not great, but much better. For some odd reason, hot

> showers have been very helpful in making me feel better....seems to

> some how relax and open up the lungs or something...can't quite put

> my finger on it, except that I took about 7 showers yesterday, LOL.

In chinese medicine kidney chi (which is related to adrenals) is

strongly affected by cold. Keeping yourself as warm as possible,

always wearing shoes and socks/hose and consuming warm foods and

warming herbs is very helpful for adrenals. Ginger tea is a good

warming herb.

IMR>>>>Thanks...good idea... I just happen to have a whole ton of

dried ginger I bought at a CHinese store I can dig out.

When the obvious external stress lets up, sometimes the internal

stress finally gets a chance to express itself. Do you have good

ways to express your feelings? Writing or art (didn't you say

you are an artist?), perhaps some physical expression, or

someone you can talk to about stresses?

IMR>>>>Yes, ithought agout that too. One of the biger stressors I

have had n the last couple of years, is that my creativity and

ability to make manifesrt anything with it has gone out the window,

so this is yet another added stress...my natural born creative outlet

is gone. I reall need to find some way to get out of here and back

amongst people again, as I think that would help, but with no money,

that is a very tall order....will keep on praying for am answer.....

> ------------

>

Sometimes it is pretty scary to read those reports, because they

will put a lot of information in there to be thorough, but it is

just reporting on your individual characteristics and they are

not always signs of any disease. Usually somewhere on the report

is a summary statement or diagnosis that says what their general

finding is. That would be more informative.

IMR>>>>Ah, good,...that is encouraging.....

Of course, it would not hurt to contact the doctor who ordered

the test and ask him/her to explain exactly what the results mean

and could what they describe lead to problems and symptoms. You

might also talk a bit what you are experiencing now. Even without

seeing you, they might be able to say something by phone that

would relieve your concerns.

IMR>>>>Thanks, . I will try that again and see if I can get

anywhere with it this time.

~Inga

-

__._,_. Switch delivery to Daily Digest | Switch format to Traditional

Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe

Recent Activity

11

New Members

2

New Files

Visit Your Group