Re: New To Group (Follow Up)

[Guest guest]

Hi Cris,

Thanks for the update. Charlie is well on his way. We've had some

members get awesome treatment at MFB and we've had members get

horrible treatment at MFB. It's going to be up to you to really stay

on top of the situation. Follow your Mommy instinct, it's seldom if

ever wrong. I hink all of us here at one point felt like our baby's

plaigo was somehow our fault. You're not alone in your feelings. I'm

glad you know this isn't your fault!!!!!!!! I hope you'll post pics of

him in his newly painted and decorated band. Let us know when his band

is in.

>

> Hello All!

>

> Just a quick follow up to my post from yesterday.

>

> Yes, I went to MFB in Grand Rapids, MI today and saw a

> very nice physician, Rex Brown. The receptionist and

> intake reps were all very nice to me. They also made

> a special effort to connect with Charlie, too. I

> appreciated that.

>

> Dr. Brown looked at Charlie and immediately started

> talking about fitting him in the helmet, how quickly

> we should see results, etc. That was even before my

> DS was scanned. He did a Karate Kid trick where he

> felt the back of Charlie's head and said " It's big and

> round, isn't it? Except in the back. " It made me

> laugh, but he repeated again that his head was round.

> My sis said it's round like a basketball. I never

> thought twice about it until the doctor said that was

> not the ideal shape for a head.

>

> Long story short, he had some growth issues in the

> womb, which caused the roundness in his head.

> Sleeping on his back caused the flatness. He has

> Brachycephalitis, I think he called it. That is our

> issue - big, round and flat.

>

> I didn't even have to ask my questions or push the

> issue of the helmet/band. He was on board from the

> beginning. Charlie's measurements are 1.2 points

> outside of " norm. " He said if the insurance company

> will not pay, he will go to bat for me to show why it

> is necessary and hope that they will pay at least part

> of the cost. That made me feel great, though I'm more

> than willing to pay out of pocket if necessary.

>

> Charlie was a trooper during his pictures and scan. I

> kept the little stocking cap he wore for his pictures.

> I'm a " collector. " It'll look great in his

> scrapbook!

>

> We go back 2 weeks from today for his fitting.

>

> The only thing I didn't like was that some of the

> words he used felt accusatory. I left the office

> feeling like this was partially my fault. After a

> good cry on the way home I started to feel better. I

> have cuddled and kissed my little one all night long

> and promised him that I was going to make him all

> better.

>

> Rationally I know I am not culpable for his condition.

> But I was on bedrest for 4 months and did nothing but

> research and read about my own condition, effects it

> could have on the baby, early infant parenting, etc.

> I don't know how I missed this sleep rotation thing.

> But it's all in the past, and the important thing is I

> know now so I'll be ready for the next one.

>

> We're using the STAR Band, did I say that already? I

> would prefer the DOC Band because they sell themselves

> with a bit more confidence, and the time DS will have

> to be in the band is a bit shorter, but Doc Brown

> seems very nice and very capable. Plus, GR is a lot

> closer to us than Chicago!

>

> I suppose that's all for now. Are there any Michigan

> people who want to share their experiences with MFB

> and the STAR Band? I looked at the Before/After with

> the SB and it was a lot reassuring.

>

> My next project is to design the helmet. I am going

> to paint it and put stickers on it. Don't know about

> putting his name on it yet - I'm a bit paranoid about

> strangers knowing his name. I saw a picture of a

> parent who had designed his son's helmet to look like

> a Detroit Lions football helmet. Very creative - very

> cool.

>

> Thanks for being here, guys. It's nice to have you

> all to talk with.

>

> Have a great night!

>

> Cris (in Michigan)

>

>

>

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

[Guest guest]

Hi Cris,

Thanks for the update. Charlie is well on his way. We've had some

members get awesome treatment at MFB and we've had members get

horrible treatment at MFB. It's going to be up to you to really stay

on top of the situation. Follow your Mommy instinct, it's seldom if

ever wrong. I hink all of us here at one point felt like our baby's

plaigo was somehow our fault. You're not alone in your feelings. I'm

glad you know this isn't your fault!!!!!!!! I hope you'll post pics of

him in his newly painted and decorated band. Let us know when his band

is in.

>

> Hello All!

>

> Just a quick follow up to my post from yesterday.

>

> Yes, I went to MFB in Grand Rapids, MI today and saw a

> very nice physician, Rex Brown. The receptionist and

> intake reps were all very nice to me. They also made

> a special effort to connect with Charlie, too. I

> appreciated that.

>

> Dr. Brown looked at Charlie and immediately started

> talking about fitting him in the helmet, how quickly

> we should see results, etc. That was even before my

> DS was scanned. He did a Karate Kid trick where he

> felt the back of Charlie's head and said " It's big and

> round, isn't it? Except in the back. " It made me

> laugh, but he repeated again that his head was round.

> My sis said it's round like a basketball. I never

> thought twice about it until the doctor said that was

> not the ideal shape for a head.

>

> Long story short, he had some growth issues in the

> womb, which caused the roundness in his head.

> Sleeping on his back caused the flatness. He has

> Brachycephalitis, I think he called it. That is our

> issue - big, round and flat.

>

> I didn't even have to ask my questions or push the

> issue of the helmet/band. He was on board from the

> beginning. Charlie's measurements are 1.2 points

> outside of " norm. " He said if the insurance company

> will not pay, he will go to bat for me to show why it

> is necessary and hope that they will pay at least part

> of the cost. That made me feel great, though I'm more

> than willing to pay out of pocket if necessary.

>

> Charlie was a trooper during his pictures and scan. I

> kept the little stocking cap he wore for his pictures.

> I'm a " collector. " It'll look great in his

> scrapbook!

>

> We go back 2 weeks from today for his fitting.

>

> The only thing I didn't like was that some of the

> words he used felt accusatory. I left the office

> feeling like this was partially my fault. After a

> good cry on the way home I started to feel better. I

> have cuddled and kissed my little one all night long

> and promised him that I was going to make him all

> better.

>

> Rationally I know I am not culpable for his condition.

> But I was on bedrest for 4 months and did nothing but

> research and read about my own condition, effects it

> could have on the baby, early infant parenting, etc.

> I don't know how I missed this sleep rotation thing.

> But it's all in the past, and the important thing is I

> know now so I'll be ready for the next one.

>

> We're using the STAR Band, did I say that already? I

> would prefer the DOC Band because they sell themselves

> with a bit more confidence, and the time DS will have

> to be in the band is a bit shorter, but Doc Brown

> seems very nice and very capable. Plus, GR is a lot

> closer to us than Chicago!

>

> I suppose that's all for now. Are there any Michigan

> people who want to share their experiences with MFB

> and the STAR Band? I looked at the Before/After with

> the SB and it was a lot reassuring.

>

> My next project is to design the helmet. I am going

> to paint it and put stickers on it. Don't know about

> putting his name on it yet - I'm a bit paranoid about

> strangers knowing his name. I saw a picture of a

> parent who had designed his son's helmet to look like

> a Detroit Lions football helmet. Very creative - very

> cool.

>

> Thanks for being here, guys. It's nice to have you

> all to talk with.

>

> Have a great night!

>

> Cris (in Michigan)

>

>

>

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

[Guest guest]

(and others):

How long will I take before I know the treatment is

not working? Do I wait a month? Six weeks?

Longer? And if the STAR Band is not successful in

reshaping my son's head, who do I ask for the second

RX for the DOC Band?

My MOMMY Instinct is already screaming " GO WITH THE

DOC BAND! " Should I call MFB tomorrow and cancel the

helmet? Should I go to my pediatrician and request a

RX for the DOC Band tomorrow?

Why start with something that may or may not work when

there is a proven therapy out there?

Am I obsessing now?

Don't know what to do...

Cris (in Michigan)

--- stripes6060 <taime@...> wrote:

> Hi Cris,

> Thanks for the update. Charlie is well on his way.

> We've had some

> members get awesome treatment at MFB and we've had

> members get

> horrible treatment at MFB. It's going to be up to

> you to really stay

> on top of the situation. Follow your Mommy instinct,

> it's seldom if

> ever wrong. I hink all of us here at one point felt

> like our baby's

> plaigo was somehow our fault. You're not alone in

> your feelings. I'm

> glad you know this isn't your fault!!!!!!!! I hope

> you'll post pics of

> him in his newly painted and decorated band. Let us

> know when his band

> is in.

>

>

> >

> > Hello All!

> >

> > Just a quick follow up to my post from yesterday.

> >

> > Yes, I went to MFB in Grand Rapids, MI today and

> saw a

> > very nice physician, Rex Brown. The receptionist

> and

> > intake reps were all very nice to me. They also

> made

> > a special effort to connect with Charlie, too. I

> > appreciated that.

> >

> > Dr. Brown looked at Charlie and immediately

> started

> > talking about fitting him in the helmet, how

> quickly

> > we should see results, etc. That was even before

> my

> > DS was scanned. He did a Karate Kid trick where

> he

> > felt the back of Charlie's head and said " It's big

> and

> > round, isn't it? Except in the back. " It made me

> > laugh, but he repeated again that his head was

> round.

> > My sis said it's round like a basketball. I never

> > thought twice about it until the doctor said that

> was

> > not the ideal shape for a head.

> >

> > Long story short, he had some growth issues in the

> > womb, which caused the roundness in his head.

> > Sleeping on his back caused the flatness. He has

> > Brachycephalitis, I think he called it. That is

> our

> > issue - big, round and flat.

> >

> > I didn't even have to ask my questions or push the

> > issue of the helmet/band. He was on board from

> the

> > beginning. Charlie's measurements are 1.2 points

> > outside of " norm. " He said if the insurance

> company

> > will not pay, he will go to bat for me to show why

> it

> > is necessary and hope that they will pay at least

> part

> > of the cost. That made me feel great, though I'm

> more

> > than willing to pay out of pocket if necessary.

> >

> > Charlie was a trooper during his pictures and

> scan. I

> > kept the little stocking cap he wore for his

> pictures.

> > I'm a " collector. " It'll look great in his

> > scrapbook!

> >

> > We go back 2 weeks from today for his fitting.

> >

> > The only thing I didn't like was that some of the

> > words he used felt accusatory. I left the office

> > feeling like this was partially my fault. After a

> > good cry on the way home I started to feel better.

> I

> > have cuddled and kissed my little one all night

> long

> > and promised him that I was going to make him all

> > better.

> >

> > Rationally I know I am not culpable for his

> condition.

> > But I was on bedrest for 4 months and did nothing

> but

> > research and read about my own condition, effects

> it

> > could have on the baby, early infant parenting,

> etc.

> > I don't know how I missed this sleep rotation

> thing.

> > But it's all in the past, and the important thing

> is I

> > know now so I'll be ready for the next one.

> >

> > We're using the STAR Band, did I say that already?

> I

> > would prefer the DOC Band because they sell

> themselves

> > with a bit more confidence, and the time DS will

> have

> > to be in the band is a bit shorter, but Doc Brown

> > seems very nice and very capable. Plus, GR is a

> lot

> > closer to us than Chicago!

> >

> > I suppose that's all for now. Are there any

> Michigan

> > people who want to share their experiences with

> MFB

> > and the STAR Band? I looked at the Before/After

> with

> > the SB and it was a lot reassuring.

> >

> > My next project is to design the helmet. I am

> going

> > to paint it and put stickers on it. Don't know

> about

> > putting his name on it yet - I'm a bit paranoid

> about

> > strangers knowing his name. I saw a picture of a

> > parent who had designed his son's helmet to look

> like

> > a Detroit Lions football helmet. Very creative -

> very

> > cool.

> >

> > Thanks for being here, guys. It's nice to have

> you

> > all to talk with.

> >

> > Have a great night!

> >

> > Cris (in Michigan)

> >

> >

> >

> >

> > __________________________________________

> > DSL � Something to write home about.

> > Just $16.99/mo. or less.

> > dsl.

> >

>

>

>

>

>

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

(and others):

How long will I take before I know the treatment is

not working? Do I wait a month? Six weeks?

Longer? And if the STAR Band is not successful in

reshaping my son's head, who do I ask for the second

RX for the DOC Band?

My MOMMY Instinct is already screaming " GO WITH THE

DOC BAND! " Should I call MFB tomorrow and cancel the

helmet? Should I go to my pediatrician and request a

RX for the DOC Band tomorrow?

Why start with something that may or may not work when

there is a proven therapy out there?

Am I obsessing now?

Don't know what to do...

Cris (in Michigan)

--- stripes6060 <taime@...> wrote:

> Hi Cris,

> Thanks for the update. Charlie is well on his way.

> We've had some

> members get awesome treatment at MFB and we've had

> members get

> horrible treatment at MFB. It's going to be up to

> you to really stay

> on top of the situation. Follow your Mommy instinct,

> it's seldom if

> ever wrong. I hink all of us here at one point felt

> like our baby's

> plaigo was somehow our fault. You're not alone in

> your feelings. I'm

> glad you know this isn't your fault!!!!!!!! I hope

> you'll post pics of

> him in his newly painted and decorated band. Let us

> know when his band

> is in.

>

>

> >

> > Hello All!

> >

> > Just a quick follow up to my post from yesterday.

> >

> > Yes, I went to MFB in Grand Rapids, MI today and

> saw a

> > very nice physician, Rex Brown. The receptionist

> and

> > intake reps were all very nice to me. They also

> made

> > a special effort to connect with Charlie, too. I

> > appreciated that.

> >

> > Dr. Brown looked at Charlie and immediately

> started

> > talking about fitting him in the helmet, how

> quickly

> > we should see results, etc. That was even before

> my

> > DS was scanned. He did a Karate Kid trick where

> he

> > felt the back of Charlie's head and said " It's big

> and

> > round, isn't it? Except in the back. " It made me

> > laugh, but he repeated again that his head was

> round.

> > My sis said it's round like a basketball. I never

> > thought twice about it until the doctor said that

> was

> > not the ideal shape for a head.

> >

> > Long story short, he had some growth issues in the

> > womb, which caused the roundness in his head.

> > Sleeping on his back caused the flatness. He has

> > Brachycephalitis, I think he called it. That is

> our

> > issue - big, round and flat.

> >

> > I didn't even have to ask my questions or push the

> > issue of the helmet/band. He was on board from

> the

> > beginning. Charlie's measurements are 1.2 points

> > outside of " norm. " He said if the insurance

> company

> > will not pay, he will go to bat for me to show why

> it

> > is necessary and hope that they will pay at least

> part

> > of the cost. That made me feel great, though I'm

> more

> > than willing to pay out of pocket if necessary.

> >

> > Charlie was a trooper during his pictures and

> scan. I

> > kept the little stocking cap he wore for his

> pictures.

> > I'm a " collector. " It'll look great in his

> > scrapbook!

> >

> > We go back 2 weeks from today for his fitting.

> >

> > The only thing I didn't like was that some of the

> > words he used felt accusatory. I left the office

> > feeling like this was partially my fault. After a

> > good cry on the way home I started to feel better.

> I

> > have cuddled and kissed my little one all night

> long

> > and promised him that I was going to make him all

> > better.

> >

> > Rationally I know I am not culpable for his

> condition.

> > But I was on bedrest for 4 months and did nothing

> but

> > research and read about my own condition, effects

> it

> > could have on the baby, early infant parenting,

> etc.

> > I don't know how I missed this sleep rotation

> thing.

> > But it's all in the past, and the important thing

> is I

> > know now so I'll be ready for the next one.

> >

> > We're using the STAR Band, did I say that already?

> I

> > would prefer the DOC Band because they sell

> themselves

> > with a bit more confidence, and the time DS will

> have

> > to be in the band is a bit shorter, but Doc Brown

> > seems very nice and very capable. Plus, GR is a

> lot

> > closer to us than Chicago!

> >

> > I suppose that's all for now. Are there any

> Michigan

> > people who want to share their experiences with

> MFB

> > and the STAR Band? I looked at the Before/After

> with

> > the SB and it was a lot reassuring.

> >

> > My next project is to design the helmet. I am

> going

> > to paint it and put stickers on it. Don't know

> about

> > putting his name on it yet - I'm a bit paranoid

> about

> > strangers knowing his name. I saw a picture of a

> > parent who had designed his son's helmet to look

> like

> > a Detroit Lions football helmet. Very creative -

> very

> > cool.

> >

> > Thanks for being here, guys. It's nice to have

> you

> > all to talk with.

> >

> > Have a great night!

> >

> > Cris (in Michigan)

> >

> >

> >

> >

> > __________________________________________

> > DSL � Something to write home about.

> > Just $16.99/mo. or less.

> > dsl.

> >

>

>

>

>

>

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

Cris,

Great update. We had a quick chance to talk in chat last night, that

was nice. Don't feel like the doc was blaming you, they just use all

those words because that's what's in the medical descriptions. The

very definition of positional plagiocephaly sounds accusing,lol.

Anyway I am so glad you are on your way. Keep us updated.

CAROLG

>

> Hello All!

>

> Just a quick follow up to my post from yesterday.

>

> Yes, I went to MFB in Grand Rapids, MI today and saw a

> very nice physician, Rex Brown. The receptionist and

> intake reps were all very nice to me. They also made

> a special effort to connect with Charlie, too. I

> appreciated that.

>

> Dr. Brown looked at Charlie and immediately started

> talking about fitting him in the helmet, how quickly

> we should see results, etc. That was even before my

> DS was scanned. He did a Karate Kid trick where he

> felt the back of Charlie's head and said " It's big and

> round, isn't it? Except in the back. " It made me

> laugh, but he repeated again that his head was round.

> My sis said it's round like a basketball. I never

> thought twice about it until the doctor said that was

> not the ideal shape for a head.

>

> Long story short, he had some growth issues in the

> womb, which caused the roundness in his head.

> Sleeping on his back caused the flatness. He has

> Brachycephalitis, I think he called it. That is our

> issue - big, round and flat.

>

> I didn't even have to ask my questions or push the

> issue of the helmet/band. He was on board from the

> beginning. Charlie's measurements are 1.2 points

> outside of " norm. " He said if the insurance company

> will not pay, he will go to bat for me to show why it

> is necessary and hope that they will pay at least part

> of the cost. That made me feel great, though I'm more

> than willing to pay out of pocket if necessary.

>

> Charlie was a trooper during his pictures and scan. I

> kept the little stocking cap he wore for his pictures.

> I'm a " collector. " It'll look great in his

> scrapbook!

>

> We go back 2 weeks from today for his fitting.

>

> The only thing I didn't like was that some of the

> words he used felt accusatory. I left the office

> feeling like this was partially my fault. After a

> good cry on the way home I started to feel better. I

> have cuddled and kissed my little one all night long

> and promised him that I was going to make him all

> better.

>

> Rationally I know I am not culpable for his condition.

> But I was on bedrest for 4 months and did nothing but

> research and read about my own condition, effects it

> could have on the baby, early infant parenting, etc.

> I don't know how I missed this sleep rotation thing.

> But it's all in the past, and the important thing is I

> know now so I'll be ready for the next one.

>

> We're using the STAR Band, did I say that already? I

> would prefer the DOC Band because they sell themselves

> with a bit more confidence, and the time DS will have

> to be in the band is a bit shorter, but Doc Brown

> seems very nice and very capable. Plus, GR is a lot

> closer to us than Chicago!

>

> I suppose that's all for now. Are there any Michigan

> people who want to share their experiences with MFB

> and the STAR Band? I looked at the Before/After with

> the SB and it was a lot reassuring.

>

> My next project is to design the helmet. I am going

> to paint it and put stickers on it. Don't know about

> putting his name on it yet - I'm a bit paranoid about

> strangers knowing his name. I saw a picture of a

> parent who had designed his son's helmet to look like

> a Detroit Lions football helmet. Very creative - very

> cool.

>

> Thanks for being here, guys. It's nice to have you

> all to talk with.

>

> Have a great night!

>

> Cris (in Michigan)

>

>

>

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

[Guest guest]

Cris,

Great update. We had a quick chance to talk in chat last night, that

was nice. Don't feel like the doc was blaming you, they just use all

those words because that's what's in the medical descriptions. The

very definition of positional plagiocephaly sounds accusing,lol.

Anyway I am so glad you are on your way. Keep us updated.

CAROLG

>

> Hello All!

>

> Just a quick follow up to my post from yesterday.

>

> Yes, I went to MFB in Grand Rapids, MI today and saw a

> very nice physician, Rex Brown. The receptionist and

> intake reps were all very nice to me. They also made

> a special effort to connect with Charlie, too. I

> appreciated that.

>

> Dr. Brown looked at Charlie and immediately started

> talking about fitting him in the helmet, how quickly

> we should see results, etc. That was even before my

> DS was scanned. He did a Karate Kid trick where he

> felt the back of Charlie's head and said " It's big and

> round, isn't it? Except in the back. " It made me

> laugh, but he repeated again that his head was round.

> My sis said it's round like a basketball. I never

> thought twice about it until the doctor said that was

> not the ideal shape for a head.

>

> Long story short, he had some growth issues in the

> womb, which caused the roundness in his head.

> Sleeping on his back caused the flatness. He has

> Brachycephalitis, I think he called it. That is our

> issue - big, round and flat.

>

> I didn't even have to ask my questions or push the

> issue of the helmet/band. He was on board from the

> beginning. Charlie's measurements are 1.2 points

> outside of " norm. " He said if the insurance company

> will not pay, he will go to bat for me to show why it

> is necessary and hope that they will pay at least part

> of the cost. That made me feel great, though I'm more

> than willing to pay out of pocket if necessary.

>

> Charlie was a trooper during his pictures and scan. I

> kept the little stocking cap he wore for his pictures.

> I'm a " collector. " It'll look great in his

> scrapbook!

>

> We go back 2 weeks from today for his fitting.

>

> The only thing I didn't like was that some of the

> words he used felt accusatory. I left the office

> feeling like this was partially my fault. After a

> good cry on the way home I started to feel better. I

> have cuddled and kissed my little one all night long

> and promised him that I was going to make him all

> better.

>

> Rationally I know I am not culpable for his condition.

> But I was on bedrest for 4 months and did nothing but

> research and read about my own condition, effects it

> could have on the baby, early infant parenting, etc.

> I don't know how I missed this sleep rotation thing.

> But it's all in the past, and the important thing is I

> know now so I'll be ready for the next one.

>

> We're using the STAR Band, did I say that already? I

> would prefer the DOC Band because they sell themselves

> with a bit more confidence, and the time DS will have

> to be in the band is a bit shorter, but Doc Brown

> seems very nice and very capable. Plus, GR is a lot

> closer to us than Chicago!

>

> I suppose that's all for now. Are there any Michigan

> people who want to share their experiences with MFB

> and the STAR Band? I looked at the Before/After with

> the SB and it was a lot reassuring.

>

> My next project is to design the helmet. I am going

> to paint it and put stickers on it. Don't know about

> putting his name on it yet - I'm a bit paranoid about

> strangers knowing his name. I saw a picture of a

> parent who had designed his son's helmet to look like

> a Detroit Lions football helmet. Very creative - very

> cool.

>

> Thanks for being here, guys. It's nice to have you

> all to talk with.

>

> Have a great night!

>

> Cris (in Michigan)

>

>

>

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

[Guest guest]

Don't worry too much if you do decide to put his name on. I was a bit

paranoid about it too. Then I realized my daughter's too young to be

called away by strangers. Of course it's totally up to you. We did put

Liliana's name on both bands in clear colorful letters and most people

still miss it. The best is when people ask what HIS name is! lol

~

> >

> > Hello All!

> >

> > Just a quick follow up to my post from yesterday.

> >

> > Yes, I went to MFB in Grand Rapids, MI today and saw a

> > very nice physician, Rex Brown. The receptionist and

> > intake reps were all very nice to me. They also made

> > a special effort to connect with Charlie, too. I

> > appreciated that.

> >

> > Dr. Brown looked at Charlie and immediately started

> > talking about fitting him in the helmet, how quickly

> > we should see results, etc. That was even before my

> > DS was scanned. He did a Karate Kid trick where he

> > felt the back of Charlie's head and said " It's big and

> > round, isn't it? Except in the back. " It made me

> > laugh, but he repeated again that his head was round.

> > My sis said it's round like a basketball. I never

> > thought twice about it until the doctor said that was

> > not the ideal shape for a head.

> >

> > Long story short, he had some growth issues in the

> > womb, which caused the roundness in his head.

> > Sleeping on his back caused the flatness. He has

> > Brachycephalitis, I think he called it. That is our

> > issue - big, round and flat.

> >

> > I didn't even have to ask my questions or push the

> > issue of the helmet/band. He was on board from the

> > beginning. Charlie's measurements are 1.2 points

> > outside of " norm. " He said if the insurance company

> > will not pay, he will go to bat for me to show why it

> > is necessary and hope that they will pay at least part

> > of the cost. That made me feel great, though I'm more

> > than willing to pay out of pocket if necessary.

> >

> > Charlie was a trooper during his pictures and scan. I

> > kept the little stocking cap he wore for his pictures.

> > I'm a " collector. " It'll look great in his

> > scrapbook!

> >

> > We go back 2 weeks from today for his fitting.

> >

> > The only thing I didn't like was that some of the

> > words he used felt accusatory. I left the office

> > feeling like this was partially my fault. After a

> > good cry on the way home I started to feel better. I

> > have cuddled and kissed my little one all night long

> > and promised him that I was going to make him all

> > better.

> >

> > Rationally I know I am not culpable for his condition.

> > But I was on bedrest for 4 months and did nothing but

> > research and read about my own condition, effects it

> > could have on the baby, early infant parenting, etc.

> > I don't know how I missed this sleep rotation thing.

> > But it's all in the past, and the important thing is I

> > know now so I'll be ready for the next one.

> >

> > We're using the STAR Band, did I say that already? I

> > would prefer the DOC Band because they sell themselves

> > with a bit more confidence, and the time DS will have

> > to be in the band is a bit shorter, but Doc Brown

> > seems very nice and very capable. Plus, GR is a lot

> > closer to us than Chicago!

> >

> > I suppose that's all for now. Are there any Michigan

> > people who want to share their experiences with MFB

> > and the STAR Band? I looked at the Before/After with

> > the SB and it was a lot reassuring.

> >

> > My next project is to design the helmet. I am going

> > to paint it and put stickers on it. Don't know about

> > putting his name on it yet - I'm a bit paranoid about

> > strangers knowing his name. I saw a picture of a

> > parent who had designed his son's helmet to look like

> > a Detroit Lions football helmet. Very creative - very

> > cool.

> >

> > Thanks for being here, guys. It's nice to have you

> > all to talk with.

> >

> > Have a great night!

> >

> > Cris (in Michigan)

> >

> >

> >

> >

> > __________________________________________

> > DSL – Something to write home about.

> > Just $16.99/mo. or less.

> > dsl.

> >

>

[Guest guest]

Don't worry too much if you do decide to put his name on. I was a bit

paranoid about it too. Then I realized my daughter's too young to be

called away by strangers. Of course it's totally up to you. We did put

Liliana's name on both bands in clear colorful letters and most people

still miss it. The best is when people ask what HIS name is! lol

~

> >

> > Hello All!

> >

> > Just a quick follow up to my post from yesterday.

> >

> > Yes, I went to MFB in Grand Rapids, MI today and saw a

> > very nice physician, Rex Brown. The receptionist and

> > intake reps were all very nice to me. They also made

> > a special effort to connect with Charlie, too. I

> > appreciated that.

> >

> > Dr. Brown looked at Charlie and immediately started

> > talking about fitting him in the helmet, how quickly

> > we should see results, etc. That was even before my

> > DS was scanned. He did a Karate Kid trick where he

> > felt the back of Charlie's head and said " It's big and

> > round, isn't it? Except in the back. " It made me

> > laugh, but he repeated again that his head was round.

> > My sis said it's round like a basketball. I never

> > thought twice about it until the doctor said that was

> > not the ideal shape for a head.

> >

> > Long story short, he had some growth issues in the

> > womb, which caused the roundness in his head.

> > Sleeping on his back caused the flatness. He has

> > Brachycephalitis, I think he called it. That is our

> > issue - big, round and flat.

> >

> > I didn't even have to ask my questions or push the

> > issue of the helmet/band. He was on board from the

> > beginning. Charlie's measurements are 1.2 points

> > outside of " norm. " He said if the insurance company

> > will not pay, he will go to bat for me to show why it

> > is necessary and hope that they will pay at least part

> > of the cost. That made me feel great, though I'm more

> > than willing to pay out of pocket if necessary.

> >

> > Charlie was a trooper during his pictures and scan. I

> > kept the little stocking cap he wore for his pictures.

> > I'm a " collector. " It'll look great in his

> > scrapbook!

> >

> > We go back 2 weeks from today for his fitting.

> >

> > The only thing I didn't like was that some of the

> > words he used felt accusatory. I left the office

> > feeling like this was partially my fault. After a

> > good cry on the way home I started to feel better. I

> > have cuddled and kissed my little one all night long

> > and promised him that I was going to make him all

> > better.

> >

> > Rationally I know I am not culpable for his condition.

> > But I was on bedrest for 4 months and did nothing but

> > research and read about my own condition, effects it

> > could have on the baby, early infant parenting, etc.

> > I don't know how I missed this sleep rotation thing.

> > But it's all in the past, and the important thing is I

> > know now so I'll be ready for the next one.

> >

> > We're using the STAR Band, did I say that already? I

> > would prefer the DOC Band because they sell themselves

> > with a bit more confidence, and the time DS will have

> > to be in the band is a bit shorter, but Doc Brown

> > seems very nice and very capable. Plus, GR is a lot

> > closer to us than Chicago!

> >

> > I suppose that's all for now. Are there any Michigan

> > people who want to share their experiences with MFB

> > and the STAR Band? I looked at the Before/After with

> > the SB and it was a lot reassuring.

> >

> > My next project is to design the helmet. I am going

> > to paint it and put stickers on it. Don't know about

> > putting his name on it yet - I'm a bit paranoid about

> > strangers knowing his name. I saw a picture of a

> > parent who had designed his son's helmet to look like

> > a Detroit Lions football helmet. Very creative - very

> > cool.

> >

> > Thanks for being here, guys. It's nice to have you

> > all to talk with.

> >

> > Have a great night!

> >

> > Cris (in Michigan)

> >

> >

> >

> >

> > __________________________________________

> > DSL – Something to write home about.

> > Just $16.99/mo. or less.

> > dsl.

> >

>