Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Georgia is a little blue eyed beauty! I can't wait to post our Before/After pics when Charlie's head is done baking. Thanks for sharing. --- Gianopulos <m.gianopulos@...> wrote: > Cris, > > I truly do believe in " mommy instinct. " However, I > am wondering why you > already mistrust the Starband? Is it the band or > the practitioners that you > are uneasy about. Although my daughter Georgia did > not have brachy (she had > plagio) we got excellent results with our Starband > which she wore from > approx 7 months until 10 months of age. You can see > her pictures in the > photo album (our plagio kids--the G section). The > Starband also has FDA > approval and with an experienced orthotist should > provide good results. If > you are concerned about the providers, that is a > different story and then > you need to go to another facility regardless of > which product they use. > > Good luck, > (mom to Georgia, DDH/plagio, Starband grad > 11/05) > > Re: Re: New To Group (Follow Up) > > > (and others): > > How long will I take before I know the treatment is > not working? Do I wait a month? Six weeks? > Longer? And if the STAR Band is not successful in > reshaping my son's head, who do I ask for the second > RX for the DOC Band? > > My MOMMY Instinct is already screaming " GO WITH THE > DOC BAND! " Should I call MFB tomorrow and cancel > the > helmet? Should I go to my pediatrician and request > a > RX for the DOC Band tomorrow? > > Why start with something that may or may not work > when > there is a proven therapy out there? > > Am I obsessing now? > > Don't know what to do... > > Cris (in Michigan) > > --- stripes6060 <taime@...> wrote: > > > Hi Cris, > > Thanks for the update. Charlie is well on his way. > > We've had some > > members get awesome treatment at MFB and we've had > > members get > > horrible treatment at MFB. It's going to be up to > > you to really stay > > on top of the situation. Follow your Mommy > instinct, > > it's seldom if > > ever wrong. I hink all of us here at one point > felt > > like our baby's > > plaigo was somehow our fault. You're not alone in > > your feelings. I'm > > glad you know this isn't your fault!!!!!!!! I hope > > you'll post pics of > > him in his newly painted and decorated band. Let > us > > know when his band > > is in. > > > > > > > > > > Hello All! > > > > > > Just a quick follow up to my post from > yesterday. > > > > > > Yes, I went to MFB in Grand Rapids, MI today and > > saw a > > > very nice physician, Rex Brown. The > receptionist > > and > > > intake reps were all very nice to me. They also > > made > > > a special effort to connect with Charlie, too. > I appreciated that. > > > > > > Dr. Brown looked at Charlie and immediately > > started > > > talking about fitting him in the helmet, how > > quickly > > > we should see results, etc. That was even > before > > my > > > DS was scanned. He did a Karate Kid trick where > > he > > > felt the back of Charlie's head and said " It's > big > > and > > > round, isn't it? Except in the back. " It made > me > > > laugh, but he repeated again that his head was > > round. > > > My sis said it's round like a basketball. I > never > > > thought twice about it until the doctor said > that > > was > > > not the ideal shape for a head. > > > > > > Long story short, he had some growth issues in > the > > > womb, which caused the roundness in his head. > > > Sleeping on his back caused the flatness. He > has > > > Brachycephalitis, I think he called it. That is > > our > > > issue - big, round and flat. > > > > > > I didn't even have to ask my questions or push > the > > > issue of the helmet/band. He was on board from > > the > > > beginning. Charlie's measurements are 1.2 points > > > outside of " norm. " He said if the insurance > > company > > > will not pay, he will go to bat for me to show > why > > it > > > is necessary and hope that they will pay at > least > > part > > > of the cost. That made me feel great, though I'm > > more > > > than willing to pay out of pocket if necessary. > > > > > > Charlie was a trooper during his pictures and > > scan. I > > > kept the little stocking cap he wore for his > > pictures. > > > I'm a " collector. " It'll look great in his > > > scrapbook! > > > > > > We go back 2 weeks from today for his fitting. > > > > > > The only thing I didn't like was that some of > the > > > words he used felt accusatory. I left the > office > > > feeling like this was partially my fault. After > a > > > good cry on the way home I started to feel > better. > > I > > > have cuddled and kissed my little one all night > > long > > > and promised him that I was going to make him > all > > > better. > > > > > > Rationally I know I am not culpable for his > > condition. > > > But I was on bedrest for 4 months and did > nothing > > but > > > research and read about my own condition, > effects > > it > > > could have on the baby, early infant parenting, > > etc. > > > I don't know how I missed this sleep rotation > > thing. > > > But it's all in the past, and the important > thing > > is I > > > know now so I'll be ready for the next one. > > > > > > We're using the STAR Band, did I say that > already? > > I > > > would prefer the DOC Band because they sell > > themselves > > > with a bit more confidence, and the time DS will > > have > > > to be in the band is a bit shorter, but Doc > Brown > > > seems very nice and very capable. Plus, GR is a > > lot > > > closer to us than Chicago! > > > > > > I suppose that's all for now. Are there any > > Michigan > > > people who want to share their experiences with > > MFB > > > and the STAR Band? I looked at the Before/After > > with > > > the SB and it was a lot reassuring. > > > > > > My next project is to design the helmet. I am > > going > > > to paint it and put stickers on it. Don't know > > about > > > putting his name on it yet - I'm a bit paranoid > > about > > > strangers knowing his name. I saw a picture of > a > > > parent who had designed his son's helmet to look > > like > > > a Detroit Lions football helmet. Very creative > - > > very > > > cool. > > > > > > Thanks for being here, guys. It's nice to have > > you > > > all to talk with. > > > > > > Have a great night! > > > > > > Cris (in Michigan) > > > > > > > > > > > > > > > __________________________________________ > > > DSL � Something to write home about. > > > Just $16.99/mo. or less. > > > dsl. > > > > > > > > > > > > > > > > > > > > __________________________________________ > DSL � Something to write home about. > Just $16.99/mo. or less. > dsl. > > > > > > For more plagio info, go to > www.plagiocephaly.org/support > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Georgia is a little blue eyed beauty! I can't wait to post our Before/After pics when Charlie's head is done baking. Thanks for sharing. --- Gianopulos <m.gianopulos@...> wrote: > Cris, > > I truly do believe in " mommy instinct. " However, I > am wondering why you > already mistrust the Starband? Is it the band or > the practitioners that you > are uneasy about. Although my daughter Georgia did > not have brachy (she had > plagio) we got excellent results with our Starband > which she wore from > approx 7 months until 10 months of age. You can see > her pictures in the > photo album (our plagio kids--the G section). The > Starband also has FDA > approval and with an experienced orthotist should > provide good results. If > you are concerned about the providers, that is a > different story and then > you need to go to another facility regardless of > which product they use. > > Good luck, > (mom to Georgia, DDH/plagio, Starband grad > 11/05) > > Re: Re: New To Group (Follow Up) > > > (and others): > > How long will I take before I know the treatment is > not working? Do I wait a month? Six weeks? > Longer? And if the STAR Band is not successful in > reshaping my son's head, who do I ask for the second > RX for the DOC Band? > > My MOMMY Instinct is already screaming " GO WITH THE > DOC BAND! " Should I call MFB tomorrow and cancel > the > helmet? Should I go to my pediatrician and request > a > RX for the DOC Band tomorrow? > > Why start with something that may or may not work > when > there is a proven therapy out there? > > Am I obsessing now? > > Don't know what to do... > > Cris (in Michigan) > > --- stripes6060 <taime@...> wrote: > > > Hi Cris, > > Thanks for the update. Charlie is well on his way. > > We've had some > > members get awesome treatment at MFB and we've had > > members get > > horrible treatment at MFB. It's going to be up to > > you to really stay > > on top of the situation. Follow your Mommy > instinct, > > it's seldom if > > ever wrong. I hink all of us here at one point > felt > > like our baby's > > plaigo was somehow our fault. You're not alone in > > your feelings. I'm > > glad you know this isn't your fault!!!!!!!! I hope > > you'll post pics of > > him in his newly painted and decorated band. Let > us > > know when his band > > is in. > > > > > > > > > > Hello All! > > > > > > Just a quick follow up to my post from > yesterday. > > > > > > Yes, I went to MFB in Grand Rapids, MI today and > > saw a > > > very nice physician, Rex Brown. The > receptionist > > and > > > intake reps were all very nice to me. They also > > made > > > a special effort to connect with Charlie, too. > I appreciated that. > > > > > > Dr. Brown looked at Charlie and immediately > > started > > > talking about fitting him in the helmet, how > > quickly > > > we should see results, etc. That was even > before > > my > > > DS was scanned. He did a Karate Kid trick where > > he > > > felt the back of Charlie's head and said " It's > big > > and > > > round, isn't it? Except in the back. " It made > me > > > laugh, but he repeated again that his head was > > round. > > > My sis said it's round like a basketball. I > never > > > thought twice about it until the doctor said > that > > was > > > not the ideal shape for a head. > > > > > > Long story short, he had some growth issues in > the > > > womb, which caused the roundness in his head. > > > Sleeping on his back caused the flatness. He > has > > > Brachycephalitis, I think he called it. That is > > our > > > issue - big, round and flat. > > > > > > I didn't even have to ask my questions or push > the > > > issue of the helmet/band. He was on board from > > the > > > beginning. Charlie's measurements are 1.2 points > > > outside of " norm. " He said if the insurance > > company > > > will not pay, he will go to bat for me to show > why > > it > > > is necessary and hope that they will pay at > least > > part > > > of the cost. That made me feel great, though I'm > > more > > > than willing to pay out of pocket if necessary. > > > > > > Charlie was a trooper during his pictures and > > scan. I > > > kept the little stocking cap he wore for his > > pictures. > > > I'm a " collector. " It'll look great in his > > > scrapbook! > > > > > > We go back 2 weeks from today for his fitting. > > > > > > The only thing I didn't like was that some of > the > > > words he used felt accusatory. I left the > office > > > feeling like this was partially my fault. After > a > > > good cry on the way home I started to feel > better. > > I > > > have cuddled and kissed my little one all night > > long > > > and promised him that I was going to make him > all > > > better. > > > > > > Rationally I know I am not culpable for his > > condition. > > > But I was on bedrest for 4 months and did > nothing > > but > > > research and read about my own condition, > effects > > it > > > could have on the baby, early infant parenting, > > etc. > > > I don't know how I missed this sleep rotation > > thing. > > > But it's all in the past, and the important > thing > > is I > > > know now so I'll be ready for the next one. > > > > > > We're using the STAR Band, did I say that > already? > > I > > > would prefer the DOC Band because they sell > > themselves > > > with a bit more confidence, and the time DS will > > have > > > to be in the band is a bit shorter, but Doc > Brown > > > seems very nice and very capable. Plus, GR is a > > lot > > > closer to us than Chicago! > > > > > > I suppose that's all for now. Are there any > > Michigan > > > people who want to share their experiences with > > MFB > > > and the STAR Band? I looked at the Before/After > > with > > > the SB and it was a lot reassuring. > > > > > > My next project is to design the helmet. I am > > going > > > to paint it and put stickers on it. Don't know > > about > > > putting his name on it yet - I'm a bit paranoid > > about > > > strangers knowing his name. I saw a picture of > a > > > parent who had designed his son's helmet to look > > like > > > a Detroit Lions football helmet. Very creative > - > > very > > > cool. > > > > > > Thanks for being here, guys. It's nice to have > > you > > > all to talk with. > > > > > > Have a great night! > > > > > > Cris (in Michigan) > > > > > > > > > > > > > > > __________________________________________ > > > DSL � Something to write home about. > > > Just $16.99/mo. or less. > > > dsl. > > > > > > > > > > > > > > > > > > > > __________________________________________ > DSL � Something to write home about. > Just $16.99/mo. or less. > dsl. > > > > > > For more plagio info, go to > www.plagiocephaly.org/support > Quote Link to comment Share on other sites More sharing options...
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