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Hi there,

Yes, I have noticed the same thing. My son has only been banded for two weeks and we rarely take him out anywhere, but just the other night we went out to eat at a restaurant and to the grocery store. Believe it or not, we were actually asked FIVE TIMES "what's wrong with him" or "what happened"!!! The audacity and nerve of people amaze me. I'm trying to use people's ignorance and rudeness as a tool to educate them on the condition and explain to them exactly what's happening - every time I explained it they looked even more confused! LOL. :)

I just know that I, personally, would never go up to a parent of a child who had ANY type of oddity, be it a helmet, a wheel chair, breathing device, even a cast, and have the nerve to actually ask about it. I guess there are always those people out there though...

I know how you feel...I have a two year old and my five month old (he's banded) and everyone used to goo-goo all over them in public...it seems as if they either ask rude questions now or avoid them altogether. BUT, perhaps a lot of it is my own paranoia as well. ;)

Just wanted you to know you're not alone...

Very best,

Mommy to Wes - 5 months old, DOCband since 3/10

In a message dated 3/24/2006 8:39:47 P.M. Central Standard Time, jenniferljb@... writes:

OK so I knew that the helmet would attract attention but this is crazy. Why is it bothering me so much? My banded baby is a twin so before the band we would get stopped every five minutes and told how cute they are :-). Now that he's wearing the band people stare and give side glances but they never say how cute they are anymore. Sigh. Are people mean or do they just not know what to say? I'm trying to remember whether I stared at banded babies in supermarkets. I don't think so. Can anyone relate?For more plagio info

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Hi there,

Yes, I have noticed the same thing. My son has only been banded for two weeks and we rarely take him out anywhere, but just the other night we went out to eat at a restaurant and to the grocery store. Believe it or not, we were actually asked FIVE TIMES "what's wrong with him" or "what happened"!!! The audacity and nerve of people amaze me. I'm trying to use people's ignorance and rudeness as a tool to educate them on the condition and explain to them exactly what's happening - every time I explained it they looked even more confused! LOL. :)

I just know that I, personally, would never go up to a parent of a child who had ANY type of oddity, be it a helmet, a wheel chair, breathing device, even a cast, and have the nerve to actually ask about it. I guess there are always those people out there though...

I know how you feel...I have a two year old and my five month old (he's banded) and everyone used to goo-goo all over them in public...it seems as if they either ask rude questions now or avoid them altogether. BUT, perhaps a lot of it is my own paranoia as well. ;)

Just wanted you to know you're not alone...

Very best,

Mommy to Wes - 5 months old, DOCband since 3/10

In a message dated 3/24/2006 8:39:47 P.M. Central Standard Time, jenniferljb@... writes:

OK so I knew that the helmet would attract attention but this is crazy. Why is it bothering me so much? My banded baby is a twin so before the band we would get stopped every five minutes and told how cute they are :-). Now that he's wearing the band people stare and give side glances but they never say how cute they are anymore. Sigh. Are people mean or do they just not know what to say? I'm trying to remember whether I stared at banded babies in supermarkets. I don't think so. Can anyone relate?For more plagio info

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In a message dated 3/24/2006 9:39:46 P.M. Eastern Standard Time, jenniferljb@... writes:

OONT>

I get a ton of stares and just ignore it. I could careless. You will get use to it. I have a severely handicap sister so I grew up with stares. If they stare give um some eyebrows lol.

O~~OEgg'stra Special/|\(_|"|_)dwh(_Y_)dwh/|\(DC)/|\(_|"|_)(_|"|_)(_Y_)..(_Y_)/(__DC__)\'\/\/\/\/\/'|�~�~�~~�~�~|`.________.'~andra~~My plagio babyHanger Band 2/10/06www.myspace.com/purexc00

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In a message dated 3/24/2006 9:39:46 P.M. Eastern Standard Time, jenniferljb@... writes:

OONT>

I get a ton of stares and just ignore it. I could careless. You will get use to it. I have a severely handicap sister so I grew up with stares. If they stare give um some eyebrows lol.

O~~OEgg'stra Special/|\(_|"|_)dwh(_Y_)dwh/|\(DC)/|\(_|"|_)(_|"|_)(_Y_)..(_Y_)/(__DC__)\'\/\/\/\/\/'|�~�~�~~�~�~|`.________.'~andra~~My plagio babyHanger Band 2/10/06www.myspace.com/purexc00

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In a message dated 3/24/2006 9:49:40 P.M. Eastern Standard Time, ltorrado@... writes:

Yea I agree with you. My son has spiderman on his helmet so that is a good conversation started. Everyone says oh look it is spiderman and then we talk. Someone thought I had it on his head so he didnt get hurt and they said we should have gotten that for our kid. LOL I laughed

O~~OEgg'stra Special/|\(_|"|_)dwh(_Y_)dwh/|\(DC)/|\(_|"|_)(_|"|_)(_Y_)..(_Y_)/(__DC__)\'\/\/\/\/\/'|§~§~§~~§~§~|`.________.'~andra~~My plagio babyHanger Band 2/10/06www.myspace.com/purexc00

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In a message dated 3/24/2006 9:49:40 P.M. Eastern Standard Time, ltorrado@... writes:

Yea I agree with you. My son has spiderman on his helmet so that is a good conversation started. Everyone says oh look it is spiderman and then we talk. Someone thought I had it on his head so he didnt get hurt and they said we should have gotten that for our kid. LOL I laughed

O~~OEgg'stra Special/|\(_|"|_)dwh(_Y_)dwh/|\(DC)/|\(_|"|_)(_|"|_)(_Y_)..(_Y_)/(__DC__)\'\/\/\/\/\/'|§~§~§~~§~§~|`.________.'~andra~~My plagio babyHanger Band 2/10/06www.myspace.com/purexc00

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OK so I knew that the helmet would attract attention but this is

crazy. Why is it bothering me so much? My banded baby is a twin so

before the band we would get stopped every five minutes and told how

cute they are :-). Now that he's wearing the band people stare and

give side glances but they never say how cute they are anymore. Sigh.

Are people mean or do they just not know what to say? I'm trying to

remember whether I stared at banded babies in supermarkets. I don't

think so. Can anyone relate?

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OK so I knew that the helmet would attract attention but this is

crazy. Why is it bothering me so much? My banded baby is a twin so

before the band we would get stopped every five minutes and told how

cute they are :-). Now that he's wearing the band people stare and

give side glances but they never say how cute they are anymore. Sigh.

Are people mean or do they just not know what to say? I'm trying to

remember whether I stared at banded babies in supermarkets. I don't

think so. Can anyone relate?

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I can totally relate. It's hard to take sometimes. But I've been

pretty lucky lately..since his band is decorated..it helps.

Especially having his name on it. Most will greet him and smile. Some

people stare because they don't know if the child had surgery or has

emotional issues like banging their heads and the band is needed to

protect them. Who know..maybe some folks think I dropped my baby on

his head! Either way..they are uncomfortable.

I usually smile and say hello..this will usually prompt them to ask

me what it's for and they are really great about it. Some look the

other way. If they are a bit nasty..I just stare back. :)

Hang in there..it does get better. How long has your baby been

banded? What kind of band?

--- In Plagiocephaly , " jenniferljb " <jenniferljb@...>

wrote:

>

> OK so I knew that the helmet would attract attention but this is

> crazy. Why is it bothering me so much? My banded baby is a twin

so

> before the band we would get stopped every five minutes and told

how

> cute they are :-). Now that he's wearing the band people stare and

> give side glances but they never say how cute they are anymore.

Sigh.

> Are people mean or do they just not know what to say? I'm trying

to

> remember whether I stared at banded babies in supermarkets. I

don't

> think so. Can anyone relate?

>

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I can totally relate. It's hard to take sometimes. But I've been

pretty lucky lately..since his band is decorated..it helps.

Especially having his name on it. Most will greet him and smile. Some

people stare because they don't know if the child had surgery or has

emotional issues like banging their heads and the band is needed to

protect them. Who know..maybe some folks think I dropped my baby on

his head! Either way..they are uncomfortable.

I usually smile and say hello..this will usually prompt them to ask

me what it's for and they are really great about it. Some look the

other way. If they are a bit nasty..I just stare back. :)

Hang in there..it does get better. How long has your baby been

banded? What kind of band?

--- In Plagiocephaly , " jenniferljb " <jenniferljb@...>

wrote:

>

> OK so I knew that the helmet would attract attention but this is

> crazy. Why is it bothering me so much? My banded baby is a twin

so

> before the band we would get stopped every five minutes and told

how

> cute they are :-). Now that he's wearing the band people stare and

> give side glances but they never say how cute they are anymore.

Sigh.

> Are people mean or do they just not know what to say? I'm trying

to

> remember whether I stared at banded babies in supermarkets. I

don't

> think so. Can anyone relate?

>

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YES!!

I hated the stares and rude people gawking at my baby. It bothered me

the whole entire time my dd was banded. It even bothered my 2 older

children b/c they noticed it too. It got the point that I would say

really rude things to these people. I don't know why they did it but

it bothered me a lot.

My dd graduated in 2003 and I've yet to see another banded baby in my

area.

Hopefully you'll be one of the parents who gets over the stares

quickly. Keep us posted on your little one's progress.

-- In Plagiocephaly , " jenniferljb " <jenniferljb@...>

wrote:

>

> OK so I knew that the helmet would attract attention but this is

> crazy. Why is it bothering me so much? My banded baby is a twin so

> before the band we would get stopped every five minutes and told how

> cute they are :-). Now that he's wearing the band people stare and

> give side glances but they never say how cute they are anymore. Sigh.

> Are people mean or do they just not know what to say? I'm trying to

> remember whether I stared at banded babies in supermarkets. I don't

> think so. Can anyone relate?

>

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YES!!

I hated the stares and rude people gawking at my baby. It bothered me

the whole entire time my dd was banded. It even bothered my 2 older

children b/c they noticed it too. It got the point that I would say

really rude things to these people. I don't know why they did it but

it bothered me a lot.

My dd graduated in 2003 and I've yet to see another banded baby in my

area.

Hopefully you'll be one of the parents who gets over the stares

quickly. Keep us posted on your little one's progress.

-- In Plagiocephaly , " jenniferljb " <jenniferljb@...>

wrote:

>

> OK so I knew that the helmet would attract attention but this is

> crazy. Why is it bothering me so much? My banded baby is a twin so

> before the band we would get stopped every five minutes and told how

> cute they are :-). Now that he's wearing the band people stare and

> give side glances but they never say how cute they are anymore. Sigh.

> Are people mean or do they just not know what to say? I'm trying to

> remember whether I stared at banded babies in supermarkets. I don't

> think so. Can anyone relate?

>

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what a great idea about the newspaper.....I should call my local one and see if they would come for one...not enough people know about it

Becky

Katelyn-DOC band since 3/14

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what a great idea about the newspaper.....I should call my local one and see if they would come for one...not enough people know about it

Becky

Katelyn-DOC band since 3/14

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Is the helmet decorated? I found that once I did that people didn't stare at the helmet so much. Also I had the newspaper do an article on Nolan and you would not believe how many people stopped starting and talked to me about seeing the article int he paper.....what a change! The key word is to educate......or just stare back! Meagan Nolan DOC 11/05-3/06jenniferljb <jenniferljb@...> wrote: OK so I knew that the helmet would attract attention but this is crazy. Why is it bothering me so much? My banded baby is a twin so before the band we would get stopped every five minutes and told how cute they are :-). Now that he's wearing the band people stare and give side glances but they never say how cute they are anymore. Sigh. Are

people mean or do they just not know what to say? I'm trying to remember whether I stared at banded babies in supermarkets. I don't think so. Can anyone relate?

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice.

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Is the helmet decorated? I found that once I did that people didn't stare at the helmet so much. Also I had the newspaper do an article on Nolan and you would not believe how many people stopped starting and talked to me about seeing the article int he paper.....what a change! The key word is to educate......or just stare back! Meagan Nolan DOC 11/05-3/06jenniferljb <jenniferljb@...> wrote: OK so I knew that the helmet would attract attention but this is crazy. Why is it bothering me so much? My banded baby is a twin so before the band we would get stopped every five minutes and told how cute they are :-). Now that he's wearing the band people stare and give side glances but they never say how cute they are anymore. Sigh. Are

people mean or do they just not know what to say? I'm trying to remember whether I stared at banded babies in supermarkets. I don't think so. Can anyone relate?

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice.

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I am getting stares too...but Maxwell's helmet is decorated like a

baseball helmet so I think people are trying to figure out if it's

just a cute-sy sports helmet or something else!!! I also got a few

t-shirts that say things like, " You should see the other kid " and

" Just Re-shaping my head. " Those have been great at breaking the ice!

Bye, (Max DOCbanded 2/7)

--- In Plagiocephaly , " jenniferljb " <jenniferljb@...>

wrote:

>

> OK so I knew that the helmet would attract attention but this is

> crazy. Why is it bothering me so much? My banded baby is a twin so

> before the band we would get stopped every five minutes and told how

> cute they are :-). Now that he's wearing the band people stare and

> give side glances but they never say how cute they are anymore. Sigh.

> Are people mean or do they just not know what to say? I'm trying to

> remember whether I stared at banded babies in supermarkets. I don't

> think so. Can anyone relate?

>

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I am getting stares too...but Maxwell's helmet is decorated like a

baseball helmet so I think people are trying to figure out if it's

just a cute-sy sports helmet or something else!!! I also got a few

t-shirts that say things like, " You should see the other kid " and

" Just Re-shaping my head. " Those have been great at breaking the ice!

Bye, (Max DOCbanded 2/7)

--- In Plagiocephaly , " jenniferljb " <jenniferljb@...>

wrote:

>

> OK so I knew that the helmet would attract attention but this is

> crazy. Why is it bothering me so much? My banded baby is a twin so

> before the band we would get stopped every five minutes and told how

> cute they are :-). Now that he's wearing the band people stare and

> give side glances but they never say how cute they are anymore. Sigh.

> Are people mean or do they just not know what to say? I'm trying to

> remember whether I stared at banded babies in supermarkets. I don't

> think so. Can anyone relate?

>

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How funny! We'll have to pick up some of those shirts. My son's

helmet is blue with race cars, airplanes, etc. Today someone told us

that they tgought the helmet was to protect him from bumping his head

against the wall. sheesh.

> >

> > OK so I knew that the helmet would attract attention but this is

> > crazy. Why is it bothering me so much? My banded baby is a twin

so

> > before the band we would get stopped every five minutes and told

how

> > cute they are :-). Now that he's wearing the band people stare

and

> > give side glances but they never say how cute they are anymore.

Sigh.

> > Are people mean or do they just not know what to say? I'm trying

to

> > remember whether I stared at banded babies in supermarkets. I

don't

> > think so. Can anyone relate?

> >

>

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How funny! We'll have to pick up some of those shirts. My son's

helmet is blue with race cars, airplanes, etc. Today someone told us

that they tgought the helmet was to protect him from bumping his head

against the wall. sheesh.

> >

> > OK so I knew that the helmet would attract attention but this is

> > crazy. Why is it bothering me so much? My banded baby is a twin

so

> > before the band we would get stopped every five minutes and told

how

> > cute they are :-). Now that he's wearing the band people stare

and

> > give side glances but they never say how cute they are anymore.

Sigh.

> > Are people mean or do they just not know what to say? I'm trying

to

> > remember whether I stared at banded babies in supermarkets. I

don't

> > think so. Can anyone relate?

> >

>

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I'm going to tell people that we rode our motorcycle to the store, park,

library, etc. and that's why he's wearing a helmet :>) Has anyone ever

handed out the business cards that are printed with an explanation of what

plagio is? I think there might be samples in the File section

Molly

Re: Stares in public

How funny! We'll have to pick up some of those shirts. My son's

helmet is blue with race cars, airplanes, etc. Today someone told us

that they tgought the helmet was to protect him from bumping his head

against the wall. sheesh.

> >

> > OK so I knew that the helmet would attract attention but this is

> > crazy. Why is it bothering me so much? My banded baby is a twin

so

> > before the band we would get stopped every five minutes and told

how

> > cute they are :-). Now that he's wearing the band people stare

and

> > give side glances but they never say how cute they are anymore.

Sigh.

> > Are people mean or do they just not know what to say? I'm trying

to

> > remember whether I stared at banded babies in supermarkets. I

don't

> > think so. Can anyone relate?

> >

>

For more plagio info

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I'm going to tell people that we rode our motorcycle to the store, park,

library, etc. and that's why he's wearing a helmet :>) Has anyone ever

handed out the business cards that are printed with an explanation of what

plagio is? I think there might be samples in the File section

Molly

Re: Stares in public

How funny! We'll have to pick up some of those shirts. My son's

helmet is blue with race cars, airplanes, etc. Today someone told us

that they tgought the helmet was to protect him from bumping his head

against the wall. sheesh.

> >

> > OK so I knew that the helmet would attract attention but this is

> > crazy. Why is it bothering me so much? My banded baby is a twin

so

> > before the band we would get stopped every five minutes and told

how

> > cute they are :-). Now that he's wearing the band people stare

and

> > give side glances but they never say how cute they are anymore.

Sigh.

> > Are people mean or do they just not know what to say? I'm trying

to

> > remember whether I stared at banded babies in supermarkets. I

don't

> > think so. Can anyone relate?

> >

>

For more plagio info

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