Bobbi - Questions for you re: Kaitlyn

January 4, 2006

Bobbi -

Can I ask you a few questions? You mentioned that your daughter was

premature and has a narrow head... how early was she? Does she

suffer from Scaph? How long has she been in the helmet? I would

love to see your " after " pictures if you wouldn't mind sharing them

(aleecarboni@...). It is hard to find people that are

dealing with Scaph - CT only had one example of it in fact. Our son

was diagnosed with Tortocolis and Plagio at about 3 months - after

PT for a few months, we went forward with consulting for a band.

He's now 6 months (4 months adjusted, born at 31 weeks) and just

received his band yesterday. It is encouraging that your daughter

showed such quick improvement. I hope, hope for the same. I'm not

looking for perfection - just want the back protusion to be softened

and a little better asymmetry.

What a great thing if your Daughter gets the band off early!

Son - 6 months, DOC band, Tortocolis and Scaph (flattening

of right side of head)

>

> >

> > Since we can only post 5 pics on here at a time what I NEED is

> > someone who is an " expert " on plagiocephaly and would take a

look at

> > some pics of Kaitlyns head. I have some pics that were taken

before

> > she had her helmet (like 2-3 months ago) and a few that were

just

> > taken yesterday and last week and I'm telling you there is a BIG

> > difference in my eyes!! Here's the thing.....she was diagnosed

at 4

> > 1/2 months with torticollis then it took 2 1/2 months to get in

> > (stupid insurace co) to see the cranial facial

specialist/plastic

> > surgeon and then another 2 weeks to get the helmet but anyways

I'm

> > wondering if she even needs the helmet because if you look at

her

> > before the helmet pics and the now pics her head shape looks

> > soooooooooo much better in my eyes but wanted others opinions

who

> > have been thru this to take a look at them.

> >

> > If anyone would be willing to look at them and would give me

their

> > HONEST opinion please give me your email addy and I will email

them

> > from my other email addy so you can see them better and can

compare

> > the difference!!!

> >

> > I called her physical therapist up (we are all done with therapy

as

> > of last week, YAY!!) because I trust her opinion and emailed her

the

> > pics and she said she will take a look at them and give me her

> > opinion BUT who else do I ask about this? Should I call up the

> > cranial facial specialist or her orthotist and ask. What I wanna

know

> > is since Kaitlyn was a preemie her head shape was

more " noticable " I

> > guess you could say BUT now that she is growing and is older her

head

> > seems to be rounding out more so is the helmet necessary, as she

> > grows more will it just only get better? She still has a tiny

bit of

> > a forehead protrusion but it's not as bad as it was so will she

> > outgrow that like she did the " narrowness/pointedness " of her

head or

> > will that require surgery or continue with the helmet but it

won't be

> > on as long?

> >

> > Please someone help LOL!!

> >

> > Bobbi

> > Mommy to Kaitlyn , 8 months old

> > Torticollis, positional plagiocephaly, banded on 12-15-05

> > Michigan

> >

>

January 4, 2006