/Re: Help! My daughter is not adjusting to her DOC

[Guest guest]

Hi ,

Thanks so much for writing back - it really helps to get a kind word

when things are going so rough.

She did get a DOC band but she also had a Starscan. I live in

Calgary, Canada and at the end of Jan they transferred over from

using the DOC's to the StarBands. AFter doing some research I

thought I wanted the DOC because that's what the OT's here are

familiar with. I didn't want Olivia to be part of the transition.

The OT herself said she didn't feel comfy with the new STarband and

that they have " never put it on a live child yet " . Didn't give me

the warm fuzzy. So I fought tooth and nail and got Olivia casted

for a DOC right before the change. WE have public health care so

basically the medical personnel here are doing YOU the favour by

being willing to see you. It took me 2.5 mths to have someone just

LOOK at her, never mind talk about banding etc.

As far as the pink spot is concerned she said that, yup, she will

get one and unless it gets to med/dark pink/red there's nothing they

can do. It has never faded completely even when I took off the band

for 4-5 hours. At best it stays med pink but gets slightly

smaller. Today at the adj she did shave out some in that spot so

maybe that will help. Here in Calgary they tend to only band kids

around 8-9 mths old because there is such a waitlist so they seem

quite resentful that I got my 5.5 mth old in. Their attitude (one

nurse mentioned to me)is that I pushed some older kid whose window

of opportunity is shutting out of order. I didn't - I just merely

pushed for the best care and said if we were going to band at all in

the future I wanted a DOC and (very surprisingly) when I laid out my

reasons to the neurosurgeon he said OK. I got lucky. An

acquaintance I have will only be able to bring her son in for his

first ever look at 8 mths (he's 5 mths now). The squeaky wheel

thing is true and I was very squeaky.

As far as StarScan measurements...they used the scanner as a guide

whether or not to band her but neither the OT or the neurosurgeon

would even look at the report. " Don't care about numbers, just how

baby looks " was what they told me. Her StarScan measurements on Jan

6/2006 were:

Diff between two diagonals: 17.2mm

Cephalic Ratio: 74.4%

Anterior Symmetry Ratio: 87.7%

Posterior " " : 83.7%

Overall " " : 85.7%

Upper Face Left : 84.9%

Upper Face Right : 79.7%

Upper Facial " " : 84%

Ear Offset : 6.6mm

These are all I have and no one has been able to really explain too

much about them. Olivia was one of the first babies they ever used

the scan on. The OT just said it was pretty severe and that she

would get her band.

Any advice would be greatly appreciated. I am really hoping tonight

goes better!

Thanks and I hope to hear back!

> >

> > Hi,

> >

> > My daughter received her DOCband last Wed and none of us has

slept a

> > wink since then. I read the tips on how to adjust to the first

band

> > etc but nothing seems to be working. She does have a red spot

on

> > the back of her head but it is only the size of a dime and

doesn't

> > seem to be getting any worse or better (it's also a med pink but

she

> > is also very fair). I have tried to dress her lightly and she

woke

> > up frozen (I live in Canada) and then I tried to dress her

heavier.

> > Nothing is working. Prior to this she had been sleeping 12

hours

> > straight every night. Since the band went on she sleep max 4

hours.

> > Last night was every 2 hours; sometimes less! I felt like I

had a

> > newborn. We let her cry a little to see if she was really up

but

> > she would end up wailing and I would have to go in. She didn't

even

> > really want to nurse, just cuddle and she fell back asleep. I

know

> > we will stick with the band but emotionally I just want to throw

in

> > the towel. It's not just because we are so tired (we'll get

over

> > that) it's her crying when previously she almost never cried for

> > anything. We have an adjustment today so I will be mentioning

all

> > this to the OT but I don't expect too much advice...she doesn't

have

> > the best " bed-side " manner. Pretty much all business. I know

what

> > she'll say...just wait it out. But I am desperate. At 4:00

this

> > morning I sat in my daughter's room in her rocking chair,

nursing

> > her and I bawled my eyes out like a baby. I couldn't help it.

We

> > had been so looking forward to getting this band to help fix

things

> > and I know it will in the long run but right now I am just worn

> > out. I have a 2 1/2 year old boy who is potty-training and

doing

> > pretty much everything a toddler does. I am exhausted. FAmily

is

> > not the biggest help because t

> heir advice is " Just take off the

> > helmet " . This is their advice even though my daughter was

severe

> > accd to the STARscanner reports. Any advice would be great. Esp

on

> > how to dress them at night. It does get cold here. I have put

her

> > in long sleeve PJ's with a sleep sack. I have tried short

sleeved

> > PJ's with the sleep sack. I have tried no sleep sack. Either

she

> > is freezing or I presume she's hot. The rest of the family is

> > freezing so I don't know how she's hot but maybe she is. I took

her

> > band off at 4:00 AM but her hair wasn't wet etc. I just don't

know

> > what to do. Heck, maybe she's teething? She's almost 6 mths

old.

> > But all this only started when the band went on.

> > This is definately a really low point for us.

> >

> > Thanks,

> >

> >

>

[Guest guest]

Hi ,

Thanks so much for writing back - it really helps to get a kind word

when things are going so rough.

She did get a DOC band but she also had a Starscan. I live in

Calgary, Canada and at the end of Jan they transferred over from

using the DOC's to the StarBands. AFter doing some research I

thought I wanted the DOC because that's what the OT's here are

familiar with. I didn't want Olivia to be part of the transition.

The OT herself said she didn't feel comfy with the new STarband and

that they have " never put it on a live child yet " . Didn't give me

the warm fuzzy. So I fought tooth and nail and got Olivia casted

for a DOC right before the change. WE have public health care so

basically the medical personnel here are doing YOU the favour by

being willing to see you. It took me 2.5 mths to have someone just

LOOK at her, never mind talk about banding etc.

As far as the pink spot is concerned she said that, yup, she will

get one and unless it gets to med/dark pink/red there's nothing they

can do. It has never faded completely even when I took off the band

for 4-5 hours. At best it stays med pink but gets slightly

smaller. Today at the adj she did shave out some in that spot so

maybe that will help. Here in Calgary they tend to only band kids

around 8-9 mths old because there is such a waitlist so they seem

quite resentful that I got my 5.5 mth old in. Their attitude (one

nurse mentioned to me)is that I pushed some older kid whose window

of opportunity is shutting out of order. I didn't - I just merely

pushed for the best care and said if we were going to band at all in

the future I wanted a DOC and (very surprisingly) when I laid out my

reasons to the neurosurgeon he said OK. I got lucky. An

acquaintance I have will only be able to bring her son in for his

first ever look at 8 mths (he's 5 mths now). The squeaky wheel

thing is true and I was very squeaky.

As far as StarScan measurements...they used the scanner as a guide

whether or not to band her but neither the OT or the neurosurgeon

would even look at the report. " Don't care about numbers, just how

baby looks " was what they told me. Her StarScan measurements on Jan

6/2006 were:

Diff between two diagonals: 17.2mm

Cephalic Ratio: 74.4%

Anterior Symmetry Ratio: 87.7%

Posterior " " : 83.7%

Overall " " : 85.7%

Upper Face Left : 84.9%

Upper Face Right : 79.7%

Upper Facial " " : 84%

Ear Offset : 6.6mm

These are all I have and no one has been able to really explain too

much about them. Olivia was one of the first babies they ever used

the scan on. The OT just said it was pretty severe and that she

would get her band.

Any advice would be greatly appreciated. I am really hoping tonight

goes better!

Thanks and I hope to hear back!

> >

> > Hi,

> >

> > My daughter received her DOCband last Wed and none of us has

slept a

> > wink since then. I read the tips on how to adjust to the first

band

> > etc but nothing seems to be working. She does have a red spot

on

> > the back of her head but it is only the size of a dime and

doesn't

> > seem to be getting any worse or better (it's also a med pink but

she

> > is also very fair). I have tried to dress her lightly and she

woke

> > up frozen (I live in Canada) and then I tried to dress her

heavier.

> > Nothing is working. Prior to this she had been sleeping 12

hours

> > straight every night. Since the band went on she sleep max 4

hours.

> > Last night was every 2 hours; sometimes less! I felt like I

had a

> > newborn. We let her cry a little to see if she was really up

but

> > she would end up wailing and I would have to go in. She didn't

even

> > really want to nurse, just cuddle and she fell back asleep. I

know

> > we will stick with the band but emotionally I just want to throw

in

> > the towel. It's not just because we are so tired (we'll get

over

> > that) it's her crying when previously she almost never cried for

> > anything. We have an adjustment today so I will be mentioning

all

> > this to the OT but I don't expect too much advice...she doesn't

have

> > the best " bed-side " manner. Pretty much all business. I know

what

> > she'll say...just wait it out. But I am desperate. At 4:00

this

> > morning I sat in my daughter's room in her rocking chair,

nursing

> > her and I bawled my eyes out like a baby. I couldn't help it.

We

> > had been so looking forward to getting this band to help fix

things

> > and I know it will in the long run but right now I am just worn

> > out. I have a 2 1/2 year old boy who is potty-training and

doing

> > pretty much everything a toddler does. I am exhausted. FAmily

is

> > not the biggest help because t

> heir advice is " Just take off the

> > helmet " . This is their advice even though my daughter was

severe

> > accd to the STARscanner reports. Any advice would be great. Esp

on

> > how to dress them at night. It does get cold here. I have put

her

> > in long sleeve PJ's with a sleep sack. I have tried short

sleeved

> > PJ's with the sleep sack. I have tried no sleep sack. Either

she

> > is freezing or I presume she's hot. The rest of the family is

> > freezing so I don't know how she's hot but maybe she is. I took

her

> > band off at 4:00 AM but her hair wasn't wet etc. I just don't

know

> > what to do. Heck, maybe she's teething? She's almost 6 mths

old.

> > But all this only started when the band went on.

> > This is definately a really low point for us.

> >

> > Thanks,

> >

> >

>