Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the Tort. Board last month. My daughter is almost 4 mo. old - was diagnosed w/ Tort. @ 3 mo. old. Initally at birth she was diagnosed w/ a facial nerve or muscle paralysis on the left side. They said it would go away in a few days.(it's still there) The next day I noticed that her face was asymmetrical - smaller on the leftside. I also saw that her neck seemed concave under her ear on the leftside. The drs told me not to worry it would resolve itself. By 1 week old I noticed that her jawbone/gumline was slanted - Higher on the left side slanting down to the right. I took her to the pediatrician who referred us to a cranio-facial team. I was afraid it was " hemifacial microsomia " but they said no. They then told us that it should resolve by her 1st birthday. I had noticed in the days before the cranio-facial appt. that her head always faced to the right. They quickly showed me a stretch to do w/ every diaper change. Then it just seemed to be getting worse, or at least more pronounced. She couldn't lift her head during " tummy time " . She fought every time I tried to stretch her and cries out in pain. I took her back to the pediatrician at 3 months old and she was diagnosed with Congenital Muscle Torticollis. I had done alot of research online and figured that is what was going on. I asked for x-rays or an ultrasound or something to confirm it was muscle and not a malformation of her spine. I was told " No, it couldn't be " . After I pushed, I was finally referred to Physical Therapist. A few days after the " tort " diagnosis I noticed my daughters back was curved, her hips were slanted or uneven and it seemed one of her legs were longer than the other. I took her to the pediatrician and was told it is her body compensating for her neck. I know I'm not crazy. There is more going on here with my daughter than I think the dr. is paying attention to. I'm not sure if it's relatedor not but my daughter also has several birthmarks - A big one on her forehead, one on each eyelid, on her nose and on her lower back. She is not getting a mis-shapen head so I can here. We are seeing a Cranio-Facial team on Tuesday to get thier opinion. Sorry this is so long - Just wanted to say HI! and tell you about us! :-) p.s. - you can see pics of her @ http://www.babiesonline.com/babies/j/jens5th/ Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the Tort. Board last month. My daughter is almost 4 mo. old - was diagnosed w/ Tort. @ 3 mo. old. Initally at birth she was diagnosed w/ a facial nerve or muscle paralysis on the left side. They said it would go away in a few days.(it's still there) The next day I noticed that her face was asymmetrical - smaller on the leftside. I also saw that her neck seemed concave under her ear on the leftside. The drs told me not to worry it would resolve itself. By 1 week old I noticed that her jawbone/gumline was slanted - Higher on the left side slanting down to the right. I took her to the pediatrician who referred us to a cranio-facial team. I was afraid it was " hemifacial microsomia " but they said no. They then told us that it should resolve by her 1st birthday. I had noticed in the days before the cranio-facial appt. that her head always faced to the right. They quickly showed me a stretch to do w/ every diaper change. Then it just seemed to be getting worse, or at least more pronounced. She couldn't lift her head during " tummy time " . She fought every time I tried to stretch her and cries out in pain. I took her back to the pediatrician at 3 months old and she was diagnosed with Congenital Muscle Torticollis. I had done alot of research online and figured that is what was going on. I asked for x-rays or an ultrasound or something to confirm it was muscle and not a malformation of her spine. I was told " No, it couldn't be " . After I pushed, I was finally referred to Physical Therapist. A few days after the " tort " diagnosis I noticed my daughters back was curved, her hips were slanted or uneven and it seemed one of her legs were longer than the other. I took her to the pediatrician and was told it is her body compensating for her neck. I know I'm not crazy. There is more going on here with my daughter than I think the dr. is paying attention to. I'm not sure if it's relatedor not but my daughter also has several birthmarks - A big one on her forehead, one on each eyelid, on her nose and on her lower back. She is not getting a mis-shapen head so I can here. We are seeing a Cranio-Facial team on Tuesday to get thier opinion. Sorry this is so long - Just wanted to say HI! and tell you about us! :-) p.s. - you can see pics of her @ http://www.babiesonline.com/babies/j/jens5th/ Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Jen ( & Tallulah), Welcome to the group! I am new the group myself, having joined just last week. My son does not have tort., but severe brachycephaly (flat back of head) and moderate plagiocephaly (flattened left side of head with asymmetry). I have found this group to be such wonderful thing in such a confusing, stressful and scary time. While our situations are different, I know that our emotions are probably very similar. Please know that we are all here for you if you have questions or if you just need to vent! Tallulah is beautiful and her web page is very neat! I also love her name... I wish you and Tallulah the very best and please make sure to keep us updated on her progress moving forward. Very best, Mommy to Wes - 5 months old, 2 weeks into DOCband therapy In a message dated 3/23/2006 4:12:39 P.M. Central Standard Time, DVJen@... writes: HI! I'm Jen and my dd is Tallulah. I'm new here - just joined theTort. Board last month. My daughter is almost 4 mo. old - wasdiagnosed w/ Tort. @ 3 mo. old. Initally at birth she was diagnosed w/ a facial nerve or muscleparalysis on the left side. They said it would go away in a fewdays.(it's still there) The next day I noticed that her face wasasymmetrical - smaller on the leftside. I also saw that her neckseemed concave under her ear on the leftside. The drs told me not toworry it would resolve itself. By 1 week old I noticed that herjawbone/gumline was slanted - Higher on the left side slanting down tothe right. I took her to the pediatrician who referred us to acranio-facial team. I was afraid it was "hemifacial microsomia" butthey said no. They then told us that it should resolve by her 1stbirthday. I had noticed in the days before the cranio-facial appt.that her head always faced to the right. They quickly showed me astretch to do w/ every diaper change. Then it just seemed to begetting worse, or at least more pronounced. She couldn't lift herhead during "tummy time". She fought every time I tried to stretchher and cries out in pain. I took her back to the pediatrician at 3months old and she was diagnosed with Congenital Muscle Torticollis. I had done alot of research online and figured that is what was goingon. I asked for x-rays or an ultrasound or something to confirm itwas muscle and not a malformation of her spine. I was told "No, itcouldn't be". After I pushed, I was finally referred to PhysicalTherapist. A few days after the "tort" diagnosis I noticed mydaughters back was curved, her hips were slanted or uneven and itseemed one of her legs were longer than the other. I took her to thepediatrician and was told it is her body compensating for her neck. Iknow I'm not crazy. There is more going on here with my daughter thanI think the dr. is paying attention to. I'm not sure if it'srelatedor not but my daughter also has several birthmarks - A big oneon her forehead, one on each eyelid, on her nose and on her lower back. She is not getting a mis-shapen head so I can here. We are seeing aCranio-Facial team on Tuesday to get thier opinion.Sorry this is so long - Just wanted to say HI! and tell you about us!:-)p.s. - you can see pics of her @http://www.babiesonline.com/babies/j/jens5th/JenFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Jen ( & Tallulah), Welcome to the group! I am new the group myself, having joined just last week. My son does not have tort., but severe brachycephaly (flat back of head) and moderate plagiocephaly (flattened left side of head with asymmetry). I have found this group to be such wonderful thing in such a confusing, stressful and scary time. While our situations are different, I know that our emotions are probably very similar. Please know that we are all here for you if you have questions or if you just need to vent! Tallulah is beautiful and her web page is very neat! I also love her name... I wish you and Tallulah the very best and please make sure to keep us updated on her progress moving forward. Very best, Mommy to Wes - 5 months old, 2 weeks into DOCband therapy In a message dated 3/23/2006 4:12:39 P.M. Central Standard Time, DVJen@... writes: HI! I'm Jen and my dd is Tallulah. I'm new here - just joined theTort. Board last month. My daughter is almost 4 mo. old - wasdiagnosed w/ Tort. @ 3 mo. old. Initally at birth she was diagnosed w/ a facial nerve or muscleparalysis on the left side. They said it would go away in a fewdays.(it's still there) The next day I noticed that her face wasasymmetrical - smaller on the leftside. I also saw that her neckseemed concave under her ear on the leftside. The drs told me not toworry it would resolve itself. By 1 week old I noticed that herjawbone/gumline was slanted - Higher on the left side slanting down tothe right. I took her to the pediatrician who referred us to acranio-facial team. I was afraid it was "hemifacial microsomia" butthey said no. They then told us that it should resolve by her 1stbirthday. I had noticed in the days before the cranio-facial appt.that her head always faced to the right. They quickly showed me astretch to do w/ every diaper change. Then it just seemed to begetting worse, or at least more pronounced. She couldn't lift herhead during "tummy time". She fought every time I tried to stretchher and cries out in pain. I took her back to the pediatrician at 3months old and she was diagnosed with Congenital Muscle Torticollis. I had done alot of research online and figured that is what was goingon. I asked for x-rays or an ultrasound or something to confirm itwas muscle and not a malformation of her spine. I was told "No, itcouldn't be". After I pushed, I was finally referred to PhysicalTherapist. A few days after the "tort" diagnosis I noticed mydaughters back was curved, her hips were slanted or uneven and itseemed one of her legs were longer than the other. I took her to thepediatrician and was told it is her body compensating for her neck. Iknow I'm not crazy. There is more going on here with my daughter thanI think the dr. is paying attention to. I'm not sure if it'srelatedor not but my daughter also has several birthmarks - A big oneon her forehead, one on each eyelid, on her nose and on her lower back. She is not getting a mis-shapen head so I can here. We are seeing aCranio-Facial team on Tuesday to get thier opinion.Sorry this is so long - Just wanted to say HI! and tell you about us!:-)p.s. - you can see pics of her @http://www.babiesonline.com/babies/j/jens5th/JenFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Jen, Welcome to the group! Tallulah is beautiful. Good luck at your appointment, let us know how you make out. > > HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the > Tort. Board last month. My daughter is almost 4 mo. old - was > diagnosed w/ Tort. @ 3 mo. old. > Initally at birth she was diagnosed w/ a facial nerve or muscle > paralysis on the left side. They said it would go away in a few > days.(it's still there) The next day I noticed that her face was > asymmetrical - smaller on the leftside. I also saw that her neck > seemed concave under her ear on the leftside. The drs told me not to > worry it would resolve itself. By 1 week old I noticed that her > jawbone/gumline was slanted - Higher on the left side slanting down to > the right. I took her to the pediatrician who referred us to a > cranio-facial team. I was afraid it was " hemifacial microsomia " but > they said no. They then told us that it should resolve by her 1st > birthday. I had noticed in the days before the cranio-facial appt. > that her head always faced to the right. They quickly showed me a > stretch to do w/ every diaper change. Then it just seemed to be > getting worse, or at least more pronounced. She couldn't lift her > head during " tummy time " . She fought every time I tried to stretch > her and cries out in pain. I took her back to the pediatrician at 3 > months old and she was diagnosed with Congenital Muscle Torticollis. > I had done alot of research online and figured that is what was going > on. I asked for x-rays or an ultrasound or something to confirm it > was muscle and not a malformation of her spine. I was told " No, it > couldn't be " . After I pushed, I was finally referred to Physical > Therapist. A few days after the " tort " diagnosis I noticed my > daughters back was curved, her hips were slanted or uneven and it > seemed one of her legs were longer than the other. I took her to the > pediatrician and was told it is her body compensating for her neck. I > know I'm not crazy. There is more going on here with my daughter than > I think the dr. is paying attention to. I'm not sure if it's > relatedor not but my daughter also has several birthmarks - A big one > on her forehead, one on each eyelid, on her nose and on her lower back. > She is not getting a mis-shapen head so I can here. We are seeing a > Cranio-Facial team on Tuesday to get thier opinion. > > Sorry this is so long - Just wanted to say HI! and tell you about us! > :-) > > p.s. - you can see pics of her @ > http://www.babiesonline.com/babies/j/jens5th/ > > Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Jen, Welcome to the group! Tallulah is beautiful. Good luck at your appointment, let us know how you make out. > > HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the > Tort. Board last month. My daughter is almost 4 mo. old - was > diagnosed w/ Tort. @ 3 mo. old. > Initally at birth she was diagnosed w/ a facial nerve or muscle > paralysis on the left side. They said it would go away in a few > days.(it's still there) The next day I noticed that her face was > asymmetrical - smaller on the leftside. I also saw that her neck > seemed concave under her ear on the leftside. The drs told me not to > worry it would resolve itself. By 1 week old I noticed that her > jawbone/gumline was slanted - Higher on the left side slanting down to > the right. I took her to the pediatrician who referred us to a > cranio-facial team. I was afraid it was " hemifacial microsomia " but > they said no. They then told us that it should resolve by her 1st > birthday. I had noticed in the days before the cranio-facial appt. > that her head always faced to the right. They quickly showed me a > stretch to do w/ every diaper change. Then it just seemed to be > getting worse, or at least more pronounced. She couldn't lift her > head during " tummy time " . She fought every time I tried to stretch > her and cries out in pain. I took her back to the pediatrician at 3 > months old and she was diagnosed with Congenital Muscle Torticollis. > I had done alot of research online and figured that is what was going > on. I asked for x-rays or an ultrasound or something to confirm it > was muscle and not a malformation of her spine. I was told " No, it > couldn't be " . After I pushed, I was finally referred to Physical > Therapist. A few days after the " tort " diagnosis I noticed my > daughters back was curved, her hips were slanted or uneven and it > seemed one of her legs were longer than the other. I took her to the > pediatrician and was told it is her body compensating for her neck. I > know I'm not crazy. There is more going on here with my daughter than > I think the dr. is paying attention to. I'm not sure if it's > relatedor not but my daughter also has several birthmarks - A big one > on her forehead, one on each eyelid, on her nose and on her lower back. > She is not getting a mis-shapen head so I can here. We are seeing a > Cranio-Facial team on Tuesday to get thier opinion. > > Sorry this is so long - Just wanted to say HI! and tell you about us! > :-) > > p.s. - you can see pics of her @ > http://www.babiesonline.com/babies/j/jens5th/ > > Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Welcome Jen, I am glad you found us. I would like to just tell you always follow your mommy instinct, you have done great so far. Tort. can be associated with hip dysplasia and all the other stuff you mentioned, even the nerve palsy, but it can also be cause by something underlying that caused the tort itself. Have you seen a pediatric orthopaedic doctor yet? See if you can find one in your area to have the hips checked thoroughly, and the spine. You may have to see an maxiofacial surgeon for the jaw issues. If you have a shriners hospital near you or can travel to that would be great. Aside from providing free care they would be able to address all the issues. I wish you luck with the cranio facial team, let us know what they say. CAROLG --- In Plagiocephaly , " mommyof5kiddies " <DVJen@...> wrote: > > HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the > Tort. Board last month. My daughter is almost 4 mo. old - was > diagnosed w/ Tort. @ 3 mo. old. > Initally at birth she was diagnosed w/ a facial nerve or muscle > paralysis on the left side. They said it would go away in a few > days.(it's still there) The next day I noticed that her face was > asymmetrical - smaller on the leftside. I also saw that her neck > seemed concave under her ear on the leftside. The drs told me not to > worry it would resolve itself. By 1 week old I noticed that her > jawbone/gumline was slanted - Higher on the left side slanting down to > the right. I took her to the pediatrician who referred us to a > cranio-facial team. I was afraid it was " hemifacial microsomia " but > they said no. They then told us that it should resolve by her 1st > birthday. I had noticed in the days before the cranio-facial appt. > that her head always faced to the right. They quickly showed me a > stretch to do w/ every diaper change. Then it just seemed to be > getting worse, or at least more pronounced. She couldn't lift her > head during " tummy time " . She fought every time I tried to stretch > her and cries out in pain. I took her back to the pediatrician at 3 > months old and she was diagnosed with Congenital Muscle Torticollis. > I had done alot of research online and figured that is what was going > on. I asked for x-rays or an ultrasound or something to confirm it > was muscle and not a malformation of her spine. I was told " No, it > couldn't be " . After I pushed, I was finally referred to Physical > Therapist. A few days after the " tort " diagnosis I noticed my > daughters back was curved, her hips were slanted or uneven and it > seemed one of her legs were longer than the other. I took her to the > pediatrician and was told it is her body compensating for her neck. I > know I'm not crazy. There is more going on here with my daughter than > I think the dr. is paying attention to. I'm not sure if it's > relatedor not but my daughter also has several birthmarks - A big one > on her forehead, one on each eyelid, on her nose and on her lower back. > She is not getting a mis-shapen head so I can here. We are seeing a > Cranio-Facial team on Tuesday to get thier opinion. > > Sorry this is so long - Just wanted to say HI! and tell you about us! > :-) > > p.s. - you can see pics of her @ > http://www.babiesonline.com/babies/j/jens5th/ > > Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Welcome Jen, I am glad you found us. I would like to just tell you always follow your mommy instinct, you have done great so far. Tort. can be associated with hip dysplasia and all the other stuff you mentioned, even the nerve palsy, but it can also be cause by something underlying that caused the tort itself. Have you seen a pediatric orthopaedic doctor yet? See if you can find one in your area to have the hips checked thoroughly, and the spine. You may have to see an maxiofacial surgeon for the jaw issues. If you have a shriners hospital near you or can travel to that would be great. Aside from providing free care they would be able to address all the issues. I wish you luck with the cranio facial team, let us know what they say. CAROLG --- In Plagiocephaly , " mommyof5kiddies " <DVJen@...> wrote: > > HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the > Tort. Board last month. My daughter is almost 4 mo. old - was > diagnosed w/ Tort. @ 3 mo. old. > Initally at birth she was diagnosed w/ a facial nerve or muscle > paralysis on the left side. They said it would go away in a few > days.(it's still there) The next day I noticed that her face was > asymmetrical - smaller on the leftside. I also saw that her neck > seemed concave under her ear on the leftside. The drs told me not to > worry it would resolve itself. By 1 week old I noticed that her > jawbone/gumline was slanted - Higher on the left side slanting down to > the right. I took her to the pediatrician who referred us to a > cranio-facial team. I was afraid it was " hemifacial microsomia " but > they said no. They then told us that it should resolve by her 1st > birthday. I had noticed in the days before the cranio-facial appt. > that her head always faced to the right. They quickly showed me a > stretch to do w/ every diaper change. Then it just seemed to be > getting worse, or at least more pronounced. She couldn't lift her > head during " tummy time " . She fought every time I tried to stretch > her and cries out in pain. I took her back to the pediatrician at 3 > months old and she was diagnosed with Congenital Muscle Torticollis. > I had done alot of research online and figured that is what was going > on. I asked for x-rays or an ultrasound or something to confirm it > was muscle and not a malformation of her spine. I was told " No, it > couldn't be " . After I pushed, I was finally referred to Physical > Therapist. A few days after the " tort " diagnosis I noticed my > daughters back was curved, her hips were slanted or uneven and it > seemed one of her legs were longer than the other. I took her to the > pediatrician and was told it is her body compensating for her neck. I > know I'm not crazy. There is more going on here with my daughter than > I think the dr. is paying attention to. I'm not sure if it's > relatedor not but my daughter also has several birthmarks - A big one > on her forehead, one on each eyelid, on her nose and on her lower back. > She is not getting a mis-shapen head so I can here. We are seeing a > Cranio-Facial team on Tuesday to get thier opinion. > > Sorry this is so long - Just wanted to say HI! and tell you about us! > :-) > > p.s. - you can see pics of her @ > http://www.babiesonline.com/babies/j/jens5th/ > > Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Jen, I forgot to tell you, how absolutely precious Luli is!!! I love that name. CAROLG --- In Plagiocephaly , " mommyof5kiddies " <DVJen@...> wrote: > > HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the > Tort. Board last month. My daughter is almost 4 mo. old - was > diagnosed w/ Tort. @ 3 mo. old. > Initally at birth she was diagnosed w/ a facial nerve or muscle > paralysis on the left side. They said it would go away in a few > days.(it's still there) The next day I noticed that her face was > asymmetrical - smaller on the leftside. I also saw that her neck > seemed concave under her ear on the leftside. The drs told me not to > worry it would resolve itself. By 1 week old I noticed that her > jawbone/gumline was slanted - Higher on the left side slanting down to > the right. I took her to the pediatrician who referred us to a > cranio-facial team. I was afraid it was " hemifacial microsomia " but > they said no. They then told us that it should resolve by her 1st > birthday. I had noticed in the days before the cranio-facial appt. > that her head always faced to the right. They quickly showed me a > stretch to do w/ every diaper change. Then it just seemed to be > getting worse, or at least more pronounced. She couldn't lift her > head during " tummy time " . She fought every time I tried to stretch > her and cries out in pain. I took her back to the pediatrician at 3 > months old and she was diagnosed with Congenital Muscle Torticollis. > I had done alot of research online and figured that is what was going > on. I asked for x-rays or an ultrasound or something to confirm it > was muscle and not a malformation of her spine. I was told " No, it > couldn't be " . After I pushed, I was finally referred to Physical > Therapist. A few days after the " tort " diagnosis I noticed my > daughters back was curved, her hips were slanted or uneven and it > seemed one of her legs were longer than the other. I took her to the > pediatrician and was told it is her body compensating for her neck. I > know I'm not crazy. There is more going on here with my daughter than > I think the dr. is paying attention to. I'm not sure if it's > relatedor not but my daughter also has several birthmarks - A big one > on her forehead, one on each eyelid, on her nose and on her lower back. > She is not getting a mis-shapen head so I can here. We are seeing a > Cranio-Facial team on Tuesday to get thier opinion. > > Sorry this is so long - Just wanted to say HI! and tell you about us! > :-) > > p.s. - you can see pics of her @ > http://www.babiesonline.com/babies/j/jens5th/ > > Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Jen, I forgot to tell you, how absolutely precious Luli is!!! I love that name. CAROLG --- In Plagiocephaly , " mommyof5kiddies " <DVJen@...> wrote: > > HI! I'm Jen and my dd is Tallulah. I'm new here - just joined the > Tort. Board last month. My daughter is almost 4 mo. old - was > diagnosed w/ Tort. @ 3 mo. old. > Initally at birth she was diagnosed w/ a facial nerve or muscle > paralysis on the left side. They said it would go away in a few > days.(it's still there) The next day I noticed that her face was > asymmetrical - smaller on the leftside. I also saw that her neck > seemed concave under her ear on the leftside. The drs told me not to > worry it would resolve itself. By 1 week old I noticed that her > jawbone/gumline was slanted - Higher on the left side slanting down to > the right. I took her to the pediatrician who referred us to a > cranio-facial team. I was afraid it was " hemifacial microsomia " but > they said no. They then told us that it should resolve by her 1st > birthday. I had noticed in the days before the cranio-facial appt. > that her head always faced to the right. They quickly showed me a > stretch to do w/ every diaper change. Then it just seemed to be > getting worse, or at least more pronounced. She couldn't lift her > head during " tummy time " . She fought every time I tried to stretch > her and cries out in pain. I took her back to the pediatrician at 3 > months old and she was diagnosed with Congenital Muscle Torticollis. > I had done alot of research online and figured that is what was going > on. I asked for x-rays or an ultrasound or something to confirm it > was muscle and not a malformation of her spine. I was told " No, it > couldn't be " . After I pushed, I was finally referred to Physical > Therapist. A few days after the " tort " diagnosis I noticed my > daughters back was curved, her hips were slanted or uneven and it > seemed one of her legs were longer than the other. I took her to the > pediatrician and was told it is her body compensating for her neck. I > know I'm not crazy. There is more going on here with my daughter than > I think the dr. is paying attention to. I'm not sure if it's > relatedor not but my daughter also has several birthmarks - A big one > on her forehead, one on each eyelid, on her nose and on her lower back. > She is not getting a mis-shapen head so I can here. We are seeing a > Cranio-Facial team on Tuesday to get thier opinion. > > Sorry this is so long - Just wanted to say HI! and tell you about us! > :-) > > p.s. - you can see pics of her @ > http://www.babiesonline.com/babies/j/jens5th/ > > Jen > Quote Link to comment Share on other sites More sharing options...
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