Top of head height!!???? Pics posted

[Guest guest]

Guys,

We took Aidans bi weekly head pictures tonight and his head looks like an

alien!!!!! Hes

getting increased head height, less than one week after we went to the

neurosurgeon and he

said all was fine. We even talked about increased head height, and I ASKED if he

thought

Aidan had that. He said no. PLEASE look at the pictures in the photos section

under Aidan C.

I am beside myself!! Even my husband is freaking out, and he is usually the

calmer one. Were

going tomorrow morning right over there. What am I going to do?? I know they are

going to

say it will work itself out and argue that " its fine. " Its NOT fine!! They cant

take the front part

of that helmet out, or take out the foam without compromising the rest of the

helmets

effectiveness. I cant see how theyre going to solve this. Aidan is only at 5mm,

hes not done

yet with his treatment. Help!

Frustrated beyond belief,

beth

[Guest guest]

Guys,

We took Aidans bi weekly head pictures tonight and his head looks like an

alien!!!!! Hes

getting increased head height, less than one week after we went to the

neurosurgeon and he

said all was fine. We even talked about increased head height, and I ASKED if he

thought

Aidan had that. He said no. PLEASE look at the pictures in the photos section

under Aidan C.

I am beside myself!! Even my husband is freaking out, and he is usually the

calmer one. Were

going tomorrow morning right over there. What am I going to do?? I know they are

going to

say it will work itself out and argue that " its fine. " Its NOT fine!! They cant

take the front part

of that helmet out, or take out the foam without compromising the rest of the

helmets

effectiveness. I cant see how theyre going to solve this. Aidan is only at 5mm,

hes not done

yet with his treatment. Help!

Frustrated beyond belief,

beth

[Guest guest]

Hi beth,

You have email.

Take care,

>

> Guys,

>

> We took Aidans bi weekly head pictures tonight and his head looks

like an alien!!!!! Hes

> getting increased head height, less than one week after we went to

the neurosurgeon and he

> said all was fine. We even talked about increased head height, and I

ASKED if he thought

> Aidan had that. He said no. PLEASE look at the pictures in the

photos section under Aidan C.

>

> I am beside myself!! Even my husband is freaking out, and he is

usually the calmer one. Were

> going tomorrow morning right over there. What am I going to do?? I

know they are going to

> say it will work itself out and argue that " its fine. " Its NOT

fine!! They cant take the front part

> of that helmet out, or take out the foam without compromising the

rest of the helmets

> effectiveness. I cant see how theyre going to solve this. Aidan is

only at 5mm, hes not done

> yet with his treatment. Help!

>

> Frustrated beyond belief,

>

> beth

>

[Guest guest]

Hi beth,

You have email.

Take care,

>

> Guys,

>

> We took Aidans bi weekly head pictures tonight and his head looks

like an alien!!!!! Hes

> getting increased head height, less than one week after we went to

the neurosurgeon and he

> said all was fine. We even talked about increased head height, and I

ASKED if he thought

> Aidan had that. He said no. PLEASE look at the pictures in the

photos section under Aidan C.

>

> I am beside myself!! Even my husband is freaking out, and he is

usually the calmer one. Were

> going tomorrow morning right over there. What am I going to do?? I

know they are going to

> say it will work itself out and argue that " its fine. " Its NOT

fine!! They cant take the front part

> of that helmet out, or take out the foam without compromising the

rest of the helmets

> effectiveness. I cant see how theyre going to solve this. Aidan is

only at 5mm, hes not done

> yet with his treatment. Help!

>

> Frustrated beyond belief,

>

> beth

>

[Guest guest]

beth,

I have been studying Aidan's previous photos from 3/8, and the current

one you posted today, the side views, side-by-side. I concur that you

should visit your ortho asap with your concerns. I'm a bit

confused... what type of band is Aiden in? Are you all in a NOPCO

Starband helmet? I'm just wondering because you said you addressed

your head height qs with the neuro, and not the orthotist. Will you

be visiting the orthotist tomorrow? I know that orthotists can

sometimes be more sensitive to aesthetic concerns that neuros.

The changes I am seeing from the side view photographs are: that his

head is sloping more steeply from his forehead to his crown, and that

his crown is higher and more sharply defined. This sounds like what

you are describing seeing as well.

My perception is that Aiden had what appeared to be a bit of more than

usual head height at the start of treatment; would you say so, also?

If this were the case, then a normal watch-out for the ortho would

have been to ensure that the head height was kept in check during the

treatment course, I guess. I will yield to more band-knowledgeable

mods and members on exact protocol, but from what I understand, the

way bands/helmets " correct " head height issues is to fill in the area

over the forehead and at the back of the head to make the head height

" disappear, " if you will. A good question to ask is why Aiden's slope

appears to be steeper instead of more level, and can they make some

foam adjustment to help with that. Since the change in his head

height is not what you were hoping for, I don't think I would put the

helmet on him until I got the inside of the helmet squared away.

I very much wish I could offer you more advice or help!! We

aggressively repo'd Remy, so I don't have personal experience with

band adjustments, etc. I hope other group members will chime in soon

after looking at Aiden's photos.

Please let us know what happens in the morning. Can you bring the

pics of your baby to the appt. so that the ortho can see what is going on?

Take care,

Christie (Mom to Repo'd Remy)

>

> Guys,

>

> We took Aidans bi weekly head pictures tonight and his head looks

like an alien!!!!! Hes

> getting increased head height, less than one week after we went to

the neurosurgeon and he

> said all was fine. We even talked about increased head height, and I

ASKED if he thought

> Aidan had that. He said no. PLEASE look at the pictures in the

photos section under Aidan C.

>

> I am beside myself!! Even my husband is freaking out, and he is

usually the calmer one. Were

> going tomorrow morning right over there. What am I going to do?? I

know they are going to

> say it will work itself out and argue that " its fine. " Its NOT

fine!! They cant take the front part

> of that helmet out, or take out the foam without compromising the

rest of the helmets

> effectiveness. I cant see how theyre going to solve this. Aidan is

only at 5mm, hes not done

> yet with his treatment. Help!

>

> Frustrated beyond belief,

>

> beth

>

[Guest guest]

beth,

I have been studying Aidan's previous photos from 3/8, and the current

one you posted today, the side views, side-by-side. I concur that you

should visit your ortho asap with your concerns. I'm a bit

confused... what type of band is Aiden in? Are you all in a NOPCO

Starband helmet? I'm just wondering because you said you addressed

your head height qs with the neuro, and not the orthotist. Will you

be visiting the orthotist tomorrow? I know that orthotists can

sometimes be more sensitive to aesthetic concerns that neuros.

The changes I am seeing from the side view photographs are: that his

head is sloping more steeply from his forehead to his crown, and that

his crown is higher and more sharply defined. This sounds like what

you are describing seeing as well.

My perception is that Aiden had what appeared to be a bit of more than

usual head height at the start of treatment; would you say so, also?

If this were the case, then a normal watch-out for the ortho would

have been to ensure that the head height was kept in check during the

treatment course, I guess. I will yield to more band-knowledgeable

mods and members on exact protocol, but from what I understand, the

way bands/helmets " correct " head height issues is to fill in the area

over the forehead and at the back of the head to make the head height

" disappear, " if you will. A good question to ask is why Aiden's slope

appears to be steeper instead of more level, and can they make some

foam adjustment to help with that. Since the change in his head

height is not what you were hoping for, I don't think I would put the

helmet on him until I got the inside of the helmet squared away.

I very much wish I could offer you more advice or help!! We

aggressively repo'd Remy, so I don't have personal experience with

band adjustments, etc. I hope other group members will chime in soon

after looking at Aiden's photos.

Please let us know what happens in the morning. Can you bring the

pics of your baby to the appt. so that the ortho can see what is going on?

Take care,

Christie (Mom to Repo'd Remy)

>

> Guys,

>

> We took Aidans bi weekly head pictures tonight and his head looks

like an alien!!!!! Hes

> getting increased head height, less than one week after we went to

the neurosurgeon and he

> said all was fine. We even talked about increased head height, and I

ASKED if he thought

> Aidan had that. He said no. PLEASE look at the pictures in the

photos section under Aidan C.

>

> I am beside myself!! Even my husband is freaking out, and he is

usually the calmer one. Were

> going tomorrow morning right over there. What am I going to do?? I

know they are going to

> say it will work itself out and argue that " its fine. " Its NOT

fine!! They cant take the front part

> of that helmet out, or take out the foam without compromising the

rest of the helmets

> effectiveness. I cant see how theyre going to solve this. Aidan is

only at 5mm, hes not done

> yet with his treatment. Help!

>

> Frustrated beyond belief,

>

> beth

>

[Guest guest]

Christie,

You are correct. His band was supposed to be holding the crown of his

head so it couldn't grow up. It obviously hasn't done that and his

head grew up instead of out. :-( I too see exactly what you are

describing with the sloping of his head.

I hate that this is STILL happening to babies. I just don't understand

how these people get away with it. :-(

-- In Plagiocephaly , " redlocks2003 " <clkline@...> wrote:

>

> beth,

>

> I have been studying Aidan's previous photos from 3/8, and the current

> one you posted today, the side views, side-by-side. I concur that you

> should visit your ortho asap with your concerns. I'm a bit

> confused... what type of band is Aiden in? Are you all in a NOPCO

> Starband helmet? I'm just wondering because you said you addressed

> your head height qs with the neuro, and not the orthotist. Will you

> be visiting the orthotist tomorrow? I know that orthotists can

> sometimes be more sensitive to aesthetic concerns that neuros.

>

> The changes I am seeing from the side view photographs are: that his

> head is sloping more steeply from his forehead to his crown, and that

> his crown is higher and more sharply defined. This sounds like what

> you are describing seeing as well.

>

> My perception is that Aiden had what appeared to be a bit of more than

> usual head height at the start of treatment; would you say so, also?

> If this were the case, then a normal watch-out for the ortho would

> have been to ensure that the head height was kept in check during the

> treatment course, I guess. I will yield to more band-knowledgeable

> mods and members on exact protocol, but from what I understand, the

> way bands/helmets " correct " head height issues is to fill in the area

> over the forehead and at the back of the head to make the head height

> " disappear, " if you will. A good question to ask is why Aiden's slope

> appears to be steeper instead of more level, and can they make some

> foam adjustment to help with that. Since the change in his head

> height is not what you were hoping for, I don't think I would put the

> helmet on him until I got the inside of the helmet squared away.

>

> I very much wish I could offer you more advice or help!! We

> aggressively repo'd Remy, so I don't have personal experience with

> band adjustments, etc. I hope other group members will chime in soon

> after looking at Aiden's photos.

>

> Please let us know what happens in the morning. Can you bring the

> pics of your baby to the appt. so that the ortho can see what is

going on?

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

> >

> > Guys,

> >

> > We took Aidans bi weekly head pictures tonight and his head looks

> like an alien!!!!! Hes

> > getting increased head height, less than one week after we went to

> the neurosurgeon and he

> > said all was fine. We even talked about increased head height, and I

> ASKED if he thought

> > Aidan had that. He said no. PLEASE look at the pictures in the

> photos section under Aidan C.

> >

> > I am beside myself!! Even my husband is freaking out, and he is

> usually the calmer one. Were

> > going tomorrow morning right over there. What am I going to do?? I

> know they are going to

> > say it will work itself out and argue that " its fine. " Its NOT

> fine!! They cant take the front part

> > of that helmet out, or take out the foam without compromising the

> rest of the helmets

> > effectiveness. I cant see how theyre going to solve this. Aidan is

> only at 5mm, hes not done

> > yet with his treatment. Help!

> >

> > Frustrated beyond belief,

> >

> > beth

> >

>

[Guest guest]

Christie,

You are correct. His band was supposed to be holding the crown of his

head so it couldn't grow up. It obviously hasn't done that and his

head grew up instead of out. :-( I too see exactly what you are

describing with the sloping of his head.

I hate that this is STILL happening to babies. I just don't understand

how these people get away with it. :-(

-- In Plagiocephaly , " redlocks2003 " <clkline@...> wrote:

>

> beth,

>

> I have been studying Aidan's previous photos from 3/8, and the current

> one you posted today, the side views, side-by-side. I concur that you

> should visit your ortho asap with your concerns. I'm a bit

> confused... what type of band is Aiden in? Are you all in a NOPCO

> Starband helmet? I'm just wondering because you said you addressed

> your head height qs with the neuro, and not the orthotist. Will you

> be visiting the orthotist tomorrow? I know that orthotists can

> sometimes be more sensitive to aesthetic concerns that neuros.

>

> The changes I am seeing from the side view photographs are: that his

> head is sloping more steeply from his forehead to his crown, and that

> his crown is higher and more sharply defined. This sounds like what

> you are describing seeing as well.

>

> My perception is that Aiden had what appeared to be a bit of more than

> usual head height at the start of treatment; would you say so, also?

> If this were the case, then a normal watch-out for the ortho would

> have been to ensure that the head height was kept in check during the

> treatment course, I guess. I will yield to more band-knowledgeable

> mods and members on exact protocol, but from what I understand, the

> way bands/helmets " correct " head height issues is to fill in the area

> over the forehead and at the back of the head to make the head height

> " disappear, " if you will. A good question to ask is why Aiden's slope

> appears to be steeper instead of more level, and can they make some

> foam adjustment to help with that. Since the change in his head

> height is not what you were hoping for, I don't think I would put the

> helmet on him until I got the inside of the helmet squared away.

>

> I very much wish I could offer you more advice or help!! We

> aggressively repo'd Remy, so I don't have personal experience with

> band adjustments, etc. I hope other group members will chime in soon

> after looking at Aiden's photos.

>

> Please let us know what happens in the morning. Can you bring the

> pics of your baby to the appt. so that the ortho can see what is

going on?

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

> >

> > Guys,

> >

> > We took Aidans bi weekly head pictures tonight and his head looks

> like an alien!!!!! Hes

> > getting increased head height, less than one week after we went to

> the neurosurgeon and he

> > said all was fine. We even talked about increased head height, and I

> ASKED if he thought

> > Aidan had that. He said no. PLEASE look at the pictures in the

> photos section under Aidan C.

> >

> > I am beside myself!! Even my husband is freaking out, and he is

> usually the calmer one. Were

> > going tomorrow morning right over there. What am I going to do?? I

> know they are going to

> > say it will work itself out and argue that " its fine. " Its NOT

> fine!! They cant take the front part

> > of that helmet out, or take out the foam without compromising the

> rest of the helmets

> > effectiveness. I cant see how theyre going to solve this. Aidan is

> only at 5mm, hes not done

> > yet with his treatment. Help!

> >

> > Frustrated beyond belief,

> >

> > beth

> >

>

[Guest guest]

the helmet is absolutely off now-we are going in there tomorrow morning with him

and

pictures. can he recover from this??

does the fact that hes gone from a 9mm assymetry to a 5mm mean anything? there

has

been improvment on that end, so how could this have happened???? we had an

adustment

last week, did she make it too loose? i thought it was too loose but the ortho

said it was

fine.

did this happen in a week??

> > >

> > > Guys,

> > >

> > > We took Aidans bi weekly head pictures tonight and his head looks

> > like an alien!!!!! Hes

> > > getting increased head height, less than one week after we went to

> > the neurosurgeon and he

> > > said all was fine. We even talked about increased head height, and I

> > ASKED if he thought

> > > Aidan had that. He said no. PLEASE look at the pictures in the

> > photos section under Aidan C.

> > >

> > > I am beside myself!! Even my husband is freaking out, and he is

> > usually the calmer one. Were

> > > going tomorrow morning right over there. What am I going to do?? I

> > know they are going to

> > > say it will work itself out and argue that " its fine. " Its NOT

> > fine!! They cant take the front part

> > > of that helmet out, or take out the foam without compromising the

> > rest of the helmets

> > > effectiveness. I cant see how theyre going to solve this. Aidan is

> > only at 5mm, hes not done

> > > yet with his treatment. Help!

> > >

> > > Frustrated beyond belief,

> > >

> > > beth

> > >

> >

>

[Guest guest]

the helmet is absolutely off now-we are going in there tomorrow morning with him

and

pictures. can he recover from this??

does the fact that hes gone from a 9mm assymetry to a 5mm mean anything? there

has

been improvment on that end, so how could this have happened???? we had an

adustment

last week, did she make it too loose? i thought it was too loose but the ortho

said it was

fine.

did this happen in a week??

> > >

> > > Guys,

> > >

> > > We took Aidans bi weekly head pictures tonight and his head looks

> > like an alien!!!!! Hes

> > > getting increased head height, less than one week after we went to

> > the neurosurgeon and he

> > > said all was fine. We even talked about increased head height, and I

> > ASKED if he thought

> > > Aidan had that. He said no. PLEASE look at the pictures in the

> > photos section under Aidan C.

> > >

> > > I am beside myself!! Even my husband is freaking out, and he is

> > usually the calmer one. Were

> > > going tomorrow morning right over there. What am I going to do?? I

> > know they are going to

> > > say it will work itself out and argue that " its fine. " Its NOT

> > fine!! They cant take the front part

> > > of that helmet out, or take out the foam without compromising the

> > rest of the helmets

> > > effectiveness. I cant see how theyre going to solve this. Aidan is

> > only at 5mm, hes not done

> > > yet with his treatment. Help!

> > >

> > > Frustrated beyond belief,

> > >

> > > beth

> > >

> >

>

[Guest guest]

beth,

I have seen the pics too and I agree that there is extra height. You

are doing the right thing by removing that helmet and going over in

the morning. I don't see how they can explain that that is alright. I

am so sorry you are having to deal with this. I'm sure you have heard

it all before, but in a situation like this, where he will need a

band to correct the plagio and the problems this helmet has caused

you need to go to CT. I'm sending big hugs your way and please let us

know what happens.

CAROLG

>

> Guys,

>

> We took Aidans bi weekly head pictures tonight and his head looks

like an alien!!!!! Hes

> getting increased head height, less than one week after we went to

the neurosurgeon and he

> said all was fine. We even talked about increased head height, and

I ASKED if he thought

> Aidan had that. He said no. PLEASE look at the pictures in the

photos section under Aidan C.

>

> I am beside myself!! Even my husband is freaking out, and he is

usually the calmer one. Were

> going tomorrow morning right over there. What am I going to do?? I

know they are going to

> say it will work itself out and argue that " its fine. " Its NOT

fine!! They cant take the front part

> of that helmet out, or take out the foam without compromising the

rest of the helmets

> effectiveness. I cant see how theyre going to solve this. Aidan is

only at 5mm, hes not done

> yet with his treatment. Help!

>

> Frustrated beyond belief,

>

> beth

>

[Guest guest]

beth,

I have seen the pics too and I agree that there is extra height. You

are doing the right thing by removing that helmet and going over in

the morning. I don't see how they can explain that that is alright. I

am so sorry you are having to deal with this. I'm sure you have heard

it all before, but in a situation like this, where he will need a

band to correct the plagio and the problems this helmet has caused

you need to go to CT. I'm sending big hugs your way and please let us

know what happens.

CAROLG

>

> Guys,

>

> We took Aidans bi weekly head pictures tonight and his head looks

like an alien!!!!! Hes

> getting increased head height, less than one week after we went to

the neurosurgeon and he

> said all was fine. We even talked about increased head height, and

I ASKED if he thought

> Aidan had that. He said no. PLEASE look at the pictures in the

photos section under Aidan C.

>

> I am beside myself!! Even my husband is freaking out, and he is

usually the calmer one. Were

> going tomorrow morning right over there. What am I going to do?? I

know they are going to

> say it will work itself out and argue that " its fine. " Its NOT

fine!! They cant take the front part

> of that helmet out, or take out the foam without compromising the

rest of the helmets

> effectiveness. I cant see how theyre going to solve this. Aidan is

only at 5mm, hes not done

> yet with his treatment. Help!

>

> Frustrated beyond belief,

>

> beth

>

[Guest guest]

Based on the pics from 3/8 versus last night I would say it happened

in about 2 weeks. Of course he could have had the growth spurt in

the past week. I too see what everyone is talking about. It's

possible if they cut too much out of the bottom maybe it slipped

forward on his eyes too much and allowed head height. However,

knowing how my daughter's band fits and hers slips forward all the

time and she is filling in the bottom of her head I'm just

confused. I can't say with any confidence what happened on the

inside of the band to make his head worse.

I saw from previous posts that his head was improving which is

great. Going from 9 to 5 is wonderful. I looked at the early March

pics compared to the start in Jan. I can see big improvements. Is

it possible it looks worse because his chin is tucked in? I saw in

one of the march 8 pics that his chin was tucked too and this one

looks worse but I just want to make sure it's not an optical

illusion.

I agree with the previous post about neurosurgeons not being all

that keen on asthetics. He could have had the increased head height

then but the dr wouldn't notice.

Definite red flags. Please keep us posted. Good luck and big hugs!

na, DOC Grad X2, Feb 04, Tort Resolved

Kiersten, DOC Band 1/20/06, Tort

www.thefilyaws.com/plagio/plagio.html

> > > >

> > > > Guys,

> > > >

> > > > We took Aidans bi weekly head pictures tonight and his head

looks

> > > like an alien!!!!! Hes

> > > > getting increased head height, less than one week after we

went to

> > > the neurosurgeon and he

> > > > said all was fine. We even talked about increased head

height, and I

> > > ASKED if he thought

> > > > Aidan had that. He said no. PLEASE look at the pictures in

the

> > > photos section under Aidan C.

> > > >

> > > > I am beside myself!! Even my husband is freaking out, and he

is

> > > usually the calmer one. Were

> > > > going tomorrow morning right over there. What am I going to

do?? I

> > > know they are going to

> > > > say it will work itself out and argue that " its fine. " Its

NOT

> > > fine!! They cant take the front part

> > > > of that helmet out, or take out the foam without

compromising the

> > > rest of the helmets

> > > > effectiveness. I cant see how theyre going to solve this.

Aidan is

> > > only at 5mm, hes not done

> > > > yet with his treatment. Help!

> > > >

> > > > Frustrated beyond belief,

> > > >

> > > > beth

> > > >

> > >

> >

>

[Guest guest]

Based on the pics from 3/8 versus last night I would say it happened

in about 2 weeks. Of course he could have had the growth spurt in

the past week. I too see what everyone is talking about. It's

possible if they cut too much out of the bottom maybe it slipped

forward on his eyes too much and allowed head height. However,

knowing how my daughter's band fits and hers slips forward all the

time and she is filling in the bottom of her head I'm just

confused. I can't say with any confidence what happened on the

inside of the band to make his head worse.

I saw from previous posts that his head was improving which is

great. Going from 9 to 5 is wonderful. I looked at the early March

pics compared to the start in Jan. I can see big improvements. Is

it possible it looks worse because his chin is tucked in? I saw in

one of the march 8 pics that his chin was tucked too and this one

looks worse but I just want to make sure it's not an optical

illusion.

I agree with the previous post about neurosurgeons not being all

that keen on asthetics. He could have had the increased head height

then but the dr wouldn't notice.

Definite red flags. Please keep us posted. Good luck and big hugs!

na, DOC Grad X2, Feb 04, Tort Resolved

Kiersten, DOC Band 1/20/06, Tort

www.thefilyaws.com/plagio/plagio.html

> > > >

> > > > Guys,

> > > >

> > > > We took Aidans bi weekly head pictures tonight and his head

looks

> > > like an alien!!!!! Hes

> > > > getting increased head height, less than one week after we

went to

> > > the neurosurgeon and he

> > > > said all was fine. We even talked about increased head

height, and I

> > > ASKED if he thought

> > > > Aidan had that. He said no. PLEASE look at the pictures in

the

> > > photos section under Aidan C.

> > > >

> > > > I am beside myself!! Even my husband is freaking out, and he

is

> > > usually the calmer one. Were

> > > > going tomorrow morning right over there. What am I going to

do?? I

> > > know they are going to

> > > > say it will work itself out and argue that " its fine. " Its

NOT

> > > fine!! They cant take the front part

> > > > of that helmet out, or take out the foam without

compromising the

> > > rest of the helmets

> > > > effectiveness. I cant see how theyre going to solve this.

Aidan is

> > > only at 5mm, hes not done

> > > > yet with his treatment. Help!

> > > >

> > > > Frustrated beyond belief,

> > > >

> > > > beth

> > > >

> > >

> >

>

[Guest guest]

I'm sorry you are going thru this. I too see what you are talking

about. Please keep us posted. Good luck with your next appointment.

> > > >

> > > > Guys,

> > > >

> > > > We took Aidans bi weekly head pictures tonight and his head

looks

> > > like an alien!!!!! Hes

> > > > getting increased head height, less than one week after we

went to

> > > the neurosurgeon and he

> > > > said all was fine. We even talked about increased head

height, and I

> > > ASKED if he thought

> > > > Aidan had that. He said no. PLEASE look at the pictures in

the

> > > photos section under Aidan C.

> > > >

> > > > I am beside myself!! Even my husband is freaking out, and he

is

> > > usually the calmer one. Were

> > > > going tomorrow morning right over there. What am I going to

do?? I

> > > know they are going to

> > > > say it will work itself out and argue that " its fine. " Its

NOT

> > > fine!! They cant take the front part

> > > > of that helmet out, or take out the foam without

compromising the

> > > rest of the helmets

> > > > effectiveness. I cant see how theyre going to solve this.

Aidan is

> > > only at 5mm, hes not done

> > > > yet with his treatment. Help!

> > > >

> > > > Frustrated beyond belief,

> > > >

> > > > beth

> > > >

> > >

> >

>

[Guest guest]

I'm sorry you are going thru this. I too see what you are talking

about. Please keep us posted. Good luck with your next appointment.

> > > >

> > > > Guys,

> > > >

> > > > We took Aidans bi weekly head pictures tonight and his head

looks

> > > like an alien!!!!! Hes

> > > > getting increased head height, less than one week after we

went to

> > > the neurosurgeon and he

> > > > said all was fine. We even talked about increased head

height, and I

> > > ASKED if he thought

> > > > Aidan had that. He said no. PLEASE look at the pictures in

the

> > > photos section under Aidan C.

> > > >

> > > > I am beside myself!! Even my husband is freaking out, and he

is

> > > usually the calmer one. Were

> > > > going tomorrow morning right over there. What am I going to

do?? I

> > > know they are going to

> > > > say it will work itself out and argue that " its fine. " Its

NOT

> > > fine!! They cant take the front part

> > > > of that helmet out, or take out the foam without

compromising the

> > > rest of the helmets

> > > > effectiveness. I cant see how theyre going to solve this.

Aidan is

> > > only at 5mm, hes not done

> > > > yet with his treatment. Help!

> > > >

> > > > Frustrated beyond belief,

> > > >

> > > > beth

> > > >

> > >

> >

>

[Guest guest]

beth,

I am so sorry! I saw the pictures and understand your concern.

NOPCO has a reputation of playing CYA when they cause an additional

deformity. PLease remember that today. Since your neuro didn't seem

to be very CT friendly can you take Aidan to a plastic surgeon?

This must have happened really quickly. Did CT take pictures at last

week's consult? I would call them and email them your pictures to see

what they think.

Please consider taking a stand against NOPCO. It is nice to hear of

good things from there but they shouldn't also be coupled with the

frequent problems that we hear of. There was another post from a mom

last month. I think her handle was missingma. You can do a search.

If someone actually put up a fit maybe they would better train their

orthotists. If they tell you today that everything looks fine I would

really question their competence.

Good luck today. You're on my mind!

[Guest guest]

beth,

I am so sorry! I saw the pictures and understand your concern.

NOPCO has a reputation of playing CYA when they cause an additional

deformity. PLease remember that today. Since your neuro didn't seem

to be very CT friendly can you take Aidan to a plastic surgeon?

This must have happened really quickly. Did CT take pictures at last

week's consult? I would call them and email them your pictures to see

what they think.

Please consider taking a stand against NOPCO. It is nice to hear of

good things from there but they shouldn't also be coupled with the

frequent problems that we hear of. There was another post from a mom

last month. I think her handle was missingma. You can do a search.

If someone actually put up a fit maybe they would better train their

orthotists. If they tell you today that everything looks fine I would

really question their competence.

Good luck today. You're on my mind!

[Guest guest]

Wow, that does appear to be a very pronounced difference. Hopefully

the angle of the head/camera is contributing to it some. Definitely

keep that helmet off him and seek treatment elsewhere. Don't give

them another chance after already making his head worse. His head

can improve 9mm to 5mm in asymmetry and also gain height and

forehead angling at the same time. The shape of the band and the

forces it applies can easily deform the head if the helmet is not

addressing the proper areas--either b/c of a bad scan, cast, or

inexperienced ortho. I'm glad you guys noticed that now b/c once

you have established height there is no way to " push " it back down.

All you can do is get a properly fitting helmet that will keep him

from gaining anymore height and allow the other parts of his head to

catch up. As the growth is redirected to other areas the height

will soften. So yes, it can get better in the area they're

measuring, but worse in other areas. The helmet may have been too

tight in areas where it shouldn't have been, therefore leaving the

only way to grow as upward. The head won't naturally grow upward--

only when there is an outside force making do that--like a bouncy

seat, swing, or ill fitting band. It's difficult b/c you

can't " fix " height once it's established by pushing it back in like

I said, so you need to get him in a proper fitting band ASAP so he

doesn't get any more height. I'd consider taking action against

that helmet provider if those pictures indeed reflect that much

worsening in reality. Good luck!

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

>

> > > > >

> > > > > Guys,

> > > > >

> > > > > We took Aidans bi weekly head pictures tonight and his

head

> looks

> > > > like an alien!!!!! Hes

> > > > > getting increased head height, less than one week after we

> went to

> > > > the neurosurgeon and he

> > > > > said all was fine. We even talked about increased head

> height, and I

> > > > ASKED if he thought

> > > > > Aidan had that. He said no. PLEASE look at the pictures in

> the

> > > > photos section under Aidan C.

> > > > >

> > > > > I am beside myself!! Even my husband is freaking out, and

he

> is

> > > > usually the calmer one. Were

> > > > > going tomorrow morning right over there. What am I going

to

> do?? I

> > > > know they are going to

> > > > > say it will work itself out and argue that " its fine. " Its

> NOT

> > > > fine!! They cant take the front part

> > > > > of that helmet out, or take out the foam without

> compromising the

> > > > rest of the helmets

> > > > > effectiveness. I cant see how theyre going to solve this.

> Aidan is

> > > > only at 5mm, hes not done

> > > > > yet with his treatment. Help!

> > > > >

> > > > > Frustrated beyond belief,

> > > > >

> > > > > beth

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Wow, that does appear to be a very pronounced difference. Hopefully

the angle of the head/camera is contributing to it some. Definitely

keep that helmet off him and seek treatment elsewhere. Don't give

them another chance after already making his head worse. His head

can improve 9mm to 5mm in asymmetry and also gain height and

forehead angling at the same time. The shape of the band and the

forces it applies can easily deform the head if the helmet is not

addressing the proper areas--either b/c of a bad scan, cast, or

inexperienced ortho. I'm glad you guys noticed that now b/c once

you have established height there is no way to " push " it back down.

All you can do is get a properly fitting helmet that will keep him

from gaining anymore height and allow the other parts of his head to

catch up. As the growth is redirected to other areas the height

will soften. So yes, it can get better in the area they're

measuring, but worse in other areas. The helmet may have been too

tight in areas where it shouldn't have been, therefore leaving the

only way to grow as upward. The head won't naturally grow upward--

only when there is an outside force making do that--like a bouncy

seat, swing, or ill fitting band. It's difficult b/c you

can't " fix " height once it's established by pushing it back in like

I said, so you need to get him in a proper fitting band ASAP so he

doesn't get any more height. I'd consider taking action against

that helmet provider if those pictures indeed reflect that much

worsening in reality. Good luck!

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

>

> > > > >

> > > > > Guys,

> > > > >

> > > > > We took Aidans bi weekly head pictures tonight and his

head

> looks

> > > > like an alien!!!!! Hes

> > > > > getting increased head height, less than one week after we

> went to

> > > > the neurosurgeon and he

> > > > > said all was fine. We even talked about increased head

> height, and I

> > > > ASKED if he thought

> > > > > Aidan had that. He said no. PLEASE look at the pictures in

> the

> > > > photos section under Aidan C.

> > > > >

> > > > > I am beside myself!! Even my husband is freaking out, and

he

> is

> > > > usually the calmer one. Were

> > > > > going tomorrow morning right over there. What am I going

to

> do?? I

> > > > know they are going to

> > > > > say it will work itself out and argue that " its fine. " Its

> NOT

> > > > fine!! They cant take the front part

> > > > > of that helmet out, or take out the foam without

> compromising the

> > > > rest of the helmets

> > > > > effectiveness. I cant see how theyre going to solve this.

> Aidan is

> > > > only at 5mm, hes not done

> > > > > yet with his treatment. Help!

> > > > >

> > > > > Frustrated beyond belief,

> > > > >

> > > > > beth

> > > > >

> > > >

> > >

> >

>

[Guest guest]

beth,

I just wanted to say that I am so sorry that you are going through

this and I hope that you can get your son in a different band or

what ever is needed to be done to fix this problem. Good Luck!

Isabelle 7 mos STARband 1/31/06

> > > > > >

> > > > > > Guys,

> > > > > >

> > > > > > We took Aidans bi weekly head pictures tonight and his

> head

> > looks

> > > > > like an alien!!!!! Hes

> > > > > > getting increased head height, less than one week after

we

> > went to

> > > > > the neurosurgeon and he

> > > > > > said all was fine. We even talked about increased head

> > height, and I

> > > > > ASKED if he thought

> > > > > > Aidan had that. He said no. PLEASE look at the pictures

in

> > the

> > > > > photos section under Aidan C.

> > > > > >

> > > > > > I am beside myself!! Even my husband is freaking out,

and

> he

> > is

> > > > > usually the calmer one. Were

> > > > > > going tomorrow morning right over there. What am I going

> to

> > do?? I

> > > > > know they are going to

> > > > > > say it will work itself out and argue that " its fine. "

Its

> > NOT

> > > > > fine!! They cant take the front part

> > > > > > of that helmet out, or take out the foam without

> > compromising the

> > > > > rest of the helmets

> > > > > > effectiveness. I cant see how theyre going to solve

this.

> > Aidan is

> > > > > only at 5mm, hes not done

> > > > > > yet with his treatment. Help!

> > > > > >

> > > > > > Frustrated beyond belief,

> > > > > >

> > > > > > beth

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

beth,

I just wanted to say that I am so sorry that you are going through

this and I hope that you can get your son in a different band or

what ever is needed to be done to fix this problem. Good Luck!

Isabelle 7 mos STARband 1/31/06

> > > > > >

> > > > > > Guys,

> > > > > >

> > > > > > We took Aidans bi weekly head pictures tonight and his

> head

> > looks

> > > > > like an alien!!!!! Hes

> > > > > > getting increased head height, less than one week after

we

> > went to

> > > > > the neurosurgeon and he

> > > > > > said all was fine. We even talked about increased head

> > height, and I

> > > > > ASKED if he thought

> > > > > > Aidan had that. He said no. PLEASE look at the pictures

in

> > the

> > > > > photos section under Aidan C.

> > > > > >

> > > > > > I am beside myself!! Even my husband is freaking out,

and

> he

> > is

> > > > > usually the calmer one. Were

> > > > > > going tomorrow morning right over there. What am I going

> to

> > do?? I

> > > > > know they are going to

> > > > > > say it will work itself out and argue that " its fine. "

Its

> > NOT

> > > > > fine!! They cant take the front part

> > > > > > of that helmet out, or take out the foam without

> > compromising the

> > > > > rest of the helmets

> > > > > > effectiveness. I cant see how theyre going to solve

this.

> > Aidan is

> > > > > only at 5mm, hes not done

> > > > > > yet with his treatment. Help!

> > > > > >

> > > > > > Frustrated beyond belief,

> > > > > >

> > > > > > beth

> > > > > >

> > > > >

> > > >

> > >

> >

>