Re: Cranial Cap

December 14, 2005

I'm a little slower with response time on the board here, but I seen

that you were discussing the craniocap. I, too, am in MN and with

our first son used the CranioCap. Amy in MN and I have met in

person, due to us both being at Gillette on the same day. We both

had awful results with the CranioCap, and due to them not believing

in 2nd castings, my son Jaxson ended up needing surgery to correct

his plagio. Dr Wood had said at his first appointment that Jax was

the worst case he's ever seen, and still wouldn't recast. We went

through, lightly, hell with our little guy and ending with surgery.

It shouldnt have to come to that.

Our newest addition, Eli, is getting a STARband. He too, has tort

and plagio. I am not sure the statistics on the STARband, but I have

to say, I X the CranioCap. It may work for some, but if you child is

at all severe, I wouldn't go with the craniocap.

I know I read a post that said you were most likely not going to

get the craniocap now... I wish you luck in whatever helmet you do

choose. But remember, because one helmet didnt work for one, doesnt

mean it wouldnt work for another. I just don't like the

CranioCap. You can certainly contact me off the board as well if

you want.. I check my email frequently.

Kim

>

> Thanks for the response. I have been talking to Amy. Is that who

the person

> you are mentioning is? She has some not so good things to say

about the

> cranial cap. Sounds like he is doing good tolerating it but not

progressing

> so far. Wish you luck for your grandson and please do keep me

posted. Any

> info helps.

>

> <http://www.tickercentral.com/>

>

> Sammy's first Website: <http://www.babiesonline.com/babies/s/sam/>

> http://www.babiesonline.com/babies/s/sam/

> Password:6789

>

> Come Join us:

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>

> Re: Cranial Cap

>

> , my grandson in Mn got his Cranial Cap November 21 - has

been back to

> the clinic once..not too much change so I hear...but he adjusted

to it right

> away. It is a passive appliance so I am told..he was diag. with

mild plagio

> which the baby dr. said would round itself out on its own, but his

parents

> did not want to take the chance. I had a great email from another

gal in Mn

> - I will send a copy of it to you..she used the Cranial Cap - I

think they

> eventually went on to another band after the Cranial...I will keep

you

> posted on our progress. Our little guy is 11 months old...so

might be a bit

> old for this. I hope not.

>

> Grandma Phyllis...Grandson KM in Minneapolis...11 months old -

mild plagio.

>

> --- In Plagiocephaly , " " <mullin987@c...>

wrote:

> >

> > I am going to get my son, Sammy, casted for a cranial cap after

Christmas.

> > Thought the holidays are a little to hectic to make sure to get

in and

> > everything. Also need to see what amount the insurance is going

to cover.

> He

> > will be six months on December 24th. What has been your

experience with

> the

> > cranial cap? Pro's and con's??? Thanks for your replies ahead of

time.

> Also

> > I should mention they diagnosed him with mild to moderate

plagiocephaly.

> He

> > is 100% better for his torticollis so he sleeps on both sides.

Mainly the

> > left because we keep him off his right. His ears are alligned.

USe to not

> be

> > but now have now that the torticollis is better.

> >

> > <http://www.tickercentral.com/>

> >

> > Sammy's first Website:

<http://www.babiesonline.com/babies/s/sam/>

> > http://www.babiesonline.com/babies/s/sam/

> > Password:6789

> >

> > Come Join us:

> > <mailto:first_time_preg_to_parent-subscribe

> > first_time_preg_to_parent-subscribe

> >

>

> For more plagio info

December 14, 2005