Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 I'm a little slower with response time on the board here, but I seen that you were discussing the craniocap. I, too, am in MN and with our first son used the CranioCap. Amy in MN and I have met in person, due to us both being at Gillette on the same day. We both had awful results with the CranioCap, and due to them not believing in 2nd castings, my son Jaxson ended up needing surgery to correct his plagio. Dr Wood had said at his first appointment that Jax was the worst case he's ever seen, and still wouldn't recast. We went through, lightly, hell with our little guy and ending with surgery. It shouldnt have to come to that. Our newest addition, Eli, is getting a STARband. He too, has tort and plagio. I am not sure the statistics on the STARband, but I have to say, I X the CranioCap. It may work for some, but if you child is at all severe, I wouldn't go with the craniocap. I know I read a post that said you were most likely not going to get the craniocap now... I wish you luck in whatever helmet you do choose. But remember, because one helmet didnt work for one, doesnt mean it wouldnt work for another. I just don't like the CranioCap. You can certainly contact me off the board as well if you want.. I check my email frequently. Kim > > Thanks for the response. I have been talking to Amy. Is that who the person > you are mentioning is? She has some not so good things to say about the > cranial cap. Sounds like he is doing good tolerating it but not progressing > so far. Wish you luck for your grandson and please do keep me posted. Any > info helps. > > > <http://www.tickercentral.com/> > > > Sammy's first Website: <http://www.babiesonline.com/babies/s/sam/> > http://www.babiesonline.com/babies/s/sam/ > Password:6789 > > Come Join us: > <mailto:first_time_preg_to_parent-subscribe > > first_time_preg_to_parent-subscribe > > Re: Cranial Cap > > > > , my grandson in Mn got his Cranial Cap November 21 - has been back to > the clinic once..not too much change so I hear...but he adjusted to it right > away. It is a passive appliance so I am told..he was diag. with mild plagio > which the baby dr. said would round itself out on its own, but his parents > did not want to take the chance. I had a great email from another gal in Mn > - I will send a copy of it to you..she used the Cranial Cap - I think they > eventually went on to another band after the Cranial...I will keep you > posted on our progress. Our little guy is 11 months old...so might be a bit > old for this. I hope not. > > Grandma Phyllis...Grandson KM in Minneapolis...11 months old - mild plagio. > > > --- In Plagiocephaly , " " <mullin987@c...> wrote: > > > > I am going to get my son, Sammy, casted for a cranial cap after Christmas. > > Thought the holidays are a little to hectic to make sure to get in and > > everything. Also need to see what amount the insurance is going to cover. > He > > will be six months on December 24th. What has been your experience with > the > > cranial cap? Pro's and con's??? Thanks for your replies ahead of time. > Also > > I should mention they diagnosed him with mild to moderate plagiocephaly. > He > > is 100% better for his torticollis so he sleeps on both sides. Mainly the > > left because we keep him off his right. His ears are alligned. USe to not > be > > but now have now that the torticollis is better. > > > > > > <http://www.tickercentral.com/> > > > > > > Sammy's first Website: <http://www.babiesonline.com/babies/s/sam/> > > http://www.babiesonline.com/babies/s/sam/ > > Password:6789 > > > > Come Join us: > > <mailto:first_time_preg_to_parent-subscribe > > first_time_preg_to_parent-subscribe > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 I'm a little slower with response time on the board here, but I seen that you were discussing the craniocap. I, too, am in MN and with our first son used the CranioCap. Amy in MN and I have met in person, due to us both being at Gillette on the same day. We both had awful results with the CranioCap, and due to them not believing in 2nd castings, my son Jaxson ended up needing surgery to correct his plagio. Dr Wood had said at his first appointment that Jax was the worst case he's ever seen, and still wouldn't recast. We went through, lightly, hell with our little guy and ending with surgery. It shouldnt have to come to that. Our newest addition, Eli, is getting a STARband. He too, has tort and plagio. I am not sure the statistics on the STARband, but I have to say, I X the CranioCap. It may work for some, but if you child is at all severe, I wouldn't go with the craniocap. I know I read a post that said you were most likely not going to get the craniocap now... I wish you luck in whatever helmet you do choose. But remember, because one helmet didnt work for one, doesnt mean it wouldnt work for another. I just don't like the CranioCap. You can certainly contact me off the board as well if you want.. I check my email frequently. Kim > > Thanks for the response. I have been talking to Amy. Is that who the person > you are mentioning is? She has some not so good things to say about the > cranial cap. Sounds like he is doing good tolerating it but not progressing > so far. Wish you luck for your grandson and please do keep me posted. Any > info helps. > > > <http://www.tickercentral.com/> > > > Sammy's first Website: <http://www.babiesonline.com/babies/s/sam/> > http://www.babiesonline.com/babies/s/sam/ > Password:6789 > > Come Join us: > <mailto:first_time_preg_to_parent-subscribe > > first_time_preg_to_parent-subscribe > > Re: Cranial Cap > > > > , my grandson in Mn got his Cranial Cap November 21 - has been back to > the clinic once..not too much change so I hear...but he adjusted to it right > away. It is a passive appliance so I am told..he was diag. with mild plagio > which the baby dr. said would round itself out on its own, but his parents > did not want to take the chance. I had a great email from another gal in Mn > - I will send a copy of it to you..she used the Cranial Cap - I think they > eventually went on to another band after the Cranial...I will keep you > posted on our progress. Our little guy is 11 months old...so might be a bit > old for this. I hope not. > > Grandma Phyllis...Grandson KM in Minneapolis...11 months old - mild plagio. > > > --- In Plagiocephaly , " " <mullin987@c...> wrote: > > > > I am going to get my son, Sammy, casted for a cranial cap after Christmas. > > Thought the holidays are a little to hectic to make sure to get in and > > everything. Also need to see what amount the insurance is going to cover. > He > > will be six months on December 24th. What has been your experience with > the > > cranial cap? Pro's and con's??? Thanks for your replies ahead of time. > Also > > I should mention they diagnosed him with mild to moderate plagiocephaly. > He > > is 100% better for his torticollis so he sleeps on both sides. Mainly the > > left because we keep him off his right. His ears are alligned. USe to not > be > > but now have now that the torticollis is better. > > > > > > <http://www.tickercentral.com/> > > > > > > Sammy's first Website: <http://www.babiesonline.com/babies/s/sam/> > > http://www.babiesonline.com/babies/s/sam/ > > Password:6789 > > > > Come Join us: > > <mailto:first_time_preg_to_parent-subscribe > > first_time_preg_to_parent-subscribe > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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