Re: I am new and a little numb.

[Guest guest]

Pamela,

I'm glad you found our group first of all, alot of what you describe sounds

very firmilar at least to me. I would say first off that I think you should

go to a Rheumatoligist...Have you been to one yet? I think that would be the

best place to start. I'm not a dr . and don't want to or would'nt even think

to diagnose you so start there. I really think that they would be able to

help you. Where do you live? There is a site on here where it tells you a

good doctors list for treating these type of symptoms. If you want I can look

for it and send it to you. You'll find alot of support here . All of the

members in this group are wonderful!

Good luck to you!

[Guest guest]

Pamela,

I'm glad you found our group first of all, alot of what you describe sounds

very firmilar at least to me. I would say first off that I think you should

go to a Rheumatoligist...Have you been to one yet? I think that would be the

best place to start. I'm not a dr . and don't want to or would'nt even think

to diagnose you so start there. I really think that they would be able to

help you. Where do you live? There is a site on here where it tells you a

good doctors list for treating these type of symptoms. If you want I can look

for it and send it to you. You'll find alot of support here . All of the

members in this group are wonderful!

Good luck to you!

[Guest guest]

Pamela,

I'm glad you found our group first of all, alot of what you describe sounds

very firmilar at least to me. I would say first off that I think you should

go to a Rheumatoligist...Have you been to one yet? I think that would be the

best place to start. I'm not a dr . and don't want to or would'nt even think

to diagnose you so start there. I really think that they would be able to

help you. Where do you live? There is a site on here where it tells you a

good doctors list for treating these type of symptoms. If you want I can look

for it and send it to you. You'll find alot of support here . All of the

members in this group are wonderful!

Good luck to you!

[Guest guest]

, I really appreciate any direction that I can get. I will make an

appointment tomorrow for a rheumatologist. I am in Salt Lake City, Utah and

hopefully will be able to find someone. I remember seeing a link to a list

earlier today and will end up going back and reading all those sites again. I

am sure that I will come acrossed it again. Thanks for your reply and for

reading my long e-mail!

Sincerely, Pamela Rauch

[Guest guest]

, I really appreciate any direction that I can get. I will make an

appointment tomorrow for a rheumatologist. I am in Salt Lake City, Utah and

hopefully will be able to find someone. I remember seeing a link to a list

earlier today and will end up going back and reading all those sites again. I

am sure that I will come acrossed it again. Thanks for your reply and for

reading my long e-mail!

Sincerely, Pamela Rauch

[Guest guest]

, I really appreciate any direction that I can get. I will make an

appointment tomorrow for a rheumatologist. I am in Salt Lake City, Utah and

hopefully will be able to find someone. I remember seeing a link to a list

earlier today and will end up going back and reading all those sites again. I

am sure that I will come acrossed it again. Thanks for your reply and for

reading my long e-mail!

Sincerely, Pamela Rauch

[Guest guest]

Hi Pamela,

You're original email reminded me of all the tests and all the years that went

by before I finally got a diagnosis and some useful treatment. I agree with

about seeing a rheumatoglogist. That's a very good place to start. If

he/she knows his/her 'stuff' when it comes to fibro, you will be checked over

very thoroughly from head to toe - including many questions about headache and

abdominal pain. A

word of caution - some rheumatoglogists don't know much about fibro and will

want to treat your pain with arthritis medicine. For most fibro patients,

arthritis medicine doesn't do much (if any) good.

Check around and find a rheumatoglogist that knows about fibro. Finding a

knowledgeable physician will save you a lot of time, money, and dashed hopes

from trying next to useless medications and other treatments.

Lyndi

PS - Years ago I asked my family doctor if the pain I was experiencing might be

psychiatric in origin. He said no. I was disappointed by that answer. I was

hoping that I was a hypochondriac because then I could go to a psychiatrist and

be cured!!!

Pamela Rauch wrote:

> , I really appreciate any direction that I can get. I will make an

appointment tomorrow for a rheumatologist. I am in Salt Lake City, Utah and

hopefully will be able to find someone. I remember seeing a link to a list

earlier today and will end up going back and reading all those sites again. I

am sure that I will come acrossed it again. Thanks for your reply and for

reading my long e-mail!

> Sincerely, Pamela Rauch

>

>

[Guest guest]

Hi Pamela,

You're original email reminded me of all the tests and all the years that went

by before I finally got a diagnosis and some useful treatment. I agree with

about seeing a rheumatoglogist. That's a very good place to start. If

he/she knows his/her 'stuff' when it comes to fibro, you will be checked over

very thoroughly from head to toe - including many questions about headache and

abdominal pain. A

word of caution - some rheumatoglogists don't know much about fibro and will

want to treat your pain with arthritis medicine. For most fibro patients,

arthritis medicine doesn't do much (if any) good.

Check around and find a rheumatoglogist that knows about fibro. Finding a

knowledgeable physician will save you a lot of time, money, and dashed hopes

from trying next to useless medications and other treatments.

Lyndi

PS - Years ago I asked my family doctor if the pain I was experiencing might be

psychiatric in origin. He said no. I was disappointed by that answer. I was

hoping that I was a hypochondriac because then I could go to a psychiatrist and

be cured!!!

Pamela Rauch wrote:

> , I really appreciate any direction that I can get. I will make an

appointment tomorrow for a rheumatologist. I am in Salt Lake City, Utah and

hopefully will be able to find someone. I remember seeing a link to a list

earlier today and will end up going back and reading all those sites again. I

am sure that I will come acrossed it again. Thanks for your reply and for

reading my long e-mail!

> Sincerely, Pamela Rauch

>

>

[Guest guest]

Hi Pamela,

You're original email reminded me of all the tests and all the years that went

by before I finally got a diagnosis and some useful treatment. I agree with

about seeing a rheumatoglogist. That's a very good place to start. If

he/she knows his/her 'stuff' when it comes to fibro, you will be checked over

very thoroughly from head to toe - including many questions about headache and

abdominal pain. A

word of caution - some rheumatoglogists don't know much about fibro and will

want to treat your pain with arthritis medicine. For most fibro patients,

arthritis medicine doesn't do much (if any) good.

Check around and find a rheumatoglogist that knows about fibro. Finding a

knowledgeable physician will save you a lot of time, money, and dashed hopes

from trying next to useless medications and other treatments.

Lyndi

PS - Years ago I asked my family doctor if the pain I was experiencing might be

psychiatric in origin. He said no. I was disappointed by that answer. I was

hoping that I was a hypochondriac because then I could go to a psychiatrist and

be cured!!!

Pamela Rauch wrote:

> , I really appreciate any direction that I can get. I will make an

appointment tomorrow for a rheumatologist. I am in Salt Lake City, Utah and

hopefully will be able to find someone. I remember seeing a link to a list

earlier today and will end up going back and reading all those sites again. I

am sure that I will come acrossed it again. Thanks for your reply and for

reading my long e-mail!

> Sincerely, Pamela Rauch

>

>

[Guest guest]

Thanks Lyndi, I have my Insurance list out on the table already and there are a

few rheumotologists on it. I just have to wait unti 8, when I can call. I feel

such an urgency to get in. It has been so long, that now, I just want to get in

and get it over with. Get on with life~

Sincerely, Pamela Rauch

[Guest guest]

Thanks Lyndi, I have my Insurance list out on the table already and there are a

few rheumotologists on it. I just have to wait unti 8, when I can call. I feel

such an urgency to get in. It has been so long, that now, I just want to get in

and get it over with. Get on with life~

Sincerely, Pamela Rauch

[Guest guest]

Thanks Lyndi, I have my Insurance list out on the table already and there are a

few rheumotologists on it. I just have to wait unti 8, when I can call. I feel

such an urgency to get in. It has been so long, that now, I just want to get in

and get it over with. Get on with life~

Sincerely, Pamela Rauch

[Guest guest]

In a message dated 11/01/2001 9:07:41 AM US Eastern Standard Time,

dave.n.pam@... writes:

> I just want to get in and get it over with. Get on with life~

>

Pam,

You sound like me...There are deffinately not very many Rheumy's in this

wonderful state of Indiana that is forsure. I asked my mom and dad if they

would let me see this new Rheumy that Lyndi went to and they said no...

I am soo frustrated right now..I know its hard to pay bills and make a

living, but its like because they owe 100.00 to my current rheumy they refuse

to let me go to a different that will run blood tests...and etc...

The current Rheumy I have now she has never performed one single blood

test on me since the day I walked in her office and actually she isn't even a

doctor she is a Nurse Practioner. The only thing she does is hand me another

batch of pills tells me to take it and go home...

I am soo Over medicated right now I sleep anywhere from 10- 20 hours a

day. Its so frustrating. I just don't know what to do.

Sorry about all the complaining....I started this letter to congradulate

you on getting in to this guy. Lyndi said he is a really nice guy...sure wish

I could get in there...I will pray for ya'll. Have a good week.

Allicia

[Guest guest]

In a message dated 11/01/2001 9:07:41 AM US Eastern Standard Time,

dave.n.pam@... writes:

> I just want to get in and get it over with. Get on with life~

>

Pam,

You sound like me...There are deffinately not very many Rheumy's in this

wonderful state of Indiana that is forsure. I asked my mom and dad if they

would let me see this new Rheumy that Lyndi went to and they said no...

I am soo frustrated right now..I know its hard to pay bills and make a

living, but its like because they owe 100.00 to my current rheumy they refuse

to let me go to a different that will run blood tests...and etc...

The current Rheumy I have now she has never performed one single blood

test on me since the day I walked in her office and actually she isn't even a

doctor she is a Nurse Practioner. The only thing she does is hand me another

batch of pills tells me to take it and go home...

I am soo Over medicated right now I sleep anywhere from 10- 20 hours a

day. Its so frustrating. I just don't know what to do.

Sorry about all the complaining....I started this letter to congradulate

you on getting in to this guy. Lyndi said he is a really nice guy...sure wish

I could get in there...I will pray for ya'll. Have a good week.

Allicia

[Guest guest]

In a message dated 11/01/2001 9:07:41 AM US Eastern Standard Time,

dave.n.pam@... writes:

> I just want to get in and get it over with. Get on with life~

>

Pam,

You sound like me...There are deffinately not very many Rheumy's in this

wonderful state of Indiana that is forsure. I asked my mom and dad if they

would let me see this new Rheumy that Lyndi went to and they said no...

I am soo frustrated right now..I know its hard to pay bills and make a

living, but its like because they owe 100.00 to my current rheumy they refuse

to let me go to a different that will run blood tests...and etc...

The current Rheumy I have now she has never performed one single blood

test on me since the day I walked in her office and actually she isn't even a

doctor she is a Nurse Practioner. The only thing she does is hand me another

batch of pills tells me to take it and go home...

I am soo Over medicated right now I sleep anywhere from 10- 20 hours a

day. Its so frustrating. I just don't know what to do.

Sorry about all the complaining....I started this letter to congradulate

you on getting in to this guy. Lyndi said he is a really nice guy...sure wish

I could get in there...I will pray for ya'll. Have a good week.

Allicia

[Guest guest]

Pamela,

Your welcome and good luck! Let me know if you don't find the drs. list...

[Guest guest]

Pamela,

Your welcome and good luck! Let me know if you don't find the drs. list...

[Guest guest]

Pamela,

Your welcome and good luck! Let me know if you don't find the drs. list...

[Guest guest]

Lyndi, I found the dr.s list and there was one listed in our area, but called

and it is a pain clinic. Can they diagnose fms at a pain clinic? It is the

only list of dr's that I have found so far.

Sincerely, Pamela Rauch

Re: I am new and a little numb.

Pamela,

Your welcome and good luck! Let me know if you don't find the drs. list...

[Guest guest]

Hello & welcome. Wow, this sounds like I wrote it. I

say the same things that you said in this post all the

time, so I do understand where you are coming from

with all of this. I am 33 years old & I also feel too

young to feel so old. I have a husband & two children

& a home to take care of & I hurt so bad all the time

that I can barely do it. If it wasn't for the help of

my family, I would be in serious trouble. I can't

work, so it makes money matters tight at home & it

hard for me to make any commitments because I can't

trust my back not to go out on me. I have seen the

doctors, take many different meds & tried many

different techniques, but still have back spasms so

bad that I can't walk, still so tired that I feel like

I'm getting 2 hours sleep everyday & feel like I'm 100

years old.

Finding this board & posting is a big step because

just knowing that you are not alone & that others feel

like you do can help so much. I would do some

research on the internet about fms & bring it to your

doctor & discuss this with them. If they have found

no other illness than it is very likely from what you

say that this is what you have. Maybe going in

informed will help. It can be hard to find a doctor

who understands, but they are out there. Take care of

yourself & keep us posted. The one good thing I can

say is that there is so much more known about fms now

than when I was first told I had fms 8 years ago.

There is hope.

Diane

--- Pamela Rauch wrote:

> Figuratively and literally.

>

> I don't even know where to start. I could start

> describing myself from my toes up, or just assume

> that if this is what I have, then you all " just

> know " .

>

> I have been searching for the past 3 years trying to

> figure out what is " wrong " with me. I am so tired

> that I am a zombie.

>

> First, I was diagnosed with hypothyroid and put on

> medication. I have had headaches for years and have

> had no explanation. They are migraines sometimes,

> but mostly a constant headache in my face, head,

> neck, and shoulders. I am telling you, I have seen

> sooooo many doctors about this and noone ever

> mentioned that it could be FMS. Or the myofacial

> thing. I have been wearing splints on my wrists for

> carpul tunnel syndrome for 2 yrs and my fingers and

> toes are often numb. I wear a very expensive mouth

> guard for bruxixm and TMD. In the past year I had a

> sleep study and they said that I have " Idiopathic

> Hypersomnalence " and don't have REM sleep. The

> diagnosis is very general and just means that I am

> really tired and they don't know why. They put me

> on Ritalin for the constant numb " Fog " and

> tiredness. I have also been going back and forth to

> a Gyn. for abdominal pain and had several tests,

> short of Laperoscopy, which is supposed to be next.

> They have though that I have endometriosis from the

> constant pain and EXTREME pain during menses. I

> can't take the hormones that they want me to try for

> this pain because I already get so nauseaous,

> without the extra nausea from the hormones! I hurt

> every morning and take tylenol and ibuprofin several

> times a day. Always four of each and this only

> takes the edge off of the pain in my neck etc... I

> have taken these for years. I have told every one

> of my doctors that there HAS to be " Something "

> causing everything (I haven't even told you about

> " everything " but figured this is getting long

> enough) and they all just tell me they don't know

> what is causing all of this. Whey has noone even

> mentioned FMS to me? I have been reading all day

> and just can't even believe that there is finally an

> actual explanation.

>

> I have had noone to vent this to except my husband

> and I know that he is feeling tired and frustrated

> with all of this too. I feel like a hypochondriac,

> but know that I am not. I appreciate you all

> reading this. I feel like I am going to go crazy if

> I don't find a way to feel better. I didn't even

> mention that in spite of my exhaustion, many nights

> I can't sleep!

>

> I am turning 30 this month and feel too young to

> feel like I am old. I got married on the peak of a

> mountain only 6 years ago for crying out loud, and

> it was a breeze to hike! I have 2 children and am

> lucky enough right now to be a stay at home mom,

> although I don't think I could do anything else, to

> be honest. I have a daughter with special needs and

> I need to feel good to take care of my family. I

> don't have the convenience of feeling so horrible,

> but I do and feel pretty much at the end of my rope.

>

>

> I made an apointment to see my MD on Monday to

> discuss this diagnosis. I don't know if I should be

> going to a specialist or not, but figured this was a

> place to start. I have literally gone in with lists

> of my symptoms and said " Please try to figure this

> out " why has noone figured it out?

>

> I know that I probably sound very angry, but I am

> truly not. Just tired and frustrated. I think I

> have been hoping that " it " would just go away. I

> feel like crying, because I know in my heart that it

> isn't going to and I never planned to be a " sickly "

> person. I am supposed to be young and energetic,

> doing lots of things that I can't do.

>

> I am grateful that there is the internet to help

> people like me find answers. There, I have to find

> something here today to feel grateful for. I am

> feeling hopeful that there is something that will

> help me feel better. Much of the time I feel my

> arms, neck, and head and all connected to one

> rubberband and it starts to get tighter and tighter

> until I can't stand it and my husband rubs these

> hard Knots all over my neck (even on the front of

> it!) and it is excruciating for the rubbing part,

> but feels mildly better for a few days.

>

> Does any of this sound familiar? I am sorry this is

> so long. I really needed to get this out. Thanks

> for so much listening and for being there.

> Sincerely, Pamela Rauch

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hello & welcome. Wow, this sounds like I wrote it. I

say the same things that you said in this post all the

time, so I do understand where you are coming from

with all of this. I am 33 years old & I also feel too

young to feel so old. I have a husband & two children

& a home to take care of & I hurt so bad all the time

that I can barely do it. If it wasn't for the help of

my family, I would be in serious trouble. I can't

work, so it makes money matters tight at home & it

hard for me to make any commitments because I can't

trust my back not to go out on me. I have seen the

doctors, take many different meds & tried many

different techniques, but still have back spasms so

bad that I can't walk, still so tired that I feel like

I'm getting 2 hours sleep everyday & feel like I'm 100

years old.

Finding this board & posting is a big step because

just knowing that you are not alone & that others feel

like you do can help so much. I would do some

research on the internet about fms & bring it to your

doctor & discuss this with them. If they have found

no other illness than it is very likely from what you

say that this is what you have. Maybe going in

informed will help. It can be hard to find a doctor

who understands, but they are out there. Take care of

yourself & keep us posted. The one good thing I can

say is that there is so much more known about fms now

than when I was first told I had fms 8 years ago.

There is hope.

Diane

--- Pamela Rauch wrote:

> Figuratively and literally.

>

> I don't even know where to start. I could start

> describing myself from my toes up, or just assume

> that if this is what I have, then you all " just

> know " .

>

> I have been searching for the past 3 years trying to

> figure out what is " wrong " with me. I am so tired

> that I am a zombie.

>

> First, I was diagnosed with hypothyroid and put on

> medication. I have had headaches for years and have

> had no explanation. They are migraines sometimes,

> but mostly a constant headache in my face, head,

> neck, and shoulders. I am telling you, I have seen

> sooooo many doctors about this and noone ever

> mentioned that it could be FMS. Or the myofacial

> thing. I have been wearing splints on my wrists for

> carpul tunnel syndrome for 2 yrs and my fingers and

> toes are often numb. I wear a very expensive mouth

> guard for bruxixm and TMD. In the past year I had a

> sleep study and they said that I have " Idiopathic

> Hypersomnalence " and don't have REM sleep. The

> diagnosis is very general and just means that I am

> really tired and they don't know why. They put me

> on Ritalin for the constant numb " Fog " and

> tiredness. I have also been going back and forth to

> a Gyn. for abdominal pain and had several tests,

> short of Laperoscopy, which is supposed to be next.

> They have though that I have endometriosis from the

> constant pain and EXTREME pain during menses. I

> can't take the hormones that they want me to try for

> this pain because I already get so nauseaous,

> without the extra nausea from the hormones! I hurt

> every morning and take tylenol and ibuprofin several

> times a day. Always four of each and this only

> takes the edge off of the pain in my neck etc... I

> have taken these for years. I have told every one

> of my doctors that there HAS to be " Something "

> causing everything (I haven't even told you about

> " everything " but figured this is getting long

> enough) and they all just tell me they don't know

> what is causing all of this. Whey has noone even

> mentioned FMS to me? I have been reading all day

> and just can't even believe that there is finally an

> actual explanation.

>

> I have had noone to vent this to except my husband

> and I know that he is feeling tired and frustrated

> with all of this too. I feel like a hypochondriac,

> but know that I am not. I appreciate you all

> reading this. I feel like I am going to go crazy if

> I don't find a way to feel better. I didn't even

> mention that in spite of my exhaustion, many nights

> I can't sleep!

>

> I am turning 30 this month and feel too young to

> feel like I am old. I got married on the peak of a

> mountain only 6 years ago for crying out loud, and

> it was a breeze to hike! I have 2 children and am

> lucky enough right now to be a stay at home mom,

> although I don't think I could do anything else, to

> be honest. I have a daughter with special needs and

> I need to feel good to take care of my family. I

> don't have the convenience of feeling so horrible,

> but I do and feel pretty much at the end of my rope.

>

>

> I made an apointment to see my MD on Monday to

> discuss this diagnosis. I don't know if I should be

> going to a specialist or not, but figured this was a

> place to start. I have literally gone in with lists

> of my symptoms and said " Please try to figure this

> out " why has noone figured it out?

>

> I know that I probably sound very angry, but I am

> truly not. Just tired and frustrated. I think I

> have been hoping that " it " would just go away. I

> feel like crying, because I know in my heart that it

> isn't going to and I never planned to be a " sickly "

> person. I am supposed to be young and energetic,

> doing lots of things that I can't do.

>

> I am grateful that there is the internet to help

> people like me find answers. There, I have to find

> something here today to feel grateful for. I am

> feeling hopeful that there is something that will

> help me feel better. Much of the time I feel my

> arms, neck, and head and all connected to one

> rubberband and it starts to get tighter and tighter

> until I can't stand it and my husband rubs these

> hard Knots all over my neck (even on the front of

> it!) and it is excruciating for the rubbing part,

> but feels mildly better for a few days.

>

> Does any of this sound familiar? I am sorry this is

> so long. I really needed to get this out. Thanks

> for so much listening and for being there.

> Sincerely, Pamela Rauch

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hello & welcome. Wow, this sounds like I wrote it. I

say the same things that you said in this post all the

time, so I do understand where you are coming from

with all of this. I am 33 years old & I also feel too

young to feel so old. I have a husband & two children

& a home to take care of & I hurt so bad all the time

that I can barely do it. If it wasn't for the help of

my family, I would be in serious trouble. I can't

work, so it makes money matters tight at home & it

hard for me to make any commitments because I can't

trust my back not to go out on me. I have seen the

doctors, take many different meds & tried many

different techniques, but still have back spasms so

bad that I can't walk, still so tired that I feel like

I'm getting 2 hours sleep everyday & feel like I'm 100

years old.

Finding this board & posting is a big step because

just knowing that you are not alone & that others feel

like you do can help so much. I would do some

research on the internet about fms & bring it to your

doctor & discuss this with them. If they have found

no other illness than it is very likely from what you

say that this is what you have. Maybe going in

informed will help. It can be hard to find a doctor

who understands, but they are out there. Take care of

yourself & keep us posted. The one good thing I can

say is that there is so much more known about fms now

than when I was first told I had fms 8 years ago.

There is hope.

Diane

--- Pamela Rauch wrote:

> Figuratively and literally.

>

> I don't even know where to start. I could start

> describing myself from my toes up, or just assume

> that if this is what I have, then you all " just

> know " .

>

> I have been searching for the past 3 years trying to

> figure out what is " wrong " with me. I am so tired

> that I am a zombie.

>

> First, I was diagnosed with hypothyroid and put on

> medication. I have had headaches for years and have

> had no explanation. They are migraines sometimes,

> but mostly a constant headache in my face, head,

> neck, and shoulders. I am telling you, I have seen

> sooooo many doctors about this and noone ever

> mentioned that it could be FMS. Or the myofacial

> thing. I have been wearing splints on my wrists for

> carpul tunnel syndrome for 2 yrs and my fingers and

> toes are often numb. I wear a very expensive mouth

> guard for bruxixm and TMD. In the past year I had a

> sleep study and they said that I have " Idiopathic

> Hypersomnalence " and don't have REM sleep. The

> diagnosis is very general and just means that I am

> really tired and they don't know why. They put me

> on Ritalin for the constant numb " Fog " and

> tiredness. I have also been going back and forth to

> a Gyn. for abdominal pain and had several tests,

> short of Laperoscopy, which is supposed to be next.

> They have though that I have endometriosis from the

> constant pain and EXTREME pain during menses. I

> can't take the hormones that they want me to try for

> this pain because I already get so nauseaous,

> without the extra nausea from the hormones! I hurt

> every morning and take tylenol and ibuprofin several

> times a day. Always four of each and this only

> takes the edge off of the pain in my neck etc... I

> have taken these for years. I have told every one

> of my doctors that there HAS to be " Something "

> causing everything (I haven't even told you about

> " everything " but figured this is getting long

> enough) and they all just tell me they don't know

> what is causing all of this. Whey has noone even

> mentioned FMS to me? I have been reading all day

> and just can't even believe that there is finally an

> actual explanation.

>

> I have had noone to vent this to except my husband

> and I know that he is feeling tired and frustrated

> with all of this too. I feel like a hypochondriac,

> but know that I am not. I appreciate you all

> reading this. I feel like I am going to go crazy if

> I don't find a way to feel better. I didn't even

> mention that in spite of my exhaustion, many nights

> I can't sleep!

>

> I am turning 30 this month and feel too young to

> feel like I am old. I got married on the peak of a

> mountain only 6 years ago for crying out loud, and

> it was a breeze to hike! I have 2 children and am

> lucky enough right now to be a stay at home mom,

> although I don't think I could do anything else, to

> be honest. I have a daughter with special needs and

> I need to feel good to take care of my family. I

> don't have the convenience of feeling so horrible,

> but I do and feel pretty much at the end of my rope.

>

>

> I made an apointment to see my MD on Monday to

> discuss this diagnosis. I don't know if I should be

> going to a specialist or not, but figured this was a

> place to start. I have literally gone in with lists

> of my symptoms and said " Please try to figure this

> out " why has noone figured it out?

>

> I know that I probably sound very angry, but I am

> truly not. Just tired and frustrated. I think I

> have been hoping that " it " would just go away. I

> feel like crying, because I know in my heart that it

> isn't going to and I never planned to be a " sickly "

> person. I am supposed to be young and energetic,

> doing lots of things that I can't do.

>

> I am grateful that there is the internet to help

> people like me find answers. There, I have to find

> something here today to feel grateful for. I am

> feeling hopeful that there is something that will

> help me feel better. Much of the time I feel my

> arms, neck, and head and all connected to one

> rubberband and it starts to get tighter and tighter

> until I can't stand it and my husband rubs these

> hard Knots all over my neck (even on the front of

> it!) and it is excruciating for the rubbing part,

> but feels mildly better for a few days.

>

> Does any of this sound familiar? I am sorry this is

> so long. I really needed to get this out. Thanks

> for so much listening and for being there.

> Sincerely, Pamela Rauch

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Diane, thanks. I have an appointment on Mon. and got in with a Rheumatologist

at the end of January. Some other things, do any of you have diabetes or

insulin resistance? Yet, another seemingly " noncoincidence " that I found on an

fms website. The only thing that I don't have in common with the symptoms is

falling over and vision problems. I have EVERYTHING else.

Also, is there a special diet that you all like to follow that helps? Low carb

seems to be mentioned a lot. Have you tried the " Zone " diet?

Sincerely, Pamela Rauch

[Guest guest]

Diane, thanks. I have an appointment on Mon. and got in with a Rheumatologist

at the end of January. Some other things, do any of you have diabetes or

insulin resistance? Yet, another seemingly " noncoincidence " that I found on an

fms website. The only thing that I don't have in common with the symptoms is

falling over and vision problems. I have EVERYTHING else.

Also, is there a special diet that you all like to follow that helps? Low carb

seems to be mentioned a lot. Have you tried the " Zone " diet?

Sincerely, Pamela Rauch

[Guest guest]

Diane, thanks. I have an appointment on Mon. and got in with a Rheumatologist

at the end of January. Some other things, do any of you have diabetes or

insulin resistance? Yet, another seemingly " noncoincidence " that I found on an

fms website. The only thing that I don't have in common with the symptoms is

falling over and vision problems. I have EVERYTHING else.

Also, is there a special diet that you all like to follow that helps? Low carb

seems to be mentioned a lot. Have you tried the " Zone " diet?

Sincerely, Pamela Rauch